Femara changing your mood?

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Mary-Lou
Mary-Lou Member Posts: 2,230
Femara changing your mood?
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  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited February 2008

    Is it just me? I feel like my mood has changed and I seem to "just be a bitch" with a capital B.

    What is going on? Anyone else have this happen?

  • newter
    newter Member Posts: 4,330
    edited December 2007

    Hi Maryl,

    How long have you been on it?  I have been on it since end of August and I have to say I have not noticed any mood change (yet).  Love the graphic.

  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited December 2007

    Well I have been on it for almost 2 years. I take zoloft too. So they probably cancel each other out?

  • Barb1953
    Barb1953 Member Posts: 479
    edited December 2007

    I've been on it for 2 years-I haven't noticed any mood changes---I have been known to be "Bitchy", but I don't think it's the Femara !!

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2007

    Thanks all....maybe it is just me. I seem to just want to be alone. I take an anti-depressant, so I'm covered there. I have taken this less than a month.

  • JoanofArdmore
    JoanofArdmore Member Posts: 1,012
    edited December 2007

    <sigh>

    YES!! Yes, Mary.So definately true.

    I was going up for 4 years on femara.(I have quit it) But for the past year, I have been SOOOO grumpy and nasty.I ride along in my car cursing other drivers and I'm not even in a hurry.I talk back to radio newscasters and tell them to shut up and what do THEY know about it.I have become so snippy and nasty that I hardly write here anymore.After all, who needs to hear that?

    As best I can figure it, it isnt depression.Sometimes, I know, depression masquerades as anger .

    But this is just bad mood because I HURT.

    And because I'm tired.

    And these are my daily 24/7 partners.

    Thanks, Femara.I used to be a merry cricket.I was even one in CHEMO!

    Now I'm a care-worn, hurtin, nasty "old" lady.

    No fun, no fun at all.

    I would have been 4 years on Femara in April.

    But cant stick it.Whole different me, and not one it is fun to be anymore.

    Love to you, and wishing you better luck.J

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2007

    Joan please let me know if you change after you are off of it.

    I hurt too, I feel like I'm 80 and my life just seems to be in a cloud most of the time.

  • Isabella4
    Isabella4 Member Posts: 2,166
    edited December 2007

    Mary, its not just Femara. Arimidex bites too !!

    I find myself being grumpy, and sometimes downright nasty at times.

    I got a telling off from DH a couple of weeks ago for 'making loud remarks' to people in large supermarkets !!!! I know I am doing it, if I stand back for someone to pass, or hold a door for them, and then they proceed to sail by me silently, I say, very loudly, 'Thankyou' so sarcastically. I never used to do this sort of thing, but now it just seems to flow out of my mouth ! DH is threatening not to come with me anymore if I don't mend my ways!!! This'll suit me fine because I don't want him trailing along behind me seeing what I'm spending, I have lied for years about my clothes spending, I don't know why he's taken to coming along to 'help'. (He doesn't, he just makes me go in food stores, and avoid my favorite dress shops.)

    I also, like Joan, curse other drivers much more than I ever did.

    I just do not suffer fools gladly anymore.

    I just won't go to the door if I don't want to, nor answer the 'phone, I am being so cussed awkward with anyone who gets in my way.I just avoid contact with anyone, unless I WANT to see them.

    Best of it is, I know I am doing it !! I wasn't this way before Arimidex.

    Isabella.

  • newter
    newter Member Posts: 4,330
    edited December 2007

    Maryl,

    Just curious, how long have you been on the Femara and when did you start noticing the moods?

  • JoanofArdmore
    JoanofArdmore Member Posts: 1,012
    edited December 2007

    Isabella, I'm sorry.I should have said AIs!Of course Arimidex bites too.Anything that depletes our estrogen will bite.

    Hey I make loud remarks too.I mean really--you're standing there hurting, while some(PIG) barges in a door YOU opened.I generally say, not quietly,"Guess noone sees me, even though I'm larger than life!"

    Havent QUITE gotten to "What are YOU looking at?"to the next person.

    Yeah.Why the hell should just ANYONE get to see us?

    I was just buying my calender for '08.And ruefully thinking how each month, of old, used to be full of "dates" and happy plans.

