Jan 2008--Ain't it Great?
Comments
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Sista, AC every 2 weeks is pretty rigorous. Take care of yourself. Make sure you get plenty of fluids to flush your system, get plenty of rest and plenty of protein so your body can rebuild the good cells that the chemo is killing, and take your meds even if you don't feel bad. It's much easier to PREVENT nausea/vomiting than to FIX it. As D1 has said, try to eat small meals (even some peanut butter on saltines can count as a meal) frequently (5-6x), rather than big meals 3x/day.
If you can get some exercise, that will help keep the SE's milder. Even a walk around the block, if that's all you can manage, breathing fresh air deeply, will help tremendously.
A baking soda/water mouth rinse a few times a day will help keep mouth sores at bay. I found with the one or two mouth sores I got, dabbing them with some peroxide on a Q-tip really helped. Don't try peroxide as a rinse ... your gums/palette may get very raw/sore, and you'll REGRET doing it. (Voice of dumbass experience here ....)
Good luck, keep us posted on how you're doing.
I go for #3 of AC tomorrow.
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Fearless Leader (D1), you can add "+Herceptin" to my T treatment (so it reads, "then T+Herceptin every 2 weeks x4" and "then Herceptin every 3 weeks for 1 year" at the end.
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Hi Jewels:
Not much going on here with me. I walked almost 2 miles today though! Feeling pretty good and listened to some good tunes on my I-Pod. D1 and I are updating the start of the thread. If you can all double check the info and also give us upcoming dates that we don't have, we'd love it! Thanks!
Good luck tomorrow to sheshe, JulieK, and LJ13-- kick some BCA!!
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Oh, a question for the masses... what is chemo doing to your periods so far? I was due next week and I started spotting Monday. Nothing major, just another thing to deal with. I'd actually be much happier if it would just go away
And I usually get maybe one pimple around "that time"... this week it's been a major zit-fest on my face. I'll look so pretty once baldness adds to that picture.... -
JANUARY JEWELS ALERT!!!
KathyL and I are trying to keep on top of the Jewel Roll Call at the top of each page and now it's time to ask each of you for a little help.
Please take a moment to review your tx description. If it is not accurate, please let us know (you can let us know if it is accurate, too! Everyone likes to be told when they got something right!). Please also give us your future infusion dates, so we can include them (I'm starting to worry that chemo brain will kick in and we won't be able to keep track! Some preventative maintenance.)
The Jewels are CRUSHING cancer! Rock on!!!
D1
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Good vibes and lots of hugs to LJ13, Sherry and JulieK, who are bellying up to the bar tomorrow. May the bartender be kind.
KathyL--periods. Now there's a lovely subject for ya. I was almost due for a period with tx 1, too. It came with a vengeance about 5 days early and lasted a whole week. And was extremely heavy. At first I was told not to use tampons to avoid scraping or cutting myself, but then I figured, I'm already bleeding anyway, who'd know? Plus, if this was my last period, I was not going down using pads! It's a little too soon to be expecting another period, but I'm really hoping that one was it. Of course, because I love to dwell on these personal, gross-out topics, if I do get another one--you all will be among the first to know!
Spasm update. Yep, I had some today. I'm thinking I need a shrink. I was talking to a friend of mine and we decided (with our vast medical knowledge) that this is how my stress over this situation is manifesting itself. Normally, I don't notice the spasms, or can manage them, but since I've just had a tx, my body is worn down and I just can't make them go away. My friend thinks I'm a candidate for better living through pharmaceuticals. I don't like being out of it, but maybe she's right. I'm planning to pop a muscle relaxant before bed, just in case. It should help me sleep at any rate, something that has eluded me for the past two nights (one after even taking some Tylenol PM!).
My friend and I did have some fun at the hospital today, though. When we went through the front door, I told her I was going to ask about a wheelchair so I didn't have to walk the 10 miles to get my bloodwork done. Lemme tell ya, the doo-rag works wonders! The guy at the desk didn't even hesitate to loan us one. Well, we were off! She ran into the wall, doors, luckily no people... There's a ramp on the way and she pushed me down it and let go! We were laughing and squealing like two kids. They'll never loan me a wheelchair again.
