Starting Chemo in May 07
Comments
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Hi girls,,,,,,,,,,,,just a quick in and out. Read everyones posts. Good news gals. Isnt it nice to focus on life outside of BC for a change. I just love reading everyones posts,,,,,,,,about families, activities,,,,,,,,,,and someones sex life?? ummmmmmm that would be your Tracie. Good for you,,,,,,,,,,,,you go girl. lol
Yes,,,,,,,,, the birthday party is for my grandson the one I babysit. I just love him so.
ok,,,,,,,,,,,,so I've been playing Wii.............good God almighty,,,,,,,,,I ammmmmmmmmm sore. Can you believe that? All from a video game,,,,,,,,,,,I play the tennis and I feel like I was actually on the court running around. The boxing is fun too. I had a chance to uppercut the hubby without even hurting him. Would be a good game to have when you are mad,,,,,,,,,,just beat the pretend shit outta the person. lol Aggression, aggression, aggression. lol
Had my mammo today,,,,,,,,,,and it was an all clear. I know we all will have the cancer thing in the back of our minds,,,,,,,,but sure is nice to know that right now there is no cancer. And by golly,,,,,,I'm keeping a positive attitude that it is gone forever. Right girls?
Well just wanted to pop in to say Hi,,,,,,,,,,,,
The guys are coming over to start the drywalling on the kitchen and bathroom. Cant wait to get that stuff done, so I can start on the kitchen cabinetry and countertops. I almost hate being a homeowner anymore. If its not one thing breaking down its another. At least if you rent,,,,,,you just call the landlord up and say,,,,,,,,,ummmmmmmmmm come over and fix it. lol We have lived in our house for so long, own it,,,,,,,and have no write off anyway,,,,,,,,,so whats the difference. lol It's good security thats all.
Have a good rest of the week and a great weekend.
Take good care of yourselves gals...............
Cindy
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LeeAnne - sorry to hear about your furnace! BRRRRR. The wrong time of year for that to go out!
And whoever posted the hair cut pics - those are darn cute, but I have to say I'm with Virginia - my hair does not look like the pics! It's starting to have uneven height and random curls and everyday it's different. And the amount of grey keeps changing - what's up with that? Are some days greyer than others? (this is the first time that I haven't colored my hair in oh, 15 years!)
Mandy, lovely to see you posting!
Cinrae, ditto!
Traci, you lucky gal you. You KWIM. (=know what i mean
)
Did you all see on my blog where old friends offered to do "whatever it takes" to get me to Hawaii? Do you think they meant it? I adore them and admire them greatly, and they are travelers, and well-employed, but whew...what a generous offer. I've been pondering and waiting to call.....
What an amazingly abundant universe it is, right? Still learning to accept all the help, still.... And we just got a big grant at work, so there's that too....on to 2008. So far it's flowing well!
And I don't know why it is, because with hot flashes and face pain I hardly sleep, but I've felt GOOD tonight, a bit of that fresh breathe of air of well-being that I felt 5 weeks after chemo and before tamoxifen/rads.
Oh, and with my mom's cancer, there's a small chance she won't have to do rads as her doc said she did NOT fall into the "adverse" risk category which leads to rads, plus her gyn onc agreed to a c/t scan. Which is a vast relief to me.
Plus my brain MRI came back "normal" - hah, I can hardly believe it, who wouldda thunk? - with only fluid behind the ear, so I'm getting referred to an ENT doc. So, on to the normal health issues - and I'm hoping all my face pain is due to that and NOT the need for a root canal - I see the endodontist tomorrow. Wish me luck!
Someday I get to stop feeling like all I have to talk about is health stuff, right?!! EEKS.
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Hiya, all! Well, I want my money back from my hair cut. I don't look anything like Halle Barrie!?! lol Seriously though, it does look okay, but I actually think I looked better with 1/2" long hair all over. Or was I just so thrilled to have any hair then that my perspective is skewed?
But the strangest thing happened last night. I hadn't trimmed my hair at all since chemo, so I still had the soft baby locks. Well last night I laid my head on my pillow and *ouch*! It was like lying on a pin cushion! I swear, no matter what position I put my head in, and I couldn't get comfortable. I tried putting pantyhose on my head (yea, that looked attractive) and that only made it worse. What's up with that? The only thing I can figure is that my scalp isn't used to the blunt ends and it'll take a few days for it to desensitize. Seriously girls, I had to take a Percocet so I could forget I had a head in order to get to sleep! When I woke up early this morning, same problem! When I get my massage today I'm likely to fall asleep with my head in the donut. Hey, maybe she'll let me sleep on her table tonight lol.
