IXEMPRA

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jackiose
jackiose Member Posts: 2
edited June 2014 in Triple-Negative Breast Cancer
IXEMPRA
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  • jackiose
    jackiose Member Posts: 2
    edited December 2007

    My triple neg sister had her first Ixempra treatment 2 weeks ago and it was horrible severe abdominal pain and swelling, disabled for 2 weeks and in hospital for 1,  Anyone have a reduced dosage of this?  Cant seem to get answers from the drug company.

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited December 2007

    I just got info this week on this protocal.  It had a lot of info on all the reasons to redues dosage.  Shocking amount at that.

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  • Lauralynne
    Lauralynne Member Posts: 123
    edited December 2007

    I had my first Ixempra treatment 12/11/07.  Days 1 and 2 no problems, days 3, 4, 5, and 6 ---abdominal cramping, jaw pain, neuropathy of toes and fingers, severe fatigue, more than any other chemo I have ever been on.    I complained to my onc when I saw him.  He had just returned from the San Antonio symposium attended by over 8,000 in the medical field.  He said there was a lot of talk of Ixempra.  He heard that by reducing the dose to weekly injection (instead of every 3 weeks) the side effects are much less and better tolerated.   I will have the smaller dose weekly starting 01/03/08.  After day 7 went by, I felt much better, but those first 4 to 5 days were horrible.  This stuff better be working!  :-)   I know the stats are not so good on this drug, but I am willing to give it a try because nothing I have been on has stopped my cancer in its tracks.

    Good luck to us all.

    Lauralynne 

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  • Taysia
    Taysia Member Posts: 6
    edited December 2007

    Hi Lauralynne,

    What is your onc trying to accomplish with Ixempra? Is it an IV treatment?

    Tay

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  • Lauralynne
    Lauralynne Member Posts: 123
    edited December 2007

    Tay-

    I have stage IV inflammatory breast cancer diagnosed in February 2006.  I have been on 8 different chemos and nothing has been able to destroy my cancer.  Ixempra is another one for me to try.  Yes, it is given intravenously.

    Lauralynne 

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited December 2007

    I was told Ixempra is the next big "hope" for  triple negs.  I have not seen alot of trial results yet.  I'm hoping I will get to by pass this one.  Laural what other chemo have you taken?  Were you true IBC or spread to skin like mine did?  I did Gemzar, carbo & avastan and took the herb curcumin and got good results.  I'm one year from skin mets.  But I still have other local bc.

    Living in hope,

    Flalady

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