Mom wants to give up chemo...
Hi gals,
Mom had her 2nd AC tx last Wednesday. She's not doing well. The loss of taste has reached new heights and she's not wanting to eat anything anymore, food doesnt appeal to her. Everything tastes yucky (for a greedy person i think it hits her quite hard). I'm at a loss getting food into her, especially protein.
She's also more fatigued and listless now and the thought of having to go through another 2 cycles makes her depressed. She's also worried that with each tx, her body won't be able to take it. She seems to have lost her fighting spirit (she was quite positive starting out). I have tried encouraging her but she really seems down in the dumps now. She doesn't want to continue with the chemo. Should we just stop? She's 68, Stage 1, triple negative, node negative.
Counting the days,
Sofie
Comments
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I think some antidepressive or ant-anxiety meds because her prognosis is good and chem does work for 3 neg.Beth
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Oh Sophie,
I can hear the concern in your words. I would suggest talking to your Mom's oncologist about how your mom is doing. The doctor may be able to change her cocktail (chemo combination).
She is already half the way through AC. What motivated me is the thought that if I stopped and cancer came back, I would regret not finishing my treatments. I wanted to do everything I could the first (and only-hopefully) time around.
I found a tapioca at a health food store that tasted good and was very soothing. It had milk and rice for nutrition. I also found sugarless peppermint candies that settled my stomach.
I hope your mom will feel better in a few days. What I remember is feeling better by the end of the week and almost back to normalat three weeks-then having another treatment.
I hope you are taking good care of yourself. I hope you are eating and gettting enough rest. Take good care of yourself too!
Warmly,
Sadie
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Have you thought about finding a local support group for your mom to go to. Go with her the first time or two, until she feels comfortable on her own. It might do her a lot of good. Kate
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I agree with what everyone else has said, especially about a short term use of anti-depressants to get your Mom through this. Also, there is a wonderful recipe book available by Rebecca Katz called ONE BITE AT A TIME. It has some great recipes and ideas to make foods attractive for patients going through cancer treatment. I highly recommend it. There are lots of other books out there too, but I've actually made many of these recipes and can attest to the soundness of the advice and the recipes. Most important is to get as much protein in your Mom as possible. If her tase buds are off, try cold smoothies. And by all means, see if you can find a support group for her to attend as she's going through the treatment.
Best of luck. -
I feel for her..and you. I had eating problems while on AC also and I had cravings for Burger King, something my kids laughed at. I could barely get a bite down after they went all over getting me this.
She may need something spicey (hence the burger with spicey sauce) and something fatty (the fries).
I'd be tempted to get that recipe book that was recommended.
And please speak with her onc. Maybe she is really not feeling well on this combo. I got very sick on it and only had 3 out of the 4 of the AC.
Good luck.
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Sofie, the best time to hit this beast is the first time. Hit it hard, hit it fast. Your mom is triple negative. She has an aggressive cancer. If she quits, she has a very high risk of the cancer returning, which will be worse than what she is going through right now. Hopefully, she will continue the chemo. I know it certainly saved my life. Look in to purchasing seabands for her. From what I understand, not only do seabands curb nausea for seasickness, morning sickness and anesthesia sickness...I've heard that it curbs chemo sickness as well. Best to you and your mom.
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Where is the cure???
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Sofie....xxx
I am triple neg...had 2 tx and it is much harder than I ever thought it would be...the tiredness and emotions and the aches....I have contemplated not going for the last 2 and the other 8 cmf treatments.... I used to be so gritty .....
But I will NOT give up.....I changed my nausea meds and topped my anti depressants up daily....your mum has the exact same dx as me....I will have to have rads in June....
Maybe you could speak to her onc next time and get some of the meds available....she has done so well to get half way through...and just think the next one will be the penultimate one...
Please let us know hpw you get on xxx
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I don't think you should stop, but I also think you should talk to your mom's oncologist about trying TC (the T being taxol or taxotere) C instead of AC. From what I have read chemo is important for triple negative, its not so important as what chemo, just chemo. TC has shown alot of promise for replacing AC because of adriamycin's effect on the heart. If your oncologist won't consider this get a second opinion. After two treatments with AC another alternative is just to switch to weekly Taxol. Ask for the weekly rather than every two weeks of Taxol, the side effects are less and it is at least, if not more effective than the once every two weeks. Taxotere has to be every two weeks because its too hard to manage the side effects on a weekly schedule. Whatever you chemo you change to stay on a weekly or every two weeks schedule, they have proven themselves to be much better then the once every 3 weeks. It seems the less time between treatments doesn't give the cancer cells time to recover between treatments.
I know two stage I ladies in my home town who got Taxol and Avastin. Doctors have alot of leeway in prescribing chemo, it really comes down to what they are willing to do.
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Hi Sofie
Sorry to hear your mom is having such a hard time with the chemo.The physical and psychological reactions are really tough to predict before staritng the chemo,and there are so many individual responses.You must be in qualms about what is best for your mom and this is so understandable.
I agree with so much of what has been written above,especailly about consulting your mom's onclogist and maybe the 3 of you can discuss the different options re what medications to take, should chemo be continued, and if some type of antidepressant can help.
It seems that a central issue is her lack of appetite which may be weakening her.Sometimes hospital dieticians can help too.
Your mom's age amy also be a factor-68 isn't old but it's neither young, and these chemo sessions are difficult(putting it mildly)!
If your mom's onc. suggests to continue with the chemo and her blood tests prove to be "managing"in spite of the drugs, maybe it would help if your mom could learn to "face" one day at a time, . When I was having rough days in during the chemo stage, I tried to think only of that day, and not what would be beyond that. It's kind of training the mind,even if that's hard,anything is worth trying!
Rena
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Dear all,
Thanks so much for the concern, suggestions and encouragement. Wouldn't know what I would do without you gals. These past few days have been difficult but mom has finally gotten out of the pit. I guess she has to learn to endure the 8 to 10 days after each infusion, knowing that there is light after that. She's in better spirits now, and a teeny bit of taste has come back. Mom's not into support groups as she's shy and not the sociable type. She doesn't like to eat cold stuff, finds hot foods/soups easier to stomach. I will check out the book recommended. In the meantime, I'm trying to get her to eat an egg for protein everyday. Yups we have the seabands as well. Helps only a little. And yes I will take care of myself. I know I have to, otherwise I wouldn't be able to help my mom.
The depression is indeed something new that we have to learn to deal with and I do agree with all of you that it is important to complete the chemo treatment, no matter how tough. We will see the oncologist on the 2nd Jan to discuss her situation and the suggestions given here. I do not know if switching chemo drugs at this point in time would mean an extension of the tx period. She looks forward to Jan 24 which is her final tx.
Just wanna end off by wishing all a blessed Christmas and for those of us undergoing treatment, may we find sustaining peace, hope and strength for the rest of the journey ahead.
Counting the days,
Sofie
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