Jan 2008--Ain't it Great?

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  • vettegal
    vettegal Member Posts: 287
    edited January 2008

    Ladies of Jan Jewels...

                   FYI Fashion Bug has the cutest breast cancer t-shirt..12.99 pink with pink stones making the breast cancer ribbon..1.00 is donated to BC research..I had to get one! A real comfy stretchy type of material feels good on the scars....(LOL)

                 Hope everyone is doing well today..will check back later! HUGS to all....

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  • SISKimberly
    SISKimberly Member Posts: 762
    edited January 2008

    Good Morning Jewels-

    KathyL-thank you so much for putting that list together. I had my port put in the same day as my bilat 12/6, so my chemo-tini will be delivered via port.



    Dana-You sound really up!!! Good to hear! Do be mindful your body is trying to heal...so going to school and work plus trying to heal is what is causing you to feel so tired...not lack of exercise. I'm not saying if you feel up to it not to exercise...just be mindful of your body's desire to heal and how much energy that takes...and yes, we do chat we gals...thankfully. Don't know how we'd get through this if we didn't.



    D1/OLE(Our Leader Extraordinare)-WhooHoo on your daughter's time on the floor and the win!!!! Made climbing up those bleachers...and back down worth it eh?



    Wvgirl-glad all is still well...hope you are able to sleep better tonight.



    Diana63- sorry to hear you're feeling achy...hope that clears up soon...but the good news...no nausea!



    AZ Deb- Yes , we do start the same day. I already have my port...got it the same day as my bilat 12/6.

    I look forward to hearing how your experience goes...you'll have 20 weeks total...I'll only have 18, but then I get to do RADs afterwards. BREAKFAST...yep, got to have some now...my tummy is growling...it's 9:40 already. Man time flies when you're chatting away.



    Sorry you aren't feeling well, AZ Donna. Hope you got the rest and relief you needed going back to bed.



    T-shirt slogan: January Jewels...Sisters In Survival... with the breast cancer ribbon of course...on black t-shirts with hot pink ink. I'm tired of all pink...black and pink is more powerful...warrior like colors.



    Your SIS (Sister In Survival)

    Kimberly

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2008

    *sending feel-better thoughts to Donna1955* everybody ... PUSH them her way !

    KathyL, wow, what a great summary, thanks so much for doing that! It just reinforces that each of our cancers (and consequently our treatments) is unique.

    To all those thinking about/missing exercising ... like you I spent some time right after my diagnosis trying to figure out how I got this disease. You know, it's just what our minds do as they try to wrap themselves around the dx.  It was so insane that I got bc. I eat/ate mostly organic foods, use as many "natural" products like laundry detergents, soaps, cleansers, etc. as I possibly could find ... I had no family history, I quit smoking, I always use sunscreen, took antioxidants daily. I did just about everything I could do to not get cancer. But I did. Some will call it God's plan, some will say it's just something that happened. I know I'll never know for sure why I got cancer. But the one thing I can put my finger on, the one thing I should have been doing that I wasn't ... was exercise.

    I was an active/athletic kid, and even a back injury at 13 and paralysis did not slow me down much. I overcame the paralysis and stayed reasonably active through my 20s ... when my company opened a fitness center on site I joined and exercised pretty regularly for 10 years when I was in my 30s. But then I got the lazies at 40. I got my own house shortly after that and figured all the housework and yardwork were exercise enough. So I was pretty much a couch potato with some weekend physical activity. There were small spurts where I decided "I really need to start exercising" but these would fizzle out after a few weeks. Being naturally slender, I never had any great incentive to keep pounds off by exercising, so for the past 8-10 years I didn't do much.

    But here's what I've been observing. The people who are showing the best outcomes from their cancer survival experiences, are those who start/continue a real, lasting, exercise program. A lady at work who had Stage 3a bc is an 8-year survivor, and she committed herself to exercise. Lance Armstrong ... geez, who isn't inspired by that guy. Look at the amount of physical conditioning he has committed to, to be a World Class bicyclist.

    There are huge amounts of data showing that exercise boosts the immune system. Why did I get cancer? On the most fundamental level, I got it because my immune system failed to recognize the cancer cells as bad things ... or failed to work hard enough to rid my body of them even if it *did* realize they were bad.

