anyone starting chemo in Nov 2005

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  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2007

    I know what you mean, I have been so sad today.

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  • Odalys
    Odalys Member Posts: 2,103
    edited December 2007

    I was trying to find the one picture of Kim she posted a while back but can't find it.  Does anyone remember when she posted it?

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2007

    I wanted to know if there was one of her too....you must have read my mind....

  • Margerie
    Margerie Member Posts: 526
    edited December 2007

    I found a post where she had a shutterfly link:

     http://share.shutterfly.com/action/welcome?sid=0AbtmLZk1csmLmI

    I miss her already!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    I'm so glad that we all think alike!  I was wondering about the pictures, too! 


    Such a sweet dear family.  Anthony is a really amazing husband.  He is really focused on their little ones, and is making a scrapbook with stories about Kim, so they know what their mommy was like as a person. 

    Anyone know of an easy way to get her posts available to him? 

    Love and prayers, Deb

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2007

    Here is a picture of Kim....

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  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2007

    Sisters, I want each and everyone of you to know how much you mean to me.....without you I would have felt very alone and afraid. You all made these years  so much smoother by holding my hand and walking this journey with me...And we still walk hand in hand to this day. We have lost one of our dear Sisters. My heart  just breaks for her family. Those dear sweet children.

    I also want to remember our "Special Kaye" May God be with her.

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  • Odalys
    Odalys Member Posts: 2,103
    edited December 2007

    Margerie - I am so glad you found the pics.  I've looked all over for them but did not realize she had them posted as a link.  I also found the one of Kay.  What a sad day this has been! Cry  I want to call Anthony but have not been able to mustard the courage. 

    Deb - it sounds like you spoke with Anthony. I hope she was at peace and was able to be with family at the end.  As for her posts, how about contacting Melisa and Tami the moderators.  Maybe they have a way of making all her posts available to him?  Do you want to contact them or should I?

    So many sisters have lost their fight these past two months.  It makes me appreciate life and our friendship even more.  I'd love to get together this coming year.  Maybe we could all meet at Disney.  Kim used to love going to Disney.  It could be our tribute to her.  What do you say????   

    BTW- has anyone heard from Anna and Lat56?

  • Margerie
    Margerie Member Posts: 526
    edited December 2007

    Deb- you can just email Anthony the link to this thread.  I reread it all.  Amazing how much we all went thru and Kim especially was so supportive of everyone.  It would take him awhile to read- but it is 2 years of history.

    Are we talking Disney World?  Could we go the end of June???  I don't think we could swing it until school is out.  I just checked into the Disney cruises- how fun would that be??  But $$$$ ($5k for 3 night cruise for 5).  Wish they had a cancer discount.

    I am still in denial about Kim.  I wish I would have known things were going this way.  But I think she didn't want us to worry- or it just happened too quick.Cry

    The kids are such innocent souls- breaks my heart!!

  • Odalys
    Odalys Member Posts: 2,103
    edited December 2007

    I know what you mean about being in denial, Margerie.  I haven't been able to do much today.  I've been in shock all day. 

    The day I spoke with her she did not sound well at all.  A part of me felt the end was near but could not find myself to say anything.  I didn't even know what to say to you all about the conversation we had.  She was coughing and sounded short of breath.  We spoke for a couple minutes.  I am greatful that we could connect by phone even if it was for a few minutes. 

    I do find comfort in knowing she is no longer in pain.  She was an inspiration to us all. A true fighter...a hero. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    This is just so sad. 

    I love you all so very much.  I truly do.  You have all been such an important part of this journey, and I truly have felt every ache and pain right alongside you-just as you have for me. 

    Odalys-I would love to honor Kim by going to Disney.  I think that is a fantastic idea. 

    Ok, now who would like to head up the "collection" for a donation to bc.org?  If you all don't mind, I'd love it if one of you could do it-I can hardly keep up with my Dad's estate mess.  Just tell me who to send the $$ to so we can tally it up and make one big donation. 