Amanda, great news on the normal brain MRI, what a relief eh? Isn't it strange to have "normal" health stuff going on? It's like, why now? Don't confuse me!
Cindy, great news on the clear mammo. That is also a relief. I just started doing self exams again (I know, I should have been doing them all along since dx) and of course I'm feeling questionable areas (which is why I stopped doing them during treatment -- too much stress). I've set my reminder to do it the first Thursday of every month. I see my onc on Monday so I'll show her the areas. I'm not really concerned, because I'm pretty sure they're nothing (they feel nothing like my original lump).
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Oh, and before more of us drop off and get back to our lives, I was wondering if anyone would be interested in starting a Yahoo Group for this group. It would allow us to keep in touch and chat about our lives (cancer or other) after some of us feel we no longer want to visit the cancer forums. I just wanted to put it out there before any more dropped off the thread to get back to their lives. Not trying to prevent anyone from getting back to their lives though lol ... just thought it would be a great way to keep in touch.
I saw something about PM notifications not working here, so if someone doesn't drop in here, there's not an easy way to get in touch.
Okay, well if you're interested PM me with your e-mail addy and I'll send you an invite. And if I don't hear from you, maybe I'll hunt you down in a PM
I just don't want to miss anyone, since there might be folks that aren't actively posting right now.
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That would be cool mtnmama. Good idea,,,,,,,omg you are sooooooooo smart. And how long is your hair now? I have about 3/4 of an inch and not even enough to go get styled. OMG,,,,,,this hair growth is so frickin slowwwwwwwwwwwwwwwwww. lol
Cindy
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(((((((((((((((((((HUGS))))))))))))))))) Cindy and Amanda!!!!!!!!
I'm so happy for both of you! I wish CindyKS would check in.....
Mandy, your post freaking CRACKED ME UP!!!!!!!!!!!!!!!
I wanna yahoo!! Mine is Texasgirl3566@yahoo.com
Lar, I don't get it about your hair....did you shave it?????
I need to get to work. Just wanted to check in.
Hugs Ladies!
Traci
oh yea......Aunt Vir...I use Paul Mitchell sculpting foam to make my hair straighter. : )
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I forgot this....
"poodles rule" LMAO!!!!
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Lar- I wanna see a picture of your new 'do!! My hair is as long as Halle Berry's when she had her short 'do, but I can't make my hair look like hers... Guess it doesn't halp that I don't have her face to go along with it!
Traci- you are riot calling me Aunt Vir...
I went to my company store and bought a Suave gel and a Sunsilk straightener. I'll just keeping using a different product every day 'til I find one that works really well. Now I am considering putting a semi-permanent color in...
Mandy- thank you ever for the kind words... Yes, Uncle Fester was my life from May 'til August as well!! I'd like to be closer to Cousin Itt right now!! LOL
Amanda- GO TO HAWAII!! It's paradise...there is no place more beautiful on the earth!!!! (That I've been to so far).
Happy Friday ladies...
GO GIANTS!!
Virginia
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Okay, I sent invites to Traci and Cindy-SC to the e-mail addy's you provided. If anyone else wants to join, all you need to do is go here and click on the "Join this Group" button!
http://health.groups.yahoo.com/group/may2007/
(I purposely didn't categorize as a cancer group, because I figured we didn't need to be hit with cancer ads every time we log in. But it will have general health type ads. Unfortunately, you have to choose something!)
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Traci, I don't know what's up with my hair. The shortest length is about an inch, but I think it's curling into my scalp and poking me with the blunt ends! I had a massage today, and she said my hair felt a little brittle in the back. She was right!
I can't get pictures off my camera right now. I lost the little memory stick converter thingy, but I've got another one on the way that I ordered last week. I'll post a pic on the new group (sneaky way of getting Virginia to join
)
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I joined!!
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Gotcha Virginia!
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I joined!!
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ok,,,,,,,,,i joined too but i have a question? How do we post a message on there? And do I need to save that site like in my favorites or something? Or will i get an email saying that someone has left a message on there? Man o man,,,,,,,,do i feel stupid. I will go back to that place again and really look at it,,,,,,maybe i missed something there
Cindy
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omggggggggggggggggggg I am a moron. Nevermind,,,,,,i see where one can post. doiiiiiiiiiiiiii
Cindy
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nevermind on that other question,,,,,,,,i just put that page on my favorites. lol If i wait long enough I will figure it out allllllllllll by myself. lol
And I got an email saying that I sent my own message. How cuuuuuuuuute is that. lmao
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I put a little tutorial at the yahoo group site, but I'll also put it here. You can either login to the site to read and post, or you can do it all via e-mail.
