Triple negative beyond 2 years- What was your treatment?

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  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited December 2007

    Good Morning Tay,

    I sent you a private message so check your inbox.

    Sadie

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  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited December 2007

    Ravdeb,

    Isn't it wonderful to get past the two year mark!  Hope you have a healthy and peaceful New Year.

    HAPPY NEW YEAR TO ALL!  Laughing

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  • Lee27
    Lee27 Member Posts: 69
    edited January 2008

    Hello...I'm pretty new to these boards.  I posted a few comments the other day...came back to the triple negs and reading about this 3 yr out wait period.  This too is new to me.  Gosh, there is so much to take in with this.  I'm positive though.  Today I had my 15th rads...with only 16 more to go.  I wish all a grand New Year!:-)

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  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited January 2008

    Hi Lee27,

    The two-three year window is for triple negative breast cancers.  I am assuming you are triple negative.  This type of cancer is aggressive and if you should have a recurrence it will most likely return during the first two or three years.  After three years without a recurrence it most likely won't return.

    I know my oncologist was very excited when I reached the three year mark.  It really helped me to see how relieved she was.

    Have a wonderful day tomorrow,

    Sadie

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  • Adrea
    Adrea Member Posts: 3
    edited January 2008

    Hello ladies - Adrea here - my first post. I am so thankful to have found you. Please keep this going. Those of us in the early part of the journey need to keep hearing from you. My story...



    Found the lump, visited my doc, had mammo, sono, and biopsy same day. Then, had my purse snatched and a flat tire on the way home. I suppose that was an omen, a triple negative day and then a triple negative diagnosis. Enough negative. Had my first chemo Dec. 17. Got a nice tinge of pink in my blonde hair from the "E" chemo drug. A gift of color before it all falls out. Next treatment Monday.



    These posts are so very helpful. THANKS!!!!!!

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  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited January 2008

    Hi ADREA,

    Welcome!  Laughing  I'm glad you posted.  Everyone here is so willing to help.  You can ask any question that's on your mind and there aren't any silly questions.

    What is your chemo therapy treatment?  Is your cocktail AC to start with?  Hope you get some warm hats.  When I was diagnosed my daughter had a hat shower for me.  I received several warm hats.  I guess what I noticed most when I lost my hair was that my head got cold. I found in the early weeks a soft cotton hat or a soft knit hat worked best.  My head was sensitive to firmer materials.

    I also purchased a wig to wear to work.  It was comforting to be prepared before I lost my hair.  Many women prefer just to wear a scarf or nothing at all.

    I wish you a healthy journey through your treatments.

    Warmly,

    Sadie

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  • Adrea
    Adrea Member Posts: 3
    edited January 2008

    Hi Sadie - My treatment plan so far is FEC x3 and then Taxotere x3. Radiation is planned at this time but I am SERIOUSLY considering double mast. Don't want to chance another bout of this.



    Adrea

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  • twink
    twink Member Posts: 1,574
    edited January 2008

    Adrea,  I'm sorry you've joined the club.  I just want to pipe up, since I had a bilateral mastectomy, that this does not eliminate the chance of another bout with this.  Unfortunately the risk of recurrence is still there.  Good luck to you.

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  • Adrea
    Adrea Member Posts: 3
    edited January 2008

    Hello Twink - Please tell me about your decision to have bilateral mastectomy. I know that nothing is 100%, just thinking about upping my chances. Was the bilateral recommended? My pathology was VERY different from biopsy (papellary) to post surgery (IDC, TN). That is why I am now looking for mastectomy when lump seeemed appropriate after first pathology.



    Thanks,

    Adrea



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  • twink
    twink Member Posts: 1,574
    edited January 2008

    Adrea, I'll send you a private message.

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  • Lee27
    Lee27 Member Posts: 69
    edited January 2008

    Hi Sadie,

    Yes, I'm afraid I am a member of this triple neg. club. Thank you for your comments. I needed to hear them.  Guess I'll now be doing more research/homework on this.