    I am going to contact the mods right now about getting Anthony a copy of all Kim's posts.  I haven' t "spoken" with him, just emailed him a few times.  My first email to him was huge-I didn't know if I was trying to comfort him or myself! 

    It really feels like we have lost a link in our chain, and it hurts.  I am going to be clinging to you guys with all my might-I hate the idea of losing anyone else to this monstrous disease. 

    Love and prayers, Deb

  • Odalys
    Odalys Member Posts: 2,103
    edited December 2007

    ((((Deb))))

    Sisters I hate to add to the bad news.  My mom has taken a turn for the worst and we don't know if she will make it through the night.  Her vital signs have dropped significantly, she barely eats, and all she wants to do is sleep.  When I got to her house, I sat next to her on her bed while she slept.  She opened her eyes and told me she is very tired and she thinks God is calling her but she did not want to go yet because she does not want to add to my troubles and give me such grief.  I couldn't stop the tears.  I hugged her and told her not to worry about me because I am okay.  I love her and I understand if she needs to go with God.  I don't want her to suffer anymore.  She deserves to rest.  Since I was lying next to her, I placed my head on her shoulders and she kissed my head and blessed me.  She fell asleep again.  When I left her house she was sitting up on the sofa, wrapped in three blankets because she is so cold.  Dad, my sis and brother are with her.  I wanted to bring Steven home.  He doesn't really understand what is going on other than he knows grandma is very sick and she may join his other grandma in heaven soon. 

    Ay....sorry for dumping all this on you.  I just feel a need to let you know and ask you to please say a prayer for my mom (Marta) so she can find peace.    Thank you.

    My heart is hurting.  It feels like someone has stuck a knife through it. I have to go now.  I'll keep you posted.   

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    (((((((((Odalys)))))))))))))

    Oh Odalys.  Prayers being said. I know this is so hard for you.  We are certainly here to offer our love and support. 

    I love you all so very much. 
    Love and prayers, Deb

    PS-Anna?  Where are you? 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    (((((((((Odalys)))))))))))))

    Oh Odalys.  Prayers being said. I know this is so hard for you.  We are certainly here to offer our love and support. 

    I love you all so very much. 
    Love and prayers, Deb

    PS-Anna?  Where are you? 

  • Margerie
    Margerie Member Posts: 526
    edited December 2007

    Odalys- I am so sorry about your mom.  She was probably waiting for your blessing.  I hope she is at peace soon.  So hard- please take care dear friend.  Heaven is getting some mighty fine angels lately.......................................

    Hugs to  all of you,

    Margerie

    P.S.  I will check into the donation tomorrow!

  • Margerie
    Margerie Member Posts: 526
    edited December 2007

    Odalys- still thinking of you and your mom.  My mom and I are not talking right now (long story) but I think I need to call her. Life is too short.

    Ladies- go to the top of this page and click on "donate".  You can make a donation (online, mail, phone) in memory of Kim.  It was easy to do- just did it myself.

    I am glad Kim is at peace, but I miss her!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    Great, thank you for looking into the donations, Margerie! 

    I keep on thinking about Kim and her sweet family.  What beautiful people.  I just can't get them out of my mind. 

    I need some prayers.  Why is that, you ask? 

    1-I got into a hit and run accident today and my car is trashed

    2-I have a pain in my lower abdomen and tailbone that is freaking me out, and my oncologist is ordering a bone scan that can't be done till mid January.  I'm freaking out. 

    More later, I wanna go to sleep. 
    Love and prayers, Deb

  • Odalys
    Odalys Member Posts: 2,103
    edited December 2007

    Deb - I know you are scared but don't freak out.  Don't let fear take the best of you.  It could be many other things.  Such as...do you still pick up Daniel?  The added weight could be putting pressure on your lower back.  How about your posture?  Bad posture can also put a lot of stress on your lower back.  How about...are you sitting for long period of time?  That can also put stress on your tail bone.  Don't freak out yet sister.  Have it checked out first.  Remember....no matter what the outcome is... God will help you deal with whatever is causing you discomfort.  Plus, you have us right here holding your back (no pun intended).   Also, could you have the test done somewhere else instead of waiting so long?  The waiting is always the worst part of this journey.

