Anyone starting Chemo in August 07?
Comments
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Hi everyone.
I've been reading off and on but haven't posted in awhile. Thanks for asking about me Kaye. I agree the pictures are wonderful. My hair, eyebrows, and eyelashes are all coming back. Unfortunately so is the above the lip hair. Today I have rad #21. So far so good just some redness and itchiness. We will all get through this. Take care.
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Kaye, you're wonderful at getting laughs out of us! Even on my worst days, a post from you could always make me smile. My rad burn is doing much better, thanks for asking about us. I took my LAST rad tx yesterday and am expecting miracles to happen now as far as the burn goes!!!! We went out to eat at Red Lobster to celebrate my "red boob"! I, too, got that glass of alcohol to celebrate, but mine was a Bahama Mama, Yum!!! Too bad I didn't think to tip the waitress to help carry me out...I sure do wish that I lived closer to Cali so I could meet you and the "group". How great to have that support system.
I also want to know where Nash got her hat. I think we could make money here for breast cancer research, what do you all think?
June, good luck as you near the end of treatments.
Do any of you who are done think that it's weird not to have everyone hovering around now that we're done? I kind of feel like I've fallen off a ship without a life raft...
Debbi
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The Amazing Fountain of Youth Hats were available at Target in the fall. I have them in 3 colors. It's just a newsboy hat, and you're right, we could probably make a bunch of money of selling them to chemo gals. I actually found out about them off of these boards. Hmmm.....things to ponder.
For sure, it's a sinking, adrift feeling when treatment ends. I'm actually glad my mom has to continue to go to the cancer center, b/c after 3 1/2 years of weekly (and often daily) trips there, I'm not sure what I'd do with myself otherwise. Really must find a new hobby.
My mom will be in the hospital today thru Friday. Had a chest tube inserted today to drain off the pleural effusions, then the surgeon will see if her lungs reinflate and will go from there.
Kaye--you have an MRI tomorrow, right? Good luck!
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Tami,
Hey there! I am glad that you are doing ok. When will your last rads be??
I am FREEZING, here in NC!!! Although, I have heard that it's COLD up your way, too! Right now, I wouldn't swap you for anything in the world! I do wish we lived closer, though. I USED to live about THREE hours away from you, when I lived in Maryland.Take care...
Harley
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Jackie,
Hey there! Good luck with the Tamoxifen! I started taking it on Nov. 18th... Now I am trying to figure out how to get a refill before my cruise, because I think I am going to run out of pills when I am away, on the ship! Why do insurance companies make things so difficult?!
Glad to hear that you are moving on, to the next phase of the bc experience.
Take care!
Harley
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Ok, I've figured out how to do an avatar on here. I realized that it was a lot easier to figure out who was talking when there was a picture there, so I muddled through without DH's help and got it all sorted out. As you can see, I still have virtually no eyebrows.
Hey Jackie and Tami! Glad to hear that rads are moving along for you and that you DO have eyebrows coming back. And Debbi, so glad that your burn is better. Makes me wince just to think about it. I just went today for my rads measuring session and the infamous tattoos. I have to say I am seriously reconsidering now the whole nipple tattoo plan. Ouch. I don't start rads now until the 28th. I feel like I am so far behind everybody in treatment. I hope you'll all still be around in March when I'm nearing the end, all burned up and needing somebody to cry to!!
June, I am SOOOO glad to hear of your squeaky clean results!! Yay!! Big sigh of relief, and if I were still a drinking gal I would lift a glass in your honor. I'll do it with sparkling water. Does that still count?
Harley, when is your cruise? It is plenty cold here in Minnesota, and that whole cruise thing sounds nice and toasty warm. How's the Tamoxifen going? I think I'm supposed to start on that after rads, but haven't worked out the details with my onc yet.
Lillith, I totally missed that you asked who was working etc. I've actually been working throughout chemo - about 30 + hours a week. Some days are harder than others, but I think it has helped offset some of the chemo brain by forcing me to keep it in gear. However, I am not shy about leaving work early, going in late, or working from home when I need to.
Good night to all!
DeAnn -
DeAnn! Why you Little Elf! You did that without dh's help. Good Job!..i am SO JEALOUS. And LOOK AT THAT HAIR! Oh, this is SO FUN!
Tami - I am so with you on the above-the-lip-hair. What POSSIBLE explanation could there be for us to have black, coarse hair above our lips? It's not even thick enough to cultivate a nice 'stash. NoOOOooo. Just sharp pokie things. About seven on each side, from my count. And they stagger themselves when they grow so I cant even yank 'em all at one time. NoOOOooo. Gotta be Two every other day. Grmizmmbt. Oh well. At least I don't have to shave my left underarm. Cuz THAT baby's SMOOTH.
