November rad girls check in here!!

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  • 2dogsnburg
    2dogsnburg Member Posts: 79
    edited December 2007

    Clessie,10 more wa hoooooo!!!

    Steffi,10 more yipp peeee!!!!!

    Pam, 15 down yeaaaa!!!!! 

    Pat yourself on your back, this has not been an easy ride.You are all strong wonderful women. 

    I Hope you all do  something nice for yourself you deserve it!

    I have 8 more ,I can't believe this is almost over!What a good day I actually slept last night.

    Have a wonderful glowing day ladies.

       Good Hopes and Warm Hugs,

                Terry

  • LisaKJ
    LisaKJ Member Posts: 27
    edited December 2007

    Hi labhusky, I don't know how other hospitals do the markings for the boosts, but mine are just drawn on.  It's a rectangle about 3 inches by 4 inches with a cross running through it, the intersection of the cross right in the middle of my scar.  The scar runs diagonally through the rectangle.  Wish I could draw it--it'd be so much easier!

    Well, after my panic yesterday about losing half the markings through peeling, the technicians said there was still enough there for them to connect the dots.  They told me not to worry--they'd just re-draw it every day.  The boost was great--only one zap and I was out.  The techs told me, though, that these boosts are more superficial, which means that the skin can become more damaged than with the first 25 doses.  Oh well, I'll just keep on slathering on the aloe and using these bandages they give me.  They're made of foam and are sticky on one side, but they're very easy to take off, and when you take them off, they only remove dead skin, not anything that's scabbed. 

    To all those tamoxifen takers:  I'm on week 6 of tamoxifen, and so far I've had no hot flashes or anything, but I think I've had every other phantom side effect you can imagine.  I've got a cold, and I keep fretting that the congestion in my chest is tamoxifen-related.  Leg cramps?  Must be the tamoxifen! (The doc said it's a lack of magnesium and not a blood clot).  Anyhow, I fret and I fret and wish I could stop.  I'm a bit like Woody Allen who wrote about finding a blood spot on his pillow one morning and swore he had a brain tumor.  I keep my doctor entertained, at least!

    Connie, I'm originally an Illinois girl from the northwest suburbs.  I'll bet the Christmas decorations are out and things are starting to look gorgeous. 

    Steffi, greetings from Belgium, and I hope your last 10 go by quickly!  How's the German coming along?

    Lisa

  • dink
    dink Member Posts: 240
    edited December 2007

    Hey you all,

    Today will be treatment 16 out of 25 - almost through. 

    I have had moments of "rad rage" especially when one of my employees returned from being off six weeks from elective surgery and she looked at me and asked, "What's wrong with you, you're not smiling at this minute as usual, do you need an energy drink?"  I had just come back from my radiation treament and I smarted off and said, "No I don't need an energy drink, I have been radiafid."  I had to apologize to her because I was the one having a "heat stroke" after the treatment and I was turning red all over and breaking out in a sweat and it wasn't her fault.  But as she said, "You just had a radiation treatment you should be fine."  Some times I don't know if the symptoms are really real or just an excuse to be irritable at times and lash out.  My boss says, "you have handled all of this so well, you're our hero."  I'm not a hero, I love my job, I love my children and my grandkids and I feel that I have to be there 100% weather or not I want to. 

    The one thing that helps me get through all of this is God - he's my "right hand man."  Without God, this would not be easy - At times I'm tired, I have irritation under my breast but I don't have a "Jokey strap" to hold it up - I have large breasts.  I did break down the other day for the first time through this whole thing but then I said a little prayer and turned everything back over to God and turned it loose.

    I went shopping for Christmas and over spent but I'm happy and I can always work extra after this is over.

    How are the husbands responding to this.  My husband, I think is in denial.  "as the doctor's say this is not cancer only a precursor to cancer."  He doesn't want me to start the Tamoxifen or any drugs.  His mom died last year of lung cancer and she didn' do well due to all the side effects.  My daughter at age 21 is having the same thoughts as my husband.  At times I believe he is afraid to touch me because I might break - I think this is the worst of my whole ordeal (my husband not being consoling or affectionate.)

    Sorry, got carried away.

  • labhusky
    labhusky Member Posts: 177
    edited December 2007

    Hi all,

    7th treatment today.  I still look good.  The nurse says it takes 3 weeks for the skin to start acting up.  Of course, I shouldnt be looking for "trouble" either, just roll with the punches. 