    Thanks for all your prayers.  Mom is hanging in there, fragile but hanging in there.  I never realized her strength and courage until now.  Insteresting, she always seemed so week and sickly before.

    Magerie - yes, call your mom.  Remember, there is nothing greater in this world than the connection of mother and child.  We don't get to choose our parents, we just have to accept who they are and love them anyway.  Afterall, they did give us life.  Sorry, don't mean to preach...just your older sister talking. 

    Anna - did you have your surgery?  If you are reading this please chime in and let us know how you are doing.  Does anyone have her phone number?  That reminds me, we should exchange numbers just in case we need to check up on each other.  I will pm you mine later.

    Got to run, work awaits.  Have a good day.  Love and hugs to all.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    Good idea, Odalys.  I think phone numbers are a great idea now that we are minus one person in our little group.  Count me in on exchanging mine! 


    I forgot to chime in on the conversation about your Mom, Margerie.  I also agree that you need to call-after my Dad died so suddenly and unexpectedly, it breaks my heart to see others not taking advantage of the precious time they have with their parents.  I was never super close to my Dad, and I regret that so very much now.  Please take advantage of your time.  My Mom died when I was 20, and it was after a 10 month battle with Leukemia.  She and I were SOOOO close (we could finish each others thoughts, I used to follow her into the bathroom, even as an 20 year old, because I was always talking to her and didn't want an interruption to our discussions!).  I just am thankful that my Mom and I were able to cherish each second we had.  

    I got an email from Anna about the gift exchange, so YES she is ok!  I was worried about her! 

    Anna-I'll have Greg check your message back to me (not reading them so my secret sister is a surprise).  If it is about addresses, I think one of my emails out to the others had them and I will forward that to you!  

    Love and prayers, Deb

  • Sumanb
    Sumanb Member Posts: 10
    edited December 2007

    I completed my 4 rounds of AC in the first week of September. I felt bad after my neulasta shots on every other wednesdays. Thursdays and Firdays were not good, but by saturday i was ok to do some light house work. But ladies, I hope none of you have to face what happended to me after my last treatment. I had shingles. They pop up if your immune system is too weak. So please look all over your body during and after your treatment.

    Look for anything that resembles like chicken pox. I caught mine early and was in isolation and was treated with anti viral intrvenously. I was OK after a week. It is very rare but if it is not treated early it could be bad. good luck to all of you. My hair is growing very slowly. I hated my wig, but i am getting used to it. it's been 3 months since my treatment ended, I have 3/4 inch hair, so I think it will be end of march at least, before I can drop the wig. I had my wig trimmed, and thinned so that it looks more natural. most 55 + ladies do not have such bushy hair. Wig manufacturers have to realize, sometimes less is more. my wig was 1.5 oz when i got it now it weighs less than an oz.

    Best wishes to all.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    Hi Sumanb,

    Thanks for the info, but we are actually the chemo group that started in November of 2005.  We all have actually been through the wringer!  

    Ladies, I got something very special in the mail yesterday.  Kim had written a sympathy card for me regarding my Dad, and Anthony mailed it to me.  It was so strange to see her writing, and of course heartbreaking to see that in her last days that she was still thinking of others over herself.  I will treasure that card forever. 

    Ok, please pray for me, I go for my bone scan today.  It wasn't supposed to be until mid January, but I pushed and pushed so I could get in sooner. 

    I'm really freaked out.  Please pray for NED and excellent results.  Feel free to put me on any prayer lists!!!  

    Love and prayers, Deb

  • AnnaM
    AnnaM Member Posts: 1,387
    edited December 2007

    I am speechless.



