November rad girls check in here!!
Comments
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Thanks for the rec. I'll ask on Monday - I think the docs all took off for San Antonio as they all had dr days early in the week. When he saw me on Tuesday, it wasn't so bad. Ugh. He said he move the boosts around if I was still having skin trouble. We'll see how the tylenol works.
On a good note, my leave was approved through January 4.
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Congrats to all who have finished or who are on their last week of boosts!
I had my last one on Wednesday, and after I did my happy dance I had a good cry. I'm thrilled to be finished, but anxious that I'm "on my own" now, so to speak. I'm sure you all know what I mean.
So here's a question for you all: are you going to make any changes or have you made any changes to your lifestyle? A change in diet or exercise or anything like that? I ask because I feel that I was a pretty healthy person before all this happened (you know, everything in moderation and all that good stuff), but now I'm wondering if there's anything I can do apart from the tamoxifen to keep this middle-aged body healthy and resistant to any recurrence. Maybe this isn't the right place to open this discussion--maybe I should start a new thread...
Anyhow, yippppeeee for us all nearing the end of this phase!!! And thanks to you all for being there!
Lisa
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Hello, I have one week of boosts to my scar left and will be done! My armpit will sure be happy, it is mess -- the Dr gave me some numbing cream which only worked for an hour or so. Any kind of stretching the skin is what hurts it.
Lisa, in answer to your question... I have always considered myself pretty healthy before but have definitely decided to make some more dedicated lifestyle changes. There is an excellent article on bco about the benefits of exercise to reduce risk -
http://www.breastcancer.org/risk/environmental/new_research/20050727a.jsp
I have definitely taken that to heart and now try to do something at least daily. Being a Stage IIIc -- I just am not going to leave anything to chance. Recovering from Chemo and rads, I am certainly not breaking any records with my workouts but I am trying to build up one day at a time.
I think this might be a good topic for new thread, there are probably lots of things people are doing.
Linda
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Hi Ladies:
I haven't been on in a while but I think about you all each and every day.
I had treatment number 24 on Friday and will have my last treatment Monday at 9:45. I'm so excited but nervouse at the same time. I'm excited that I'm thtough but nervous as to what will happen next. I guess as they say, "Go with the flow and do all you can."
I have had some problems with the radiation - the burned the sore breast, the painful nipple and the tanned breast vs. the normal breast. But all in all, this site and talking with you guys has help tremendously because I knew what I could expect to happen and know that it "normal" and not "made up."
I hope you all complete your radiation soon and have no further problems
Leesa from Abilene Texas AKA Dink
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I`m worried I won`t be able to get in Mon. for my last treatment as we`re having Blizzard like weather with 10 maybe 12 inches of snow, last year when this hit our city was closed down for a few days under a snow emergency, guess its better to end this way rather than start, just wanted it over with on schedule.
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Let the countdown begin: Only 9 visits left!
I've been fortunate not to have too much tissue distress, but I'm praying the last treatments won't change that. I'm doing what I can to keep the skin as healthy as it can be. I'm sure glad I don't have to contend with weather issues. Sorry for those of you that do. A friend made me some yummy potato cheese soup. Just right for a cold Sunday afternoon. Here's wishing all a good week. Ruth
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I`M DONE!!
Roads drivable and all my tecks made it in to work, got the certificate and out the door, couldn`t be happier, finally now I can start healing, looking forward to the day when my boob don`t hurt.
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Great! High five to ya Clessie!!
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Woo Hoo Clessie!!
dink - thinking of you at your last treatment -- yippee!
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Wonderful news Clessie!!! I'll bet you are glad you did it though. I know I am .
Dink Congrats to you too and I can certainly understand those feelings. I had #16 today and am already thinking of after that is over.
I have a triangular tan myself but no burns to speak of yet. Is it too early in the treatment or should I just go with it. Am a little sore but again, nothing terribly horrid. Gosh, all my worrying over nothing maybe? AGAIN??!!!
The only thing I notice with me is rad brain. Im foggy, forgetful and fatigued. I can forget what Im looking for if I walk away from something. I remind myself of my mom when she was going thru menopause and now shes still forgetting and is 72. Im thinking, "oh no Im not going to be like her am I?" My poor mom was diagnosed with diabetes this year and she wont take medicine so she is really super brain foggy and she weighs under 100 pounds now. She has a new Dr that she will see in January when insurance kicks in. I have to give her credit that she has several books on diabetes and she says she just about has the eating system worked out. But, I still think she is going to get medicine anyway whether she likes it or not, although I didnt care for her previous Dr either.