Debbi - I'm glad you're doing better. Btw, I do think it is hilarious that you went out to RED LOBSTER to celebrate RED BOOB. Now THAT's funny! I wonder if one could celebrate a mast by going to the Chop House? (sick. And I need to stop there.)
I know what you mean about falling off a ship without a raft. My rad tech warned me I might feel like that at the end, and said that was really common. We're so used to all the excitement and appointments and misery, then it all suddenly stops and it's like being sucked into a vortex. (What is a vortex?) So, I for one, am refusing that vortex vaccum. And I'm going to concentrate on living and taking care of my dh in gratitude for the last 6 months he had to take care of me. (I'll start that next week, honey, honest.)
What state do you live in?
Nash - I hope your mom responds well to that draining. I'll be praying for her. And for me, it's not an MRI, it's just an appointment with a local surgeon who I went to once before. His attitude (before any of this bc stuff) was "That lump doesn't show up on a mammogram, but you can feel it, I can feel it, let's get it out of there so we're sure." So I'm going to explain that the ultrasound on this new lump shows nothing, the ultrasound tech, the ultrasound dr, and my surgeon all said it was nothing. It's probably nothing, but I want it out of there.
'k?My new philosophy is "rip it out and ask questions later". This board has helped me develop it. Thanks.
Ok, ladies. I'm going to EXERCISE now. (ok, stop that gasping. I've been good.)
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DeAnn
My cruise leave from Ft. Lauderdale on Feb. 9th, but we will drive down on the 8th and spend the night in a hotel. I can't wait to be someplace warm!! It was sleeting here a little while ago. BRRR...
We are going on a 7 day Eastern Caribbean cruise.
Tamoxifen is going ok. I just hope I can get a refill before I leave for my cruise. I have had some hot flashes during the day, but I used get them & still do at night, when I am trying to sleep... needless to say, it is really interfering with my sleeping at night. I think that it is important to sleep thru the night, for our bodies to heal.
Good Luck with your rads!
Harley
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Harley - That sounds SO FUN! Eastern Caribbean - where will that take you? How many stops will you make?
Sleeting, eh...it was 55 this morning on my way to work and I thought it was WAY TOO COLD. You are going to have such fun - what cruise line are you going on? Let us know if you like it when you're done. I'd like to gather info for the future.
And yes, hot flashes at night are a huge pain in the tookus. I hate waking up in the middle of the night. I can't blame it on the Arimidex though, as I've been doing it for about 4 years...the Arimidex doesn't make them any worse. I guess if one wasn't used to them they would be worse, but it's just more of the same.
'night girls,
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WOW DeAnn - working through chemo. That is quite impressive - at least to me. I guess I was lazy - or rather, the system here allows me to do as I want (teeehee), so I decided to use the time for resting. As I am part of large IT projects, it was also not very useful for anybody to have me here only some of the time.
I am in Switzerland... cold and snowy at times, so the idea of the cruise sounds pretty cool. I was out to Greece and Turkey in October (had a small chemo break, 3 weeks instead of 2...), and it was nice to take time off and see beautiful places. Sadly, it wasn't sun-bathing warm, at the time hot flushes weren't yet in place, so I was cold all the time!
I am wondering how hot flushes go in summer. Right now I am copying by "airing" myself in the cold air whenever it strikes, but what do you do when it is 80 degrees outside??? maybe I'll have to move to Alaska.
Funny, here alcohol is not considered a no-no during chemo... my doctors had no objections to my having a couple of glasses daily, and I have to say that they helped me greatly sometimes to feel normal. On chemo weeks I didn't want any for 2 or 3 days, but the rest of the time I was sharing a bottle with my boyfriend... oh well.
Hugs!!
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Hey all,
Well, I have made my appt. with the rad oncologist for next Tuesday (also 1st day back to work) why is it everything comes in bunches gals? They said it would take about 10 days to complete everything before actually starting rads. Was that the norm for most of you? I hope and pray I like this man and find him competent.
Debbi: you made it....wonderful! And some of us are green okay? Good for you girl!
Nash: still praying for Mom...give her hugs from all of us.