    There is data showing that if you exercise 3 hours per week (moderate exercise like fast walking), your chance of cancer recurring is 25% reduced. If you can increase that to 5 hours per week, your chances of your cancer recurring are reduced by 50%. Many studies have shown that if you exercise during treatment, that nausea goes away almost immediately and doesn't come back at all that day.

    Anyway, I hope I don't sound too much like I'm preaching. I hope I don't sound like a fanatic. 'Cause this is what it's all about for me: I don't expect chemo to be a magic bullet. I expect and hope it will rid my body of cancer cells. But I think that to really survive, to make it to my 80s and die of old age ... I have to make a lifelong commitment to fight this cancer every day of the rest of my life, by eating right, avoiding bad things, and keeping my immune system functioning optimally. This doesn't mean thinking about exercising, but getting up earlier and actually doing it. It doesn't mean taking a green tea extract pill, but drinking green tea and eating 5-10 servings of f&v every day.

    Please think about making the same commitment as I have. I don't want to ever hear that any of us has a recurrence of cancer. We can beat this disease, if we dedicate ourselves to the task !

    Live strong my friends. 

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  • Determined1
    Determined1 Member Posts: 806
    edited January 2008

    Worried about you, AZDonna.  Stay up on your meds and try many smaller meals.  When I say a meal, you can count a banana and a graham cracker as a meal.  When you sit down to your 3 squares, give yourself MUCH smaller portions.  The large (read that to mean normal) amounts of food may make matters worse for you.  And try to sip on something all day long.  Anything with ginger in it (soda, tea, etc) should help.  You may find water starting to taste funny, anyway, so the ginger flavor may help you to stay hydrated.  Try really hard not to fall behind the 8 ball, so to speak.  I've heard it's harder to play catch-up than it is to stay ahead.  Let us know how you're doing.

    WVgirl--did you take the tylenol pm?  If not, try that one.  Particularly the second night after the neulasta shot, if you're feeling achy.  We gotta sleep!

    Hang in, Diana63!  Like I suggested to WVgirl, look into Tylenol pm to push the "acheys" away and get some rest tonight.

    (I sound like the tylenol sales rep here!)

    I agree with LJ13 about the exercise.  My plan is to do something every day that I can.  Today I rode a recumbent bike for 20 mins and did some lifting, but I put my weights back 50% from my normal.  Since I was having those spasms just two days ago, I didn't want to risk too much.  But the point is, we really do need to stay active.  There are so many proven benefits to exercise that its difficult to ignore it.  And I agree that Lance Armstrong is an excellent poster boy.

    Thanks again, KathyL, for the list.  I will update in my original post as we get more info on our Jewels.  I KNEW that an anal retentive soul (takes one to know one) was right for the job.  Heck, we ARs get sh*t done!  ;)

    I'll try to check in later to see how our gang is feeling.

    Stay strong, Jewels!

    D1

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  • vettegal
    vettegal Member Posts: 287
    edited January 2008

    Ladies, I am having a brain fart....I made something on microsoft word and i want to put in a comment...I know they took half my brain when they took part of my boob..BUT can anyone help me with this? I am such a.........!

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  • vettegal
    vettegal Member Posts: 287
    edited January 2008

    Ladies, I am having a brain fart....I made something on microsoft word and i want to put in a comment...I know they took half my brain when they took part of my boob..BUT can anyone help me with this? I am such a.........!

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  • wvgirl
    wvgirl Member Posts: 196
    edited January 2008

    vettegal try to copy and paste it ?

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  • vettegal
    vettegal Member Posts: 287
    edited January 2008

    tried it wvgirl...no luck,,i am still trying

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  • vettegal
    vettegal Member Posts: 287
    edited January 2008

    tried it wvgirl...no luck,,i am still trying

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  • golfer779
    golfer779 Member Posts: 1,378
    edited January 2008

    Good Morning/Afternoon Jewels,

    Wow, I cannot believe all the posts.  Its much easier to keep up with things when I wasn't working.  I told myself this morning that I must do my house chores before I get glued to the posts and the Seahawks game!!!