    Now my calendr is full of...doctor appointments.And I could prefiull in a DailyPlanner:

    Monday:

    Pry myself out of bed

    Hurt while making breakfast.EAT breakfast.Feed Woody

    Suffer

    Suffer

    Suffer

    Walk Woody.While hurting in the knees and feet

    Suffer

    Suffer

    Suffer

    etc.

    Mary--I've been off for 6 weeks.Feeling no better, in fact my knees are desperate now, climbing in & out of car.It really does make me SO not myself!

    And I think I wont get better.My estrogen has been depleted, is why I'm hurtin'.And I'm not likely to make enough now, to help matters.

    The only good thing since quitting has been that my joint pain doesnt wake me out of sleep any more.

    So THAT's nice!

    But you are younger.And the oncs ARE learning.Too late for me, but hopefully not for you.

    If AIs really get bad, you CAN switch to Tamox, which is piece of cake compaired to AIs.

    And, I've learned, that the secret of taking AI is to stop BEFORE the SEs become totally indelable.

    My onc stopped me when I became completely empty-headed.

    But I think I should have stopped LAST winter, when the dizziness made me actually fall to the ground, on my walk one day.

    I got a vacation out of that and DID recover except for a lot of the joint pain.

    <sigh>Should never have gone back to taking it.

    My onc DID suggest Tamox.

    I shouldda accepted it.Frown

  • SheriH
    SheriH Member Posts: 785
    edited December 2007

    I take Femara and lately I am worse than cranky.  I notice it and of course my family does.  I was taking Cymbalta and changed back to prozac due to  difference in copay, but the prozac is definitely NOT doing the trick!

    I have had my ovaries removed and take femara and someone asked me how I was doing without any estrogen and I answered, "At least I haven't killed anyone yet".  They actually thought that was funny!

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2007

    Thanks for the comments..........

    Newter, I have been on it maybe a month....

    Joan, Sheri, and Isabella. Do you think it is because we are ER+PR+Her2-?

    I really think it is making me feel awful.....

    I feel very uneasy. Hard to explain really. But I am just as hateful as I can be, and I get very hurt by things people say .

    I just want to go away....I feel they are mean. I hate to get out of bed also.....Nothing to get up to.

  • newter
    newter Member Posts: 4,330
    edited December 2007

    Maryl,

    After about a month on Femara, I started having some dizzyness, balance problems (for over a month)  and of course I thought brain mets.  I stopped the Femara for about a week and had a brain MRI.  The MRI was clear and the dizzyness is gone, hopefully never to return.

      I am not sure what it all means but that has been my experience so far.  I started the Femara at the end of August and felt weird by the end of September.  My MRI was early November.  Feel fine right now.

  • SheriH
    SheriH Member Posts: 785
    edited December 2007

    Maryl, I understand how you feel, I get that way too.  When I was taking Cymbalta, it wasn't so bad.  Maybe you need to try a different antidepressant or have the dose adjusted.

    I sure hope you can get it straightened out, it is miserable to feel that way.

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2007

    Thanks to all of you for the input. I see my Dr. on the second of Jan. It could be the prozac with it that is turning me up side down....

    I'm going to ask about this.

    I found this and thought I would share......

    happy

  • newter
    newter Member Posts: 4,330
    edited December 2007

    Thanks Maryl, I just sent this picture to work to pass out to everyone.  Love it.

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited January 2008

    I thought you all would like that one.

    I saw the Dr. today all my CT scans were good.

    As far as the Femara, said to give it another month and see if I'm better

    Yet another copay Frown....See the PC for fills on Friday. I feel as if I'm spending my life at the doctor....

    Here is a little advice I gave myself.....I wanted to share.

    Photobucket

  • Barb1953
    Barb1953 Member Posts: 479
    edited January 2008

    WOW !! Maybe it is the femara--I said earlier, that I didn't think it was, but after reading all your posts,



    I see myself in ALOT of them. I cuss at other drivers, and the radio, and it seems like any little thing



    "ticks" me off. I use to be a fun-lovin, easy going person, but not anymore. I thought it was the holidays



    making me miserable, but after thinking about it, I've been miserable for quite a while, and sometimes,



    I can't even stand myself. Thank-you Maryl for the advice. I put it on me desktop--maybe if I read it



    everyday, it will help.





  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited January 2008

    Barb, I put it on my desk top too.....

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited January 2008

    BTW, I saw the onc yesterday....they said to take it one more month....I will kill someone by that time I'm sure.

