Anyone starting Chemo in August 07?

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  • kimmie39
    kimmie39 Member Posts: 319
    edited December 2007

    Nash  - almost forgot to thank you for thinking of me on the IBC front.

    Kim 

  • Miss_Lolli
    Miss_Lolli Member Posts: 560
    edited December 2007

    Sorry for intruding into your thread. I'm just one of those freaks who, upon finding out I would be starting chemo last oct. I had to go and read every single chemo thread from the past year. It scared me sometimes, lol but mostly helped.

    I feel like I "know" so many here and wanted to say... Kim, I was praying so fervently for you and I'm sorry for what you're having to go through. I just had to quit lurking to say that I think I may have a solution for the hemorrhoid (sp?) prob.

    After I gave birth my doc gave me buy some of those small pads that are pre-soaked in witch hazel (kind of like a little round container of medicated wet wipes) Anyway, I would take one of those, squirt a straight line of preperation H right down the middle of the circle and then stick it right between my cheeks to the swollen area and let it stick there as long as it would. I did this a few times a day and it REALLY helped. Not only with the discomfort, but the whole thing eventually shrunk to nothing. I hope this helps.

    Take care everyone and season's greetings......

  • DGHoff
    DGHoff Member Posts: 624
    edited December 2007

    Hi All,

    Kimmie, I so totally get what you are saying, but I don't think it is very easy to turn of the "thinking about breast cancer" part of the brain.  That's why I'm glad I'm pretty busy and continuing to work full time and keep up with my son. It just makes it easier to forget. My husband is also a great cook and we invite friends over for dinner quite frequently.  Of course, when you're feeling lousy from chemo, it's not such a good plan, and then it really is hard not to feel like the "cancer patient".  I don't think I ever heard how much more chemo you will have to do.

    Nash, oh shoot anyhow! I dearly, dearly hope that this is nothing. You sure don't need this. I go to the cancer center three times every week right now, but I'm always thinking of you when I enter realizing that you probably do it a heck of a lot more than me. You, my warrior woman, need to have a break. I hope that you get good news. 

    Speaking of news from test results. My MUGA came back OK at 63% (was 67% before treatment and anything above 50% is considered good.  So, my heart seems to be weathering things OK.  Now, I just need to do ONE!! more chemo next Friday.  

     DeAnn

  • yellowtownhouse
    yellowtownhouse Member Posts: 142
    edited December 2007

    Hey All,

    I wanted to thank you all for the thoughts and prayers and let you know I'm home from my surgery.  Surgery went kind of rough and they ended up keeping me overnight.  They ran a mess of cardio tests all night long and everything was clear.  I suspect that I got too much anesthesia and it threw my system.    The surgeon told dh and dd that she was pleased with the surgery and had gotten clean margins around the tumor in my breast.   Though she took 'a lot' of lymph nodes the good news there is that the new lump on my left side WAS NOT a new primary.  She couldn't be sure what it was but took it out and thinks it was just a reactive node.  We go back the day after Christmas for my post-op and pathology report.  I sure hope they take this drain out at that time.  It makes me feel so good to hear that many of you are finishing chemo and/or rads.  What an accomplishment ladies. 

    Nash....wonderful news on the biopsy and I refuse to believe you have a new primary, it just isn't so. 

    DeAnn....keep singing it sister....for all of us!

    Kimmie....I have suffered with hemorrhoids on and off for years.  The only thing that has ever worked for me is an ointment called Americaine Ointment for hemorrhoids.  (they make other ointments)

    A surgeon gave me a tube many years ago and I always keep it in the house.  It has gotten difficult to find in recent years and now I just order it on-line. 

    Wishing you and yours the most wonderful holidays.

    Merry Christmas sisters.

    June

  • katoMato
    katoMato Member Posts: 645
    edited December 2007

    Hi Ladies,

    Hey Kimmie - sounds like you're having a terrible time of it...what are they giving you for the nausea? Sheesh, it's awful to have to go through that...

    I thought your onc told you she had something that would work. I'm guessing it's not? ugh, girl......I wish I could help. 

    Jackie - how is your skin so far? I've heard about Sween Cream, and I got some, but as I've said I used NOTHING and did better. I might have been allergic to some other things.

