Jan 2008--Ain't it Great?
Comments
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He Sister Jewels,
Had treatment # 2 yesterday. I had yet another very painful experience with my port access it brought me to tears. I even had the FMLA cream on. I again had a newbie trying to get the needle in the port. She missed and hit the side of my port. She went and got a senior nurse she took needle out had to get a new needle and stuck me a second time. The 1 inch needle I was told to ask for stuck out 1/4 if an inch go figure the last time they said the 3/4 was to short now they say I should have had the 3/4 inch.And after all this when Igot home the DH yelled at me.
I feel lonely he was never one to show much affection but now is the time I NEED IT. I am just feeling sorry for my self I guess But a hug now and them would help.During my treatment (mom went with me) Some of the rooms there are shared rooms. There are 2 or 3 infusion lounges . I shared a room with a really nice lady going though lung cancer. She had to be there for a 5 hour infusion. She had a very cute hat on that she made. She said the web site is reversible chemo cap. It tied in the back. I have not been on until tonight and have not had a chance to check it out. Another web site is heavenlyhats.com they will sent you free hats,scarfs,or turbans.
Kimberly,Vettegal,JulieK Love the pics you all are beautiful baldies. you rock.
CHJ- I bought my biotene at Wal-Mart my hair cut into a short bob before my treatments (less to fall out) on day 14 my hair starting to come out really fast on day 15 I had it shaved.
Kathy,Jenn51 Sending well wishes and prayers your way.
I went and had Neulasta # 2 this afternoon feeling pretty tired tonight.
I do have some good news-Daughter made the Dean's List
I am also having trouble reading the post. i have to scroll from side to side to read everything.
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Carol,
I thought it was something I did to reset the page. If anyone knows how to get the posts back to fitting the page, please post for me too.
Loved the pictures, Julie K. I'm getting ready for my buzz. Hope I can be as brave as you all looked in your pics
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The problem with the formatting on the previous page (I had it too) is because of the size of the pictures - they have to fit, and so it makes everything on that page bigger. But the pictures are AWESOME, so who cares??? Thanks to the gorgeous girls who shared. And I noticed the smiles, too. Keep smiling, everyone!!
CHJ
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Found one web site for the hats the lady had made I met yesterday
http:/craftandfabriclinks.com/bonnet/ch..
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WVGirl - Sending {{{{{BIG HUGS}}}}}} your way. Sorry you had troubles with the port again. Sometimes men just don't get it. Just remember, we're all here for you! Congrats on your daughter making the Dean's list - that's awesome! Thanks for the website!
KathyL - sorry you've had to be in the hospital. Here's hoping they'll release you tomorrow! Take care of YOU!!
D1 - YAY for you!!! I'm so glad you had good news on the biopsy!!
Jenn51 - hang in there and take it easy. Your body will tell you what you need - don't over do it! Hope you have a wonderful b-day!!
Vettegal - LOVE the balditude! Your wig looks GREAT!!!!!
SIS Kimberly - LOVE the Mohawk!!! You are definitely a beautiful baldacious babe!! Keep smilin'!!
Get some rest over the weekend, sister Jewels! I'm hoping to be able to go back to work again next week on Tuesday - we'll see. As long as those "flu-like" symptoms stay at bay this time, I should be good to go!
Hugs to everyone!
Julie
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The pictures are awesome! You guys Rock!
Thanks D1 and Kathy with the info on the ANC values. Nowhere on my labwork does it say Gran# but my WBC values were pretty low. When my onc calls me back, I am going to ask what the count really was. I just hope it comes up enough that I can get back on the train for next week. I just stayed in today away from people and was lazy on the couch. Probably more of the same tomorrow.
Hope all the Jewels that got their treatments (who would have thought I would be jealous of that???) are keeping the se's at bay. Take it easy and don't overdo.