So then I get into my bloodroom and our setup is there are two chairs on opposite sides of the wall, so you get to watch the other person having blood drawn while you are. Not the best, but I was determined to make the most of it today. My blood partner was an older, very fat, gentleman. He was waiting for his labels to be printed for his tubes and I was holding a latex glove filled with hot water in an attempt to warm up my finger for my fingerstick (the romp down the ramp left me breathless and cold!). My tech kept saying I needed to get warmer. So I looked at the guy across from me and said, "you wanna go on a trip?" Where, he wants to know. I suggested the Bahamas. He gets this huge smile on his face and counters, "I prefer the South Pacific." Okay, I tell him, we're on a huge deserted beach. White sand. Slightly oversized chaise lounges with big, overstuffed pads on them (without all the buttons sewn in that irritate your elbows). Palm trees, natch, and a light breeze so they sing to us with their fronds. What about the water? I ask. He wants deep blue. No, I tell him, I'm all about emerald green. Okay, he says. How bout some needle nose fish just a few feet from shore, you know, the see-thru kind, just to look at for some entertainment? Okay, he says, but not too big. And I wanted real shallow water, the kind that laps at the shoreline. Then I looked at him and the two techs and said, now I hope I don't offend anyone. But I want a really hot, tan guy in short white shorts to come and serve me an alcoholic beverage in half a coconut shell. And I want a straw and an umbrella in the shell. And I want him to have a couple of towels over his shoulder cuz now I'm rolling over so he can give me a massage. My eyes roll back in my head and I moan aloud. They all bust their guts. We both are done with blood and on our way. Not bad for a chick afraid of needles! Where shall I go next week? Who's coming along???
Hmm. I need to go compose myself.
TTFN Jewelies!
D1
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D1 - you have all my info right! Way to go!!!
Periods? I don't need no stinkin' periods (I'm 52 - for 4 more days - been in menopause for 3 years). Sorry for those who do.
D1 - way to milk the bc thing & get yourself a wheelchair. My friend at work told me to milk it & get away with as much as I can. I say, why not?? If we gotta suffer, we might as well take any bennies we can!
CHJ
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My info at the top is correct and the next infusion is 2/11. I love reading all the posts and enjoy the positive attitude everyone here is displaying! My mouth is starting to be a bit sore and the taste buds are doing funky things, but other than that, I'm doing fine this round. I've been to the gym every morning and can still handle 4 miles on the treadmill plus an aerobics class, so I figure things can't be too bad.
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Hi Jewels,
I'm always listening to you, even if I don't contribute much, I check in everyday. Thank you for your insight and encouragement. It makes it all more tolerable.
KathyL: re my periods. I was due Jan 2 and got it today rather unexpectedly. Spotted for a few days, thought that would be it, but it hit me full bore today. No real symptoms, but bleeding pretty good. I, like others that have mentioned it, will be glad for the shutdown. One benefit to all this toxic treatment
D1 and KathyL: my treatment plan is correct. My expected dates for AC are 1/25, 2/8 and 2/22. Wow, to put it in writing makes it seem like light at the end of the AC tunnel! Not sure whether I will do Taxol weekly. I'll discuss more with onc soon.
Although Senekot and Pepcid AC are my newest best friends, I have been really fortunate to suffer few se. Some tired afternoons and one day of pretty good bone pain from Neupogen, but otherwise doing well wih nothing else. Saying my prayers for tx 2 to go the same way, but know from your experiences that I should be ready for anything. I do swear by the hydration. I drank a bottle of water for every hour I was awake the day before tx and the day of. I plan to do the same this time. I do have to see ps for a "fill-up" which means making the 3hour drive to UCLA - that should be fun with all the pit stops I'll have to make. Glad it's my girlfriend driving and not dh. He might not be as understanding
There are so many of you that I pray for to be strong and resilient and I'm sorry that I can't name you all by name. But know that the Jewels are on my mind as we travel this road together. I have faith in God that he looks after us. Stay strong. My best to all going in for tx this week and I hope to hear good news next time I check in.
Just a funny story...My sister in law sent me an email full of warm and kind wishes, and a sugary poem that she asked that I memorize and remember when I was feeling down. I wrote back that I appreciated all that she sent to me, I would memorize the poem and take her advice but that I also had a mantra for when I was feeling less than stellar...
FUBC!
She got the biggest kick out of it. Thanks for that too
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Thanks D1 and KathyL for the updates on our treatment info. Mine is right. I will be doing rads after I finish chemo, if you want to add that.
To Sista, Sherry, LJ13, and JulieK: my thoughts will be with you gems tomorrow as you kick some bc bootie. Take care of yourselves!
Kathy- hope your evening is going well. I can empathize with the zits--just ain't fair, is it?! You'd think chemo would zap zits too, huh?