Via e-mail, you can start a thread by sending an e-mail to May2007@yahoogroups.com (you need to do it from the e-mail address you joined with) and the thread will be named the same as the subject of the e-mail. Or you can reply to someone else's thread by replying to the e-mail you receive (if you have e-mail notifications enabled).
Logging into the site, you either read the message and click "reply" (to reply to the thread), or click "Post" to create a new thread.
Something to note about pictures. You can e-mail with attachments (like a picture), but only those who receive e-mail notifications will be able to see the attachments (not those who go to the site to read). You can post pictures in the photos section of the site though.
I took a nap this afternoon (since I got no sleep last night) and my head wasn't quite so bristly. Hopefully tonight I'll have some relief! I put a bunch of gel in it this evening to hopefully make it glue to my head lol. It really does look pretty awful. I realize it's part that my hair just won't cooperate and part that it's near impossible to get an expert cut in my small town (that's one of the reasons I always kept it long!)
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You know what I was thinkin'?
I was thinkin' that if we start doin' this yahoo thing that the girls who check in on this thread only every now and then will miss out on a lot.
There is on chemo thread from early '06 I think. Those girls are still keeping in touch on this website. If we move away, everybody might not follow....
Just my thought. Don't mean to be negative......
Thoughts?
Traci
ps...I'm pissed because I didn't have the strength to take down my fake tree tonight. I tried and tried. The huge thing is laying on my living room floor. Guess I gotta call Eric......ohhh la, la.....: ) (ex-boyfriend...NYE's luva.)
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I finally have a consensus on radiation! All my doctors (that I've asked) are now recommending it, albeit a bit half-heartedly on my surgeon's part. He said I should just suck it up and do it. So I'm going to just do it and stop torturing myself and everyone else. I was up till 2AM last night reading studies so I'm done now.
I have to go back to work now. I still have 2 more hours. Today was hectic. Went to the mall with my sis, and then came home and had lunch and then my sis came back to pick something up. Then I had my doctor's appointment, so I'm behind. It's great to have a flexible work schedule, except when it's not ;-)
So I feel great and I'm going to start running a little next week. Maybe I can lose a few pounds before rads. Is it ok to diet on rads? I think I read somewhere that you shouldn't lose weight.
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lizyeh - the rads decision was one of the hardest I've ever made. Really, it WAS tortuous. And going to rads was a hassle, and boy-o did it make me tired. But now, looking back, it wasn't that bad. The only thing that makes me a little mad is that I was told that radiation-induced fibrosis is a given, and I ran across a study not too long ago that there are things you can take that MAY help. Not sure, and I didn't follow-up on it because it was a done deed, but if I were to do it again, I'd turn to the university of google and search a bit. Just my two cents.
Soooo glad you feel great! get that running in!!
all, re: yahoo group - I think it's great to have a back-up plan and will join, because I've experienced online communities that have gone down and felt so bereft, and a yahoo group protects us against that!...yay!.... but this will still probably be my primary posting area at least for a while.
Have a great weekend all!
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Evening ladies,
Lar - GREAT idea about another group - I have been whining about this for a long time now but A) no one seemed interested and
I lacked the ability/knowledge to actually do anything about it! As I've mentioned before, I really love chatting with everyone but hate coming to this website. I know I will never forget that I had cancer and I don't mind talking about it - but sometimes I start to cruise other threads and that can put me into a tailspin VERY fast. I now only come to this thread and if I didn't have to do so, I'd be very happy. I just don't like to see all the terms, posts (by others etc.) I guess I am just not strong/selfless enough to be of much help to others who are newly diagnosed - it's still too recent for me. For example, at the cancer centre where I receive treatment, there are tons of survivors who volunteer. I am grateful for them and their generous spirit but I could never do that - I get the hell in and out of there as quickly as possible because in my mind - I do not belong there. Sometimes I feel that way when I see terms like chemotherapy or recurrence and I can see just from a post's title how much another lady is struggling with this journey. Sometimes it's just all too real for me. I'll go with the majority - I will join the yahoo group (gladly) but if it fizzles, I may continue to post here...no gurantees though - another meltdown for whatever reason and I just may pull the plug on visiting here altogehter...but for now I feel stable! I don't mean to sound heartless and so selfish - I'm really not an unkind person - but for some reason, I'm pretty certain about spending as little time in Cancerland as possible.