TTFN
Deb
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ITS ME HAPPY DANA........... HA HA HA HA
GUESS WHAT BLUECROSS HAS STOPPED ANY PRODECURES FOR ME DUE TO AN INVESTIGATION OF MY CANCER DIAGNOSE. THEY THINK I KNEW I HAD CANCER PRIOR TO FILLING OUT AN APPLICATION FOR INSURANCE FROM THEM. I GOT THE INSURANCE IN JULY 2007 BECAUSE I WAS LAID OFF FROM MY JOB IN APRIL AND COBRA WAS TOO EXPENSIVE SO I APPLIED TO THEM AND THEY APPROVED IT BUT NOW BECAUSE I WAS DIAGNOSED IN SEPTEMBER THEY ARE STOPPING ALL FURTHER MEDICAL NEEDS TO ME UNTIL THEY CONTACT MY DOCTORS, SURGEONS, AND PRIOR INSURANCE I HAD THROUGH KAISER AND BLUESHIELD (THRU MY LAST JOB) BECAUSE THEY WANT TO KNOW WHY I DIDNT INDICATE ON THE APPLICATION THAT I KNEW I HAD CANCER - WHICH I DIDNT UNTIL AFTER I WENT TO THE DR IN SEPTEMBER REGARDING THE BUMP UNDER MY ARMPIT. IF THEY DENY ME YOU WILL SEE ME ON TV BECAUSE I AM GOING TO THE TOP ABOUT THIS, THIS IS CRAZY! TO DENY SOMEONE BECAUSE THEY FOUND CANCER ON YOUR INSURANCE PLAN AND NOT ON SOMEONE ELSES PLAN....
WHEN IT RAINS FOR ME IT POURS BUT YOU KNOW WHAT LADIES THERE IS NO POINT TO STRESS OUT BECAUSE I KNOW GOD ONLY SQUEEZES HE DOESNT CHOKE - I HOPE THAT MAKES SENSE, I PRAY THAT I PREVAIL OUT OF ALL THIS BECAUSE MY CANCER IS NOT BEING CURED RIGHT NOW.
PLEASE IF ANY OF YOU CAN PRAY HARDER FOR ME PLEASE DO BECAUSE I NEED THEM BADLY. HERE I AM TRYING TO DO RIGHT AND PAY FOR INSURANCE AND THEY ARE GOING TO CANCEL ME AND MAKE ME GO TO MEDICAL (LOW INCOME INSURANCE). WHICH I AM NOT ASHAMED OF BUT I WAS TRYING TO BE A GOOD CITIZEN. AND GOOODDDDDDDD I PRAY THEY MEDICAL WILL APPROVE ME OR I AM JUST GOING TO - OH I DONT WANT TO SAY IT.
PLEASE AGAIN PRAY FOR ME. I LOVE YOU LADIES GOODNIGHT......
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Hi D1, I am feeling much better tonight, the doctor changed me to nepogen (not spelled right) shots and they are a little easier on me.
Well, 2 down 6 to go, I kept thinking about the little train that could while I was doing chemo. I hope that you have a wonderful week & that your next chemo will sail by.
Kimberly you look great, I love the mohawk look. I buzzed mine off last week but I still have stubble, wondering now if
I did it to soon.
My husband did mine, well I had to start a strip right down the middle and he finished it off for me. We didn't have human clippers so we used my dog clippers but hey it worked.
Sometime maybe I will get the nerve to post a pic.
I hope that you have an awesome week.
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dana-sorry to hear about you health insurance crap..I swear they try to get us coming or going.Keep you faith.
Forgot to mention what my chemo nurse was telling me about our periods and sex..Ok may be some bad words but here goes
Most likley we will lose our period when we take tamoxifan. The chemo part will make our period very erratic and probably heavy( like i don't have that now!)
Now the sex thing. You can have sex BUT the first week they suggest a condem becaue the chemo can pass thru vaginal secretians to your husband/boyfriend...so they suggest waiting a week for any sex with out condems. they say the chemotini last up to 3-7 days in your system...