    DeAnn - scrapbooks two weeks before Christmas sounds like a wonderful idea. (To keep you occupied while you're in AN INSTITUTION! Good Grief!!! That's a lot to bite off and chew. Not to mention cut and paste. Maybe it would go faster if you didn't "bite off" and "chew" them, but what do I know...)

    Angie (and Kim, too) What is a Fleece Tye Blanket? 

    and OK, Kim, you win. The 15th and the 20th trumps my 10th and 13th. PLUS your's are still little. Man, that was hard back then. I remember it well.  

    Nash - I can't believe this. Hopefully it will be nothing. I'm speechless. (What a drag we have to wait until the 27th.) If it IS something, will it affect your radiation at all? I don't know how that works. well, i will be praying for you - that it is NOTHING. ABSOLUTLY NOTHING. Arrrggghh.

    I feel the same way as Angie, except she said it better.  I really care about you girls, and I'm so very grateful for each one of you.

    Have a good weekend! 

  • katoMato
    katoMato Member Posts: 645
    edited December 2007

    June!!! We must have been posting at the same time! Good to hear from you.

    Ok, what does it mean when you say:

     "the good news there is that the new lump on my left side WAS NOT a new primary." Why is that good news? Is it that they don't have anything new to deal with and they'll just keep proceeding? I would have thought it was a bad thing that it had spread to the other breast, but then, I'm not an oncologist. I am just a me.

    We'll all be waiting for THAT path report, too.

    Gotta go wrap one more present. 

  • nash
    nash Member Posts: 2,600
    edited December 2007

    Hi, girls. Thanks for the good thoughts. Don't know what I would do without all of you.

    Lori--glad you posted! Hope you're doing OK with your chemo. I used those witch hazel pads after my deliveries, too. Handy little buggers.

    June, so glad you're home from the hospital. Thank goodness no new primary  on your left. Hope you will be on the mend quickly. Keep us posted on the path.

    DeAnn--glad the MUGA was OK. Phew--the end of Taxol is in sight!

    Kim--many, many hugs your way. It sucks to feel like sh**. Did you get a chance to ask the onc about biopsing the bone mets to check receptor status?

    We finally had to go and get a wheelchair for my mom today. That was hard. Her lungs are so compromised that she can barely walk. We'll find out more after her PET next week whether she has a lot of disease progression or if we can blame a lot of the breathing issues on the side effects of Gemzar (which potentially can cause serious SOB problems on top of her pulmonary emboli and effusion). I tend to keep my emotions in check as sort of a survival mechanism, but this week I did spend time crying. Some days everything is just a little much, you know?

    Anyhow, again, I am so grateful for you all. I hope everyone has a good weekend, and Merry Christmas! 

  • DGHoff
    DGHoff Member Posts: 624
    edited December 2007

    Oh Kimmie, 

    I almost forgot about the hemerrhoid question.  I am so, so sorry to know that you are dealing with that. I know it isn't quite the same, but my anal fissures had me in tears very often, and everything just feels worse when "that" hurts.   I did find a product that helps a lot called "Healing Fissures" from an essential oil company online.  I also saw that they had a "Heal Hemerrhoids" product too.  I found the oil highly effective, and my pain was dramatically reduced after a day or two of using it.  I think the website is www.amoils.com. Let me know if you have an interest and if that link doesn't get you to where you need.  I do sincerely hope you find something that helps with that. No fun at all. I just feel so bad for you that you are back in chemo and feeling so badly. You also are a true warrior, and I wish I could just give you a huge hug right now!

    Good luck. I hope you get some much needed relief.

    DeAnn

  • chemomom
    chemomom Member Posts: 171
    edited December 2007

    I want in on the birthday competition!  My dh's birthday is today, the 22nd.  Then my dad's is the 23rd!  I still have to make my hubby's cake.  And wrap his birthday present.  And of course still have 1/2 the Christmas stuff left to wrap as well.  This last minute stuff is crazy!!

