How often do you see your oncologists?

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Fitztwins
Fitztwins Member Posts: 7,969

I am still on the 3 month  plan, he said that he will move me to every 4 months next time. It has been 3 years.

Just wondering. I should be greatful he is keeping an extra eye out for me. But I kinda wish I was on the 6 month plan.

Comments

  • Bugs
    Bugs Member Posts: 1,719
    edited November 2007

    My onc said that 2 years after end of tx I will switch to 4 months.  He actually offered that up at my last visit and I turned him down.  Told him I needed to see my blood results every 3 months still. I know going one month longer won't make a difference if something showed up...but my psych isn't ready for the additional month.  As it is, my next 3 month is in 2 weeks and I am getting canceritis this week.

    Bugs

  • Calico
    Calico Member Posts: 1,108
    edited November 2007

    Janis,

    nice avatar picture :)

    I "graduated" to every 4 months this time after 2 years post dx.

    I still get a PET for that darn lung nodule, even though it's followed for 2 yrs or less....normally....

    He says it makes me feel better....wonder if he is the one that's concerned.

    Bugs,

    I have canceritis all the time Tongue out

    Good luck with your check up!

    God Bless

  • saluki
    saluki Member Posts: 2,287
    edited November 2007

    Five year anniversary coming up next month.  Still go every six months to Oncologist---bloodwork every three because of elevated liver enzymes---(normal for me apparently--but still freaks me out with every lab).

    Breast surgeon--as of next visit will be graduating from twice to once a year.-----Rather not be on the yearly plan with the surgeon.  I don't feel confident with all that scar tissue to examine my own breasts. 

  • caaclark
    caaclark Member Posts: 936
    edited November 2007

    2 year anniversary coming up in Jan.  I will see my onc. in Dec. and then she will change me from every 3 months to every 4.  I also see the rad onc. every 3 to 4 months.  I don't actually need to see him medically but psychologically I do.  I no longer see a breast surgeon but only because she has a bad bedside manner (translation: excellent surgeon but a mean person).  If I have any other breast issues I will see someone else.  Oh, and none of my docs do a scan unless there are symptoms of something.  Not sure how I feel about that.

  • snowyday
    snowyday Member Posts: 1,478
    edited November 2007

    I'm going for my follow up on Dec.6, but I called to change the time because my surgeon booked me with a gasterinterologist on the same day but one hour earlier.  When I called to change the time they said that I had to see her that morning right after my other appointment and worst part is they are at two different hospitals across town from each other. I just don't see why they wouldn't book me another day it has me paranoid now. Oh well it's my bd and I'm supposed to be in a good mood but that sort of ruined it. I just can't wait until I can take an appointment without thinking the worst all the time.

  • StefS
    StefS Member Posts: 157
    edited November 2007

    After reading all of your comments, I don't know if I should be happy or concerned. Both of my onc's graduated me from 3 months to 6 months in the first year. (I think that was the timing, don't expect my memory to be spot on.) I haven't seen a breast surgeon since mine moved a few months after my surgery. I saw my rads onc in August and she's now moved me to yearly. I am still seeing my onc every 6 months. I just passed the four year mark.

  • yellowfarmhouse
    yellowfarmhouse Member Posts: 279
    edited November 2007

    HI friends,

    I basically insisted on every six months as I get so nerved out!  And because they don't do any tests or blood work anyway.  They reluctantly agreed.  It's worked out well for me -- it seems like I've had to go in to see the onc. inbetween anyway though to check a lump I had found ( B9) and to do some stuff to qualify for a clinical trial.  I'm almost 3 years out. 

    Wendy

  • kimf
    kimf Member Posts: 334
    edited November 2007

    Hey Janis, nice picture! I guess I should be nervous, too...we had the same dx around the same time and I was switched to 6 months the last appt I had, six months ago. I go on Tues. for my first 6 mo checkup. We tried to convince my Onc that every 3 months was just fine for us, but she turned us down and told us to start "living". No scans, bloodwork, nada. I'm a wreck waiting, but happy to not have to go to New York as frequently. Take the every 4 mos and run with it, I say!

