2 years later and I am fealing overwhelmed.
Comments
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HI all, I have not posted for awhile.
I just want to share how I am fealing these days .
I think I am sufferring some post traumatic symptoms.
I had a second bout with BC 2 years ago, mastectomy, chemo. I am currentely NED . I think I did well overall as far as keeping my spirits up and all but lately I have have been very depressed. Of course it is the time of year too.
I feal like a lot of it relates to BC. I just have never felt as good as I used to and am having a hard time getting used to that.
Also, I am fealing vulnerable to having cancer return. I don't allways worry about it but when I think into the future sometimes I think "if I live that long" in the back of my mind.
last night while at my best friends house we got into a huge argument ( we did make up before the night was over) and I said a lot of things about myself that I wished I had not said. Such as that I am very unhappy, feal like a mental case, etc, etc. I usually don't like to tell my close friends how bad it is when I am depressed especially this particular friend because I feal like they feal that I am fealing sorry for myself.
I realy don't think I am fealing sorry for myself . I just plain don't feal good or happy a lot of the time. I do things like go to salsa classes, walk, sometimes ski but I am finding it harder and harder and realy have to PUSH myself to get out sometimes.
Last night my friends husband said I was rude to her and that they have had dificulty with me ever since I had cancer.
The problem is that they don't understand!! I AM NOT FEALING SORRY FOR MYSELF!! which is seems they are saying. I just am not fealing good. Then they say they understand what it is I am going thru becuase their father, mothers have died of cancer. Also, this friend had melanoma once. I know melanoma kills millions of people but he did not have radiation and chemo so he does not know the toll it takes on your body to have these treatments. These things and the drug (tamoxifin) I now have to continue to take have all changed how I feal physically.
Sorry to go on and on but I feal so misunderstood by people sometimes.
Last night was the first time in a LONG time that I actually had suicidal thoughts. When I came home I thought about putting a gun to my head and just ending the painful fealings I was fealing. And it is not just the cancer I had but also my Mother is sufferring with mets to the lungs and bones now. I also live alone and do not have much financial security in my life so I worry sometimes about if I get sick again how will I cope financelly. Just so many things seem to be weighing on my mind lately. I actully called a sucide hotline last night. I have never done that before.
I am sharing this with you all because I need to talk to people who who REALY relate to what I am going thru. I guees I just need my fealing validated.
Sorry to come back onto the forum in such a negative frame of mind.
Sue
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Hi Sue,
I work in the mental health field (employment). I am not a clinician or therapist but just wanted to let you know that there is help and calling the hotline as you did was the first step.
Depression strikes so many and having your feelings validated is very important. I do hope that you call your family physician and make an appointment to see him to discuss your feelings and symptoms. There are so many medications available and the stigma associated with taking these drugs has declined tremendously. There are also many bc support groups that meet and there may be one that you can go to this week.
I pray that God sends you His blessings and keeps you in His gentle care.
Bernadette
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I think you did the right thing calling the hotline.
Reaching out for someone to talk to is a good first step.
Sometimes it helps cut things down to the right size.
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Dear Sue,
Perhaps I'm assuming too much from your post, but if you have a gun in the house, can you please get rid of it--give it to someone to hold for you if you don't want to get rid of it.
I'm glad you called a hotline, but can you see someone professionally to help? You're not feeling sorry for yourself. I'm 18 months out, and many days I forget about cancer altogether and many days it's all I have on my mind, usually if I have a new ache or pain. I think the eworry about BC returning is the worst of it, not all the treatments. I believe that if we knew we were completely cured, we'd handle the treatments so much better. And on top of your own problem, you have your mother to worry about. But a doctor can help you, perhaps give you anti-depressants to get you over this bad time.
My heart goes out to you.
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Thanks everyone, I feal a bit better today and I rarely in my life have had suicidal thoughts. I did get anti-depressants from my Dr a few weeks ago but have held off on taking them. I guess I will start tomorrow and give it a try. I think because my Mother has taken just about every anti-depressant on the market and allways complained of side affects and quite before they ever worked; I have been very hesitant to take them.
I talked to another friend today and felt better just to have someone validate how I am fealing instead of trying to brush it off as me fealing sorry for myself. That is realy not it. I just feal like my body is so out of sorts.
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Hey! Sierrasue! Where the heck have you been, girl! I was thinking about you and your mom a while back and wondering how ya'll were doing.