    PSK:  Now, that was a wonderful post from you about your gift box and having dinner made for you.  That makes me feel good!!! 

    Dink:  I dont think I would have taken it too well if an employee would insinuate that I needed an energy drink, and that wouldnt be from rads either.  Call me type A!!!  If and when I get there, it should be interesting.  Hang in there, things WILL get better!!!  Sometimes, I feel down and yucky but not today so Im going with it.  I find that if I start feeling down and turn it around right away that it will hit worse later on so I just roll with it as it comes.  I have learned that through this process and I guess its a good thing.

  • PSK07
    PSK07 Member Posts: 781
    edited December 2007

    dink- I would have smacked anyone who said something like that to me.

    My husband is taking this....okay. He will avoid the issue by keeping busy. Since I don't have any real outward signs of being sick (just rads, you know Wink) he has difficulty with my exhaustion being more than my usual working mom/type A exhaustion. That comes out when he wants me to do the usual errands and cleaning/sorting and financial things and I'm too tired to do so. He went to all of my medical appts, so he knows this is cancer. Pre-invasive, but cancer nonetheless.

    My daughters have different ways of dealing with it. The older one will talk, discuss, shows interest in the treatments and so one. My younger would be happy if it just went away.

    The medical therapist at the rad office says she'll meet with us as a family before the treatment is over. We'll see.

    Ha. I pulled the cancer card this morning at work for the first time. This big thing I do each quarter had some stupid, but not critical, errors in it and in explaining it I blamed the rads for frying my brain. My focus is not there. I've stopped multi-tasking for the duration.

    I hope everyone has a good day.

  • dink
    dink Member Posts: 240
    edited December 2007

    Thanks guys for the encouragement.  I just got back from treatment #16.  It was a little unusual.  I feel like a cow on display sometimes - you know being looked at, measured, and discussions like you're not there.  I had some irritation to the skin under my breast so they put this piece of tape across the breast, across my arm and taped it above my arm on my mold thing.  After she taped my up, the tech said, "Oh the boys have to come and check it out and measure."  I cringed at the thought, like I told my husband, "I don't give out free laughs." Ha! HA!  I'm a little tired but ok. God has me in his hands so all is well. 

  • Clessie
    Clessie Member Posts: 210
    edited December 2007

    My nipple is coming off, really looks like it, today when I had my treatment the radioligist notice my nipple was peeeling badly, hadn`t even  noticed myself so must have happened during the nite, they went ahead and did the treatment and said they would do the last one tomorrow, thank God my poor little booby and nipple will have time to heal as I do my 8 boosts, Dr. will check out tomorrow and may order some different cream for it but as of now using my aquaphor, I thank God for  the rads team they have all been so kind and gentle.

  • sedosa
    sedosa Member Posts: 152
    edited December 2007

    Hi November Ladies!



    November is gone and we are on out way to being finished. Yipeee!!.



    Clessie, your poor booby and nipple, please pamper it. Ask the rad onc for silva sulph diazanine. It is a RX cream that they use for bad burns. I am glad you aren't irritated in the boost area. I pray that they go well.



    Dink you are increbible! I can't believe you didn't spit at that woman. May she never suffer what we have done. Go easy on yourself. Your body and soul has been through a lot. Yes God is with you and holds you up, but he doesn't expect super woman. The more we give to him, the more he will take. I have a lot of "rad rage" also.. but I think it is a general cancer rage that is just coming to the surface now. I have been holding it in since last December. Perhaps I can let it go because the end of rads is in sight or perhaps I have just reached the point where I am so sick of treatment that I can no longer hold in the anger. My colleagues have been sooooo kind, EVery week some one different brings me flowers. My house looks like a funeral parlor. My freezer is stuffed with food and they keep bringing more. I am sharing this with others who are too tired to cook. I think they are doing this because I have no husband and my kids don't live near. I am blessed. God provides.



    PSK07. Please do the treatment you feel comfortable with. It is your body. Cancer is cancer and we have to fight it with every thing we have. It is an insidious enemy which will attack us if we let down out defenses.



    labhusky, glad you are plugging along and not showing any effects... be sure to keep the cream coming because when it starts turning color you can't catch up. I love your attitude! I think you are fiesty, not type A.