Made it thru the first day ok, looked at my tongue today was a lil white so ibrushed it and i had a diflucan pill from the dr i saved because the antibiotics iwas on prior when i was sick can cause yeast infections..so i saved it and took it today, it last about 3-4 in your system..just in case the thrush comes...
How is everyone else doing this am?
Heading out to have my weekly breakfast out on sunday with the family....Don't want to let anything hold me back from doing my routine stuff...
Hugs to all the sisters.....xxxooo
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Hi Ladies! All the photos look great! I have some to post, but can't find the directions D1 posted a while back to get them on. Can anyone help?
Dana - That is awful. I will definitely keep you in prayers. I hope it all works out for you. It is bad enough having to deal with this illness and then fighting with insurance companies is just ridiculous.
wvgirl - sorry to hear about your troubles. I agree, sometimes men just don't get it! Keeping you in thought and sending you good vibes!
Kathy - hope you get to get home today! What does ANC stand for?
Thanks for all the headcoving links, ladies. I have a friend staying with me for the weekend and she is making me some scarves. It has been fun.
Steroids are still in gear, so haven't started with too many se's. Same stomach ache the first day or so and trying to head off the constipation. I can feel the stuffiness and dryness coming on in my mouth and nose. I really want to try and stay ahead of all this. I have a feeling I am going to be a bit more tired this round. We'll see.
Have a great day everyone!
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Good morning, all! I just wanted to make a quick comment about what vettegal said about periods. The first time I had bc (dx in 1994) I was 39. I had 4 rounds of AC, then 5 years of tamoxifin. In the late part of chemo, I lost my period for about 6 months, but then it came back, pretty regular until I went into menopause in late 2004. Everyone's experience is different, of course, but I just wanted you to know it isn't a lost cause!! Actually I was kinda hoping that my period would just stop altogether (we didn't want kids anyway) but it didn't, and in reality, it's better that way for my overall health.
Dana - that's so ridiculous about your health insurance! They are all about getting the money and paying out as little as possible. Will keep you in prayer about that. Hang in there, girl.
Hope everyone who had tx this week is feeling decent.
CHJ
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Dana -- contact the State Insurance Commissioner's Office and file a complaint. The number is 1-800-927-HELP. BlueCross has been fined many times in the past by the state for this sort of nonsense. In the meantime, call the Komen Foundation (1-800-GO KOMEN) and see if they can help you. I have a friend who had breast cancer about 10 years ago when she didn't have insurance and she received a grant from the Komen Foundation to pay for some of her care. I would also call the social worker at your hospital and see if s/he know of organizations that can help. I know all this hassle is the last thing you need right now, but there are resources out there. Sending good thoughts your way that you find the help you need.
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Good Morning Jewels,
WVgirl- I am so sorry you had another tough go with the port. I would demand that the senior nurse do it next time....no more fooling around with newbies. And, I am so sorry about your husband not being the kind of support you need right now, but it sounds like you've known he wasn't "all that affectionate" from the get go. Sometimes men just need a little help. You might try, " This is one of the hardest things I have ever had to deal with, and I what I could really use right now is a big hug from the man I love." Men need to know what they can do to f'ix it'. Just my two cents.
WhooHoo on your daughter's making the Dean's list. That is quite an accomplishment.
CHJ-Oh, that makes sense about the picture thing. So, Tamoxifin didn't stop your periods? If you're ER+, don't periods mean you're secreting estrogen, which isn't something we want? I was all over just having the periods stop. I'm 46, so maybe being later in my life's menstruation cycle, it will.
Julie K- You seem very chipper this morning. Yea! Good luck with going back to work on Tuesday. I'll send out positive energy for you to keep those 'flu like' se's at bay.
Dana- I just want to scream right now. What are they thinking????? Money, of course! I agree with CathyCA, you need to take action now. She gave you some great information. Don't wait for them to totally deny you coverage. I've also heard that Blue Cross has been under investigation numerous times for things like this. I would also consider letting your local paper or news station know what you're dealing with. We have a segment on our local news stations for consumers who are dealing with uncooperative companies, and they get action. Blue Cross doesn't want that kind of negative publicity.