    D1 - so glad to here that your back has gotten relief from the muscle relax.    But whats up with the blister on the leg?  You seem to do things in a big way, or maybe your just our guinea pig for se's!   Way cool for your daughter ... I love hearing your b-ball stories, this has been the first time in 10 years we havn't been to the hardwood for one of our kids ball games.  Oh they grow up too fast!! 

    The updated lists at the post helps alot.  Thanks to KathyL and yourself for doing that for all of us.  Anyone try to print the posting?  I can't seem to print anything, and it's hard scrolling all around.

    So I see many of you have txt such as AC, TC, CAF etc., is the "C" for cytoxan.  If it is that seems to be the common med to my txt of CMF but I will be taking it orally for 14 days. 

    Hey I can't remember who asked, but in regards to a sleeve to be worn when flying, my surgeon recommended that I get one fitted.  I asked the PT about it and she said just make sure that the arm to be fitted is at its lowest point for inflamation (it you have any).  I havn't checked with my insurance yet to see if they will cover the cost.  Unfortunately, we have decided not to go to Arizona in March for golf as we usual do, so I have a little time to check on the particulars of a sleeve.  Right now my effected arm is measuring a little bigger than the left, this could just be due to fact that I'm right arm dominant and have bigger muscles in that arm.  We'll keep a check on it at PT appts.

    I'm sure on the lymph thread there will be very informative ladies who can help advise us newbies on the subject.

    Kimberly, been blown out of California yet?  Up here in Washington its nasty too, the rain was belting against the window most of the night with the gusty wind.  I'll be thinking of you Tuesday, did you happen to get any EMLA cream to put on your port to numb it?  I think I take the wimp crown, but I have had my port flushed once and last week they drew some blood from it and I didn't expect it to be so uncomfortable.  I'm going to try the cream on Thursday, and plan on taking a little Lorazepam prior to my appt.

    Wvgirl, nice to have that BRCA test complete, glad to hear of your neg result.  I too was neg., good news for siblings, kids as well.

    Dana, how cool that you have almost complete use of your arm after your node dis.  I'm still just looking forward to being able to hold it up high enough to shave.  So glad that you found this group of ladies, your whole attitude seems like it took a leap forward.  Hoping you get all the answers your looking for at your appt next week.

    Better submit, looks like the wind could knock out some power here, 

    Carol

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  • vettegal
    vettegal Member Posts: 287
    edited January 2008

    golfer-whens is your seahawks game tonight or tomorrow?

    my steelers play tonight at 8pm

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  • golfer779
    golfer779 Member Posts: 1,378
    edited January 2008

    Vettegal, sorry I left you out of last post, Hawks play at 1:30 NBC, I believe same station as your Steelers.  We're hoping that the cable doesn't crap out.  The wind is blowing pretty good here.  We have a generator for the tv but if the cable goes we're "tits" up or in my case "tit" up!!!!

    How's the arm doing, was surprised you had went back to work so soon.  I too went on Weds., felt it by the evening, I'm a semi truck driver, (they put me on light duty, smaller truck and a automatic instead of 18 speed).  Words of advice from my PT, sit and try to stand straight.  I was doing the right arm slouch thing and didn't even realize it.  The burning sensation is getting kinda annoying, I keep hoping that I'll wake up and it will be gone.  Not wearing a top is just not going to work well!!!!

    Probably should get cleaned up, company over for the game, planning on having a few brewski's, going on the wagon starting Monday.  YUCK!!!

    Carol

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  • wvgirl
    wvgirl Member Posts: 196
    edited January 2008

    LJ13 thanks for the information on the % of recurrence and exercising. I was walking 1 to 1 1/2 miles 3 to 4 days a week prior to having to have hemorrhoid surgery in October. That is also when i found my lump. With the walking it helped me to loose a good bit of weight. i feel very strongly that it I had not had been dieting and exercising I would have not found my lump. I have been lazy but am going to start back up on the walking.

    Vettegal-I looked on Fashion bug web site but was unable to find the t-shirt. I did how ever find a web site with some cute shirts- one says CCKMY (cancer can kiss my ass) the web site is ww.spekupdesignes.com/breast-cancer-awareness-t-shirt

    Kimberly hope your first treatment goes well Like the the shirt idea

    D1 hello and yes I do hope the Tylenol pm will help tonight.