It is a quiet evening here. DH is better, my Mom cooked dinner for us. Lesson plans are caught up for a couple of weeks. Kids are even peaceful--which is saying a lot. We have a 17-year-old son and a 14-year-old daughter. DS is usually pretty laid back, but DD is a drama queen! They're good kids, though. I'm really pleased with the way they jumped in to help me last night with their dad. They really DO know we exist!!
Thanks so much for all the wonderful comments, ladies. You have truly brightened my world today!
Paula
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LJ13 - thanks for the tips and reminders. you've knocked two AC's out already. that's great.
my info is correct except no herceptin. thanks for keeping that all together.
D1 - i know where i'm heading off to mentally when things get crappy. guess i shouldn't mention that i'm already in warm and sunny fla. i'm gonna be sweatin' in all of the knit hats i've bought.
best to my tx partners tomorrow, LJ13, sheshe and juliek. can't believe the time has come.........
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Ok I now know why you need to drink drink drink
This morning at work I was helping a co worker catch up on her filing. I was stooping down when I stoop up I was so dizzy I had to grab the filing cabinet to catch myself.
Today I had a doc appt. they took my bp it was 80/60 I told the nurse no wonder I felt like I had been drinking.
Funny story when I was getting my blood draw a elderly man was sitting across from me. He looked over at me and said . Do you know what these ladies ask me ? I said no what. He said they ask me when was the last time I was laid. The nurse laughed and said we said weighed. He said no I have a new hearing aid and it works well I know you said laid. We had a good laugh .
Dana- Hope your doing well I have a cousin that is positive also She was dx at age 28 after the birth of her son. That was 6 years ago and she is doing fine.
CarolC-I am also triple Neg. Scary we have a higher chance or re occurrence but respond well to chemo.
Paula Praying for you and Eddie
Vettegal-What a husband you have to do that
Deb102307-Good luck Friday with round 2 I will be there with ya.
KathyL-I to like D1 had a very heavy period this time like never be for
D1 You are great Your stories help me get through this. I would of loved to be there watching you in
Below is my pics with hair and without.
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I goofed on pics My daughter was helping the pics are side my side will have to scorll to see both. Sorry
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Hey My Pretty Ladies,
I can say today it hit me I realize I had Cancer, I was so mad at myself for being this way today. I preach to everyone to have faith and try to be strong and carry on a laughter with a smiley face but today I broke down. I felt pity me!! My students friends would ask me " what is wrong" and I said "please today let me just have some space", and low and behold each student asked me what is wrong; it probably wasnt nice but to be honest I just felt like I needed to be alone because I wanted to cry. Is it me or does someone else ever feel lonely and feel like know one understands??
My friends always say to me " Dana you are so strong, I admire you because you are taking this so well and have such a great positive attitude and God will get you through this", then I tell myself how much strength does God think I have. I lost my brother, my Mom, and my Dad and other brother have Cancer, and now here I am fighting for my life! Please tell me again how strong I am??? I might be fat outside but I am sure muscular and strong inside - he ha. Just alittle humor there, that was my first joke our laughter today!
Sorry for being so depressing to you Ladies, but I just had to vent! I will be back to myself Happy self again, just had a hard day - the Devil was playing tricks on me. I hope you understand I never doubt God, I believe in him 100% perfect but there are times I fall short so I do apologize to anyone if I got you down from this message
I want to say, that God is good and we all will get through this and God will give us double for our trouble! Its nice to see other spiritual and Godly Ladies on here. We fall short but we get up!!!!
LJ13- You had me laughing cause there really is no good cancer - lol - you got that right!
To all wonderful Ladies I know I say it over and over but you really keep me going and you are heaven sent.
I found out that Medical with my HMO will pay all my bills for 6 months - which is a blessing and there after I have to pay the 20%. Does anyone have any idea what 20% of one chem treatment. I will make arrangements to pay all these bills. Living on unemployment isnt much but I know God will make a way for me- he always does.
I will take in consideration the clinical trial but I really doubt it, I just want to follow what you Ladies are getting regimen wise. I dont know how to thank all you Ladies for always helping me and picking me up - You all inspire me!
When I go on the 5th of Feb I will mention TC and herceptin to me because I surely dont want heart problems next. I will try to find time to find a Cancer Center Social Work Office.
Thanks for all the encouragement and putting the stride back into my life. You really are JEWELS - Diamonds of course
Love ya - have to get back to studying since I didnt hear one word my Instructor said in class cause I was in a head whirlpool. Ha Ha.
