A board for long-term side-effects?

I am not a long term bc survivor. However, it would give me a great deal of hope for my future to read posts of long term bc survivors and about their difficulties. What a great idea! You are pioneers. Thank you.

I can't wait to be an 8 year survivor someday!   Or, a 30 year survivor!  Or, an 80 year old woman! 

Binney--I think it's a very good idea.  At one time Moving beyond was the place to address those issues but as time has gone by the term has come to have a multitude of meanings---

Sometimes its hard to tell the difference between moving on and growing

our friendships.  Others feel the week they finish treatment its moving beyond and I guess it is.

But, many of us have much longer-term issues and it would be very appropriate to have a forum where those issues could be addressed --  A clear cut place to come instead of having to wonder whether this belongs in hormones etc.

Great suggestion!

I think it's a great idea. I'm seven years out and am doing ok, except for persistent fatigue. My onc recogonizes this as a possible SE of tx, but my internist doesn't see it as an SE of tx. Hooey!!!  It would be very helpful and affirming to have a place to talk about these issues. Thanks for the idea.

Cherryl

I agree...not a long term survivor yet...but I'm optimistic that I will be.  I think it would be quite interesting to read experiences of those further down the road...plus it would be an inspiration to see that there are a number of long term survivors.

Liz

OK, no flames, please, but I disagree.

I've thought we're way too segregated here in the first place.  When I see the Jan. rads or chemo or surgery groups, I am concerned because people who could benefit from their posts won't see the information presented OR needed.

I like moving beyond because it has a place for olbies and soon to be oldbies to share.  I believe we offer a place for all to share the various recoveries and yes, sometimes laughter or interesting discussions --- off topic of bc, but still within the part of all of us.

It shows us moving in a direction of recovery and is an excellent example of how to do it, IMO.

As far as discussing things that scare newbies, by the time they get to moving beyond they arn't really newbies.  To add to that, knowledge is power?  At least if they have some of the problems we discuss, they will know they aren't alone.

Ok, my 2cents and reasoning.

I'm with Dottie. I still have trouble navigating about this new format, but to add one more place to check might lead to not seeing all the applicable posts.

If everyone titles their posts specifically enough for those interested to see them, Moving Beyond should work.

Binney,

Love ya for the thought! You were there when I needed lymph info and was so very grateful.   Can I come aboard as a metastatic gal?  I have long term thoughts and concerns and some of you have already danced a few years ahead of me with treaments.  A place where we will not frighten anyone but get the facts and reality of what this condition brings on as we are able to live longer and I might add - be the guinea pigs for new drugs.

I started on the "just DX" board never thinking I would progress to needing the "chemo, radiation then lymphedema then metastatic" threads.  I too have a hard time finding a thread once posted as this is a mighty big forum.. but I vote for one more. I just hope I can remeber where in the H I have posted from one day to the next!!  See, there is the side effect issue again.

MJ