    Hugs to all

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  • vettegal
    vettegal Member Posts: 287
    edited January 2008

    Hey Carol-

             I am doing th slouch thing too..boy is it hard to stay straight... I can finally see the inside of my hairy armpit and trying to get that hole cleaned..i hate when i can't get in there..i do my wall walking exercises in the shower..Are you more stiff in the morning after sleeping? i toke some aleve this morning for pain and cramps..what other pain can i get now!! LOL

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  • golfer779
    golfer779 Member Posts: 1,378
    edited January 2008

    Vettegal, I tend to be tighter in the evening, I take a little advil at times, I've just never been a pill taker so I think I forget about taking something to give myself a little relief.  I guess I'll get used to taking alot of pills here real soon, my txt is taking orally 3 cytoxan tablets for 14 days straight with drips in between.  I figure all of those with anti nausea, anti consp., etc, etc., will get me pretty used to taking alot of pills!!!

    Just tried again to shave a little bit of the pit, I think I got about 4 hairs.  I'll be braiding those babies soon!!!

    The cramp thing has been a real pain, I had been on birth control for years just for the side effect of almost nonexistent periods.  With my diag. I was told to immediately stop taking it and low and behold I have had some hellious periods the last three months.  Just what we need on top of everything else.  I think I'll live with the se's of no periods without complaining too much.  Atleast its easy to say right now!!!

    Hope your Aleve kicks in,  "GO HAWKS"!!!!

    Carol

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  • golfer779
    golfer779 Member Posts: 1,378
    edited January 2008

    Vettegal, oh I forgot to tell you that as I read your post I had to sit myself up straight in the chair, I was slouching again!!!!

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  • Determined1
    Determined1 Member Posts: 806
    edited January 2008

    Just want to say, I'm cheering for the Seahawks right now, since my beloved Vikes didn't cut the mustard.  I live in the DC area and, as a result, am a Redskins hater.  Besides, we all need the Seahawks to do well, we'll all have matching hairdos with their QB, Hasselbeck!  It'll be our fashion statement.

    Go 'Hawks!

    D1

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  • vettegal
    vettegal Member Posts: 287
    edited January 2008

    Sorry D1, can't root for the Seahawks (sorry Carol)

    and after seeing Tom Cruise in the box with the owner of the skins...I may not like them either now.....Go Steelers!

    Hugs.....

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  • vettegal
    vettegal Member Posts: 287
    edited January 2008

    Carol-GREAT GAME!!!!! way to go....

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  • golfer779
    golfer779 Member Posts: 1,378
    edited January 2008

    Vettegal, as ugly as it looked with about 10 min to go in the game, we got lucky ... lots of high fives in the house.  We'll now be switching between the University of Wash b-ball and the Steelers game.  Have the kids home from college, gotta love it. 

    Good luck to Pitt!!!!

    Carol

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  • Determined1
    Determined1 Member Posts: 806
    edited January 2008

    Carol, I had a similar experience with birth control.  I'd been taking it to control horrible mood swings associated with my periods (am thinking now that I was feeding my cancer beast all that time!).  As soon as I was dx'd they said, no more pills, and took my hormones away.  I couldn't help but wonder how screwed up is this world when you tell a woman she has bc and then take away her hormones???  Anyway, my periods have been just awful as well (and of course, I'd been taking those blood tests to tell if I was post-menopausal which said I was, but I'm having these periods!  Go figure.).  I'm so past more kids, so I'm looking forward to chemopause.  How sick is that?

    Hope everyone is feeling okay (come and complain if you're not, we'll prop you back up like its our job!).

    TTFN (wasn't that Tigger?  ta ta for now?  Can't remember...).

    D1

    Good job, Seahawks.  My kid finished some of her homework and came down to control the tv (she's watching "Entourage" on demand), so I'm not getting to see the Steelers game (even though I'm not a big AFCer, I'd cheer on the Steelers in that one).  So enjoy, Vettegal, hope your boys are doing their thang.  (Tom Cruise is cute, but too weird for me.  I did, however, get a haircut like his wife!  Not to worry, it'll fall out soon, will you still respect me in the morning??)

