Joanne, how are you doing?

LuAnnH
LuAnnH Member Posts: 8,847
edited June 2014 in Stage IV/Metastatic Breast Cancer ONLY
Joanne, how are you doing?
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  • LuAnnH
    LuAnnH Member Posts: 8,847
    edited December 2007

    Last you posted about yourself, scans showed stable but you thought you could only take your current tx a few more times.  Was just thinking of you.

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  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008





    Me too! Hoping you're doing o.k., getting out just a tad more, feeling stronger.



    Happy holidays with your children and family, Joanne.



    Tender

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  • WendyV
    WendyV Member Posts: 596
    edited December 2007

    Me too Joanne - hoping you are doing OK and getting ready to enjoy the holidays.

    Wendy

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  • joanne1428
    joanne1428 Member Posts: 388
    edited December 2007

    Hi LuAnn and all....

    What a good memory you have!  You are exactly right, I was showing "stable", and I have reached the end of my road with Myocet (encapsulated Adriamycin) and Cytoxin. 

    Next week I am supposed to be scanned again, but I haven't received the appointment yet, so I am guessing it will be the next week........  then I'm supposed to be switched to something else, either Navelbine or Taxotere..... probably Taxotere, I had that in 2004, and had about 1 1/4 yrs disease free time after chest wall recurrence....  I'm very nervous about the switch, but.....

    My mom put up my tree, here in my sunroom (my makeshift living space on our main level)  and my best friend just today put up all the rest of my decorations, so my house looks very festive, and I must say it's put me in a very lovely mood!   Best thing about my "girl" supporters doing it, is that it all got done without ONE bit of bossing or begging to my husband, who is NOT a big Xmas decorater!  I guess it was a present to him too! 

    Also, I am breathing well enough to sleep in my own bed at night, and that is so nice, haven't slept beside my husband for months!   

    So, just trying to stay in the moment, and enjoy what I can !!!!!!

    Thanks for asking about me, I really appreciate it!

    Love, Joanne

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  • LuAnnH
    LuAnnH Member Posts: 8,847
    edited December 2007

    Did you ever ask what harm there is in exceeding what they consider a lifetime max?

    I hope whatever they switch you to continues to work, it sounds like you are making such an improvement.  I do have a list of chemo's, old and new, used for breast cancer.  Musa from bcmets posted it before and I saved it for future reference.  Would you like a copy of it to see if there might be something else you can try?

    We bought a fake tree this year, this is my first fake tree since I moved out on my own in 1982.  I just don't have the energy for all the mess of a real one.  We put it up last weekend and it looks wonderful.  It just wasn't the same putting up the tree without all my kids home though  Frown  Oh well, glad to hear you are feeling better!

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  • jonimb
    jonimb Member Posts: 900
    edited December 2007

    Joanne,

    Good luck with your new upcoming tx.  That was sure lovely of your Mom and friend to help you decorate.  Enjoy!!

    Thinking warm and positive thoughts for you.

    Big hugs...Joni

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  • ozzie2
    ozzie2 Member Posts: 1,271
    edited December 2007

    Joanne lovely to see your smiling face here...great stuff re the tree what a lovely thing for your mum and friends to do...

    Keeping it all crossed that the new treatment helps ...

    hugs

    oz

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  • katie11
    katie11 Member Posts: 2,514
    edited December 2007

    Joanne,

    Thinking of you and hoping the new treatment is kind to you and kicks some cancer butt, too!

    Katie xx

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  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited December 2007

    Wow, Joanne, I remember how sick you were . . . so great to see that you are feeling better.

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  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited December 2007

    Keep up the good work!! I am rooting for you from Michigan!!

    Janis

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  • Kasey
    Kasey Member Posts: 695
    edited December 2007

    Joanne I am so glad you are feeling better!  Let us know how the scans go and what the new treatment will be.

    Hugs,

    Kasey

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  • ForTheMoment
    ForTheMoment Member Posts: 375
    edited December 2007

    Yeah Joanne... so good to hear from you, and glad you are doing so well!  I bet your own bed felt fabulous!

    Love and hugs..


    Erin

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  • joanne1428
    joanne1428 Member Posts: 388
    edited December 2007

    Thanks everyone, and LuAnn, thanks that list would be great..... and you are right, what WOULD be the harm in planning to live longer than my "expiry"date......  It's a fine plan, really, and does no harm at all!

    Thanks to everyone, and you are all right.  I was very very sick, and for a while there, during the summer, I really thought I was entering the final stage.  My improvement on this chemo has been very slow, but it has been steady, and although I am still very limited, still on Oxygen 24/7, still on lots of morphine and very limited in my activity level, what I have learned is that there is still plenty of life to enjoy, even as a "more or less" invalid.

    This sounds ridiculous, but today I went shopping, and I made it into 2 stores and a Starbucks stop, yes I had to use my wheelchair and oxygen so I make quite the sight, but..... I REALLY enjoyed just being out in the world for a while. 

    So, even though my story is not really encouraging, because I haven't really lasted all that long since mets dx and serious QOL issues.........  I guess I still am proof that a person can return from the brink, and at least have some more time to spend with their family, if nothing else.....

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  • Maya1
    Maya1 Member Posts: 390
    edited December 2007

    Joanne,

    I just wanted to say "You are so fabulous!"

    Your story IS encouraging.  We can all find the good things in life to enjoy. 

    Bernice

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