Diana63-Oh, you so didn't jump the gun on shaving your head....you took charge! By day 15 it was noticeable my hair was starting to fall out, but by Day 18- the day of my shave- it was falling out in handfuls. I'll be you look great!!!
Vettegal- Have a great Sunday breakfast with the family. That is such a wonderful tradition that your kids will remember. I agree you need to keep on doing what you've always done if you can...and maybe try something new.
PALady- Love your avetar pic. You're beautiful. Keeping ahead of the se's is exactly what I plan to do with round #2 this coming week. I think once you know how the body will react after round 1, it makes it easier to deal with the next rounds...that and all the fabu advice here.
Take care gals. We're off to our favorite winery in Fair Play- El Dorado County- today to pick up our shipment and taste their newest release. I won't be tasting as much as I would normally of course, but at least week 3 has allowed me to taste wine- whoohoo!!!
SIS Kimberly -
Just wanted to pop in and say "Good Morning" to all of you.
Jenn51 - Thanks for your note from God. I'm trying to keep that part of my life strong. It is helping me get through all of this.
Joan - I am sorry to hear you have additional stress on top of the bc! I will pray for strength, peace, and courage for you. I would like to reach out and help in other ways. The disadvantage of the internet, I guess.
I'm glad we can help each other fight this cancer.
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WOW...are you girls organized. Way to go!! I was in the January Chemo Group 07 and I wish we had posted a list like this at the start. I notice a lot of you are doing TC this year. Last year in my group only two of us did TC and the rest did AC...(I did TC).
My advice: make sure you are completely free of any kind of infection BEFORE you start...this means all dental work done, bladder infections taken care of..., avoid contact with other people, stay well during this whole period. Having a cold with chemo is awful!!
Here's how it goes...
Day of Chemo...you'll be surprised how easy it is...nothing happens, you feel fine.
Day after...ditto. You can even go to work.
Day Two...fog starts coming
Days Three and Four (when you stop steroids)...fatigue begins to hit you big time. Don't plan anything on these days. Sleep, watch TV, take a bubble bath. Don't even try to think. Just float and know that chemo is healing you....
Day Five..you're recovering already and beginning to feel normal again!!!
Each cycle you will get a little more fatigued...but it will be overwith before you know it!!
Hair: you'll start losing it two weeks after first infusion. You'll start having wearable hair August or September...depending on when you finish chemo.
Wigs: buy 'em best and cheapest from Paula Young. The synthetic ones are just fine...look for wigs with not a lot of hair volume. Don't buy a lot of wigs because you don't end up wearing them...I really preferred turbans with fake curly bangs (Chemosavvy.com).. cheaper, much more comfortable and more flattering than wigs, and you're ready to go in two seconds.
Mizsissy
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quick question for all of the jewels ahead of me....i've figured out the jitters i've been feeling for the past couple days is from the steriod pill. don't like this feeling at all (i could never do drugs)and i take my last on tonight. am i now in for the "crash" tomorrow? this is so minimal compared to what some of you are enduring but it's driving me nuts!!!!! i can't sit still. and my head's fuzzy. grrrrrr.
you ladies are the best. thanks for all of the help.
fuse AND fubc
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I didn't exactly have jitters from the steroids, but would wake up at 2 a.m. to go to the bathroom (all that damn water) and then not be able to really get back to sleep. That got better the day after I finished them. I was taking them twice a day, so would do the first dose around 5 or 6 a.m. and the second one by 3 p.m. just to try to help with the sleep thing. I could fall asleep by 9 p.m., but couldn't stay asleep once I woke up in the middle of the night. My first round has been pretty uneventful, so I'm hoping the second one in two weeks is the same way.
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Dang! Take a day off around here and you miss all the action!
Just want to say first how beautiful our bald sisters are! Kimberly, Julie and Vettegal, thanks for sharing your stories and your pictures. Each one them brought tears to my eyes. Your smiles are so inspiring. I hope I have that much courage when my turn comes (which should be about next weekend??).