As you know, as much as anyone THINKS they know how we feel, they have NO clue. It just isn't possible to put them in our shoes and have them walk.
You've given it your best shot and now is the time to take the meds to help with your (i believe) PTSD. You are certainly not feeling sorry for yourself, Sweetie. You are carriying the weight of the world on your shoulders right now=time for help.
I'm sure you know that it takes the meds a couple to a few weeks to kick in. Also, the first one may not work and you may need to try a different one or different dosage. Don't let that deter you from getting the help you deserve.
Gentle hugs.
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Sue,
It's nice to see you back, but I'm sorry to hear that you are in such a dark place.
It's normal to be reeling after our experience, but it's also acceptable to ask for help. I'm so glad you called the hotline last night!!
I agree with others who have mentioned meds - I have been taking Zoloft for many years (increased the dosage after my 2nd BC dx) and I now see it as a form of "emotional insulin" instead of a crutch or failure on my part.
You are not alone, and there is help for you.
I'll keep you in my thoughts and prayers.
hugs,
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Thanks Dotti and Donna . it is nice to hear from some familiar people. I have not been on the board for awhile and will have to read up to see how everyone is doing. I am so glad you are all here to understand. I feal like some people expect me to just get on with life which I have but this last couple of months the big ole bad Depression monster snuck up on me and seems to being trying hard to pull me down. I will try the antidepressant. Dr gave me Wellbutrin because I took it about 7 years ago and had some success with it. I don't know if this experrience will be the same or if I will have to try another.
Any of you take Wellbutrin?? I guess our makeups are all different tho so it may be hard to compare.
Dotti, by the way my Mom has been thru a whole lot this year. Had to have her implants taken out. They were 24 years old from when she first had BC and when the Dr cleaned her chest out he found all kinds of puss, blood and nastiness. She didnt know they are meant to be replaced after 15 years . Then she had a bunch of fluid buildup around her heart and had to have surgery to drain it. Luckily they didnt find any cancer cells in it and said it may have come from the infections in her chest wall from the old implants. Now she has some spots on her bones which are cancer and they are switching her drug from Arimidex to (can't think of it right now but it is a once a month shot). She also had a tumor cut out of her neck which was in the muscle and it was cancer. So, it seems her cancer is slowly spreading. Of course this has all added to my getting depressed too.
Amyways, Thanks sisters!!! I'lll have to read some of the forum and catch up on how you all are doing .
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Hey Sue...I won't repeat what the women have said. But, I'm glad to see you back on and well...you are doing all the right things by seeking help. I wish you well. This bc stuff...even if we seem to be physically okay, doesn't seem to give up.
Be well...
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Hi Sue, like Ravdeb, I won't repeat what the others have said.
I am too so glad you called the hotline and are going to start your antidepressants. You are right, some people just do not understand. They think we are "better" or "cured." Well physically, we just might be, but the psychological toll is ongoing.
Thinking of you. You are not alone.
Raye
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Sue, I just sent you a pm.
Raye
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Sue:
Hey there.... I understand you. As do many here. Believe me. Anyone who hasn't been thru it, doesn't understand. Period. They may try. They may fake tryiing. But in the end, unless they have been there they don't get it.
I know you don't feel good. Man, oh man, can I relate to that. Treatment takes a major toll.... major. Its been almost 4 years siince my dx... and I feel like crap!!!
I too have days where I think, what is the purpose of this? I hate living like this, feeling like crap. Its not self-pity. Its anger and grief and fed-upness. And no-one gets it. No-one....
So good for you in taking the step to take the antidepressants. I hope they help. If they do, let me know, and I will up my dose. I take the lowest dose of Effexor to manage hot flashes. I sometimes think if I wasn't on the effexor I might really be in a bind.
God bless you and you are in my prayers.
Wendy A
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Sue..how are you doing today???
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Hi everyone. Thanks for the support.
Ravdeb, its nice to see you again. your hair looks cute. Isn't it great to have hair again?? Allthough mine doesn't seem as nice as it used to be.
I had lunch with a friend today and went shopping. I realy can't afford to be going shopping but it seemed like something fun to do on a dreary day
. Bought a new dress , necklace and earrings for salsa. And then I didn't even go to my salsa classes tonight. Just not up to it. But, I have a class again on thursday and WILL go as even tho I have to kick myself in the butt to go sometimes because it would be easy not to ( like tonight!) , I allways am glad I did when I get there. I have gotten to know the people in my class and we allways have fun and usually some of us go out after class on thursdays.