    Lisa, glad you have your boost markers already and will soon be finished. I love Europe for Christmas... but it has been awhile since I have been there. I hope they aren't all commercialized like the USA. Sorry, but what German? I have forgotten nearly all of it since I left Germany in 1982. I teach Spanish and Understand French (murder the pronunciation), Italian and Portuguese. Are you in the part of Belgium that speaks Flemish?



    Lots of hugs to all. Keep on keeping on!

    Steffi

  • LisaKJ
    LisaKJ Member Posts: 27
    edited December 2007

    Hi Steffi, I just remembered in one posting way back that you said you'd pop in some German language tapes to keep yourself busy during the ride to rads.  I was just being the teacher and checking up on you.Smile  I live on the outskirts of Brussels in a Flemish-speaking area, but I just have to go a few miles down the road to reach the French-speaking area.  I used to live in Germany and taught basic German for a long time, so I'm pretty good at murdering Dutch.  Thank goodness the hospital staff speaks excellent English, though (which is always their first choice before French, but that's another story...).

    Hey, dink, my husband was definitely in denial in the beginning.   I remember about two weeks after surgery in September, he was talking about planning a 4-day, 15-mile-per-day hike with friends in October, just assuming I'd be okay.  I told him that I didn't think it would be a good idea, and then I got all huffy and teary and said something like, "I'm sorry my little ailment is affecting your social life."  It was the best thing I could have done, because it just opened the flood gates for the both of us.  I was able to discuss my fears and he admitted that he, too, was quite scared.  I only wish I had been more adult in my way of starting the conversation!

    Anyhow, he's pretty much okay now and wants to know all about the science behind rads and is fascinated with the markings, the scar and the layers skin flaking off.  Strangely, though, the rads dept in my hospital has open houses every now and then, where you can see the machinery and learn about radiotherapy, and when I asked if he'd like to go to one, he got really jumpy and said no.

      

    Hey Clessie, my nipple peeled a while back and it's just starting to look normal again (well, it looks freckled, where not all the skin has come off yet).  It itched like the dickens!  Just keep putting stuff on it.

    Only 6 more to go--yeah!

    Lisa

  • conniehar
    conniehar Member Posts: 954
    edited December 2007

    Hi girls -

    Pam - that was so sweet of your co-worker to give you that gift basket.  She probably didn't even realize how much it would make your day.

    Clessie - so sorry to hear about your burns.  I hope it clears up quickly.

    Lisa - well, we just got 6 inches of snow last night, so it is really feeling like Christmas in Chicago. I really don't like winter, but I do like a nice snowfall now and then.  I know my kids will be out on that sled hill as soon as they get home from school today.

    My husband is kind of in denial land also.  He was right there for everything in the beginning even though he was sure "I would be just fine."  After awhile after seeing that I was doing very well with everything, he kind of went back to his own little world.  I am a strong woman and not one to complain and truly I do feel really good, so I guess it's fine.  I don't share with him though the things I read on this site though.  He is still of the belief that no one really dies from this anymore unless they just let it go too long before being treated.  Unfortunately, I have found that not to be true.

    12 rads down and 18 more to go.  So far, I have had no side effects whatsoever.  I'm not even a bit pink.  I wonder if it's still coming or if I will skate through this part.  I keep piling on the cream.

    Enjoy the day everyone!

  • dink
    dink Member Posts: 240
    edited December 2007

    Hi guys

    Yesterday was a real bumber for me but things are much better today.  I forgot the day of the week, I forgot my daughter's phone number and I forgot which way I was going to take my granddaughter to gymnastics - after a few minutes all was well. 

    You know things happen for a reason and last night I was really down so I got a glass of wine and laid down. My husband's best friend called and I didn't want to talk but I did.   I haven't laughed that much in a while and my husband walked in and asked what was so funny and I told him, 'Robbie and I are having phone cooking lessons."  We were discussing cooking a roast.  My husband, Donnie, and Robbie have been friends since 5th grade and they are still best friends and they are 48 years old.  Robbie's wife was on her cell phone and didn't have time to help him.  Before I knew it all four of us were on the phone together and it was like we were having a party. 