This is the time of year to be thankful, and looking back I do have alot to be thankful for even though this year threw me with several loops: got bumped on the freeway early in the year (not too bad), brother has a girlfriend that is using his money up and several friends and family members thinks hes on drugs and he had a brain injury from a car wreck back in 03 (oh well, its his life and I only take charge of mine and I have finally accepted that), my mom, my dog is 14 and is moderately arthritic (but otherwise the spunky spirit remains), my cancer diagnosis and goings thru starting late September. Id say lessons learned this year in firm but gentle reminders. I already knew of them but it sure verifies things I suspected I should know and try harder to overcome some ways that I am.
This is a great place to vent, and a great place to celebrate. I enjoy all of it.
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Congrats to Leesa and Clessie for getting done!!!...It is so great that we are starting to get to the end of this. I have only four more sessions left.
Labhusky -- I did not have any pain or discomfort until just after my fifth week. Stay diligent with the creams; I am sad to say that my armpit is still on fire and am on prescription numbing cream and advil! I can get to the end -- and am hoping for quick healing.
Next step for me will be hormone therapy and am meeting with my onc. to talk about having my ovaries removed to be as agressive as I can. Hope everyone has a great week!
Linda -
Congratulations Clessie and Dink!
I am joining you in the happy dance as today was my last treatment. I got the certificate and was told to return in a month. I really cracked up when I read the certificate. It said that I CHEERFULLY showed up for appointments. I had to be one of the grumpiest patients they ever had. The doc explained to me that the radiation would continue to kill the DNA of cells for about six weeks. He also said that sometimes patients continue to get redder and the burns will show up late. Unusual. Mine have already begun to heal quite well. the boosts were a breeze. They shouldn't use that term. It makes one think that they are stronger and will hurt more.
Glad this step on the treatment journey is done. Thank you all for your support. Wouldn't have been possible without you.
Will continue to check in until all are finished. -
Yea Sedosa happy to hear it!!! Im sure you cheerfully showed up for todays appointment
or
. I didnt realize that radiation kills the DNA, thats interesting and powerful.
All of you that are finished go and do something nice for yourself!!! You deserve it!!!
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Happy dance for Sedosa! Another one done!
I finished the regular zaps today - tomorrow begins the boosts...hard to believe 25 tx come and gone.
The nurse gave me some stuff to use on my breasts - a powder to mix with water (Dermoboro), and some cooling gel patches (Carradras). I'll see how they work. she said the redness and burning can go on for a bit longer. If these don't work, I'll see about lidocaine.
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Hi All!
Yeah...the day finally arrived...my LAST rads! The certificate was fun, the techs were great, and I danced all the way out! Just in time for Christmas. Hallelujah! Down side....my chest & arm pit on sloughing off skin down to the 3rd layer - I'm not so tired, just miserable from the burns. Dr. gave me silvadene cream to use, but I'm literally walking around the house w/o a shirt on! Air seems to be helping - clothes are agony right now. And I have this burgundy chest, about a 8x10 size, that is my 'little suntan'...nothing little about this, plus 2 big spots at my neck (where they fried my clavicle lymph nodes). Oh well...at least it's over. Now if my skin would heal, I might actually feel human again. This was worse than chemo for me, emotionally & physically.
Congrats to all who stuck it out!
Bless us all...
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Hi girls -
Sorry I haven't checked in in awhile. It's been a crazy week with getting ready for the holidays and all. I hope everyone is doing ok. My skin started getting red last week and it just seems to be getting worse. This whole section in the center of my chest is bright red. I have 9 more to go and I can't wait for it to be over.
Today I went at my normal time - I am the first one at 7:30 am and it seemed like I was waiting longer than normal. Finally, they came to tell me that something happened and they couldn't get either machine working or the CT machine. They think it was a power failure or something. So, I left and went home. I was supposed to go to work but I work an hour away and didn't want to drive all that way and have to come back. Glad I didn't go as they called about 2 hours later and wanted me back in.
Congrats to all those who have finished!
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I finished 18 today. A little red, but not bad. However, my nipple and underarm are very achy and sore. When I left today, my breast just hurt like the dickens.
I continue to have achiness in my arms and legs. My onc can't determine the cause.