So, I am fealing better then I did when I wrote this post. It seems like it is a lot of up and down with me. Like a roller coaster. But, I have been sad a LOT the last few months so I will try the antidepressant out as much as I didn't want to.
I was thinking today that I feal like I aged 10 years in the last 2 years.
It's hard to get used to , isnt it?
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Hi Suzy,
Yes, the salsa actually helps me a lot as I go 2 nights a week and then we have salsa dance partys once or twice a month. Sometimes I go to those. I have been doing it for 8 months now so am getting the hang of it and our teacher lets us repeat all lower classes free!! I am in salsa 4 so it is a great deal to be able to repeat the rest whenever I want to.
Another friend of mine ( who has sufferred most of her life on and off with depression)is in classes with me . Her and I were talking about how so many nights we don't feal like going to class but how much it helps with depression when we make ourselves go. It is very social and of course excercise allways helps with depression. I live alone so I need to get out or I get more depressed.
Anyways, I do know a lot of tools for keeping my depression at bay but sometimes it gets the better of me like it has this last few days. Then I will dust myself off and pull myself a bit out of the hole.
It's hard and it is even harder when we feal like no one understands what we are going thru , isn't it?
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sue...i take salsa too! its great! even though i have achey bones, its so much fun!
g
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Allright G! Were in Oregon do you live? My mom is in Grants Pass.
Do you guys have clubs that play salsa? We have one club in my town that has it once a week for us. And then there is a latin club in Reno, nv. about 35 miles away and it is realy fun cause you get lots of latin people there who are great dancers.
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Hi Sue,
I'm in the Portland area. I take lessons and they also have a weekly salsa circle, where there's all different levels. And yes, lots of salsa clubs up here! Grants Pass is so pretty, its at the other end of the state.
g
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Sue: First I want to say its good to hear from you again. I remember your one avatar with the mountains behind you. It was such a great view.
Post traumatic stress is real. It hit mean after my 2 year anniversary. Right when I thought things would be getting better is when I got the most depressed for some reason. You are not crazy, and Im glad you came back here. Hope you keep coming back, because it is here where much of my therapy occurs. Just knowing there are others out there, feeling the way I do and understand why. Im on Celexa and my PCP just added a small dosage of Wellbutrin to the mixture. It definitely has helped me. Im less anxious and starting to go out again. For awhile, I didnt go anywhere. It was much easier to stay home.
Sending hugs your way.
Nicki (aka chemosabi)
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Hey Sue,
First of all..thanks for the nice comment on my hair! It's a touch longer now than it is in the picture but it may go back to that again soon!
Salsa..my daughter likes to do that on occasion and has taken some classes. My son was learning that from a friend during free time in the ARMY!
You are right..you do seem to know how to get yourself back on track and that's good. It's often hard to just get out on the evening of a fun class. I used to take pottery classes and just dreaded getting dressed to get over there. But once there..it was fun! My sil takes yoga and loves it but she will call my brother at work and tell him she's too tired to go and he will encourage her to get herself over there and she is thankful every time!!!
Keep writing on here. It really is great therapy!
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Hey Sue
It's good to hear from you. I also have problems with depression and I think I am the only one. LOL And when I compare myself with Normal (no cancer) people I get even more depressed. We all understand here. We got your back.
susan
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Sue,
I'm sorry about what you're going through but I'm so glad you talked about it. I relate to what you're saying so much. I'm 18 months+ out from dx and my family thinks I should be back to normal. ? They don't understand that I'll never be that person again. Not to say that I can't be as good just very different. I've had to experiment with anti-depressants and still don't have the right one but I do know they help so I continue to try. I can't seem to make my family and friends understand that I want to be well as much as they want me to be. Sometimes they think I'm just not trying and that's not true. I'd hate to see myself if I didn't try. Good luck to you.
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Sue,
I just came across your post. I am happy to see that you are feeling better. And that you started some meds for the depression.
I DO understand and totally validate all of your feelings!! They are so very real! Outsiders, no matter who they know that had cancer, unless they went through what most of us have, they can't understand or relate. And that is understandable, they have not experienced what most cancer victims go through.
