bone scan

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  • paige-allyson
    paige-allyson Member Posts: 781
    edited January 2008

    Candy- Hang in there and don't beat yourself up with could've should've. I've been there too and know this is easier said than done. As others have said there is a lot that you can do with help from your treatment team to fight this. I think they are doing the rads first to knock the tumor back since it is causing you pain and pressing on the nerve. Rads aren't stronger than chemo- both are strong in their own way but have different purposes/ are good for different things. This is a tough time you are going through but you have a lot of support here and it sounds like at home too. As far a thinking about all the work tx makes for others- driving etc. I know that people who care about me needed a way to show their love and support and that it did us all good to let them help me and do things for me when I was going through treatment. It brought us closer together. Allyson

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  • CandyLuna
    CandyLuna Member Posts: 70
    edited January 2008

    Thanks yawl for info. Going to Galveston tomorrow, Monday, to talk to radiologist and oncologist to figure out when we start radiation. Also going to talk to case worker about staying in a place over there so don't have to come and go, really going to miss my kids! When they say radiation for 12 days, does that mean every day or do they give breaks like on weekends?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2008

    I am sorry you have to go through this.  I know how scary it can be.  I was diagnosed on January 15th with ILC.  The only thing I can say that has helped me is praying to God.  He gives me strength, courage and peace to help me through this journey.  Whenever I am scared, I ask for his help to comfort me and each time he is there for me. 

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  • paige-allyson
    paige-allyson Member Posts: 781
    edited January 2008
    Candy- Glad to see your post this evening. I have been thinking about you on and off this weekend and wondering how you are doing. Glad to hear that there is forward progress on a treatment plan. As far as whether there are breaks with the radiation I don't know. I had radiation to my chest wall and underarm area after chemo but this was to kill remaining cancer cells in the breast and node area- not for mets. I think treatment to get rid of/knock back a tumor in the spine is different since the area and goal of treatment is different. I bet the ladies on the "Recurrence and Metasatic" part of this community could help you out with this and with other questions that might come up. I visit that board fairly frequently and the women there are very knowledgeable and supportive. I am suggesting going there along with  posting here, not instead of. The idea of getting a place to stay near where you are having treatment makes sense. I found it wearing to go to radiation 40 minutes away from home for the 6 weeks I had to do it. How far are you from Galveston? I am from CT and I don't really know Texas at all. Thinking of you and sending all good wishes your way. Please stay in touch and let us all know how you are doing. Allyson
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  • CandyLuna
    CandyLuna Member Posts: 70
    edited January 2008

    Hi all, Allyson, Galveston is like 2  hours and 15 minutes awasy, but glad to say, i will be staying at the Quinta and  can take my 3 year old with me, my sister and mom will be with me, sister driving me to my treatments and mom staying with my baby. But anyways, not done with tests yet, Radiologist and oncologist both agreed on doing MRI's on skull and spine, want to see if my spine is more damaged then what they're seeing on bone scan, as for skull, i guess want to get a closer look, also going to do x-ray on femur and hip, or maybe there both the same thing. Hip and femur? Also a heart study. Another????  Will be putting in port on the 5th and just going to wait for phone call from radiology to set up other tests, assuming this week, will be doing radiation with chemo, when and how long all depends on those tests, but if i putting in port already, i assume it won't be long, already prescribed steroids and nausea medications. Also was told i had a one half centimeter on lung, that they hadnt told me at other appts. But chemo should take care of that!  Everyone was awesome today, met some of chemo nurses, very sympathetic and lots of hugs from them. It was nice!  Nancy, sorry to hear about your diagnosis, doing pretty good, actually didn't cry today, so doing REAL good, lol. I guess i'm getting used to it, i mean nothing i can do but pray and just try to let them (drs.) do what they have to do.  I learned i am stage 4 or T4, metastics something like that, my tumors were 4 and a half cm, 1 and a half cm, and 2cm, still alittle confused! Hugs to all and take care

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  • paige-allyson
    paige-allyson Member Posts: 781
    edited January 2008

    Candy- That is so great that it's worked out you can stay there with you family and that things are moving right along. It feels good to be doing something about it versus just waiting I am sure. I was lucky in getting "fast tracked" into treatment. Went from diagnosis of breast cancer to surgery in about 1 week. Also let me tell you- I found those anti-nausea meds to be great- really wasn't sick at all- just really tired. Your treatment could be a bit different with the mets but often I think the chemo is the same.

    It is amazing what you can get used to isn't it. I'm sure you'll have ups and downs- this is scary stuff but sounds like you have lots of good support. Great that your nurses are so caring. Mine were awesome- had the same one for the most part during my chemo and it made a huge difference in how I felt about it. I sort of looked forward to seeing her. All the info you get at first is confusing- just keep asking questions if you need to. Some people want less info and that's okay too. Hugs to you all the way from the cold northeast.

    Allyson

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