  • Barb1953
    Barb1953 Member Posts: 479
    edited January 2008

    Maryl, I've been on it for 2 yrs.-haven't killed anyone yet ( maybe they"d like to kill me ! ) I really never put 2 & 2 together. Until I started reading these boards, and hearing all the side effects everyone else had, I really didn't think it was the meds. But I have the same problems as everyone else. I just took the meds, and was achy, and moody---thought it was just old age creeping up !!!! But I'm not as old as I feel !!!!

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited January 2008

    LOL, I will be 52 on the 12th and I feel like at least 80 on some mornings.

    The weight I have gained hasn't helped either.....

  • JoanofArdmore
    JoanofArdmore Member Posts: 1,012
    edited January 2008

    I agree totally with you girls.

    And yes I am old, 66.But 66 should be my golden years, not a time to feel 96.

    Believe it or not, after more than 6 weeks off femara, I am getting "nice" again.Today I didnt curse any other driver, and I did 3 evening rush-hour errands.And was even a bit of my merry cricket self, taking my dog out wearing a red&green jester's cap, with bells.Oh, Dear Lord, that horrible misery that was I is actually leaving!!It is NOT fun being a grumpy b!tch!

    YAYYY!

    Good luck, Mary, and everyone!

    My contention is that femara is a great drug.But I did suffer increasingly for the 4 years on it.And if someone suffers increasingly, my advice would be to quit after 3 years and switch to something else.

    Because look how long it is taking me to get over this.And each "vacation" took longer for me to feel better.

    hugs, j

  • SWANKETTEGAL
    SWANKETTEGAL Member Posts: 26
    edited January 2008

    Have not posted in a long time.......saw my oncologist for routine check up today and again told him how my quality of life has just gone down the tubes due to my joints.....I walk like I am old, I feel old......right after my chemo and radiation I swear I felt better than now. My fingers and toes are still tingly from the Taxol and now all of this.....it just wears me out. I do take Effexor xl and it helps. I had been taking too much Aleeve and today my blood would hardly clot. But I have to take something.......have been on Femara one year.

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited January 2008
    I'm going to have to take these post to my ONC and let them see for themselves.Wink
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited February 2008

    Mood seems to be different,  I seem to withdraw more and more. My shoulders even hurt. Man , I feel like I can't even move at all.

    Very stiff....

  • erika-canada
    erika-canada Member Posts: 142
    edited February 2008

    Hi Ladies:

    I can say to "all the above". For me, I know 100% it is the femora. Had more strength after my surgery (which I had after the chemo). Two weeks after surgery started Femara (May/07), most days feel like 95. I am so sick and tired of feeling "sick and tired". Having had IBC, and I so trust my Onc, he felt Femara would definitely be to my benefit.

    I'm on an anti-dep.---was even worse before. Just not a happy person anymore.

    I'm so happy to find others feel the same and I'm not really a basket case.

    Good luck to all my kind sisters, may we all do better!!   Laughing

    Many Hugs,

    Erika

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited February 2008

    Erika - Believe me when I say  "You are not alone, not at all" I think I feel much worse everyday. My neck seems stiff too...Like my head won't relax or something.

    Strange all over feeling....

  • MariaC
    MariaC Member Posts: 148
    edited February 2008

    I am on my 4th month and like some of you guys I have not hurt anyone YET. I am 39 but feel like soooo old. I am very moody especially after the 3rd month. I do not want to talk to anyone - I just wanna be alone. I snap in a heartbeat - I am scared of what I could say or do at work. I had progression on Tamox. Femara erased my lung nodule and made my bone mets stable.

    I guess I'd rather be bitcy and achy than having this cancer spread all over my body. I am not a happy person anymore but I am still alive. God is great!

  • LizFL
    LizFL Member Posts: 377
    edited February 2008

    I recently switched to Femara after taking Arimidex for almost two years to see if I would get any relief from joint pain.  I haven't really noticed a difference, but I do seem to have a shorter fuse lately....although I think I've been on a shorter fuse since I was diagnosed.  Half the time I don't care enough about things to react to them and the other half it seems like I have to really work at not losing control when I get angry...seems like I can go from irritable to total rage in an awfully short period of time.

    I generally am in some kind of pain pretty much every day and just try to do my best to cope with it.

    I am also afraid of what I might say or do at work.

    Liz

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