Harley: I understand about the freezing part....we had snow (3") and sleet here in Atlanta last night. We've been here 6 years and have never seen a flake before. I'm going back to the gulf coast...well, as soon as I can anyway. LOL
DeAnn: Looks like I will be starting my rads right after you and like you I'm SO glad to have someone else to compare notes with as we're going thru it.
Lilith: what a beautiful country to live in. Are you a native or transplant? I too have worked most of the time while under treatment. I did take 5 weeks of FMLA while I had my 2 surgeries but return next week.
BTW, I got a call from my oncologist's nurse to schedule me for follow-up visits. She said the norm is to be seen q 3 months for the FIRST three years!!! What kind of schedule do you all have with your oncologists for follow-up? I will see the surgeon q 6 months for a mamm/ ultrasound/ and MRI.
Everyone have a great day and I hope it warms up some for all of us (even KatoMato's 55 degrees!!! LOL) Personally Miss Kaye, I like it between 75 and 85 tops! How about you?
Oh, forgot to mention...DH and I are going to Cherokee this weekend to play and gamble a bit before I buckle down to work and radiation consult next week. Wish me luck!
June
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Hi Girls,
I just had rad tx #22 today and I have a light sunburn, but very itchy. The doctor at the rad center says my skin looks great. Next week is my last week too and I feel like I won't know where to go or what to do when I wake up the following Monday. My med. onc. wants to see me every 3 months. She says there is no tests I can go for right now or that I need. It's just blood work and check ups. That really freaks me out!!! I wish there was a scan we could walk through every day (like at the airport!!!). Okay, I know that sounds stupid, but it's my little fantasy. LOL.
Kaye, you are just too funny!!!! I hope all goes well with your doctor visit. I'm sorry, I didn't realize you had felt another lump. My prayers are with you.
Harley, have fun on that cruise. It sounds wonderful. Good luck with your tamoxifen situation. I can't believe insurance is giving you a hard time. Nothing is easy. It's good to know you're doing okay on it. I'm starting mine on Monday. I'm just going to replace my mattress with a sponge!!!I'm soaked every nite anyway.
Nash...by the way. I bought those newspaper boy hats in Target also and I don't look remotely as young as you do. Trust me, you look great. The hats are not magical!! I pray for your Mom all the time.
Good thoughts and prayers for all you girls.
Love and hugs, Jackie
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Lilith,
When you get a hot flash in the hot weather you just open the freezer and stick you whole head in. Truse me, it feels better. LOL!!!
My onc said I could have a few drinks if I felt up to it. And I definitely have had my share of wine. It really helps.
Hugs, Jackie
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Kaye
We will be going to several islands in the Caribbean... St. Thomas, which I LOVE!, and St. Kitts, and ... er, a few others. It is a 7 day cruise on Holland America's Zuiderdam.
Dh and I were going to take a cruise to celebrate our 20th wedding anniversary, but his Dad got sick and after his ca dx, (he had kidney cancer with mets to his bones and lungs), we cancelled our plans. Now, though, we've celebrated our 22nd anniversary on Jan. 4th, and after the year 2007 was... we decided to book a 'last minute' cruise, just to get away to someplace warm for a week. We have been on about 7 cruises; to be honest, I have lost count! LOL I LOVE cruising, so I know I am going to love it! There is nothing like laying by the pool in 85 degree weather, and having waiters bring you drinks!! Relaxing.... I have gotten really good at doing nothing! with my chemo txs, but now at least, I will FEEL GREAT while I do nothing! Oh, and I'll show off these new breasts, too!We ARE going on another cruise at Christmas & New Years this year, on Silver Sea cruise lines... it is an Ultra Luxury cruise line, and all the drinks are included!! I can't wait for this!!
And to think, we moved to NC so we could be someplace warmer... but this COLD weather and sleet is NOT what I signed up for... oh, well, just a few more weeks and we'll be in a warmer climate!
Good luck with your surgeon appt. I'm sure it is nothing, but it's best to get it out... I have been of the opinion that if I have something there and it doesn't belong, I WANT IT OUT, and RIGHT NOW!! But, seriously, some things, like my uterine fibroids are like that... I want them out, but my dr. says they won't hurt anything to just leave them alone... I don't like this...
Take care!
Harley
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Hi, girls!
Harley--I am so excited for you! The cruise sounds like it's going to be fantastic!
Jackie--I'm with ya' on the airport scanner idea.
I don't even know what my follow-up schedule is going to be. I haven't heard boo from my surgeon's office, and my surgery was in July. I know I'll be having semiannual mammos and MRIs, and periodic tumor marker pulls, but I don't know how often or for how long. What also scares me is that I have lobular bc, and it doesn't image well, even for mets.