    Best,

    Kim

  • jpsgirl96
    jpsgirl96 Member Posts: 240
    edited November 2007

    Hi Janis,

    I was dx early January 2006, finished treatment September 2006.  I see my onocologist every three months.  I am one of those weird borderline Stage IIIa-er's (ILC, mass was not large, but 6/16 positive nodes AND I had DCIS with a micro invasion of IDC in the opposite breast), er/pr positive.  Switched from Tamoxifen to Femara once I had been 6 or 7 months out of treatment and clearly in menopause.  We don't do tests or scans other than for general health (blood pressure, blood glucose, etc) but that means she wants to have a look and talk pretty regularly.  MIGHT get to a 6 month interval with her soon.  I'm now on annual with the radiation onc, and 6 months with the breast surgeon (mammograms every 6, MRI annually since that's what found the ILC)...Leigh 

  • wallan
    wallan Member Posts: 1,275
    edited November 2007

    I go every 6 months. I started that after 2 year mark.

    I am not sure how I feel about it.

    I kinda like it when I take the day off work to go. I have to go to another city for my follow-up that is about an hours drive. So I take the day off, go see the doc and relieve the stress of it all with a little retail therapy in a bigger city.

    It would be nice to do this every 3 months instead of 6. But on the other hand, not seeing the doctor so often helps my mood and confidence too. Every time I go to the oncologist, I am anxious for days before and its so depressing to walk into that building that says "cancer centre" on it. Ugh....

    Wendy A

  • rosieS
    rosieS Member Posts: 83
    edited November 2007

    Hi Janis and everyone,

    I have not been on too much lately.  I have a new job that takes up a lot of my time and I still take a graduate class and of course, there's my family.  Anyway, I just passed 3 years too.  I have been going every six months for my bloodwork and checkup for the past year.  However, I get to visit the onc's office every 28 days for my lupron shot, so I can never "forget" about my cancer.  I am happy to get tumor markers taken only every six months. 

    Rosie 

  • Patrish
    Patrish Member Posts: 251
    edited December 2007

    I am 2 yrs out from dx.  my onc wants to see me every 4 months and do tumor markers, but not routine scans.  my bs wants to see me every 6 months and do a yearly breast mri, then 6 months later, a yearly mammogram.  and I see my gyno once a year.  seems like alot to me, that is 6 check-ups/year.  I would like to get it down to 3-4 times/year.  Pat

  • Chelee
    Chelee Member Posts: 513
    edited December 2007

    I'm not quite at 2 yrs out yet.  So I see my onc every 3 months.  I only see my surgeon if my seroma is bothering me or I have another problem.  I have tumor markers, CBC ran every 3 months.  I also have brain MRI and a PET/CT scan every 6 months. After the two year mark I'm not sure what she will say?  Probably every 6 months I would think?

    Chelee

       Dx 12-05, Stage IIIA, Er & Pr pos, 5 of 16 pos nodes.
    Dx 12/20/2005, IDC, 3cm, Stage IIIa, Grade 3, 5/16 nodes, ER+/PR+, HER2+

  • karen1956
    karen1956 Member Posts: 6,503
    edited December 2007

    I'm still on a 3  month schedule. With onc it is every 3 months for 1st three years, then every 6 months years 4 and 5 then it goes to annual. BS sees me every 6 months and at 2 years says i can go to annual if I want. Rad onc does not see me since I see medical onc. Onc  does a physical, thorough question/answer and blood work up including tumor markers. He does not do scans unless I would ask for them or there would be a reason to.  I see onc on the 21st.  karen

  • cherbear
    cherbear Member Posts: 1
    edited December 2007

    I will be one year out at the end of December. I go and see my onc. every 3 months. I have to say he is great I saw him before my mastecomy because I wanted to know what my treatment was going to be and he was surprised because he says normally he doesn't see you until after the surgery but he gave me great information and when I go to my visits he is never in a hurry to go out the do plus we have to gossip about my rad onc doctor because we went to high school together.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    I go every 3 months this month is my 2 year anniversary I see her again next month so I will see if it changes .