Got a bad cold and that is making me feel yukky.
I feel like I must be depressed. Kinda angry at the world. Seems no one in my circle gets that I am doing treatment. My husband, who is a loving and giving guy keeps talking about doing all this Christmas stuff (go here, there, etc) and I want to scream -- I'm too tired, I don't feel like it. I know he just wants to keep things normal, but right now it's not normal for me. Other friends and family have been treating me like my cancer is over. Well, yes I want it to be over, but I am still going through this daily ordeal of rads and that is a daily reminder I have (had [hope to God]) the big "C". I'd like a little support, but find it's not there. Everyone wants me to put on a smily face and say I'm ok.
Okay, can you tell, I'm grumpy. How do I get back to not wanting to cry.
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Nevaeh, talk to your doctor about your depression.I was depressed shortly after starting rads. My doctor put me on a low dose of welbutrin and it has made a big difference.I know how it feels when everyone around you acts as if all is fine,and all you want to do is curl up in a ball and cry.Rad tx is so hard on your mind and body, people just don't get it.
Good luck and warm hugs,
Terry
p .s. Try to get some rest, its so hard this time of year. -
Hello everyone. I had my final Boost today. Feels good to be done. Don't even think I need another "shopping trip" to the city where I got treatments until maybe Presidents Day sales in FEB!!!!
I am red and tired. have had peels going on for the past 2 1/2 weeks. Also the boosts have brought a deep pain straight into the breast and for me lidocaine doesn't touch it. But really, I'll lose some sleep for a couple of weeks and then it will all be better. WHen I'm up and busy, or out snow shoeing with our german shepherd, I am so far removed from the pain that I feel normal. I wish you all the best, and the least amount of side effects over the holidays. We all have much to be thankful for and I know we are all looking at our family and friends in a new totally appreciative way. Thank you all for sharing this journey with your input, observations and just being here as a safe place to talk about how this all has made us feel about our bodies, our lives. Its been a tremendous blessing to have these moments on line as I didn't have a cancer support group locally. Again God Bless you with strength and healing. May He bless and benefit your body thru each remaining treatment. love, arby
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dear nevaeh, Boy can I identify with the emotions you've expressed. And I do leave the house with my dog rather than verbalize how raunchy I'm feeling. cause we really do need an escape especially if we aren't being validated. I'm grinning at your hubby's wanting to keep things normal. its so sweet. But you keep telling us how your heart feels so you get to just say it and be heard here. I'll be praying for you and your family that the holidays are refreshing and NOT stressing. treat yourself to some quiet music and a nap if the pain isn't too bad. I slipped out to our high school music concert alone last night cause I knew the music would tranform me. didn't care that I was late getting there or in my grubbies. I just soaked in the songs and the setting. Nothing like a dark auditorium with white Christmas lights on stage. I didn't have to smile,(but I could) and I didn't have to mask the tears. Just know you are loved and cared for by a heavenly Father and all your sisters here. love, arby
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Oh, Arby and Terry,
Reading your replies brings tears. Thanks so much for your support.
Congrats Arby on crossing the finish line! I hear ya about the pain--it's getting worse for me daily. Nurse told me to take pain pills, but I am trying hard not to except at night.
Nothing said about lidocaine (is that a shot?)
What else can you do?
I can truly relate being transcended by music. For me, and it sounds like for you also, it's as if God's angels are singing.
Terry, I have an appt with my primary on Friday and will ask about the welbutrin. I'm really afraid of taking meds. My Mom after 2 breast cancers (10 years apart) became addicted to pain meds and subsequently in later life had to have shock treatments. I know I'm not her -- I'm just so afraid of slipping over that edge.
Thanks my sisters - I just needed a hug.
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Hi all,
Kelly I agree with you. Rads were much more difficult for me than chemo or surgery both physically and emotionally. I don;t know if it is because I am just so tired of treatments. I agree about the no clothing. The siivadene cream really did help the healing, not the pain.I do know that the burns are healing. I am still quite fatigued. Hope that gets better before I return to work.
Neveah. I was the grumpiest patient ever. Antidepressants help, but I believe there is a point during the course of treatment. Lidocaine is a local anesthetic. It can be a shot or a cream in this case. Take care of yourself.