    I came to work today and was talking to my boss and she suggested for Donnie and I to take a day trip to Fredricksburg - a small German town in Texas - and spend the day.  Reluctantly, I called Donnie (I just knew he would say no and I would be disappointed.)  and asked him to take off work and go with me and he said, "Sounds great to me."  I nearly passed out and now I'm like a high school teenage because we are sneaking off for the day to be together which we haven't done in a really long time. 

    I hope everyone is doing great today.  It's a great day to smile.  I wish I could travel to see places like Europe or Germany but I can't so my Aunt who travels sends me lots of pictures and so many of them make you feel like your actually there. 

    My boob is still sore, red underneath, and all marked up from the markings but all is well. 

    On another note - I know that many of you are Christians and pray.  I have a request for a little baby named Maggie.  She is 5 months old and is currently being tested for a liver tumor.  Her lab tests are extremely elevated but the CT doesn't show the tumor as of yet.  This baby and her family need lots of prayers.  They are Christian people but are questioning why this is happening.  Please remember them when you have your prayer time.

    Have a great day.

  • garnetann
    garnetann Member Posts: 158
    edited December 2007

    Hi all

    I have only 9 to go, and so far no SE except the pink and a little itchy boob. My doc said to continue using the sween cream and to put on 1% hydrocortozone cream sparingly where it itches.  He said spareingly because some people can have bad side effects from the cortozine because it is a steroid. 

    I am worrying about the weather, what if I miss several days due to the weather?  I live in Iowa and we are getting hit regularly with ice and snow through next week. 

  • Clessie
    Clessie Member Posts: 210
    edited December 2007

    I got the silva cream today for my burns so should start healing soon, start boost tomorrow so effected areas aren`t going to be radiated, just hope I can thru the last 8 with no more burning.

    My booby sure has taken a beating but we`re on the road out.

  • PSK07
    PSK07 Member Posts: 781
    edited December 2007

    dink - I hear you on the forgetting. I'm not even reading at the moment because the plots are making no sense whatsoever. My mind is toast. If it isn't on a list, it isn't going to happen.

    The boob has gone from pale pink to dark pink despite many aloe applications. I have an appointment on Monday for boost simulation. Halfway to the finish line.  No peeling yet.  I was fine til tx #14, then I could really see a color change.

    Filled out the paperwork for leave of absence today.  My last day til January 7 will be Friday. I realized today that I'd done exactly what I swore I wouldn't do - the job came first.  That can't continue, so LOA it is. So I get an IM from my husband - he's happy the paperwork is in, but didn't want to say anything to pressure me in that direction because he didn't want to be like my mom.  Arrrgh!  I he has the right to push, my mom doesn't.  We'll be talking tonight. 

    I can see a light at the end of the (work) tunnel.  take care, all.

  • sedosa
    sedosa Member Posts: 152
    edited December 2007

    Psk,

    Glad you are taking the leave of absence. It is hard to admit we need to do so. I am so glad I have taken the time off. I worked the first three and a half weeks of rads. The stress of work plus the stress of rads were doing a job on me and it took me a while to realize it. Now all I have the stress of rads. Two more regulars to go and then six boosts.

    Has anyone got a black armpit? It is strange most of the treasment area is pink or biright red and peeling in the burn areas which I have under my arm also. But there is a large area under my arm that is black. It is the darkest tan I have ever had. It doesn't hurt at all. Just wondering why it is black.



    Lots of hugs to all. Hang in there

    Steffi

  • kiwikan
    kiwikan Member Posts: 75
    edited December 2007

    The support group at the hospital had a luncheon gathering today.  Had a great salad buffet.  I needed that as I don't think i've had much in the way of "leafy greens" in a while.  There weren't many women in attendance, but it was delightful.  The facilitator is the oncology social worker.  The hospital has also recently hired a breast health coordinator and oncology navigator.  I've read recently that many hospitals and clinics are employing this approach.  Unfortunately, this woman is going to be kept very (too) busy. 

    I'm curious to know if others of you go to a breast cancer support group.  Or, some other type?

    Had #18 this morning.  Are we having fun yet?      

    I'm sending love and light to all of you.  Ruth 

  • sedosa
    sedosa Member Posts: 152
    edited December 2007

    Hi Ruth,

    Glad your treatments are going well. Tomorrow is my last regular treatment and I begin boosts on Monday. I have attended the "cancer support group" sponsored by out hospital. It is all women and facilitated by the hospital social worker. I haven't found it much help. There are a couple of women there who talk the entire two hours. One is on her second round of ovarian cancer and the other had breast cancer seven years ago. Mostly they talk about cancer camp, cancer relays, and people I have never heard of. I don't think I am returning. I get much more love and support on these boards and in the chat room.