God bless ya - and thanks again!!!!!
Dana
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Hope this finds all you fellow Jewels, warm and feeling decent this evening.
My funny story of the day, walked into our shop at work this afternoon and the drug testing people we're there. As a truck driver we get a random test about once a year, anyway, I definitely could deliver the "donation" requested as I had consumed about 100+ ounces of water throughout the day. There we're two of the guys in the shop that we're having trouble with the "donation" process. They we're trying to chug down water at a high rate of speed, within the hour that we we're there, I actually had to use the potty two more times, and at that point I had to raz them pretty good
Paula, although I am not especially spiritual, I do have a heart full of compassion and was truly touched by your post. I just wanted you to know that you and your husband both will be in my thoughts. Hope that you both get a good nights rest tonight. As Kimberly said, you are a SHERO, and I'd have to say your hubby sounds like a HERO as well.
Vettegal, love your toe story. Your hubby sounds like he's a hoot!
Sherry, looks like round two tomorrow, and to Sista2 your going to do just fine, you are going to be the most prepared person at your chemo center!!!
DianeB, just in case you miss the CMF note, your going to do just great tomorrow. Remember to drink a ton of water to flush the system.
Glad to hear that most are doing pretty good right now, I think we will all do better as we are even more prepared for the se's throughout our txt's in the future.
Lastly to D1, I can't thank you enough for getting this group started and keeping us in stitches. My day is not complete until I check in to see how everyone is doing.
Carol
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WVgirl, you look sexy to me mama. He ha! You keep smiling pretty Lady! That is wonderful to her your cousin made it past the 5 year test. God bless her many more years!
I realize my life is not about me its about God, and what he wants me to do! He is allowing me to endure and go thru this to get where I need to be. Its a long haul but once I am done, I will be on top and shining inside and out like that Jewel (we all are)! Whoever came up with that name came up with the perfect name cause we are JEWELS.
Dana -
Determined1 - I just read your quote on your stationary - I love it!!!!
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Good evening Jewels! Glad everyone seems to be doing okay with the se's today! I'm ready for my chemotini tomorrow, then my shaving party! Good thing I moved it up b/c I woke up this morning with a nice little "bald" spot in the front of my head!! All of my wonderful friends at work all claimed they couldn't tell, but I know they were just being kind. I maneuvered my hair the best I could, but it was still visible. My dh told me as I was trying to fix the hair this morning, "Hunny, you need to just stop messing with it and SPRAY it good and hope for the best!"
WVGirl -- LOVE the balditude!!!! You rock it!
D1 - I just LOVE your stories and I'm so glad I found this group. Thank you for being our fearless leader! You are SO appreciated!
Dana -- feel free to vent anytime - that's what we're here for. We have all had those "why me" moments and that's okay. BUT, we're all Jewels and we pick ourselves up and know that we're going to kick some serious cancer butt and we'll all get through this togther. Just keep the faith.
After my second day back at work today, I'm pooped tonight! I'll have to catch up on all of the other posts and get back to you all later. Please know that I'm praying for every one of you and I'm so glad I have you all to go through this with. You make me smile everytime I check the posts.
Sista, SheShe, LJ13 - let's kick some bc bootie tomorrow! I'll be thinking of you all!
Julie
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D1 and Kathy L -
My info is correct -- additional dates are 1/24, 2/14, 3/6, 3/27, and 4/17
Thanks!
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Just popping in from the Jan 2007 group. I can't believe it was a year ago that I went through chemo as you are now. My advice is to keep going, exercise when you can, eat when you can, and do what you can. My thoughts and prayers are with you all.
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D1 and Kathy, missed a whole page of post, and with that said your latest adventure (D1) had me rolling once again.
My next infusion is Feb 6th and 13th. My oral cytoxan also starts again on the 6th. I will be doing rads as well after 5 more months of chemo, "thank god this txt is tolerable"!
wvgirl, another great looking baldy!!!! Thanks for putting a face to the post!
Carol
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Hello January Jewels,
I have been reading these posts for several weeks awaiting my dreaded chemo sentence. Yes, its true I will be starting on January 30 doing TC 4x every 13 weeks, followed by rads. I had a partial mastectomy in December. Treatments were delayed due to waiting for the oncotype score (which was 26). Anyway I have been very impressed with you Jewels and your devotion to each other. Your support and humor are just fabulous. I know I'm really late in joining but maybe "better late than never".
I also say,
FUBC!!!