Traci - good on ya for ringin in the new year "with a bang"! Have fun and however things work out they work out! That's what the world needs more of - sex! (Or maybe it's just me ha ha - actually Christmas was wonderful wink wink, nudge nudge!)
Liz - glad you've decided about rads - it must be a relief to have made a decision - when will you start? I have 9 more treatments to go!!! Hey - have a great run next week.
Cindy - I LOVE your stream of consiousness posts - they always make me feel like I'm in the room with you while you think out loud - always make me smile!
I spent the day skiing with my offspring - it was fun. We were so hungry after we decided to head straight to the restaurant - except that I still had on my ski pants and nothing underneath so I had to go in the restuarant like that - oh well, I was so hungry I didn't care - I would have walked in naked if needed.....hey, then we would have the place to ourselves - but then there'd be all that running and screaming...
Have a great night all
Mandy
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Hey Amanda, I don't even know what fibrosis is so i have some homework to do.
Mandy, I'm starting in a few weeks. I'm still healing from my expander exchange surgery. I'm so glad you're doing well.
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And yeah, Mandy, I am very relieved to have this decision behind me.
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Hey girlies,,,,,,,,,just wanted to pop in with my two cents.........lol I say if the doctor wants you to do rads,,,,,,you should do it. I started rads like two weeks after I finished chemo,,,,,,and to tell you the truth,,,,,,,,,it was no big deal to me. I had a few rad burns,,,,,,but those healed up very nicely. The only bummer for me was going every day for 8 weeks. I never even felt tired. I know we are all different though. But you gals are strong,,,,,,,,I mean you made it thru chemo right? Rads are nothing compared to that. Good luck,,,,,,you will all be fine.
Mandy,,,,,,,,,,,I find your posts so delightful. You speak your mind which is such a good and honest trait. I know what you mean about coming to this site. I had a while there when I didnt post,,,,,,and it wasnt because I didnt care about all you ladies,,,,,,but for once I actually thought about other things other than cancer. And to be honest...........I feel that if there is anything I can do for those starting chemo or in the midst of chemo,,,,,,is to give words of encouragement to them. I was there once myself,,,,,,,,,and I needed words of encouragement from others too,,,,,,,so if I can help just one person see the light at the end of the tunnel,,,,,,,,I feel I have done something good. Coming here to this site or to the yahoo one,,,,,,we dont have to put all of our focus on cancer, right? I have always enjoyed meeting people. Funny cause my family always tells me I talk to much to people and I could make a friend waiting in line at the grocery store. lol But I just enjoy meeting people. I have enjoyed getting to know each and everyone of you ladies here. I may go thru spurts where I dont post as often,,,,,,but please dont think that I have forgotten about all you ladies. We have come a longggggggggg way girls. We should be proud of ourselves,,,,,,,,cause I am proud of all of you.
Well its late and raining like cats and dogs here. I hate the rain. Im a sunshine and hot weather kinda gal. lol
The dry waller came to do the drywalling today,,,and guess what? The drywaller was a gal. I said,,,,,,,omg u go girl. Nice to see a gal doing work like that. I watch those home improvements shows,,,,and the gals with all the tools and all and I always say to my hubby,,,,,,,,,,man I want to know how to do that. lol Too old now though,,,,,,,,but its nice to see gals venturing out into what is classified as a mans job.
Well guess I rambled on here. My feetsies are cold,,,,,,gonna go get under my electric blanket and watch the food network channel and hopefully fall asleep.
Have a groovy weekend girls. I know I will,,,,,,,,,,its my grandsons 1st birthday party on Sunday. Man o man,,,,,I just love that lil boy. He has brought so much love and joy into our family,,,,,a gift from God thats for sure.
Love ya girls,,,,,,,,,,,,,Cindy
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Traci, I understand your concern, and I don't mean for the Yahoo group to replace this thread. I'm the newcomer, and I don't want to crash the party and then invite everyone elsewhere! But the reason that I kept away from this forum during dx and chemo, is the same reason I am likely to leave again soon. I don't have any self control on going to dark places.
I've done it with a forum in another aspect of my life, and I have a great yahoo group launched from that site, too. I developed great friendships, but without the intensity of the subject matter. When you have so many members who need support, you will have an inordinate amount of grief in comparison to joy.
That being said, I don't at all want the yahoo group to be cancer free. I have no problems talking amongst a small group about what we're going through, even if it's scary or sad stuff. I want to be there to support all of you in future treatment, tests, illness, whatever might come along. It's just that with the volume of stories on this site, if I am inclined to go to a dark place, I can find plenty of evidence to support that.
