desperate for better mind control!

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donagee
donagee Member Posts: 12
desperate for better mind control!

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  • donagee
    donagee Member Posts: 12
    edited January 2008

    Hi everybody,  finished treatment for Stage 2 in October.   Felt terrific during Christmas.   Now plagued with worry about every little ache and pain.   For example,  I've had back pain for the past week and a half, feels like a pulled muscle but why do my thoughts keep thinking maybe the worst! It's like I don't trust my body any more.   Please help with advise re coping stategies.  Why do my thoughts always go to the worst case scenario and when will that useless (!) approach stop??   This is my first time on line.  Thanks for any support you can offer.  Am already trying yoga.

  • caaclark
    caaclark Member Posts: 936
    edited January 2008

    I had the same thing happen-I think most of us do.  We seem ok during treatment and then after treatment ends the emotional scary thoughts start to occur.  As far as the back pain goes, did you have radiation?  I had back pain too at about the same point after treatment ended and my onc. was pretty certain it was from radiation.  I also had a mast so it could have been that too.  She sent me for a scan anyway and the scan came out fine.  Mine felt muscular too but I was terrified it was mets.

    I have recently started seeing a psych. at the place where I was treated.  I fought it for a long time.  I also tried a support group but that did not work for me.  She really has not told me anything I don't already know but there is something about spilling your guts to someone on a weekly basis that helps.  I go every Monday and I leave feeling great.  For me I tried all the strategies:  keeping busy, working on projects,etc.  But until I started to see a counselor on a regular basis those strategies did not really help.

    I am sure others will be along soon to give some great advice.  Just know that you are not alone!

  • Paulette531
    Paulette531 Member Posts: 738
    edited January 2008

    donagee...it's perfectly normal in the beginning and for that matter for a long time after treatment for your thoughts to always think the worst, so far (in November 2008 I am five years out from diagnosis) I have had toe cancer, finger cancer, shoulder, right leg, stomach, voice, tongue, brain and lip cnacer (at least in my mind I have) and I am sure there are a host of others. Cancer forever changes us, this last year I have not worried so much as I did in the beginning, and as I recall, it lessened each year.

    You will never be who you were before cancer, but you will become a new you. It forever changes us, I think most of us feel that we do not trust our bodies because cancer is scarey, and it will take us through a lot of ups and downs.

    Take heart, you have joined a great support forum, and I am sure more will come along and give great advice and support. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2008

    donagee...I'll echo what the other posters have said, especailly Madalyn's take on worrying...it gets us nowhere and just ruins the here & now. I do still worry too (2 years out), but have never felt as though it was my body's fault or betrayal that I should fear; rather, I consider cancer and other disease as invasions and, so, am resolved to protect what I love (my body) from these. That takes some effort and focus and allows me to have a more positive slant to this fear.

    I guess each person needs to come to terms with her/his own eventual mortality one way or another and having cancer just makes it more in-your-face. A counselor I once spoke with said that the healthiest survivors she's known do acknowledge death, almost like it's a presence that stands to the side or at a distance, but then go on and just lives their lives. That imagery helped me alot and really enabled me to truly move on.

    ~Marin

  • caaclark
    caaclark Member Posts: 936
    edited January 2008

    Also, check out the thread in this forum called, "I'm done with my treatment-now what"

  • caaclark
    caaclark Member Posts: 936
    edited January 2008

    Also, check out the thread in this forum called, "I'm done with my treatment-now what"

  • donagee
    donagee Member Posts: 12
    edited January 2008

    There are no words to express the gratitude I feel to all of you who have responded.  I am so touched that you took the time to respond to me. . .a perfect stranger.  You'll never know how helpful it is. . .on second thought maybe you do all know.   Wish I could thank you in person.   I am moved beyond words. Seriously, even the smallest comments you make as so very important to me. What a fantastic site. . .why didn't I get on last March when I was first diagnosed and in utter despair.   Love to all of you.  If you ever come to Boston, look me up.  Danielle

  • NoH8
    NoH8 Member Posts: 2,726
    edited January 2008

    I tend to attack irrational fears from a logical point. I ask my self a lot of rhetorical questions such and remind myself of the truth. For instance, "how is worrying going to help me?" It's not. Worrying won't change the results of any test, it won't keep me safe through magical thinking, it won't cause or prevent a recurrence. Obsessing will only make me miserable and I prefer not to be miserable. Having these conversations with myself over and over helps me prioritize where I want to spend my energies.

  • BethNY
    BethNY Member Posts: 2,710
    edited March 2008

    no thanks needed, it's part of the rite of passage in the sisterhood.  We help you, you help someone else- and so on and so forth.

    It does get easier with time.  Even though that statement doesn't help right now, it's comforting to know, that it truly does get easier.

    Someone here, I forget who taught me this:

    You can live your life worrying about a recurrence and if it never happens you wasted your life.  OR, you can live your life worrying about mets and it does happen, and you still wasted your life.

    It's a crap shoot, and all the gals here will tell you.

    However, adjusting to being 'regular' again takes time.  Every ache and pain will make you think about the what ifs... but you can't let your mind run away with you.

    Follow the two weeks rule: any pain that is constant for two weeks is worthy of calling the doc.

    Talking about your fears here with us, is essential, b/c we all feel or have felt the same thing.  We understand.  We will never think you are a hypochondriac.  We will never tell you, you're better, now move on.  We understand.

    You almost have to rationalize with your mind.  When I tell people that active treatment is at times easier than moving beyond, they think I'm nuts until they get there...

    It will get easier.  And we're here the whole way.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2008

    Around Thanksgiving I was having pretty bad pain in my back.  It felt like it was near the kidney.  It felt like a muscle...couldn't palpate and feel the pain.  It was deeper.  I could hardly turn over while in the bed.  Had a hard time getting up and down.  I took Aleve or an Nsaid.  I was scared.  Well, it went away. 

    One other time I had a skin rash that itched.  I looked on the computer (just knew it was skin mets).  It did appear to be shingles, but I wasn't accepting that until I saw a dermatologist.  It was shingles.

    Shoot, we all go through canceritis.  We all have fear that one day this will come back.  But like the ladies here have said, it does get better.  Some days you'll forget about cancer and others it will pop back up in your mind.

    Hang in there and please do come back.

    Shirley

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