Is anyone triple negative with bone mets???

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LH1025
LH1025 Member Posts: 14
edited June 2014 in Triple-Negative Breast Cancer
Is anyone triple negative with bone mets???
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  • LH1025
    LH1025 Member Posts: 14
    edited January 2008

    I just wanted to talk to someone and see their treatment with triple negative with bone mets.  I was diagnosed April 2008 and have been on chemo since.  I've tollerated the chemo very well and in October we scans and the breast tumor was shrinking and the lesion on my back was stable.  I continued chemo and just did a new round of scans last week. I received good and bad news....the back lesion and breast tumor have shrunk however now a new small lesion on my hip bone. I will be starting carboplatin/taxotere next week.  Can anyone give me any advise or their stories.....

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  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008



    I am sorry to hear about your new hip lesion, and see that you're having neoadjuvant treatment of your breast cancer. I'm sure others who have had the chemotherapy you are inquiring will be along soon.

    As this is one of you first posts, I just wished to welcome you.



    Take care,

    Tender



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  • melissatf
    melissatf Member Posts: 5
    edited January 2008

    I'm triple negative with bone mets. 

    I have taken Avastin w/Taxotere which worked for approx. 1 1/2 to 2 months.  Then my oncologist put me on Xeloda and Taxotere which worked for about 2 months. My scan revealed bone mets so I was placed on Zometa.  I am currently taking Carboplatin and Abraxane with monthly infusions of Zometa. 

    I have had minimal side effects from the Carboplatin and Abraxane  (The worst side effect has been fatigue).  However,  I have experience bone pain and/or muscle spasms from the Zometa.   I will be receiving another scan within the next 3 weeks to determine the effectiveness of this treatment. I believe I have been on the treatment for 3 months my scan revealed stabilization of disease (had a scan after 1 month).

    You will handle everything like a champ. Trust your oncologist.

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  • immalovinyou
    immalovinyou Member Posts: 32
    edited January 2008

    Is there anyone out there I can send my pathology report to via pdf file and help me understand what I will be hearing in the dr's office tomorrow....I think i am er- pr- and her+??? Please help I have no clue what all this is about.

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  • immalovinyou
    immalovinyou Member Posts: 32
    edited January 2008

    sorry I posted that in the wrong place....please forgive..... I do apologize.........((HUGS))

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  • immalovinyou
    immalovinyou Member Posts: 32
    edited January 2008

    sorry I posted that in the wrong place....please forgive..... I do apologize.........((HUGS))

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  • jeanne46
    jeanne46 Member Posts: 1,941
    edited January 2008

    I was diagnosed with bone mets and triple negative status in Dec. '05. At first I tried xeloda (capacetabine) with monthly injections of zometa. After three cycles the xeloda did NOT work. Then I took avastin and abraxane (nab paclitaxel) for almost a year. Got close to NED, then numbers and scans started to increase/show disease progression. Then I tried Femara for 3 cycles. It did nothing. Then I did a clinical trial for 4 months (which also did nothing and now have more disease progression and two new spots). Will soon be starting something else - not sure. My guess either a platinum or anthracycline and perhaps ixempra. Waiting to do a node biopsy and then have it sent for chemo-sensitization.



    The worst SEs I experienced were from the xeloda. It made me mildly nauseous all the time.



    Good luck to you. Just wanted you to know there are lots of chemo options out there - don't give up hope.

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