Joan
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Hi Ladies,
Friday is the day treatment #1 and I am nervous as SH*T, this thread is fantastic but almost overwhelming with info so I am wondering if anybody would like to post some "if I had known" things for the first treatment that would be great. I know that constipation seems to be the big one so that is on the list of things to purchase. I just want to be prepared and stocked up for any situation.
XOXOXO
Jenny
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Jenny, I drank a gallon of water during the day before my tx1 and a gallon the next day too. I swear hydration is a huge part of it. Take your meds as directed - DON"T WAIT to feel nauseous. Most importantly, I look forward to the moment I'm finished because that means I'm that much closer to the end. I've only had one tx, the waiting b4 was worse the real thing, and I have felt so much better than I expected. So it's possible to get through it and feel almost normal. It's different for everyone, but I think it's important to know that people do get through it and do OK. If one person can, why not you? Right?
Good luck. I'll be there Friday too and will think of you. Stay strong
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Golfer-i love your photo, you look like my neighbor..It is like i have known you for years!
WVgirl-you look FABULOUS!!!!!
Jkiss-I am joining you tomorrow on the first treatment..we can do this together, I think Dana is also starting tomorrow.
Tomorrow is the BIG day- I just want to get it over with now.
I woke up last night for a little while just thinking, you know how the mind wanders on its own.
I took my first 2 steroids this morning...so I am heading in the right direction.
I am out of personal time and vacation time at work, so i will have to take the days without pay when i miss work due to my treatment. I may call my boss and see what he says, maybe they may have a heart(not)
I will posting pictures on saturday of my buzzcut (d1) if she can do so can I..I am ready to kick this bc is the ass and get my life back to where it was heading!!!
Isn't their on this website a place to post allof our photos? I could of sworn I seen a board for that...
To all the girls who started yesterday....Congratualtions you got the first one under your belt...wooooohooooo!!!!
keep us posted on your se's and stay positive.
D1-thanks for the wheelchair story, you must of had a blast!!!!
Dana-your like me, i have my meltdowns also..My hubby just had one this morning during breakfast. God is with us and so is all of us!!!
Alright gotta go to work, last day this week..hoping i come back monday or tuesday next week.
Is anyone else with the AND surgery still feeling sore under the arm and where the inscision is? I am wearing that bra i got from the hospital because the sports bras where cutting under the boob and around my scar....
Hugs to everyone!! xxxxoooo
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Oops i forgot my infusion dates are 1/25, feb 15, march 7 and last but not least march 28th!!
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I'll check in and get caught up on my reading later after work. Couldn't do it last night because a co-worker came to visit and I admit I drank 3 glasses of wine - probably not very smart.
But I want to wish the best of luck today to Sista2 on your maiden voyage!!! to all others having tx today - best of luck.
And to wvgirl - you look beautiful with your bare head!!! Hope I'm as courageous when it's my turn.
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Hey everyone!
I really need to check this place often to keep up. Lots of activity since last evening, I love it!
Dana - I tell myself that as long as I stay positive about 95% of the time, I'm entitled to throw myself a pity party every now and then, where I am the guest of honor. Sometimes you just go there, and you can't help it. It doesn't mean your faith is less, it just means you are human! You have gone through a lot and you are now and will go through a lot more until it's over. Hang in there and lean on your buddies!
Julie - you will laugh at this - when I read your post really quickly (where you said "after my second day back at work, I'm pooped") at first I read it as "I pooped" - and I thought, great! Someone else has overcome their constipation problem, hooray! But then I read it the way you wrote it. But I had a good laugh with that one.
Jenny - I'll repeat what the other women say: DRINK FLUIDS. Maybe someone told me that ahead of time, but I don't remember anyone really stressing that. I wish I had done that. You can believe I will the next time!!
For all of you getting tx today - kick some bc butt!! And at the end of the day, it will be one more behind you.
Gotta get back to work. Take care everyone!!
CHJ
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Good morning Jewels!
Not much to say today. I feel kinda crummy, which is weird 8 days out. I'd really like to go back to bed, but I have to see my surgeon today for a f/u visit about my port. Guess I'll just lay low. It's supposed to snow today, so maybe I feel bad b/c it's cold and gray.
Anyway, I'm reading the posts... I'm just quiet today. Cathy-CA: you are awesome walking 4 miles on the treadmill. I was excited about almost 2. JTeach: welcome! Did I read you right that your tx are every 13 weeks? Or did you mean every 3? Dana: we all have our moments (maybe today's gonna be mine), it's allowed
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