    Steffi

  • Clessie
    Clessie Member Posts: 210
    edited December 2007

    We have a support group at my cancer center and so far have not gone as its difficult to get away from my handicap husband, am going to try and go after treatments as I don`t have much home support and this may help some, it is tough when you have one or two running the show Steffi so understand your not going back.

    One boost down 7 to go and I`m done..........Yipeeeee

  • PSK07
    PSK07 Member Posts: 781
    edited December 2007

    Ruth, I'm on #18, too. Fun. Who knows fun?

    Dr day. Met with rad onc and one of the nurses.  He'd gotten the leave paperwork so we filled it out together.  What a riot. The questions they ask..my weight & height.  We were going to make up a good number, but thought better of it. What are my symptoms? Hmmm. falls asleep at her desk, sleeps 12 hours a day...

    Got a tube of aquaphor to use at night on the rough spots under my arm. They told me to cop an attitude w/hand on hip and it would help.

    There is a support group, but I've not gone.  I am making use of the therapist the cancer institute provides. That has helped immeasurably.

    Off to bed. Last day at work tomorrow, then it's glorious sleep for 4 weeks!  take care, all.

  • LisaKJ
    LisaKJ Member Posts: 27
    edited December 2007

    Four more boosts to go!  Hurray! 

    I thought that I was getting my energy back, but I've got a cold now and I'm practically falling asleep at the computer.  My tired body doesn't know what to fight anymore. 

    Steffi, my armpit has been Malibu Barbie brown for the last month.  Actually, it's not even a nice color brown anymore--it looks more like dried, crackly leather.  Yuck.  The rest of me is many shades of pink and red.  I'm losing my skin in sheets now, but the skin underneath is healthy-looking and less pink than the previous layer. 

    Dink, I'm so glad you got a chance to get away with friends.  I had a girls evening last week and it did me a world of good.  It makes life feel like "normal", doesn't it?

    Hey, Connie, enjoy the snow.  I talked with my mom in Vernon Hills and she said it was just gorgeous.  If I were there, I'd go out and make a snow angel (but probably do it face down to cool off a bit!).

    Garnetann, I would imagine that if you couldn't make it to the hospital because of the weather that they'd just cancel you that day and tack another day on at the end.  My machine was down a couple of weeks ago, and they called and told me to stay home.  I think what's most important is that you get the correct number of sessions and whether it happens within 6, 6 1/2, or 7 weeks isn't too big a deal.

    Have a restful weekend, everyone!

    Lisa

  • burquie
    burquie Member Posts: 129
    edited December 2007

    I'm Done!!! (dancing the happy dance!) Had my last rad this morning, and thank God! I don't think the burn in my armpit could have taken anymore. They gave me some stuff to put on it; also took a culture, just to  make sure no infection is setting in.

    So now I feel like "okay, I'm done with treatments, now what??" I'm sure some you have that feeling of sooooo glad to be done, yet, a little nervous on actually being done?!

     I will continue to come to these boards, you are my sisters after all!

    hope you are all feeling well!

    I'm off to get ready for Christmas, and to live the "new normal"!

    Peace of the Season to you All!!

  • BrendaK
    BrendaK Member Posts: 55
    edited December 2007

    Hi Ladies,

    Bonnie, that is great news (it brought tears to my eyes), I am so excited for you. 

    Lisa, you are almost there.   Yeh!  Hang in there. 

    I have 9 down and 24 to go.  All is well for the moment.

    Hugs, thoughts and prayers to everyone. 

    Brenda

  • kiwikan
    kiwikan Member Posts: 75
    edited December 2007

    It is Friday and #19 is checked off.  It seems like an eternity ago that it was #1.  Bonnie - well wishes to you and delighted to hear you're done.  Take a deep breath.  Let us all!  Ruth

  • 2dogsnburg
    2dogsnburg Member Posts: 79
    edited December 2007

    Bonnie, Hear the noise makers, the bells ringing, see the balloons and the confetti!!!So happy for you!