Kaye--how'd it go at the doc today? For some reason I decided you were having a scan. I think "out, out, damn spot" is an excellent approach.
I'm glad I'm not the only one with a baldish head, a furry upper lip (how annoying!) and hot flashes. I like fitting in.
And Lilith--love your avitar, you're beautiful!
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And thank you, also, for the continued prayers for my mom. I know they make a difference, for sure. I talked to her a little bit ago, and she's feeling better than yesterday. She's got a chest tube in, and is merrily draining out her pleural effusion. Hope to have her home by tomorrow.
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nash,
Thanks for the warm wishes for my cruise... I am sitting here, freezing to death in my house, because it is just SO COLD here! I am told this will be a COLD weekend, so I might just want to curl up with a blanket and a good book!
As always, keeping you and your Mom in my prayers,
Harley
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Hi Ladies,
Lillith - "What do you do (with hot flashes) when it's 80 degrees outside?"
I put a jacket on. When it's 100 -THAT'S when I put my head in the freezer. Ice Water helps, too. I read that on this board and it really does work. (Ice cream would probably work, too, but then I wouldn't fit into my jeans. I don't fit into my jeans NOW, but you get the picture.)
Re alcohol, my onc said it was fine, I just didn't want to put one more thing into my body.
June - 10 days sounds about right for the pre-rad stuff. What is odd is the followup. I would LOVE to see my onc every three months for the first three years. She said to have a mammogram in 6 months, then I'm back on YEARLY. PERIOD. I told her I wanted an MRI instead, but she said it was unnessessary. I'm pretty sure I just see her once a year from now on. I just don't get it. SOMEBODY needs to invent one of those scans for cancer that was like in Star Trek. It was the size of a magic marker and you just waved it over the body and BINGO the perfect diagnosis, (and subsequent healing, if i remember correctly) occured.
And yes, my "perfect ambient temperature" is 72 degrees outside. (I was in San Diego once, and it was PERFECT and i looked at a thermometer.) It's usually perfect in the desert here from the second week in October through April - May. And then it gets quite a bit like hell - hovering in the 100 - 115 range and hitting 120 a few times a year. But it's always clear and clean and downright beautiful. Too bad I live with my head in the freezer so I can't enjoy it.
Well, the local surgeon said he agreed with me. He didn't think it was anything, but it's causing me anxiety, so get it out of there. As much as I don't want to have another surgery (it will be done on an outpatient basis) I don't want it in me, either. He found it right away, and agreed. I told him about some of you girls, and some things not showing up on ultrasounds, and he agreed, and was very understanding. So, that's all good.
Ok. We need to crash Harley's cruise. Wouldn't that be great? All of us on a cruise? Yes, yes, yes!!!!!
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Kaye,
Good to hear from you...I'm glad that your surgeon will take out that lump...as you said, "if it doesn't belong there, get it out!" Hope all goes well...When do you have it removed? Good Luck! I'll be thinking of you.
Oh, I would love to have this wonderful group of women on board the cruise ship!! It would be ONE GIANT PARTY!!
Hugs
Harley
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Ok. That does it.
June? Your assignment is to win enough money to send us all on a cruise. (And don't forget Nash's mom. If anybody deserves a cruise, it's her.)
Now GET OUT THERE AND DO IT.
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Hey, good morning ladies... I am waking up - guess most of you have just gotten to sleep!
June, here the follow-up is easy. As I am on Herceptin, and I do the infusions every 2-3 weeks (variable) at the onc office, I see her all the time, and she makes a point of coming to talk with me. She mentioned that we would agree on a schedule as we go, including medicals and mammos - not sure how much. To be added that I am now looking at recon, and as I am a 36DD on the healthy side, and a mini A on the mastectomy side, I want to ask the plastic surgeon to take off the other boob, and to have to small implants (B?) on both sides. As a plus, no need for mammograms any more... and after a lifetime as a DD lady, I'd be delighted to have less - ahem - protuberance.
Harley, it sounds like you will have a ball on that cruise. I wish for some warmth too!!! lets see what summer brings along.
BTW, no, I am not quite a Swiss local. I am originally italian, but lived around - in Germany, Switzerland and a long time in the US, Mass. (so I guess I am used rather to the cold, 80s is hot weather if you ask me kato!). I remember being in Arizona one summer (june to september), and finding life possible - I learned to read in the pool.
Nash, thanks ... it is a pre-cancer pic, now of course the hair is gone... sniff. All the best to your mom... hope the drain works well...
