TIME TO CIRCLE THE WAGONS GIRLS

Today Scott, Charlene & I went and saw the neurosurgeon. We looked at the MRI done on Nov 30th compared to the one done last May. There are at least two large spots and a lot of small spots on the newsts MRI that were not seen on the one in May. The spots are cellls that got into the brain and have swelled putting pressure. It is not brain tisse that has gone bad. Because of the number of spots it may not be best to go the Gamma Knife route but rather to go the whole brain radation route and if need to done the road go gamma knife. They did another MRI today with a finer look to see if they can tell what the smaller spots are. At any rate I have a very hard and long road to recovery in front of me.
Most likey I will have to quit working as some fuctions may be limited. it can be a few months to a year before we will know all of the affects.
My goal right now is to maintain as much of a normal life as I can and spend time with family. I fell there is still a lot left for me to do and my time is not yet here.

I ask that you keep my family in your prayers as this will be as hard on them as it will be on me. In some ways harder I think for them. Financially this id going to be very difficult but I trust the good Lord will see us through.

I will know more in the days to come as to how we will proceed with treatment.

Right now I'm going to concentrate on cleaning out my house and making things as simple as possible. I've got a lot of stuff to get rid of  and make room for family to be here if they want to be.

well that's all I know for now

Shrink I hope your surgery went well.

Vickie you can have some of this rain we're getting. It melted all the snow here but my daughter is stuck at her house with no water and power going in and out. The roads are closed for landslides and the bridge is out. I told here to pack up a bunch of stuff and get out as soon as she could. I want her and the grandbabies here!

I know you all were with me today and that's how I was able to get the repeat MRI and get the darn machine working, it quit twice while I was in it. they had to call for repairs but we managed to finish the procedure. I think Mazer and Distored Humor both gave it a good swift kick to getting it going again.

Sorry if you got drenched we are havinging a lot of wind and rain here today. I think it's made up for the lack of rain we had last month.

Going to make some rounds and will stop back by in a bit

Love HUgs & Prayers to all

CY - yes, you have much time left with us.  You know you and your family are always in  my prayers.  I love you guys.  Let me know what I can do for you!

Love ya

Liz

(((((CY)))))

and many many prayers.

Love ya

vickie

Cy,

Thank you for checking in.  You are and have been in my prayers.  Sending you and your family warm, loving hugs.  I'm glad you can feel the love from everyone and we're holding on tight - we'll walk with you these next few months.  I will be glad to do anything within my power to help you.

Brenda 

think I will go lay dow and try to rest. I'm a bit wiped with all the news from today. I have tons to do but no energy or gumption to start it tonight. So thank you once again for being with me.

Love you all

Cy...sending some nice warm hugs from San Diego...

Good Morning Everyone. 

CY:  I have read your post over and over again.  You and your family must be completely exhausted from all of this.  Probably a little numb too trying to absorb everything that was told to you.  I know it may not look good my friend, but Im not surprised about the WBR's first.  Then gamma knife to get rid of the larger lesions.  OK!  So the business is done.  You have been told your treatment plan and I know it scares the heck out of you.  But you are being given a treatment plan!  That is hope my friend!  You may be frightened by the plan, but its a plan.  I have followed others on the mets thread who have gone through WBR and gamma knife.  And they are doing well at the present time.  Sometimes healthcare is a cold business.  They have to tell you "everything" that might or could happen.  Doesnt mean its all gonna happen to you.  I remember others saying the biggest side effect was memory loss - which for them improved once the rads were done and the brain had a chance to heal.  So cry with your family today - get ready to fight tomorrow.  Im just wondering, are you being treated at one of the bigger University Hospitals?  If not - you might want to get a second opinion at one - they have at their hands treatments that are not available anywhere else.  Please encourage Charlie to keep coming here also.  There are many of us who want to help you and your family through this.

Vickie:  I have to admit I was worried about you yesterday morning.  You were getting the storm we got on Saturday. I kept hearing on the news lots of snow, ice and winds.  How in the world did you keep yourself together after the flat tire.  I probably would have kicked my car or done something much worse than that.  BTW!  that black cloud is leaving.  Sometimes it takes that final last blow - when you think things cant get worse and then they do!  Well I think a flat tire on your first day at a new job, during a Winter storm is the last blow for you.  Cant get much worse than that.  So take a deep breath Sunshine sister.  Besides all the frustration, how was the first day? I want to know the good stuff - like how is your new office.  Whats your desk look like.  Are the people friendly?  They are calling for another big storm here in Chicago today.  I think I will have enough time to get to work, go to my meetings and come home before it begins.  Oh and BTW - those puppies are so darn cute.  I love the one with Nate holding both of them.

Shrink:  Here is hoping the surgery went well and your recovering nicely.  I felt much better in my mind after my surgery.  Hope to hear from you soon.

To all the other campers - sending big hugs your way.  We have alot to do.  Grab your armor - CY needs us.

I will check back after work.  Love ya all.

Nicki 

Hi Nicki...first day was a good one.  My desk is pretty awesome...lots of room to work which I like.  Lots of good lighting too.  The people are grand. Lots to learn but its so much less stressful than what I left.

