At the end of the road
The story so far.....
My mother became aware there was something wrong when her nipple on her right breast became inverted. She went to her doctor who got her an appointment to go to the hospital for a mamogram for the 12th April where they also performed a lumpectomy. My mother wasn't prepared for the lumpectomy and it came as quite a shock to her. She was extremely sore and very bruised from it.
We had to wait a week before we got the results 19th April, the surgeon told her she has breast cancer. And began to discuss her treatment options, the surgeon recommend a mastectomy. She asked when she would like it done and was told whenever she would like so she opted for to get it done as quickly as possible. My mother went into hospital on 24th and had the operation.
My sister in law happened to work with the surgeon who was going to be operating on my mother which in a way was good as we were getting information back very quickly. My mother started her chemotherapy June 13th and finished on November 7th. She started Radiotherapy on November 24th and she will be having 15 sessions of that.
She will also be starting hormonal therapy for five years, she was asked if she would like to be in a trial. So she is considering her options at the moment. She won't be starting that until the new year.
Story so far of treatments:
Breast Cancer Stage II Invasive Carcinoma
Right breast removed along with all glands
Chemo 4 rounds of Adriamycin
4 rounds of Taxotere
Radiotherapy x 15
Side effects experienced:
Adriamycin - hairloss, fatigue
Taxotere - fatigue,nail loss, severe aches & pains, awful taste in
her mouth
Radiotherapy - Aches & Pains in her joints, swelling of her legs
I am the youngest of 5 two sisters and two brothers all of whom are married including myself. We live close by to our parents so we cooked the dinner did the housework etc during my mothers illness. It has been hard emotionally for us all. But i feel most for my dad, I am from Ireland so my dads generation never show emotions or affection much. Would never give out or get angry, he is a pure gentleman. But the irish men bottle everything up and don't talk about things. He lost two close friends this year to cancer, i know that has affected him. But my mother has been really difficult to be around the past few weeks, no matter what anyone says or does we are wrong, the way she speaks down to people. But my dad is bearing the brunt of it and i don't think he can hack much more of her attitude. What can i do to make her see that the way she isacting, is pushing and hurting the people who care for her most. I actually nearly walked away and left her at the hospital today. I am disgusted to see what she is doing to my dad, i know it is a rough road she has been on and will be on for the rest of her life. I know her treatment is nearly over and the end of the line is in sight but our family is at breaking point what can i do or we do??? I am so fedup with everything it is really getting me down. If you have been through something similar please help me, tell how you got through it i need some inspiration to get me through the next few weeks and also to help my dad.
Thanks
C x x
Comments
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I can only tell you about my experience when my father was dying. He was diagnosed w/lung cancer. Had surgery and lived for about 7 years after that until mets to brain & bones. He was always a kind of angry person and very critical. When he got sick, it got even worse. He snapped at everyone, and accused my mother of trying to kill him. What I said to myself at the time helped me to continue to see him and care about him and that was, That this is not my father, it is the cancer eating at him. It is in his brain and he can't help it. My dad was German, not Irish. But I sometimes think that what we may not like about someone ends up being worse when that person gets sick.
I thought the docs were not doing justice for him, so I fought to get him better care. My mom was scared and paralyzed by his anger. He would order her to leave the hospital room and not come back. I kept telling my mom that this wasn't true what he was telling her, and that it was the cancer and pain causing him to act out.
You are in a very difficult place right now, and I am so sorry you are having to experience this. Can you try to share the burden of being at the hospital w/your brothers and sisters? Or are you already doing that? Sometimes it helps to get away from the situation. I don't know how people in Ireland feel about talking to a family therapist. I found that I could understand more about what was going on by talking to a therapist. It helped me stay strong and not see my father as a nasty person.
My father-in-law became ill at the same time with ALS. So, my husband and I also drove 500 miles every month, and stayed with him for a week or two at a time. We had to convince him that he needed a caregiver to stay with him, and that he could not live alone. He also became very angry. He was Irish and it was very hard for him to show his emotions. He kept alot bottled up inside. His wife (husband's stepmother) died right after he was diagnosed. He had a hard time talking about her, and when he did he would start to cry. then he would stop right away and was embarrassed by his emotions.
I believe that both of these men were actually angry at their bodies for betraying them. That is because I often feel that also, since I was diagnosed with bc in 2004. I know that my dad and f-in-law were very independent men, very stern, and my f-in-law sounds very much like your dad.
He was always very dignifed and a gentleman.
I hope this helps you. Again, I am so sorry you are going through this. Hopefully, you are blessed to have so many siblings to share this burden.
I hope your mother recovers and I'm sure she will feel badly about her anger during this time.
grace -
So sorry you are going through this. The manipulation of hormones alone has made women go "batty".
Being sensitive and aware of the families dynamics seems to place a burden in your heart. You can't change these different emotions, just the way you respond to them. I had problems with my sister when my mom was dying. She (My Sis) was critical of my every move, every conversation. It was obvious she was angry and frustrated. I was her whipping boy. Finally after one of her cruel remarks, I turned to her, hugged her, and said, "It doesn't matter what you say to me, or how you treat me. I am still going to love you. So save that energy...It makes you sound silly. And I will always love you." The room was ful of mom's friends and family..My sis must have gotten over it.. I still love her. -
Maybe I misread the original post, but it didn't read to me like this is a stage IV cancer patient who is hospitalized.
Perhaps your mother is being hostile because she feels like crap. Maybe she has a problem with how your dad is handling it and it makes her feel less than supported or cared for. She not only feels physically horrible, but I am sure she has lots of fear as well.
Your mom has had a lot of change foisted upon her by this rotten disease. I hope you won't find my advice to you insensitive, but perhaps you could be thankful that the "end in sight" that you are talking about is an end to her TREATMENTS, not the end of her LIFE. It can get much worse than having a hostile, but ambulatory and non-metastatic mom to deal with.
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I am also stage 2 and had lumpectomy, chemo and radiation treatments now AI. These treatments cause numerous side effects physically, mentally, emotionally and psycologically. Our body, mind and spirit has been attacked by this disease and then punished by the tough treatments. Be patient with her but do NOT expect her to ever be the same person she was before cancer. None of us will ever be the same after going through this live changing negative experience. I wish I had better words of wisdom to offer you.
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Hi dear family member, sometimes, like children, when we are scared silly, we act horrible to see who will stick around, who really loves us. Sit down with your mom, have a heart to heart, and ask her why she is so angry. Help her with this, or get her a counselor. She may think she is dying and no one cares. Communication is so important, and it often gets lost in the treatment shuffle, and cancer treatment takes so long, she may have the impression she is dying, and she sounds like she isn't. She needs a long heart to heart with you, and then with the onc and you, then at least one or two sessions a week with a therapist who specializes in long, drawn out illnesses.
I hear a great lack of communication. She may have thought she heard she was doomed, no one said anything different, so many ugly scenarios. So try to get to the bottom of this.
Gentle hugs, Shirlann
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