    Lee

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  • linda447
    linda447 Member Posts: 6
    edited January 2008

    Also a member...i had 4 ac and 4taxol every 2 weeks with neupagen in between.  First mastectomy in Feb. of 2006 which was bc and second in January of 2007 for b9 tumor.  I feel  somewhat safer but mri or cat scans are being offered for symptoms that will  not go away after 2 weeks....I'm just hoping for neds but who knows...i feel healthy..hope it helps

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  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited January 2008

    Hi Linda,

    I hope every thing goes smoothly with your cat scans and you mri. What symptoms are you experiencing?  I know my oncologist had me doing lots of tests and scan the first few months during and after treatment.

    Let us know how you are doing.  Sending you positive vibes~~~~~~.

    Warmly,

    Sadie

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  • cp418
    cp418 Member Posts: 7,079
    edited January 2008

    http://www.medpagetoday.com/HematologyOncology/BreastCancer/tb/7850

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  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited January 2008

    Thanks for the article.

    Sadie

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  • jax1961
    jax1961 Member Posts: 5
    edited January 2008

    Hi everyone, I found my first lump new years eve'05 so that new years went out with a bang!  dx feb with stage 1 grade 2 9mm IDC after lumpetomy & wlc found to be triple neg so started e-cmf chemo april '06, finished Oct '06 ...Found new lump 15th Dec '06 about two inches from nodes removal scar underarm..saw my consultant he did a needle biopsy straight away,results were cancerous... booked for mastectomy (left breast) Feb. Taxotere chemo then radiation therapy.. results on new lump..  stage1 grade 3 v. aggressive.. triple neg again..  so two primary breast cancers within a space of a year,  I think a recurrance is usual with triple neg within a short period, if at all, and less likely to go on to secondaries after 5 years of no recurrance. 

    What concerns me most is that the E-cmf obviously didnt have any effect on the grade 3 which was growing aloneside the grade 2 which was removed a year before. I had 12 sessions. 

    I am pleased to have had the mastectomy and the breast cancer nurses all urged me that it was imperative that I have it done...  no argument off me any howSmile

    I hope the mast and rads have sorted it all out, but of course I am not oblivious of the implications of my history with BC.

    no previous family member have had cancer of any type, under the age of 70 I was 44 on first diagnosis.

    Jax

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  • sueps
    sueps Member Posts: 2,266
    edited January 2008

    Jax ...I am doing E CMF on my grade 3 triple neg.....what if its not the right treatment !!!!  HELP!!!  OMG ...I have almost finished epirubi.....then doing cmf..oh god ....should I be doing something else xx

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  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited January 2008

    Hi Everyone,

    I haven't connected on this thread for awhile.  I hope we keep hearing how everyone is doing?  I am a little over three years out from treatment, four years from diagnosis.  I have a PET scan and Mammogram Monday and then I see my oncologist on Friday.  I've reached a point where I don't even worry about it now.  It is a nice place to be.

    I hope you are all doing well.  Innocent

    Warmly,

    Sadie

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  • guitarGrl
    guitarGrl Member Posts: 697
    edited January 2008

    Wow - great news Sadie. Your message is the one we all need to read and memorize. There is life after diagnosis!

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  • peapot
    peapot Member Posts: 72
    edited January 2008

    I am 41. I was diagnosed in May 2007 and had a lumpectomy in June.  trip neg cancer with 1 node involved.  So I had 4 A/C and 4 Taxol treatments.  On the last chemo day my bloodwork still showed elevated tumor markers.  All scans repeated (bone,CT,MRI all negative praise the Lord)But still some concern on my part.  Mother died in 1980 at age 41 of breast cancer.  Last Thursday I had a bilateral with expanders. I'm also BRCA negative.  I feel like I've done absolutely everything I can do to prevent reoccurrence and just need to get on with living.  Glad to hear from so many trip neg girls out there who are doing just that years later.

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  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited January 2008

    Oh, Peapot,

    You have been through so much.  I agree with you that you have done all you can to fight cancer.  Now is a time to get as healthy as you can and regain your strength.  There is every hope for you to have a different outcome than your mother did because treatment, screenings and tests have improved over the years. 

    I know when my brother had a heart attack at the same age our father died he said it was quite frightening for him.  New technology saved his life and he now jogs everyday and eats healthy.