Until later, Lil
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Harley-I don't mind the cold. I'm actually hoping for snow. We've had some but nothing that stuck. The cruise sounds wonderful. I've never been on one.
Kaye-I agree with whoever it was that said you need to write a book. You are so funny! Your quips have helped us all so much just think of how many more sisters you could help.
Amen sisters to the hot flashes and waking up at night. I don't know if the fatigue is leftover from the chemo, not sleeping, or the rads. I have started back with classes at the gym. It's hard to drag my butt there but mentally I feel better.
I will be going to the onc every 6 months. I will have blood tests to monitor me. If they can monitor with blood tests why can't they diagnosis with blood test?
Have a great weekend everyone with lots of rest.
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Tami - Thanks...I couldn't write a book. I don't start out to be funny. I start out to complain, and my brain is all "WAAAAHHHHH" but my fingers type all "AaahHaHaHa". I'm not kidding. What comes out of my fingers is usually NOT what's in my brain to start. I begin reading what I've written, and go: Oh. Ok. Well, I'll just go with this.
" If they can monitor with blood tests why can't they diagnosis with blood test?" that's a VERY good question. No one ever told me they could monitor me with blood tests. Maybe it has to do with your diagnosis? I'm also suspecting that is why the discrepancy in follow up. I'm HOPING that's why the discrepancy in follow up. If it's not that, it's ineptitude. DR NASH????
OH! Btw, Nash - are you related to a Kenneth Nash who was a music producer in the 70's - 80's? I was going through some old record albums (yes, I'm that old) and saw that name. Don't know many "Nash's". (read:"any")
Ok. I now need hair jell. My hair is growing to a point on the top of my head - about 2 inches off-center. It REALLY needs to lay down. And it's substantially thicker and longer on the right side of my head than on the left. (sigh.) The GOOD news (there is ALWAYS good news) is that I have WISPS! Yup. Right over my ears. Very fluffy. (Well, fluffier than before.) So today I'm fluffy and unicorn-like. Ahhhhhh.
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Hi, girls.
Kaye--I'd assume the blood test monitering Tami is talking about is tumor markers (right, Tami?). Not all oncs like to use them b/c they can be non-specific in their fluctuations. So that's why some of us get them drawn as follow-up and some of us don't.
No relatives named Kenneth. My dad's side of the family changed their name from Nashon to Nash promptly upon arrival in NY after doing the fleeing the Nazis things during WWII, so I'm not really related to any Nash's. We just pretend to be Nash's. We're posers.
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Wanted to add, Kaye, that I'm really glad the surgeon agreed to excise the lump. Sorry you have to have more surgery, but you're right--it's totally worth the piece of mind.
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OK, I think I win on who is coldest today. It is currently 0 degrees fahrenheit and will probably get to -15 tonight with windchill factors of about -25. I am wearing long underwear and wool, and my dogs are NOT going to get their walk today! That cruise really sounds nice on days like this!
Kaye, I'm glad you are getting that lump removed. Two years ago I had my lumpy breast checked out with ultrasound, and they didn't find anything suspicious. Then just two years later, I had a stage III tumor, so better to be extra cautious.
Nash, I'm glad to hear your mom is starting to feel a bit better!
DeAnn
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Oh, by the way, I have those hot flashes too. They aren't as bad as they used to be. I'd get them all the time during the last few weeks of the A/C treatment, and they diminished a little bit on Taxol, but I still get at least one every night. I guess the one good thing about having almost no hair is that it is easier to get cool. I don't need a freezer today, I just have to stick my head outside. It's challenging to find just the right level of bedding to ward off the chill but keep me from dying in a pool of sweat. The fun never stops!
My hair is also coming into a little mohawk spike in the middle, Kaye, but I'm so delighted that I am starting to have messy hair again! As I look at the pattern of my hair growth, I now fully understand why my hair never wanted to go in the direction that I was trying to force it into. I have two swirls in the back of my head while most people have just one. Crazy.
DeAnn
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DeAnn---I had to laugh at yoiur balancing act of freezing to death/frying to death at night. I have the exact same problem and it drives me nuts! My "tropical moments" are tapering off as well, though, and I hope they keep fading into oblivion.
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Just checking in, girls. Kimmie--when do you leave for MDA?
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Thought this article was encouraging:
"Internet Based Based Information Found Highly Accurate in Breast Cancer Support Groups"
http://patient.cancerconsultants.com/CancerNews.aspx?DocumentId=36807&Keywords=
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