Not sure if I am going to make it in today or not...we are getting slammed with this storm...they told me yesterday that they don't expect you to come in if the schools are closed.  Well...every single school in central NY must be closed because the list is huge.  Even Ithaca is closed and they never close!

Stay safe out there in the weather...everyone.

Love and hugs

Vickie

good morning from snowy NY...lol.. hmmm, no school, but I have to be here before the sun comes up, and before the plow driveres go to work, so out came the 4 wheel drive...lol... good thing drifts over the hood up on the hill....

Cy, you know we have you in our prayers and I hope you can feel the love,  so when can I fly in and help?...  I am a mad cleaner outer... hugs my friend... I am so glad we had the chance to meet this summer... what a great family I have aquired...

Madison so do you still want to come to the hill...lol...

Deb, thinking about you too... still need to know when summer is in AK...lol... don't think I need to visit in the snow... hugs

Vicki, sorry about the flat tire , but sounds like your new job will be great.... and the book, maybe someone would love to read it?.. Was whinking about it the other day and lessons learned... hugs

Ok back to work... snow days we don't get snow days

hugs and prays to my family A to Z...

MB

Would all you East Coasters with snow kindly blow some my way?  We have NONE and my ski-crazy daughters are about to implode with jealousy about all the snow the rest of the world seems to be getting.  They had to cancel a second ski meet for this weekend.  Who would think it...Alaska with no snow in DECEMBER? 

I have another busy week, but I am actually enjoying the hustle-bustle.  We did a cookie exchange at work and I came home with 13 plates of cookies.  My plan was to freeze them for parties....my family had other plans, LOL.  I managed to get one big mixed plate of them put away, but an alarming number of them disappeared last night...too funny J 

I saw all the rain in Seattle.  I hope you are high and dry CY!  I'm sending you fierce hugs.  You can beat this thing.  Let us know how we can help. 

My friend Beth is taking her little 4-year-old boy in for surgery today.  He has Spina-Bifida (sp?) and they are doing surgery on his legs.  Please keep them in your thoughts and prayers.  He will be in big casts for quite a few weeks, so it will be hard.

Has anyone heard from Shrink?  Hope everything went well...sending hugs

I am on the run again today, but I will try and check in later.  Hugs and prayers for everyone.

Deb C

Hi all,

I'm back from Disney World.  Got back Sunday Night.  Can't remember if I posted here or not.  I posted at the hamptons.  It is so cold here and it was 80 in Orlando.  I'm not back in the swing of things yet.  I'm trying to think of ways to contribute to Cheryl financially.  So you can go have fun sweetie and let us do the work. I intend to help the Lord see you through.

I hope all the rest of you are grand and fine and wonderful.  Hugs and bugs and fishes.

MB thanks for the description.  Now I won't be quite so envious of your wonderful house.

Deb no snow?  something is wrong.  Hugs for your friend Beth and her son.

Vickie, hope the new job treats you like you deserve.  Where did you get those puppies? so cute!!!! 

Lisa, when I lived in CA I would go to Disneyland at least once a year.  And I have to say after this trip, I still prefer the smaller park.

I posted this over the hamptons.  We still have the pinkstock t-shirt website.   I can redo the web page and enlarge the site so we can sell multiple designs for each type of t-shirt.  We can charge extra money funnel it into a paypal account for Cheryl and Scott.  Anyone interested.  I will donate all my time and money.  need to look into non-profit status.  I'm at idea stage so don't expect this tomorrow am.  LOL

Susan, I will do anything to help you.

Believe it or not I'm home already after my bi-lat surgery yesterday.  The bs must be like Zorro or something.  He was done in less than two hours.  I've had almost no pain, taking tylenol maybe twice a day. I am sure that all of your prayers and good wishes helped.

 I do have these ugly drains to deal with.  I couldn't wait to leave the hospital.  It took about an hour to get someone to take me to the bathroom.  Two nurses started to take my bp in the wrong arm.  It took 4 hours to get all of the discharge papers together. They forgot to send my dinner last night and then sent four of them.  But I'm grateful to be feeling so well.  I'll be interested of course in the pathology report.

Hope you're all doing well.

Shrink ... so happy to hear you're home and not in a bunch of pain.  Although the hospital sounds like it was a pain in the butt.  We should've left Mazer with you to keep on top of everything.  I don't know about drains, but I know others will be along who know more about that than I do.  I'm just glad you're home and the surgery went well. 

Write as often as you can to let us know how you're doing.

Love,

Bren

Good Afternoon:  Thought I would post a pic that might get some smiles.

I dont have much time.  DH put up decorations, now he is playing Christmas songs, it just started snowing, he put a log in the fireplace - so I guess I will go get a glass of wine and sit with him for a while.

Shrink:  Glad your home and doing well.

Ritajean:  Hiya.  And yes, it seems like they are always checking something.

Candie:  Glad the colonoscopy went well.

Susan:  I love when you start thinking about projects.  They always turn into something good.

Jasmine:  Good advice to shrink about the drains.

Vickie:  Are you stuck out in the snow somewhere?

OK - gotta go.  Love ya all.

Nicki