anyone starting chemo in Nov 2005

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  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2007

    This is our 3rd Happy New Year !!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    Hey ladies,

    I am still in the midst of freaking out.  I am waiting for my oncologist to call me back with bone scan results, and I just found out the results of my pelvic sonogram.  I DO have a cyst, and I was informed to "get to a gynocologist as soon as possible."  They told me it was a hemmhoragic (spell?) cyst, with an echogenic lesion?!?!  I already cried on Greg's shoulder, now I am crying on yours. 

    I told Greg, "I hate being afraid of my  body all the time," and he was just silent.  He didn't know what to say.  How could he know?  Poor dear husband of mine. 

    Someone make the fear go away, please.....

    Love and prayers, Deb

  • Margerie
    Margerie Member Posts: 526
    edited December 2007

    Deb,

    Argghh!! OK, you have a cyst- doesn't mean it is cancer- in fact it is probably NOT cancer.  The hemorrhagic part- just means vascular.  I think when ovarian cysts rupture- it is very painful and an emergency situation.  They probably want you to hook up with a gyn to take care of this.

    Best wishes for a clean bone scan.  I am sure you can do without all this excitement!

  • AnnaM
    AnnaM Member Posts: 1,387
    edited December 2007

    Odalys, your mom is so lucky to have such a wonderful daughter. I am glad your siblings behaved and I hope you have a end of the week. Are you working every day?



    Sebastian is a beauty! I agree, time goes so fast.....



    Love to everyone. We feel like such a small group now.



    Anna

  • Odalys
    Odalys Member Posts: 2,103
    edited December 2007

    Hi Anna - I decided to take the week off returning to work on Jan 2nd.  I was exhausted from the emotional rollar coaster we've been through for the past two months.  Mom is stable now and even looks and sounds stronger each day.  She told me God was calling her but she told him she was not ready go yet!  She needed to stay with us for a little bit longer.  Boy, she is one tough lady. 

    Deb - Marg is right.  Hemorrhagic cyst is vascular not cancerous.  I pray you find some peace in the midst of this difficulty.

    Has anyone heard from Lat56?

    Glad Christmas is over!  I couldn't wait for it to pass.  Ba humbug is right!  Well, now is time to loose the pounds from all the sweets I've eaten.  Yikes....

    I'm off to Target today but promise to pass the 75% off christmas candy isle.  Smile

    Take care friends.

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2007

    I was starting to worry about Lat too. 

    Deb- I send prayers....You don't need anymore stress.

    Marg- Santa is on his way Embarassed 

    Odlays- Glad to hear your mom is better.

    Anna- I just love my gift....

    Hope we all have a better 2008.......Wow we all have a history together now. It feels good to pass into another year with my sisters.

    Kaye and Kim we miss you.....

  • Margerie
    Margerie Member Posts: 526
    edited December 2007

    Odalys and everyone- should we wait until late Sept or early Oct for Disney?  I was thinking of having the whole family go with me- but that is just going to be too hard and $$$.

    I could ditch the kids then (school back in) and it wouldn't be so hot/crowded.  We have vacation plans in March and I have to go to Seattle one more time then.  April or May maybe??

  • Odalys
    Odalys Member Posts: 2,103
    edited December 2007

    Deb - I was soooooooo surprised to receive my secret Santa gift today.  It brought a huge smile to my face.  Actually, it was the only wrapped gift I received this year.  Even Steven said, wow mom you finally got one present.  He doesn't count gift cards as presents.  Smile  Anyway, I love them.  The manicure set and masage thingy are exactly what I needed.  And, I absolutely love the angel!  Thank you very much! This was a lot of fun!

    Margerie - I won't be able to take any time in April, May and Oct as we have scheduled several systmes go-live dates during these months.  I will be extremely busy.    How does everyone else's schedule look like? 

    Odalys / I will survive - Yo vivire!

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2007

    I can work around most everything but my exchange. Not sure when that will be. I do think the heat will get to me also....I'm hot now in the winter.

    Do any of you take Femara?

  • Odalys
    Odalys Member Posts: 2,103
    edited December 2007

    MaryL - I've been on Femara for 18 months now.  Will you be taking it too?  Ask away....

    FYI - I am premenopausal, so the first year was a little difficult because of the Zoladex implant.  The drastic drop in hormone levels made it a little difficult on my joints.  All in all, Femara has been a walk in the park with very little SE.  I'm doing great on it.  My onc tells me is the best defense out there for us er/pr + girls.  From his lips to God's ears! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    Margerie, I LOVED my present, too!  Too cute, and it fits perfect into my new "not huge Mom-luggage" purse.  Thank you!!!!!!  

    As for the get-together, I will work around anything, too!!!  I just want to see you all!! 

    As for Lat56, I haven't heard anything, and I have been trying to get a hold of Nancy (remember her?) for a while, too.  No response, which worries me of course.  