Kimberly- love that mohawk! I loved the symbolism in your bald pic under the style sign. You def. have STYLE, sister!
Julie- your shaving party looked like fun (a mohawk, too!). Your support group pic is wonderful and I loved the one with Tyler.
Vettegal- You are an inspiration with your take charge attitude. And that dh of yours sounds wonderful... Vetteguy is a keeper!
Joan- I am so sorry about your mother. Alzheimer's is such a cruel disease. My thoughts and prayers are with you that you will have the support you need to take care of yourself and see that your mother is taken care of as well. ((Joan))
Welcome to Sunshine99 and Jackieb. This is a great place to come for support and information. Jackieb- so glad to hear you have a good support system and a terrific boss!
Jenn51- thanks for sharing the inspiration from your email. I printed it off to keep it with me. Happy, happy Birthday tomorrow!
Diane63- glad to hear the side effects are subsiding.
Diane63 and Dana- it is so unfair that you have to have insurance worries while dealing with your diagnosis and treatment. Cathy came through with some great resources for you. Hope they are helpful.
Deb102307- I'm so sorry you missed your treatment. Hope you bounce back quickly and in time to hop back on the train with me next Friday!
Vettegal and CHJ- I liked your posts with the poem about yesterday, tomorrow, and today. Funny thing, I was talking with a friend yesterday and she quoted the same poem to me... I publish our church bulletin and I liked it enough to print it there!
PALady- glad tx # 2 went well. About the nasal dryness- AYR Nasal Gel (over the counter) is good for that. You can put it around/ in your nostrils with a Qtip as needed.
KathyL- here's praying for good blood counts and a discharge from the hospital. I know you'll feel much better at home. I'm thinking of you and your family.
WVGirl- I hate that you've had two bad experiences with your port. (((HUGS))) for living with an insensitive male. I hope it was just that he is having some difficulty dealing with your illness. Be thinking of you, my mountaineer sister! And many congrats on having a smart daughter!!
DianeB- good to hear from you- hope your treatment side effects are minimal so far!!
CathyCA- sounds like your weekend is going okay!
Finally, thanks to Mizsissy for stopping in to post and give us such good advice.
I have been having some muscle spasms in my lower back (maybe a se of the neulasta?) enough to take a muscle relaxer. Other than that, I am feeling great. DH is still feeling a bit under the weather. It seems to take him a week or so to bounce back after a round of seizures.
DD went to her first high school formal dance last night with her boyfriend. It ain't an easy thing to send your 9th grader out with her 10th grader boyfriend with the BRAND NEW driver's license.
Have a great Sunday, Jewels!
Paula
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Cathy - i dont have a hospital that I go to - this HMO always send me out out clinics to get treatments and that is another I dislike about them. I prefer to go to Hosptials not these little clinics. I will call and file a complaint and I am going to call chanel 7, 2, and etc and let them know exactly what Blue Cross is doing to me. I will call Komen but and I am going to call the State Health Insurance and let them know what is going.
I guess its good that I still have hair because I surely want to pull it out. I am off to work - I will let you know what i have find out tomorrow. Thanks Cathy, Vettegal, RN, Wolf,CHJ, Palady for all your prayers and you always uplift me - got to go cry before I go to work today.
God bless and I will keep the faith!
Dana
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I am outraged, just outraged, Dana, that you are going thru this with insurance. I like the ideas CathyCA gave you and am happy to see you acting on them. I would say keep us posted on how it goes, but I'll bet we'll see you on the news real soon! Fingers crossed for you.
Everyone, yes, it's the photos that mess up the layout. But I agree with whomever it was that said I'd much rather scroll around than not see everyone's smiling face.
Paula--you have back spasms, too??! My onc told me they weren't a se of anything, but they are VERY real. I'm trying physical therapy to avoid taking too many muscle relaxants (I hate how they make me loopy) and I'll let you know how that goes.