    And Kaye a fleece tie blanket is probably very scarce in sunny California!  But for us snowy-weather gals, they are WONDERFUL.  You get about 2 yards each of 2 different fleeces (usually a solid and a print) and you cut strips along the outside and tie the 2 pieces together.  The end result is a wonderfully warm and cozy, easy to make blanket.  I love the one my sister made for me so I decided even I could try making a bunch of these as I sat at home "recouperating."  I am getting closer to being done... thank goodness!  And my post BC-attitude change allowing me to do soemthing that may not be 100% "perfect" has helped me a lot with this project.  I used to be such a rabid Type-A!! 

    Well, off to take my 2 year old to the potty-- he's still doing great - even overnight!  Too much info, eh??  Have a nice weekend.  Angie

    P.S.  DeAnn, don't know if you saw I PM'd you.  Just making sure. 

  • kimmie39
    kimmie39 Member Posts: 319
    edited December 2007

    HI guys,

    Lolli - Hi gal. Thanks for the tip and you are certainly welcome to chime in anytime!!

    DeAnn - So glad to hear of your good test results. But We already know you have a big heart.  I dont know how many treatments. I just know its spread to my bones and I had to go back into treatment.

    Im seriously considering taking a trip to M D Anderson Texas. They have the only IBC specialty clinic I know of in the country. What do yall think? 

    June - Hey, so glad to read your surgery is OVER!!!!!! But to much anesthesia? I YEI YEI. Ill look for that ointment thanks.

    Kato - Yea she said she didnt want me feeling that bad but when push comes to shove I get "I dont know why you would be feeling bad" and  "Maybe you have a virus, you shouldn't be feeling bad"

    Ok maybe I had a Virus wk #1 but what about the next week, and these last few days I just feel icky. Have you ever felt alittle left out to dry? They pump me with all these poisons and then I just go home and deal with the side effects . Yea she gave me anti nausea med but no miracle pills here.

    By the way I dont know what Id do with out your posts they make me LOL.:)

    Fleece tied blankets. You take two pieces of fleece (I use 2 yds) lay them on top of one another and cut into them about 3-4 inches into fabric every inch or so all the way around the fabric. Then you take the strips and tye them together. You end up with a blanket that is double thick and has knots around the outside edge. If you use two different colors its pretty cool looking.

    Nash -  the onco says the bone mets are to small to biopsy. And yes some days are just a bit much, s**t more than a bit!!And you've had WAY more than your share of hard.

    Hey I just might get all of your ointments and mix them together!!! Look Id do ALMOST anytyhing to get rid of these buggers.

    A two yr old and potty training. AH the memories. 

    Hugs

    KIm 

  • nash
    nash Member Posts: 2,600
    edited December 2007

    Hi, girls. Just had to share an unexpected perk of having no hair and running around in a trendy little hat, which is something I never would have done before chemo. My DH and I went out to dinner tonight (a rarity) and I actually got carded for the wine. This is the second time I've been carded in the past couple of months--the other time was at Cost Plus, during a purchase of little bottles of chocolate liqueur. Anyhow, considering I'll be turning 40 next summer, I've been tickled pink by these episodes. Who knew chemo brought on such a youthful appearance?

    Kim--I totally think you should go to MD Anderson. Then you'll feel like you've covered all your bases. 

    Cheers, all.

  • kimmie39
    kimmie39 Member Posts: 319
    edited December 2007

    Thanks Nash, Hey tell me your secret. Id loive to be carded, What ba wounderful little pick me up. Although Im NEVER going to complain about age!

    HUgs Kim 

  • chemomom
    chemomom Member Posts: 171
    edited December 2007

    Kim, I am with Nash.  If you can go to a specialty clinic, give it a try.  At least it may help you feel like you are really doing everything and help you feel as confident as you can on how things are going.    Angie

  • kimmie39
    kimmie39 Member Posts: 319
    edited December 2007

    Hey gals,

    Me AGAIN. 

    Im going to give yall my symptoms and maybe one of you have had this.

    Its been going on for almost 3 wks

    I feel nausea most of the time but it goes away periodically. When it goes away Im hungry but get sick on stomach shortly after eating. Followed by increasing nausea and stomach cramps, then diarrhea.  During the spasms of diarrhea I start vomiting.Then I sit on the commode till its over.

    Then the cycle repeats. 

    What do you think?