    Gotta go run to Bath and Body Works (long Ebay related story!  Argh). 


    Thank you for the prayers by the way.  I love you all! 


    Happy New Year to US! 
    Love and prayers, Deb

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2007
    Read my post about Femara.....
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2007
  • Odalys
    Odalys Member Posts: 2,103
    edited January 2008

    Mary Lou - I was going to post the same cartoon..lol.

    Happy New year sisters.  May the Lord bless us, our family and friends with good health, peace and happiness in 2008. 

    Love and hugs.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2008

    A MOST blessed New Year for all of us.  I am so grateful to have each of you and feel honored and blessed to call you all my sisters. 

    Love and prayers, Deb

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited January 2008

    Our trip could be in November , the month when we all started this journey......

    November 1st is a Saturday....We could stay 2 days...We may need a trip after "PINK HELL" month. What would the weather be like?

    Disney

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited January 2008

    Here is a little something for us to start 2008.

    I thought I would share.....

    Photobucket

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited January 2008

    Here is kayes last post....I found it.

    anyone starting chemo in Nov 2005
    Hi Odalys & everyone! Don't worry about Stage III, I am Stage IV terminal in Hospice and I am doing great! Life is slower paced for me and I am beginning to just relax and accept what ever comes my way.

    Medications are controlling my pain, so I am starting to feel better.

    I just wanted to tell all of you, hang in there. I got an email from a friend on another group that is in her 60's, I could not believe everything she has been through...she told me she was Stage IV, even ended up in Nursing home for four months, with IV drip of morphine, they said no hope for her. She told me she woke up after four months and found herself in diapers and remembered nothing for those four months. She is now feeling pretty good, gardening, and doing all sorts of things. She is a true blessing to talk to.

    She had a recent petscan and it showed no active spots!! Amen for her, I am so happy.....she told me if she can it, we can do it too!! Keep the faith.......and believe!!

    Debbie~ so glad your little one is talking, I remember when mine started with those little words. Now my Grandson calls me Gamma, and always wants to know if I have snakas (rattlesnakes) in my yard. I just love the baby talk....

    Kaye  May 7, 2006

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2008

    Oh, Dear, Sweet Kaye.  I wish we knew for sure about her.  Does anyone know what other group she befriended?  Maybe they know something we don't.....

    I keep thinking of Kim, too.  It makes me so sad.  Her family is so sweet. 

    Weird question-

    Whenever a stranger finds out you had breast cancer, do they feel the need to tell you that they a)walked in a cancer walk  b)donated money once to the ACS  c)had a grandma that died from cancer, so now they have a pink ribbon bracelet they wear. 

    I had all of the above happen last night at Kohl's.  I was wearing my shirt that says, "I might die, but not while I am living," and the cashier complemented it.  I said "Thank you, I had it made while I was going through bc," and she told me 10 minutes later all of the above things.   She then looked at me expectantly, and I awkwardly said, "Well, uh, thanks for supporting the cause!" and I sort of raised my fist triumphantly.   I felt like an idiot. 

    Anyone else? 
    Love and prayers, Deb

  • Odalys
    Odalys Member Posts: 2,103
    edited January 2008

    Deb- I understand what you mean. What gets to me is when people make comments about how much weight I've gain. I usually say something like... yes, there is nothing like a bc dx followed, chemo, rads, and then being thrown into chemically induced early menopause to help you put on 30 pounds. That usually shuts them up and then I get the... oh,I'm so sorry but you still look good. What is that supposed to mean? Is there a certain way we should look after bc? It just rubs me the wrong way...

  • AnnaM
    AnnaM Member Posts: 1,387
    edited January 2008

    Happy New Year to my sisters!



    Well, the house is empty now, even hubby is away for ten days, and now I get to deal with the terrible cold I nursed everyone through over the holiday. Good thing I have that little dog; she follows me around the house looking in all the empty rooms to see if someone fun is hiding for her to play with.



    It's sort of nice being here on my own. I have just 11 days to get ready for my hip surgery, so I'm glad it's quiet now.



    Odalys, I am glad to hear your mom is having a respite and feels stronger. I know what you mean about the candy aisles, all I want to do is indulge these days....



    Debbie, it seems you are a little more relaxed about the cyst; I hope it's easygoing and that any treatment you might need is minimal.



    My Secret Pal is a genius! How did she know that particular shade of red is my color? I feel quite glamorous in my beautiful hat and scarf.



    Time to go back to bed with a cup of hot liquid, a new book and that little furball. I could really get used to having a cold and being forced to pamper myself.



    Love to all,



    Anna

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited January 2008

    Yes the weight is the one thing that has been so hard on me....

    fat

  • Margerie
    Margerie Member Posts: 526
    edited January 2008

    I can relate Mary.  Not only did I hop off the good-diet wagon over the holidays, I think I kicked it down the hill.  Hopefully I will see it again, but I won't be on a scale anytine soon.  My next onc is in Feb., so I hope I don't faint!!