Diane63--glad you were switched to the neupogen. I tried to get my onc to switch me, but he really likes neulasta (must get kickbacks...), so he wants to keep me on that unless I just cannot tolerate it. I think the more frequent, smaller doses are better for the body. My onc tried to scare me away from it, reminding me that it's more shots and I'm afraid of needles. He didn't seem to grasp the fact that the neulasta is so bad to me that I don't mind the extra shots! Oh well, only two more to go for me...
WVgirl--I agree with SIS Kimberly, no more newbies. When I go to the hospital and need an IV, I request someone from the anesthesia dept. up front and they work with me on it. There's no reason you couldn't request a senior nurse--particularly if you tell them how much trouble others have been having accessing your port. And I also liked her spin to your dh. Mine was pretty much inaccessible during my surgeries, till I discovered I was creating the problem by inviting my mom in to take care of me. It was great having my mom there during the day, but in the evening, she couldn't stop with the care-giving and she and the dh were on each other's toes. Eventually the dh checked out of care giving. Now that I'm doing chemo, I told my mom that I wanted the dh and I to "own" this experience together and wanted him to come with me (even though I know my mom would be better at it--he just plays with his blackberry the whole time). Upshot is, he's more involved with what's going on with me. It was great that he saw me have a bad reaction during my 2nd tx, cuz now he's really focused on the fact that this is for real. (Even my kids have noted the change in attitude.) So if you can give him some concrete things you need from him (i.e. SIS Kimberly's suggestion), you may find he'll respond. I really hope he does.
Like SIS Kimberly, I find after some exertion I'm kinda drained and I need to get the house vacuumed and green beans cleaned before the next urge to just sit overwhelms me. So I'll sign off for now.
KathyL--are you home, yet???
D1
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Dana I am sending out prayers to you. It is not fair the what is going on with you. I found a web site in my breast cancer for dummies book this will give you your state insurance commissioners number it is www.naic.orgthere is also some hospitals that have federal support and provide free or low-cost services it is called the Hill-Burton Program there number is 1-800-879-4422 another web site is caring4cancer.com. Hope things work out for you.
JulieK,Kimberly,DI , Paula thanks for your thoughts and advise.
Today I am a little tired trying to get the laundry done. I was able to sleep better last night I am hoping by reducing the steroids it will help with this.
Take Care everyone.
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wvgirl - i felt so sad reading your post about your dh. i know some men just know what to do and others either just don't or don't want to. my dh told me right from the start of this that he didn't know what to do. that if i wanted him to to do something with me, he wanted to be there for me but i had to let him know. he's not really the caregiver type but some guys just need to be led and i'm no good at that. yelling at you is pretty rough. i hope you are getting the support you need because as strong as we all want to be and can be, we still need it. my heart hurt for you and i hope things are better.
and don't let anyone new get near you with a needle. holy crap.
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Good evening JJs! It's been a long day, but a good one... I'm home! And wow, has a lot been going on since I last posted...
WVGirl: I echo everyone's sentiments. My heart goes out to you. I'm sorry you had such a bad time with round #2 and then the sh** with the DH just adds insult to injury. Focus on the good... your brilliant daughter! And the Jewels that will always have your back. Thanks for the websites; I'll have to check them out once I catch up this week.
Dana: I see the headline now... "insurance company screws over sweet nursing student dx with BC as she faithfully cares for others". What a bunch of heartless, money-hungry a-holes! I am just so PO'ed right now-- hence the *#%! words. Sending major prayers and lots of hugs your way. I know you have faith in God, so remember He IS by your side right now! And so are us Jewels... hey, if you get on the news, give a shout out to us, huh?
Vettegal: One way to tell if white patches in your mouth or on your tongue are thrush--- scrape gently with your toothbrush, if it doesn't come off at all... it's thrush! This is a test we use on babies to tell if it's thrush or milk/formula (but we use a tongue depressor, not a toothbrush).
PALady: ANC= absolute neutrophil count (or the true number of "baby"/immature WBCs).