  • jdash
    jdash Member Posts: 754
    edited January 2008

    i was dx april 06- i go every 6 months and am up for my 6 month check up on 1/14  ugh hate to go back there

    just do tumor markers  never scans anyone unless there is symptoms

  • harvey
    harvey Member Posts: 103
    edited January 2008

    Ladies, I'm inpressed with the level of care you are all getting.

    I was  dx early Jan 06 and finished treatment Nov 06.

    Origanly was to get two check ups and a mamogram every year. At end of treat ment that was changed to a mamogram ever 18 months - I had one mid June 07.

    Now after seeing the onc just before Christmas, I'm to get one check up a year, the sergeon one time the onc the next and will get a mamogram in December 2009or Jan 2010. No rush.

     This is more check up than I would have got if I never had cancer and yes they safed my live with surgery,chemo and rads  I should  be grateful.

    I did get a scan very fast - when brain mets were suspected, so better not complain.

    harvey

  • petelzmom
    petelzmom Member Posts: 170
    edited January 2008

    Good day everyone, boy you all have defined "follow up" for me. I finished my chemo 3/6/07 and rads 6/28/07. I saw my onc on Halloween and she didn't want to run any tests other than the bloodwork I had prior to her appt. My CEA was elevated and she just brushed it off. She did not listen to my concerns with any validity and mentioned insurance paying/not paying for a follow up CEA. She never laid a hand on me for an exam. Needless to say I've changed oncs. Wish I had done that earlier.

    My new onc immediately ordered CT scan and followup bloodwork. She also gave me a thorough exam. With all my lumpies and rolls (no reconstruction) I am not confident with my self exam. I will be seeing her next week and we will figure out whats next. I am also booked with my radiation onc for a 6 month follow up. I haven't seen my surgeon other than a panic visit shortly after masc. I also haven't heard from his office since. I kind of felt hung out to dry, Thank God my new onc actually listens.

    I have lost so many family members to all kinds of cancer it makes me hyper aware of my risks.

    Has anyone had any kind of cardiac follow up? I've been reading about congestive heart failure related to ac treatment? I had a cardiac ultrasound prior to chemo but no follow up of any kind.

    Carolyn

  • irishdreama
    irishdreama Member Posts: 938
    edited January 2008

    Hi Carolyn

    I did have a follow-up heart echocardiogram after chemo, but I think the doc ordered that because I was having side effects from the taxotere that mimicked heart problems-e.g. edema (swelling), and shortness of breath. Thankfully my heart is ok, so the doc put me on Lasix (a diuretic) and that's helped considerably. Good luck!

  • hollyann
    hollyann Member Posts: 2,992
    edited January 2008

    i see my onc every 3 months.   She also does bloodwork every time i go.  I will see her every 3 months for 2 years and then every 4 months for 2 years and then every 6 months after that indefinitely. 

  • Gabrielle
    Gabrielle Member Posts: 73
    edited January 2008

    8 years out - 1x a year

    -Gabrielle

  • jdash
    jdash Member Posts: 754
    edited January 2008

    every 6 months i was dx april 06 took my blood work today in advance have my appt feb 11 always get totally nervous before my checkup ugh waiting it out now for the results

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited January 2008

    Mast was April 16.  First onc appt May 18.  Seems like I saw her every 3 weeks in May/June/July (probably 4 visits? to get all the meds worked out, CYP2D6 test, BRCA test, discuss oncotype score, chemo Y/N -- went with No) then every 4 months: Nov, Mar.  I'll see what she says in March -- if she'll move me to every 6 months. 

    They've drawn blood everytime and she just says "everything looks good."  I guess in March I'll specifically ask about markers -- she's never explicitly mentioned them.

    Breast surgeon similar frequent follow-up right after surgery -- then 3 months, now 6.  She said I could wait a whole year for next mast. 

  • jdash
    jdash Member Posts: 754
    edited January 2008

    ann i am nyc too! where were u treated? by who

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited February 2008

    Hi jdash!

    NYU -- how about you?

  • jdash
    jdash Member Posts: 754
    edited February 2008

    i ann

    i was treated at memorial sloan but all nyc hospitals are wonderful!! i loved my docs

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