The other great thing about the yahoo site is that it's easy to post pictures! lol And we can also share a lot more of our private info without concern.
I would be happy to stop in here often to repost the invitation to the group so no one misses it either.
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Liz, when you find out what fibrosis is, fill me in!
I am another one who felt no fatigue from radiation. I felt fatigue for exactly one week about a month in, but since that dissipated and didn't return, I can't even say that it was caused by the radiation. May have just been caused by parenting a 3 year old, finishing a renovation, moving, catching up on lots of missed work time, catching up on missed sleep due to hot flashes, etc. etc.
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Ditto, echo, same... LOL I agree with what everyone says RE the Yahoo group...
Sometimes I feel a little guilty writing my goofy posts with my life forging ahead "sans-cancer." I think the Yahoo forum is a great place like Lar said to post pics and give links to like, say, my day at Rockefeller Center! LOL (I can bore you all to tears with stuff like that!!
I will most certainly be forever grateful to this site for introducing me to you gals. It's funny how you can feel such friendship and bonds to people you've never actually met in person. WE SO HAVE TO MEET EACH OTHER!!! I'll always come back here and check the posts. I also post on a Tamoxifen thread and I'm thinking of looking up a Herceptin thread...
Liz- I sailed through rads too. Felt tired by the end of the day, evening... Was ready for bed. But, I worked full time all during my rads. Missed one day of work b/c I had an upset stomach...totally un-related to the rads. I also had the peeling skin, but it heeled nicely. (I also hardly missed any work from chemo...I'm a little nutty...missed my infusion day and the day after, but that's about it...I worked full time through everything...)
Anyhow, you will get you mind around rads...forge ahead, and before you know it, you'll be done. Like everyone said, you are a strong woman...look at how much you have been through. With that being said, I can TOTALLY understand how you feel---like, for gosh's sakes, ENOUGH...I don't want to do ANYMORE.... But, like my Daddy says, "you'll pull yourself up by your boot straps and do it..." Ok, I'll get off my soap box...like you need me teetering up here anyway!!
Mandy- LOL- I was going to say the EXACT same thing to Traci about welcoming the new year with a bang...but I restrained myself! LOL Glad you said it!!! Puh-lease....at least some of you are getting bootie calls. I'm getting close to calling a friend with benefits...
Amanda- think of you and your Mom often...
Cindy- your posts were soooooooooooooooooooooooo funny. I was belly laughing. You have some sense of humor woman!! I can't imagine your renovations... My bro-in-law gutted my bathroom while I was going through rads...probably took 2 months to do and it was my only full bath... Was schlepping to my Dad's for showers... UGH. But, now I have a FANTASTIC BR, so it's worth it!
Ok, I have a family party today as well...my niece Nikki turned 6 on Jan 2, so today is her party. She's the light of my life. Comes to my herceptin infusions...clambers on my lap, give the best cuddles. She makes me melt (as do all my babies---nieces and nephews).
Have a great day everyone!!
V
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Here's the latest superdork picture... (My Grandpa Munster look). Tried blow drying the hair today... Looks the same as if I didn't...
:O
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oh, and ONE YEAR ago TODAY, I had my surgery!
In some ways, this was the longest year of my life, and in other ways I think, Holy Crappola...did I REALLY go through all this???
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ok Virginia,,,,,,,,,,,,,,,,WTH.........your hair is long. It looks so cute. When did u finish chemo???? Sheesh,,,,,,,,,4 months out for me and I have hardly anything compared to you. This suuuuuuuuuuuucks. lol I was reading on some other board here when a gal said that continuing on with the herceptin only slows the hair growth down. I wonder if thats true. I went for herceptin on Monday and I totally forgot to ask the onc that. I did ask her why it seems like my hair is taking forever to grow and she said,,,,,,,,,"awwwwww Im sorry". Like I'm gonna blame her right? lmao I agree with you on looking back over the last year. In ways it went by fast but at the time going thru everything,,,,,,,it seemed like it was taking forever and a day. And I also agree that now that I can look back on it all,,,,,,,,,,,I say to myself "omg Cindy, the crap you just went thru and you are here to talk about it,,,,,,,,Good for me" Well, good for us all.
It rained all night,,,,,,,and looks like more to come. We are supposed to have 4 days of rain. I feel bad for those people that just got hit with the fires here in Calif. and now they are evacuating their homes again in preparation for possible mud slides. Yikes huh?
Off to clean the house,,,,,,,the Christmas decos are definately going to their resting place in the garage for another 11 months. lol
Have a great weekend,,,,,,,,,,,,
Love, Cindy
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