I'm pretty tired, so I'll check in tomorrow more. Good luck to all the Jewels undergoing treatments this week. Kick some BCA!
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Dana: I will be hard praying for you!
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does anyone know about this? should we be asking for this testing now?
http://cms.komen.org/Komen/NewsEvents/BreastCancerNews/breastcancernewssecondary?cc_id=41233
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re: the Topo2a test mentioned above....
Dr. Slamon from UCLA presented info at the December San Antonio Breast Cancer Symposium about removing Adriamycin from the treatment regimen except for those women that over express Topo 2a. I spoke with my onc about it when we decided to change my treatment from ACTh to TCh and she said his study was a retrospective rather than a study designed explicitly to see whether women other than Topo2a would benefit. If you take Dr. Slamon's information at face value, only about 8% of women benefit from getting Adriamycin. There's no question he is not a fan of this particular chemo drug and feels the risks outweigh the benefit.
All of that said, I think there is so much progress being made in the treatment of breast cancer that information will continue to come out that makes us wonder whether or not we've made the right treatment decisions. It's important to not fall into that trap. The goal is to beat this thing and stay disease free. If we accomplish that goal, then the specific treatment we did or didn't choose isn't important. Just like we've benefitted from advances in treatment that weren't available to women 10 years ago, those who come after us will have options we may not currently have.
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Dx 10/24/2007, IDC, 2cm, Stage IIa, Grade 3, 0/3 nodes, ER-/PR-, HER2+ -
Wow we've been busy chatting this afternoon.
I just got home from my wine tasting...and I was treated to dinner at a new very nice restaurant. I went sans wig...I like au natural more than the wig. The wig is for fun in my book.
I'm tired, so I'm not doing big shout outs to everyone...sorry. Doesn't mean I'm not thinking of each and every one of you.
KathyL- I am so glad you're home! Jenn51-Happy Birthday tomorrow. Dana- Hang in there.
Paula- Sorry about the back spasms...weird that both you and D1 have had that reaction.
To all my other Jewels...sleep tight and take good care of yourselves.
SIS Kimberly -
Paula, I have decided not to worry about all of the insurance stuff, I will go and see whoever I need to but I am not going to stress out about it anymore. Every number that I call gives me more numbers to call and, every time I hear the same thing they have to help you. I will wait until I am better to fight this fight, like I told them I am kind of busy right now fighting cancer. If all else's fails I can file bankruptcy, I just hope it doesn't come to that.
True story: When this all happened I was going to another cancer treatment center, the lady said well look at it this way at least you will be around to pay for your new healthy body. I just looked at her and I said so your saying I have to pay in order to live? She just smiled and said I didn't mean it that way, I said then what did you mean? Then she said well maybe you should have thought about this and got insurance, I said I did have insurance you Cow but what does that have to do with anything.? My husband had to drag me out of their, I wanted to rip her out of her seat.
Sweet story: My family knows about the trouble that I am having and, they all got together and decided they would mortgage their homes to buy mine for me. Of course I told them no but it sure made me feel good that they would even think of doing that for me.
Dana here is a web site that might help you, I tried it but my state (Ohio) isn't having open enrollment until June.
http://www.coverageforall.org/
D1, The neupogen seems a lot easier on me, I have only had one shot so far. This week I will be having one everyday, so I will know if its better by the end of the week. It is a pain going in to get the shot but if I'm not rolling on the floor in pain it will be worth it. I am so glad that you are almost done, a few months from now we call all look back and say hey remember when this or that happened.
Goodnight everyone
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Oh Dana I almost forgot, someone told me to contact my congress woman about my situation, I am still waiting to hear back from them. They have resources that we may not had even heard about yet, so give yours a try and see what they have to offer you in assistance. Good luck
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Oh Dana I almost forgot, someone told me to contact my congress woman about my situation, I am still waiting to hear back from them. They have resources that we may not had even heard about yet, so give yours a try and see what they have to offer you in assistance. Good luck
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- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team