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  • golfer779
    golfer779 Member Posts: 1,378
    edited January 2008

    D1 - sometimes I think when I get that weepy feeling the last couple months it has more to due with the hormonal issues than the realization that I have cancer.  I took my son to the dentist Thurs and as I was sitting in the waiting area a little guy about 4 came out to his waiting mom with little alligator tears in his eyes, holding his balloon the dentist gave him, I had a moment right then, thinking of my son and how fast he's grown up.  Kinda dorky, but again I think that my tears we're triggered by the hormone rollercoaster.

    I say bring on the night sweats ... I want to move out of this stage!!!

    Carol  (PS, had to send Vettegal a note, poor Steelers!)

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  • vettegal
    vettegal Member Posts: 287
    edited January 2008

    Good morning Jewels-I was on the pill for over 10 years also, started taking in my 20's till about 10-12 years ago...you often wonder if the estrogen in them causes crap like this. I have always been a emotional person, now i am worse then ever...crying watching a movie, crying when then steelers lost last night (lol), crying for everything now....my hubby is worse then i am..i tease him if he gets his period too..he gets the pms when i get mine, i have my period now and i SWEAR he gets his craving for chocolate when i get mine!!!Too weird!Tongue outGoing out for our sunday breakfast out (we do every sunday) it's nice not having to cook and just talking...seems we have been doing alot of that lately...talk therapy..seems to be working like you sisters in this board. I not even dressed yet and I say to him"GOTTA GO CHECK ON THE GIRLS" poof, i am here talking to you ladies! He is very good about it.....GO TALK TO THE GIRLS he says. he doesn't mind he know how good the group has become..he knows some of the girls names i talk about...he is a keeper!Kiss 

    Have a good morning ladies..I hope everyone is feeling good today.....Hugs to all  xxoo

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  • SISKimberly
    SISKimberly Member Posts: 762
    edited January 2008

    Man, I can't keep up with all this chattering. I'm not a big football fan, so I can't be happy or sad about who wins or loses...but I am happy to give you the highest five I can manage right now if your team won and my condolences if they didn't.



    Went to dinner with my dh, my twin, and a good friend from Chico (we danced together-tap, jazz, ballet, ballroom, modern for several years and formed a wonderful bond with our dance group that's lasted over 10 years already). Went to the same restaurant where I had my Bye Bye Boobies Bash. They did a fabulous job with that, and the wait staff recognized me and told the chef I was there. He came out and personally said hello and asked I was doing. Isn't that cool? I just wrote he and his staff a Thank You for their kindness. I had Elk last night. It was pretty good, but my tummy is having a hard time digesting it, I think.



    Just a quick check in...I'm off to watch Sunday Morning with the dh...our Sunday morning ritual.



    Your SIS(Sister In Survival)

    Kimberly

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  • golfer779
    golfer779 Member Posts: 1,378
    edited January 2008

    Good morning from the Pacific Northwest, there is actually a hint of sunshine this morning peeking out between the rain clouds, it feels so good on my back!!!

    I just had to pipe in on your comment Vettegal, my dh also is so supportive of my time with the ladies.  He also asked "who ya talking to"?, he is starting to figure out some of the names as well, Okay so I had to put a football team name with a few of you.  I have heard him talking to friends about how I have found the absolute best place to go for support.  I think it actually takes him off the hook to not have to hash this out with me 24/7.  I know he would if I got going on the subject, but I think good therapy for him is to have time to not think about it.  I have put my "C" books on the shelf instead of next to my recliner in the living room.

    I guess the bottom line is that I would be scared half to death if all I had was my books, and a few drs appt, and other websites to figure all of this out.  I have one person at work whom I just met through another friend to talk to face to face (did this whole journey last year).  She is a hoot, as I know you all are too.  The personalities of you all come shining through the pages, and you are beautiful ladies.

    Planning on laying low today, felt almost like a little cold coming on yesterday, went to bed early, slept in this morning.  Not what is needed this week!!!   We are going out to dinner tonight, we got a gift cert to local restaurant for a wedding present last summer and have not used it, I figure tonight is my last night for a little wine for quite sometime and a nice dinner to compliment that will be what the doctor ordered!!!

