Triple Negative? Recurrence? What was your original treatment?

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  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited December 2007

    Has anyone been newly diagnosed with a recurrence?  What are your treatment choices now?  How was your recurrence discovered?

    Sadie

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  • tos
    tos Member Posts: 376
    edited December 2007

    Hi Sadie, I was diagnosed for the second time with a new primary on the other side Feb. 07.  I had a double mast. and 6 treatments of Taxotere.  This new primary was discovered on a mammogram.

    First time dx in 12/02, had lumpectomy, AC&T, rads so my new primary "arrived" 4 1/2 yrs later.

    Also I am BRCA 1 positive,

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  • ClaraIsabel
    ClaraIsabel Member Posts: 12
    edited December 2007

    It was very interesting to me to read all your comments. As far as I know I was triple negative in 2003 and ever since then I am taking Aromasin. Do any of you take an AI or any other drug?

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  • kris2386
    kris2386 Member Posts: 56
    edited December 2007

    My mom was originally dx 5/01 with triple negative, she had lumpectomy and radiation.  She took tamoxifen for about 4 years and then was switched to aromasin.  She went for her follow up this past april and everything was ok.  She was switched to femara?  She has now been dx with mets to bone, liver and lung.  Now she is taking the aromasin again and having chemo (abraxane, gemzar), and zometa.  Any comments on her plan of care???  I thought the oral meds were only helpful for er/pr+ cancers???  My moms reoccurance was discovered when she went in for a cough she couldn't get rid of. 

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  • jdash
    jdash Member Posts: 754
    edited December 2007

    trip neg 10 yrs ago stage 1  lump and rads- stage 3 last yr

    not seen on mammo but on sono  4 AC 4 taxol  dbl mast and reconstruction  so far ned- i had chemo first then surgery total response to chemo  interesting topic  thanks

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  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited December 2007

    Hi Everyone,

    Galnok-Thank you for sharing your story. I wished you didn't have to have your second journey. How are you doing now? Sounds like you are finished with your current treatment. What do your doctors recommend for follow up?

    ClaraIsabel- I haven't taken any medications for cancer prevention after I finished my treatment; which included surgery, chemotherapy and radiation.

    Kris- I hear you are on this journey with your mother. How lucky she is to have you. How is she doing with this new treatment? Please keep us posted.

    Idash-Congratulations on being NED! Do you have follow up treatment that you have to do? How often do you go in for rechecks and screenings?     WinkCute pupppy!

    Thank you all,

    Sadie

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  • tos
    tos Member Posts: 376
    edited December 2007

    Hi Sadie, yes I finished my Taxotere in September and am doing pretty good, a little neuropathy and low energy but I know things will improve with time.  I will have my first 3 month check-up in January.

    I've had triple neg bc twice and have never been offered a prevention medicine after chemo/rads either.  I didn't think

    they were given to Triple Negs but I sure wish they would come

    up with a targeted treatment for us, soon I hope!

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  • jdash
    jdash Member Posts: 754
    edited December 2007

    no drugs for me to take   i was triple negative

    i go to my oncologist now every 6 months  due in jan

    just saw my ps

    they dont believe in doing scans unless you have symptoms for more than 2 weeks or more so i dont do any scans    first wasnt happy about that but now i am ok with it

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  • Babyface
    Babyface Member Posts: 91
    edited December 2007

    Clara...I'm a little confused, you indicated you were trip neg. , but then said you have been on Aromasin , which  as far as I knew was given for hormone + bc's usually after a course of Taxotere(altho now sometimes instead of, but still for + 's not - bc's). Is your Dr. trying something different, or are u sure you're neg?

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  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited December 2007

    0

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