Herceptin side effects

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  • Mden6548
    Mden6548 Member Posts: 1
    edited December 2007

    Hi all! I had my lumpectomy on Jan. 18, 2007 and started Chemo in April. I fought against having to do it but finally lost the battle with the docs! I did 4 out of 6 rounds. I blew up like a blimp from the chemo (or as I refer to them - the poisons) so the doc said 4 is good enough. One of the drugs I was getting every 3 weeks was herceptin. Doc said this is necessary since I have the Her2 NU gene. In fact, the latest research is now questioning the necessity of chemo at all since it isn't as effective against the Her 2 NU as Herceptin. I also did 32 days of radiation which was a piece of cake. I am now on Herceptin only every week. I have 20 more infusions to go. I also have the bloody nose and body aches. In addition, my whole body (especially tummy area) is still badly swollen. Now I noticed that the "chemo rings" on my finger nails have gone but the nails are so brittle!! Wendyk13 mentioned a ProStrong nail kit. Which one is it?

  • Zzap
    Zzap Member Posts: 77
    edited December 2007

    I finished my last Herceptin 2 weeks ago.  I was on it for a year.  Once I was off the Taxol along with the Herceptin, I really didn't have much for side effects.  I'd get a little bit of a headache after the infusion, and my nails are weak and peel easily, but that's about it.  It was much easier than chemo.  They did give me tylenol before each infusion, I think to counteract the flu-like symptoms that you can get, but I think I would have been fine without it.  Now, I just hope the Herceptin did it's job and I'll stay 'NED'.

  • donnarock
    donnarock Member Posts: 6
    edited January 2008

    wow, i guess i was lucky. i did herceptin for a year, but didn't start until about 6 months after finishing a/c and taxol.  i didn't notice any side effects.  i have had a lot of joint pain but that was due to the other drugs (arimidex, aromasin, femera) i was taking.  stopped them all, and will try tamoxifen again in a month or so.

  • jocarol
    jocarol Member Posts: 1
    edited February 2013

    2-1-2013 I had breast cancer on one side and had mastectomy and chemo in 1999 and last year 2012 cancer spread to my spine.  I had Radiation and chemo again ended in Oct. 2012.  I started Herceptin 3 every three weeks in Oct. 2012 and oral pill -generic for Aromasin.  My 1st treatment with Herceptin was when I was taking chemo and I had nausea for up to a week, but this is better.  I also felt terrible and had a rash and extremem fatigue the first few treatments that were once a week with and without chemo for 16 weeks.  Now I take just Herceptin every 3 weeks and have noticed SE include sometimes a little nausea for a week after & sometimes not.  I still have fatigue but not as bad as when taking Herceptin with chemo.  I have stiffness in my hands and sometimes can't make a fist for bend my fingers.  I have had diarriha sometimes for a few days after treatment.  I also have aches in my lower back and joints that are worse for a week after treatment.  I also have back problems and had cancer in my back this time, but the pain is worse after treatment for a week or less.  I have dry throat and nose and sometimes bleeidng.  I have runny nose off and on.  My whitecount has never gotten back up to high normal range.  It is usually 4 or 5 and it was 10 before I started chemo or herceptin.  If you have any different symptoms from Herceptin or if spreading it out from every 3 weeks to once a week has helped you with side effects, please let me know. 

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