    I am so sorry I haven't been here for a while, I have let things take over my time. I just had no idea....



    Oh, dear sisters, what about those three little children? And Kim's husband?



    We have a prayer box at church and I always put Kim's name inside and did so this morning before I opened Mary Lou's email. I know Kim's faith was strong. I know she is now at home with God. I hope her transition was not too hard.



    So now I vow not to let so many days get away from me without checking in here. I love you all; you are my sisters. Yes, count me in on whatever we decide to do in Kim's honor.



    Our dear sweet Kim.



  • AnnaM
    AnnaM Member Posts: 1,387
    edited December 2007

    I just read the posts on this page. I didn't realize I was back on the previous page when I wrote the last message till it posted and I got plopped here.



    Odalys, I am so sorry to hear about your mom. I hope she is comfortable. I am so glad you are with her through this.



    Deb, I hope the pain subsides and that you find out it is nothing serious. I know each and every pain sends us into some weird scary place, and it's no fun being there.



    Love, Anna

  • Odalys
    Odalys Member Posts: 2,103
    edited December 2007

    Deb - did you have your scan done?  When do you get the results?  I'm keeping you in my thoughts and am praying for b9 results. 

    Anna - Welcome back. We were worried about you.  Glad to see you posting again. 

    Update on mom - she is doing better and will be discharged tomorrow.  We are making arrangements for home health and a private sitter.  It gives me great pleasure to be able to hire a sitter for mom.  A long time ago I promised her I would not place her in a home and I would do what ever I could to take care of her.  It's the least I can do.  Many years ago she made a huge sacrifice by leaving her entire family and flying the island to make sure I had a better life and a future.  Today, I do. 

    It gives me great peace to be able to take care of her needs.  It hasn't been easy to convince dad to let me help him but he finally agreed.  This is my true Christmas gift to them and to myself. 

    Thank you all for your prayers.  God has listened and is giving our family one last Christmas together.  We are really blessed.

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2007

    I just wanted to check in, I will post later.....I have so much to do....

    Love to you and yours

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    OH-To my dearest sisters,

    Have a BLESSED and HEALTHY holiday and a most WONDERFUL New Year! 

    I love you all so very much. 

    PS-I just mailed Christmas cards today.....blush......

    My Secret Sister-I mailed your gift Saturday.  Did you get it yet?  blush again.....procrastinator!  

    Love and prayers, Deb

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2007

    I'm in the same boat Deb.....I just got to busy with everything. Grand kids add up to a lot of thought these days....Age is a factor....

    I'm a very bad secret santa Cry

    Merry Christmas

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    I love you ladies!  Hope your day is full of fun and blessings. 

    Love and prayers, Deb

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2007

    My grandson Sebastian, wow how much difference a year makes...

    Photobucket

  • Odalys
    Odalys Member Posts: 2,103
    edited December 2007

    Hi ladies.  I hope everyone had a good Christmas in the company of family and friends.  I must admit, I never really felt much of the Christmas spirit this year.  However, we had a very nice and fun filled Christmas eve and Christmas day.  Mom is stable and she seemed so happy to have us with her.  I think the real miracle was in the fact that my smaller brother and middle sister didn't get into a fight.  They usually find something to fight about.   And, when they can't they start stories about how I (the first born) am the favorite of the family.  Ah, sibblings.   Smile

    MaryLou - Sebastian is so cute.  Wow, I can't believe it's been a year already.  It seems you were just telling us about his birth.  Glad to see you enjoy being a grandma.

    Okay ladies, I've been thinking about our trip.  I'm going to see what kind of discounts I can get for us.  The parks usually offers discounts for FL residents.  I have to warn you though, the summer is the worst time to go to Disney because of the heat.  We went one year in August and thought we would die of a heat stroke.  That was before bc treatments.  No way I could do that now. 

    Okay, I better get to bed.  I have to go to work tomorrow.  Now, the count down begins to next holiday.

    Love and hugs,

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