Hugs to all,
Steffi -
Hi guys
Well, I crossed the finish line today. No bells and whistles, but they gave me a guardian angel pin and took my picture in front of the machine with a graduation cap on. I am still tired but ended up with no SE except the pink boob. And where they radiated before the boosts is already tanned. I have a mammagram scheduled in January, and a follow up with my chemo guy tommorow, my rad guy in jan and my breast surgeon in feb. Tired of doctors but so glad to have this leg of the journey behind me.
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Congrats, arby, on finishing!
neveah - please don't worry about getting hooked on anti-depressants. If you think it will be a short-term thing, discuss the various types...some are much, much harder to get off of than others. They will take at least a week to help, but they will help.
arby- the pain. I had shooting pains last night under my arm, and my nipple is so dry & sensitive & it just plain hurts. The gel pads haven't helped much, the burroughs solution has been better. The rad onc today suggested 3 Motrin, 3 times/day. If it gets really bad, he'll prescribe something, but he's pretty certain this will do the job. I hope so, I woke up every time I turned over.
There really needs to be more written about the physical and emotional SE of rads. The fatigue and associated fog/brain as cotton feeling. The depression. Why it all seems to hit at once.
My daughter was in tears last night before dinner. She didn't feel good. We're all supposed to fall over and sympathise with her - so what do I do? I'm all 'well, fine. like I get to be sick and be taken care of.' I'm not a malingerer, but sometimes it would be nice to have everyone take care of everything for me.
Big music concert tonight at the high school. We'll get #1 daughter there to play, and then I will take arby's advice & let the music flow over me.
take care, all.
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Congrads to the graduates!!
The last few days of not going to rads has been nice, although I`m ready after a few Jammie Days to get out, we are having a warm up tomorrow so will get to grocery for Christmas dinner stuff, and make it to my mother `s on Fri. to give her her gifts.
I see my medical onc. the day after Christmas and actually looking forward to it as this is the last leg of my journey, also since she is new to me (my last onc left for Tx.) I need to be reaffirmed that I made the right decision on not doing chemo, I get a little nervous when I see people with pretty much the same dx as mine that did the whole bit and wonder, wonder if we ever get to the place where we feel we did all the right things.
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I just want to wish every one a Merry Christmas and the most blessed of holidays. Of whatever faith, I send you my most sincerest best wishes for good health, happiness and healing.
Congrats garnetann on being strong and facing what you must and perserving through to the finish!
Steffi and Kelly, I can't speak about chemo - I didn't have to undergo that and I feel blessed for the repreive; but gotta tell you I really don't like these rads.
What really gets me is the fact it doesn't seem like when you're there it's doing anything (good or bad) but at the same time it's doing good and bad things to your body, mind and soul. Unlike surgery, you can't see a scar to know for sure that the "C" beast has been cut out--you just have to trust in the science. What you do get is the bad side of stuff that makes you feel so yukky it must be working cuz otherwise---we'll I can't bear the thought it's in vain.
Anyway, off for milk and cookies (my hubby baked me some chocolate chip cookies last night [no, you can't have him - he's all mine])
With you in thought and prayer,
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Yippey!!!For Garnetann!Congrats!
Merry Christmas everyone Peace and good health to all!
Terry
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It feels good for us all to be getting done. I completed my final 34th session today! I still cannot believe that it is done, but my armpit will be very happy, It is very sore and quite raw. The nurse gave me some "gel sheets" to place over my burn. They are about 3x3inch squares with one side covered with aloe. They are heaven for me. I put them on at night and they eliminate the friction pain. I try to let the burn air out during the day. If you need them, I would definitely ask your doctor/nurse if they have any.
Hope everyone has a great Christmas and holiday season...
Linda
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Wow, we are all almost there! It seems like just yesterday that Connie asked if there were any November rad girls.
Garnetann- your turn for the happy dance
Linda - you too! congrats!
I finished #29 this afternoon. #s 30-33 next week - with Christmas off. My underarm feels like someone has taken my skin in their fingers and pulled HARD in both directions. Motrin helps some. Doc says it'll get better. The rad techs cluck over me.
Take care, everyone, and have a wonderful holiday! If nevaeh would hand out some of those cookies....
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How fun is this?! I've been reading this thread--and occasionally posting--since the beginning. Just checked in to see what's happening after awhile away, and everybody is either finished or in the home stretch!
Best of luck to all of you, and congrats on your progress! Time to switch to the hormone therapy threads for some of you. Hopefully you'll be writing to report smooth sailing with no SEs.
Take care, ladies, and Happy Holidays!
Lynn
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