    Go live your life and have the Merriest Christmas ever! 

      Good Hopes,

         Terry
     

  • garnetann
    garnetann Member Posts: 158
    edited December 2007

    HI all

    Sounds like we are all getting close.  I have 2 more regulars and then 5 boosters. So far, I have not missed any. We had a big snowstorm yesterday, I missed it going up and the roads were clear by today.  We are supposed to get more snow this weekend, but so far, next week sounds good. I have a big red square on my chest, but no open sores or peeling at all. They said I am doing quite well. I think it is my radiation coctail of the aloe, sween cream and aquaphor.  Somewhere, something in there is working.  It does itch a bit, but I use a little 1% hydrocortozine cream on the spot.  My doc said to go easy on that stuff because it is a steroid and long term heavy use is bad.  I did not know that. 

    I am still seeing a little confetti trickling down this board. Laughing

    I am so excited to see people finishing this long trip.  I hope and pray that each and everyone here never has to face this again!

    I finished the first half of my german language cds.  I now know how to greet someone and ask for directions.  I need to find the CD that tells me how to order a drink though. Wink

    7 more, I can do this.

  • sedosa
    sedosa Member Posts: 152
    edited December 2007

    See Steffi with hands raised above head doing the happy dance for Brenda and all of you who are nearing the end of treatment!! I only have my six boosts left. Am I glad or what??? Once you are starting the downhill count it does seem to go much faster,Ruth. Hang in there!

    Steffi

  • LisaKJ
    LisaKJ Member Posts: 27
    edited December 2007

    Yay, Brenda!  I'm joining Steffi in the happy dance--so glad for you. 

    Garnetann, YOU'RE the one doing the German tapes, not Steffi (sorry about that--blame it on the rads?).  "Ein Bier, bitte" should get you a nice beer anywhere, but when you've finished the rads, you might want something a little classier to celebrate, like "ein Glas Sekt" (a glass of champagne). 

    I keep thinking if I'll do anything fun and different next Wednesday (my last day).  I'm making a batch of chocolate chip cookies for my rads team here.  That might not sound like a big deal, but Belgians aren't into cookie baking (they just go for the gooey, chocolatey cakes and things that come from the pastry shop), so homemade cookies will be a nice treat.  Okay, not so healthy, but I'll try to use organic ingredients!!

  • 2dogsnburg
    2dogsnburg Member Posts: 79
    edited December 2007

    Home made cookies are great any where any time!!

    I'm sure your rads team will love it.

    Yummm!! 

  • Clessie
    Clessie Member Posts: 210
    edited December 2007

    Hey we are all nearing the end and ready to face our life cancer free although this will be a part of us for life, but we have met new friends gained a lot of insight and willing to help a new person who is scared and confused about their dx, we`ve come a long way baby.

    I had a pleasent surprise when I got home yesterday from tretment, there was a BIG package for ME at the door, it was from Dave Darvicky Outreach of Hope, had a DVD in it clled Journey of Hope and 4 books 2 of which Dave and his wife wrote, one was a book called cancer and has scriptures of hope in it, something I will treasure cause someone thought of me in my down time.

    Dave Darvicky was a baseball player for the Giants and had cancer in his arm, Drs. told him he would never pitch again but went back to pitch one season than broke that arm which ended his career, not being a baseball fan had never heard of him.

    These boosts are a breeze and the burns I have are now are healing as the boosts are not touching it, 6 more to go.

  • PSK07
    PSK07 Member Posts: 781
    edited December 2007

    Woo Hoo Bonnie!  Doin' the happy dance for you. 

    Clessie - isn't it great to get something out of the blue like that?  Knowing that someone is thinking of you is a treasure.

    Like Ruth, I'm 19 down. Yesterday was my last day at work until January.  It was bittersweet...I brought in my espresso machine and a pannetone bread to share.  Getting the support of my co-workers has been so important in making it through treatments and deciding to go on a leave. 

    I laid it all out - I'm on leave, I won't be working, I won't be cleaning house, going through things in the junk room, fixing meals. This is rest and recovery time.  Making my needs clear is something I am sooo not used to doing.

    Made it to rads. When I got home, hubby made dinner reservations late enough for me to have a 2 hour nap. Heaven! 

    Getting all my Christmas shopping done today w/help from DH.
    Have a great day everyone!

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