I am not even a year from dx. And I always hear, how WELL I am doing! How positive I am...etc..but I have my days where I just want to curl up and let the world pass me by.
I have found that since I started exercising again (I am a runner) that it has definitely lifted my spirits. Those endorphins have to be released! This time of year (I am in Ohio) is a very difficult time to FEEL GOOD!
I too can relate with not feeling that great, or as good as we USED too! We wont', but I am sure with even more time, it will get better.
I agree with the poster who said, if you do have a gun in the house to please remove it. Please continue on your medication to help with your depression. My mother suffered from depression...it is very REAL!
I also understand being single, and having financial worries. I am in that same boat! It can all be very overwhelming. But remember this, we can't change what MAY happen, so it's not worth the WORRY!
All the best to you. I will check back to see how you are doing.
xoxo
Lisa
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Sue, I had severe Post Partum Depression after the birth of my twins. At 5 weeks I reached out for help and got anti-depressants. It was the best move of my life.
When I got hit with cancer and 1/2 through treatment I felt hopeless, I upped my meds.
I have several of the feelings that you describe..(like will I live long enough to see ...) but the meds help me cope with it, and put it on the back burner.
No, no one understands except for other survivors/patients.
I hope you started those meds. You will feel the difference in a few weeks.
Hang in there.
Janis
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Hi everyone,
I am doing better. I did not actually take the antidepressant but instead started taking Sam-E along with b vitamins. I also have pushed myself to get out and do my salsa classes, ski a bit , etc.
And , the dark days have lifted a bit. I feal a lot better and realy do prefer not to take the antidepressant if I don't have to.
Not that I think there is anything wrong with taking them but I tried it for a few days and it made me feal wierd so I decided to see if I could pull myself up with supplements and excercise.
Also, the days have become longer and the sun has come out more this month!!! In Dec, and Jan. we had lots of snow and very little sun where I live. Oh Yeah . I also went to a tanning booth a few times just for the light therapy.
Anyways, I am fealing a lot better then when I first started this thread.
thanx all for the support.
Susan
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Most of this is a post on another thread, but it fits here, I think, & I'm needing help, reassurance, or sympathy, I'm not sure which. I, too, am almost 2 years post dx. For almost a year after my dx, I kind of floated through it all as if it were a minor happening. My brother-in-law was being diagnosed with metastatic renal cell carcinoma at the same time, so I actually felt very fortunate to "only" have early breast cancer. Although I'm a nurse, I asked very few questions (for me, anyway). I really felt as if I was being expected to make HUGE decisions that would greatly impact the rest of my life when I was in such a state that I could not even formulate a question, let alone make a decision. My prognosis is excellent -- stage 1, grade 2, lumpectomy, node neg, mammosite, tamoxifen (AIs made me hurt a lot). About 9 months after the dx, I got out all my "papers" -- path reports, etc. -- & needed to ask all the questions I apparently should have asked right after dx. Surprisingly (or not) doctors are not as amenable to addressing all that stuff later rather than earlier. Some thought I was questioning the tx decisions, but that was not it at all. I just needed info. Somehow, the cancer diagnosis has changed the horizon of my life. I am now almost 2 years post dx, but I still feel rattled & disorganized. For about the last year, I've felt I was a little depressed & asked my family doc about an antidepressant. At those times, other things were happening, too -- pneumonia, moving to a house that needed much work right at the time of dx & tx, mother moved in with us, etc. -- & he always wanted to wait until the "crisis" had cleared. Cleaning & getting even little stuff done is a major chore. Making myself go to bed is a project (right now it's 2:33 am). I have so many unfinished projects, I could spend the rest of my life just on that. I do have housecleaning help. The week before Thanksgiving, I felt a definite downward trend to my mood & desire to do ANYTHING other than sit in my recliner. Each day that week I felt worse than the day before. I did get an antidepressant & a second med for anxiety & am doing much better; however, the cancer "event" is still such a life-changing thing that I am truly amazed. I have some other health issues, including MS, so bad health news in not a new thing for me, but cancer has been entirely different. I am usually a very matter-of-fact, analytical person, but this has really thrown me a curve ball. I'm doing some counseling but still cannot pinpoint a cause. It isn't really fear of recurrance as most people assume. It's not that easy -- somehow more obscure. Anyone else have this kind of delayed reaction?
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