    Hope you all have a lazy Sunday as well,  Carol

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  • KathyL
    KathyL Member Posts: 534
    edited January 2008

    Good afternoon Jewels!  So glad the list helped.  And D1, I love that you put it on the first post now.  It looks good!  I have my hand-written copy here to add info to and keep track of upcoming "starters", but between the 2 of us we should be able to stay on top of things.  No one starting tomorrow it appears, but Tuesday is day one for Kimberly and Deb102307.  Thursday is the start for golfer779 (Carol). Good luck girls!!

    Kimberly:  Love the t-shirt idea and the colors.  I wish/hope we could get it made for us all.  Suggestions anyone?

    AZ Donna:  Hope you doing better today.  Post when you can with an update so we all know how you're doing. 

    LJ:  Thanks for all the info on exercise.  I used to be really fit.  I'm still not overweight, but I don't really do anything other than work and take care of the house/kids.  I am motivated now to at least get moving.  Maybe it will help ease SEs when I start chemo next week.  I got some vitamins to take (Women's One-a-Day), and started them today.  Major big pills to choke down!

    Carol: The "C" is for cytoxan.  I assume every "c" in our cocktails is that as I don't know of other "c"s for chemo.  At least that's what my "c" is.  Nasty drug... not looking forward to "meeting" it.

    To all the West Coast girls: hope you're doing well.  Read about the storms in our paper today and hoping you are all with power still and not too cold.  It's been chilly here in DE: teens-30s most days.  But it's supposed to warm up to the 40-50s in the next day or so.  I hate to be cold.  We haven't really had much snow (knock on wood) so far... just flurries and snowfall that only lasted a day on the ground.

    Dana:  You sound sooo much better!  Yay!Smile

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  • KathyL
    KathyL Member Posts: 534
    edited January 2008

    Oh, I almost forgot.. someone mentioned the BC pill thing.  I, too, was on them steady for a long time-  10-11 years in my 20s and early thirties.  In between having both both my kids I was on the nuva ring and progesterone-only pills (not at the same time).  And after my last (when I was dx), I was on Loestrin-24.  I loved it b/c I was starting to have heavy, long periods and I have had problems with rupturing, hemmorhagic ovarian cysts-- no problems with either while on BCP though!  Of course with my DX, the pills were stopped.  Now I'm back to rupturing cysts and yucky periods.  No offense, but chemo-pause may be better.  My mom didn't hit menopause until her mid-50s-- that's a ways away for me since I'm 37 now.

    So anyway, I wonder what all those hormones did to me.  I have no other BC risk factors other than my age of starting to have kids (31 with my first).  But my BC is ER/PR -.  They still won't let me restart the BC pills.. and frankly, I'd be afraid to.

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  • golfer779
    golfer779 Member Posts: 1,378
    edited January 2008

    Jewels, give me a few more particulars on the t-shirts.  I believe it had been mentioned to have January Jewels printed on the front and "FUBC" on the back.

    Colors, type of shirt, size letters, etc., with a little bit more info I would be happy to order up some shirts from our local print shop.  I would need to have sizes too.  I'll start keeping track if you all would like and check on it after work tomorrow. 

    I'll be checking in throughout the day, Carol

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  • golfer779
    golfer779 Member Posts: 1,378
    edited January 2008

    KathyL, with the dx, I too have wondered how good those pills have been.  I was on them for about 25 years with only a break once to have my son.  Not once in all those years was cancer brought up in conversation.   Who'd thunk?

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  • camazur
    camazur Member Posts: 70
    edited January 2008

    Hello Jewels-

    I am getting my port Friday, and am so nervous about it. More nervous than when I had my lumpectomy. Maybe that's why I'm nervous--that surgery laid me low for weeks. I know this will be a much smaller incision, but I'm really worried about my body rejecting this thing or getting an infection.

    Any Jewels who have gotten the port--just how bad or not bad was it? I seem to remember one gal who said she felt like she got kicked in the chest. I haven't been prescribed the numbing cream but will be sure to ask about it. Good to know it must be flushed. How long does it take to heal? (stop hurting)

    Plus, my surgeon says I will be awake for this. I wish they had put it in when my lumpectomy was done while I was out. I think. And then it has to come out afterwards.

    So there hasn't been much discussion about the port business and I want to know what to expect. I have seen what it looks like, and it looks HUGE to me. But I am a small woman and a big chicken.

    Thanks.



    Maz

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