    I know each and everyone of us sends you warm regards.

    Sadie

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  • Shirlann
    Shirlann Member Posts: 3,302
    edited January 2008

    No, Ravdeb, this is what I have read and heard too.  I am 9 years post treatment and the radiologist where I had my rads told me, "You won't have any more trouble with this".  I just laughed and said, "I bet you say that to all the girls".  He said, "Oh no I don't".  Made me feel a lot better.

    Still NED after 9 years.

    Hugs, Shirlann   

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  • suzy611
    suzy611 Member Posts: 7
    edited January 2008

    hi everyone,iwas hoping someone would know what the tumor marker blood tests are . is it the cea or liver enzymes? i'm still trying to find out.                                                               thanks                                 

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  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited January 2008

    Hi Suzy611,

    I don't feel I am the one to answer your question, but I thought if I respond to your post it more it higher on the list.  Then maybe someone will answer your question.

    Sadie

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  • ravdeb
    ravdeb Member Posts: 3,116
    edited January 2008

    Hi..haven't been on this thread in a while and so YES..it IS good, Sadie, that I'm past the 2 year mark and working towards 3 years..still have some time for that, though.

    suzy611..I can't help you with markers. My onc didn't do markers with me. Many feel that they are not accurate. Many doctors do go by them so ask your doctor.

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  • caitlin1025
    caitlin1025 Member Posts: 8
    edited January 2008

    Hi gals,

    I was diagnosed in June, 2004 - - 4.9cm mass, triple neg, suspicious looking nodes. Did neoadjuvant therapy, double mastectomy and radiation. When the surgeon opened me up, they found NO cancer! Had a cPR (complete pathological response) to chemo - 4 of A/C & 4 of taxatere. So, June of this year will be my 4 yr. anniversary.

    I am so happy to be ALIVE - - just like my many triple neg friends out there!

    Blessings,

    Caitlin

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  • msig
    msig Member Posts: 1
    edited January 2008
    Hi Sadie:  It will be 4 years end of January.  Had lumpectomy (clear margins)and removal of lymph nodes under left arm.  Had "the works"--dose dense AC and Taxol plus 30+ rads.  I have mammo every June and started my first  yearly MRI in December.  All is well and doing fantastic.  Anxiety attacks the first year so doc prescribed low dose of Paxil.  Still taking and works like a charm.  Keep positive and repeat as much as you can every day and before you go to bed:"I will live and stay well."  Smile
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  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited January 2008

    Hi Caitlin and Msig,

    Thank you for sharing your stories with us. You both have wonderful stories of feeling well after treatment. I think these stories are so important for the newly diagnosed and a good shot in the arm for those of us counting each day.

    Thank you again for sharing! Wishing you both good days ahead.

    Warmly,

    Sadie

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  • dunner1
    dunner1 Member Posts: 49
    edited January 2008

    Hello All- Sharing my story for all of you to give you hope! Stage 3 Triple Neg. Many positive nodes!Diagnosed Feb. 5th, 2003. AC DD then Rt. Mastectomy, then taxol dd, then 6 1/2 weeks radiation. I am here almost five yrs. later kissing the ground I walk on! With many prayers and a positive attitude we can make it no matter what the outcome is. Stay well- Dunner1

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  • pattypoo53
    pattypoo53 Member Posts: 46
    edited January 2008

    I am Patty, I am 54 years young. I was diagnosed on Dec. 15,2003. Stage IIA, Invasive Ductal Carcinoma(atypical medullary) 2.8 cm,,er, pr,her2 all negative,grade 3, no nodes involved out of 23, no vascular invasion. Four days later had a lumpectomy, with clear margins. Then in Jan. 04,started chemo 4XAC every three weeks, and then 4 X Taxol every three weeks, and then did 33 radiation treatments. So far all good reports. In December 2007 had a routine followup appt with my onc. I requested a breast mri, I have dense breasts, and a chest ct scan, both were normal. All bloodwork, mammo, tumor markers were normal. I am over four years out from triple negative, there is hope. Happy New Year to all, I don't post much but read daily. They are doing alot of research on triple negative breast cancer.

    Hugs

    Patty

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