    My oncologist keeps saying I shouldnt be sick and maybe its a virus. Even so I AM SICK. and I want to feel better.

    thanks

    hugs

    kim 

  • Harley44
    Harley44 Member Posts: 5,446
    edited December 2007

    Kim

    Hope you are feeling better soon.

    I agree with the advice the others have given you about seeking another opinion.

    Best Wishes,

    Harley

  • nash
    nash Member Posts: 2,600
    edited December 2007

    Kim--if your tummy trouble is a virus, maybe a stool sample would sort it out? Three weeks seems awfully long for this sort of thing to be going on, though, if it's viral. I'd be inclined to blame it on the Abraxane. I looked up the se's of Abraxane, and vomiting and diarrhea are listed as "less common" se's.

    If you don't feel better in a week, I'd press the onc on how to figure out whether it's a virus or the chemo.

    Hey, Harely--how are the new boobs? 

  • kimmie39
    kimmie39 Member Posts: 319
    edited December 2007

    hi - Im on avastin. Thanks for checking.

    Yea, how r the tatas? 

    kim 

  • nash
    nash Member Posts: 2,600
    edited December 2007
    Oops--I meant avastin. Even googled avastin. Typed abraxane b/c I have chemo brain. So, yes, avastin can cause vomiting/diarreaha.Tongue out
  • nash
    nash Member Posts: 2,600
    edited December 2007

    Here's a link to the Chemocare page about Avastin (sorry I can't post a live link with my browser):

    http://www.chemocare.com/bio/bevacizumab.asp 

    Also, I'm sure the taxol can cause the same tummy symptoms. Could be the two combined together that's making you feel so bad.

  • kimmie39
    kimmie39 Member Posts: 319
    edited December 2007

    I think its the chemo to, but the doc acts like she cant fathom why Im sick.

    Its frustrating as h*ll.

    kim 

  • Harley44
    Harley44 Member Posts: 5,446
    edited December 2007

    Nash,

    How are you doing?  How's your Mom feeling?  I haven't been online recently, so I am not up to speed on how everyone is doing.

    My boobs are doing just fine, thanks!  They seem to be settling in, and looking more like breasts.  At first, they just looked like two lumps!  I will be going in  March for the aureola tattoos, and shortly after, the nipples. 

    Merry Christmas, ya'll!  Wishing us all a very Happy & Healthy New Year!

    Harley

  • wackyjackie
    wackyjackie Member Posts: 669
    edited December 2007

    Hi Girls,

    Merry Christmas to all and a Happy, Healthy New Year!!!

    Lots of hugs, Jackie

  • katoMato
    katoMato Member Posts: 645
    edited December 2007

    Hey, Merry Christmas Eve, all.

    Thanks for the description of tye-blankets - what a great idea! We DO use blankets in the desert, PLEASE!  (We use them FOR SHADE. duh.)

    Kimmie, 3 weeks of a "virus" that's making you nauseated? Doesn't sound right...I didn't have those symptoms - ever. And let me throw in my opinion: AbsoLUTEly go to Anderson if you can. I learned back in '94 when dh needed to have heart surgery that you go to the BEST in the WORLD if you are able to. We flew up to Portland, OR and the world-renowned and celebrated heart surgeon, Dr. Albert Starr REPAIRED the tiny threads of his heart valve, rather than just "pop out the old valve and pop in a new artificial valve" like the local surgeon was going to do. He would have had to be on Coumadin (blood thinner) for the rest of his life, and at 42 yrs old probably would have died of hemmorhaging (sp?) somewhere down the road because it's se is cumulative. Today, his heart is wonderful. So if you can, go.

    Well, Nash - I've never been carded because of my bald head, but people do ask me "Do you need any help out?...no? ...Are you SURE?" when I'm at the grocery store. They sound very concerned. Way too concerned. They want to take me all the way back to the convalescent hospital they're sure I've just escaped from. 

    But I did have just enough hair to brave the Big Family Christmas Party a la GI Jane last Saturday. I felt like i looked human for the first time in 10 months. Black velvet, grey buzz. Nice. (Now if I could just loose these 20 steroid pounds....)