    November (earlier part) would be great for me!  It would be great to celebrate our 3 year together!

  • AnnaM
    AnnaM Member Posts: 1,387
    edited January 2008

    Getting ready to go in for a total hip replacement next Tuesday...... I'm going to call the hospital today and tell the surgical liaison nurse that I am being treated for bronchitis (feeling way better though) and will be on antibiotics till the day before the surgery. I hope they don't make me reschedule, but I think I should be upfront with them so as not to have any surprises at the last minute.



    Anna

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2008

    Anna, I'll keep you in my prayers for a speedy recovery.  It sometimes seems like our poor bodies are just always trying to "get better" after bc. 

    I'm doing something about an issue that has been escalating since my Dad died.  I am a HUGELY emotional eater, and since his death, I have gained 12 pounds (November 15th was D-day). 

    I escalated to 225 when my Mom died in 94, and finally went to Jenny Craig in 99.  I lost almost to my goal weight, but fell off the wagon when I moved to Wyoming.  I gained a bit back, but hovered. 

    Then I met Greg, and of course was all skinny during our courtship and the first 6 months of our marriage. 

    Then I got pregnant.  LaughingUndecidedEmbarassed

    I had toxemia, so my weight ballooned up to a HUGE number (too much to disclose to even you, my dear sisters!).  After Daniel was born, I lost most of it, but was still in a size 14. 

    The chemo diet got me to a size 10.  I got a smaller butt but a bigger head and thought I could then eat anything I wanted like my best friend who is a size negative.  

    My weight crept up to a size 12 in the past year, but I was still happy with myself. 

    Since my Dad has died, I am just eating like mad.  I know it is gross, I know it is out of control, and I am taking control back. 

    I went back to Jenny Craig! 

    I am so stinking excited, and I totally plan on getting to my goal weight this time and STAYING there. 

    After losing both my parents at such an early age, I don't want to do that to Daniel because of a weight issue. 

    Nope. I fought cancer-why would I let food overtake me?!?! 


    Love and prayers, Deb

  • Odalys
    Odalys Member Posts: 2,103
    edited January 2008

    Missing you all and hoping everyone is doing well.

    Anna - good luck on your surgery.  Please keep us posted as soon as you can.  You will be in our thoughts and prayers.

    Deb - I don't recall the outcome of your last medical scare.  How are you?

    I sure don't even want to talk about weight.  I am so discusted right now.  I just jumped one dress size.  I hate it!!!!!  I've never been over weight in my entire adult life and now it seems I gain weight just be thinking about it.  God help me.

    Got to run now.  Wishing everyone a great weekend.  Love and hugs, 

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited January 2008
  • Margerie
    Margerie Member Posts: 526
    edited January 2008

    Anna,

    About the only good thing I can think of for your upcoming surgery is that you probably won't be thinking about breast cancer much!  I hope everything goes well and that you are on your feet again soon.  I hope your little dog gives you lots of love (and your DH too).

    Will be thinking of you Tuesday!!

    Love,

    Margerie

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2008

    Margerie, your stuff is so stinkin' COOL!   I am so impressed, and I will totally be getting something soon.  How long has that taken you to do? 

    My bone scan came out ok, I have arthritis in some areas of my body, but praise GOD there is no mets anywhere. 

    Still freakin' out about my ovary.  I SO want to have another baby, but not at the risk of growing more cancer in my body. 

    Gotta go-I'm subbing at Daniel's school tomorrow (ugh-in a classroom full of very exhausting children.  All sensory integration disfunction, ADHD, severe autism, blindness, seizures, you name it). 

    Love to you all (and prayers!), Deb

    PS-I emailed Kim's hubby to see how they are doing, and he said they are creating a memorial website for people to submit stories and memories (for the kids in the future).  I think that is very cool. 

    He sounds ok.  Like he is still hurting, but ever so happy to remember his sweet, dear wife. 

  • Margerie
    Margerie Member Posts: 526
    edited January 2008

    Thanks DebSmile  I am so glad to hear about your bone scan.  The ovary- you can deal!!  I hope your child-bearing wishes aren't squashed.  Are they talking about both ovaries?  I have a friend who had 1/2 an ovary left (after cysts removed) and she is now pregnant with her second.  So it can be done.  And bless your heart for working with those challenging youngsters.  To answer your question...

    It took me all week to go from ideas floating around in my head (*snicker*) to getting the shop set up.  I think I used up all my brain power because it took me 2 days to realize the reason I couldn't log in here was my all caps button was on- duh!

    I only had a couple of email addresses- so anyone wondering what Deb and I are talking about- I did some bc designs and launched an online store.  If anyone is interested, pm me and I will give you the web address.  I am also working on one for girls (kind of a girl power, smart girls are cool) and one misc. site that has some dog lover designs right now.

    And thanks for updating us on Kim's family.  Still so sad about her..... waaah!

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