    Arimidex note: I've been really aware of my (previously) minor arthritis...and last night it woke me up from a sound sleep. Seems to be cumulative, in that every morning I feel a little stiffer and achey...hmmmmmnnn. I looked it up, and yes, that is a se. Hopefully it will stop and not get too much worse. And hopefully it will be better when the weather warms up in the spring. Cool

  • katoMato
    katoMato Member Posts: 645
    edited December 2007

    Nash, love to you and your mom. I've been there - different planet, same pain - it is hard, and I know exactly what you mean by "survival mechanism" stoicism. We have to do that or nothing would be taken care of.  Yet there is a time for tears. You are a wonderful friend and I know you're a wonderful daughter too. She's so fortunate to have you...you're doing a GREAT job.

  • kimmie39
    kimmie39 Member Posts: 319
    edited December 2007

    Nash - Im sitting here thinking of you and wandering if your having a peaceful Christmas Eve. I sure hope so. Tell your mom Hi for me and Im thinking of her.

    Kato - When christmas is over you simply have to promise me you will post more often. Your humor is the only thing that gets a laugh out of me these days, Thank you.

    Went to the Doc today. Now she says To take Immodium around the clock if it helps and if not she'll give me something stronger (now she wants to give me something). Anyway she wants me to submit a stool sample although she doesnt expect it to show anything.

    Now If this is not the chemo and not a virus WHAT THE HECK IS IT??Personally I believe its SE from chemo. It just ticks me off that the doc just wants to treat the SE and not find a cause. Remember shes the one who said its shouldnt be the chemo.

    OK enough,

    Least I forget the day.

    MERRY MERRY CHRISTMAS!!!!! AND HAPPY HOLIDAYS!!!!!!!!!!!!

    hUGS

    kIM 

  • katoMato
    katoMato Member Posts: 645
    edited December 2007

    Ahhhhh! The Day After Christmas....and all through the board,

    not a creature was posting -

    not even one word.

    The threads were all dangling on the computer with care

    and instead we were hugging our family,

    sans hair. 

    (Ok, somebody please stop me before i hurt myself...or someone else?)

    Hope your day was GREAT, girls! 

  • nash
    nash Member Posts: 2,600
    edited December 2007

    Needed that laugh, Kaye! You're great!

    Hope everyone had a nice Christmas. My kids had too much fun. It looks like a mall exploded in our family room.  

    My mom appreciates the cyber hugs and well wishes, as do I. Thanks, as always, for the support, girls.  

  • chemomom
    chemomom Member Posts: 171
    edited December 2007

    Very cute, Kaye ;-)

    How sad has life become when i am excited to have gotten a carpet sweeper for Christmas?  What have I become???    Angie

  • kimmie39
    kimmie39 Member Posts: 319
    edited December 2007

    Hi,

    My family had an awesome Christmas!!!

    Sounds like you did to, (if you like sweepers, ha ha)

    I had chemo today , full dose and they added something that starts with a F for my bones.

    Dr. Cristenfinilli at MD Anderson Emailed me and is going to see about getting me on his schedule when he returns from Vacation on January 2nd. What a nice man to bother with little ol me over the holidays.

    Ill keep you informed

    Kim

  • nash
    nash Member Posts: 2,600
    edited December 2007

    Kim--that's excellent that you have an appointment with Dr. C at MDA--he's actually the only onc in the country who specializes in my subtype of bc (pleomorphic lobular). I'd go see him for sure if I get mets. He's very well respected.

    Am at a pit stop at home from the hospital. My mom was taken by ambulance there from her PET scan this morning--her oxygen saturation dropped to 83% WHILE ON 4 litres of oxygen (!!!) when they moved her from her MUGA scan to the PET machine. So they called 911. I was having my MRI over in another building, and when I finished and got back to her building, everyone was in an uproar.

    I talked to the onc while in ER, and the PET shows disease progression. So now the onc, who was hip on retrying chemos when we had this conversation a few weeks ago, wants to stop chemo and start hospice. I think she's full of sh**, and I want my mom on Taxol/Tykerb. It's been 3 years since she's been on Taxol, and I think it's worth a shot. She wants to go down fighting, and I support that. 

    This really sucks, girls. 

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