Can we do a Her2 roll call?

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  • Maire67
    Maire67 Member Posts: 768
    edited July 2010

    .

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  • mmcmom
    mmcmom Member Posts: 47
    edited November 2007

    Hi.  Diagnosed 4/3/2006.  Neoadjuvant chemo 4 dd a/c, 4 taxol herceptin, surgery, 37 rads, 1 year of herceptin completed in June 07.

    NED!!  Complete pathological response at surgery!!!

    Beth

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  • ginnieredd
    ginnieredd Member Posts: 5
    edited November 2007

    Bi-lateral mastectomy with immediate reconstruction 10/04.

    Chemo every 3 weeks beginning 01/05.

    36 radiation treatments to right side

    1 year of herceptin every 3 weeks. Last treatment 07/06.

    No change on MUGA scans.

    NED!

    So glad that I elected to get rid of all of the breast tissue.  Not leaving any doubt for a return battle.  Cancer is an agressive killer. You have to fight it as agressively as possible.  Best advice - do not do just enough to get by - do it all.  Be pro-active!

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  • mimi1030
    mimi1030 Member Posts: 700
    edited November 2007

    My mom was very aggressive with her stage 1 breast cancer, mastectomy, chemo A/C...(even though they said she would not need it, only 5% chance of recurrance)...but sadly 3 years down the line she has mets to liver and bones.  I guess even being agressive doesn't guarantee cancer free.  Herceptin was not available to her at the time as you had to have mets to get it back then.  Maybe that was the deciding factor, but the Onc. thinks not.  She said one can never guarantee that the first time is a cure, even if the cancer is small.  I think it sucks personally.

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  • Jackie_C
    Jackie_C Member Posts: 4
    edited December 2007

    Dx 4/05, chemo 6/05-11/05, Herceptin 9/05-8/06

    It's been over 2 years since diag. and still NED!!!!!!!!

    Jackie

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  • TPPJ
    TPPJ Member Posts: 1,017
    edited December 2007

    Dx 8/06.  NED.  Had 3 more herceptins to go but stopped:  had a small heart attack on the OR table last week during gen'l anesthesia for a hysterectomy.  Had felt like the picture of health prior to going in for surgery.  Now dx'd w/cardiomyopathy.  I'm 41, stage 1, no nodes, ER/PR/HER2+.  Moral of story:  be careful w/gen'l anesthesia after using all these potent drugs.  You can feel totally fine and not be.  (Not to scare anyone...just don't want to see anyone have to deal w/it.)

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  • 73gr
    73gr Member Posts: 459
    edited December 2007

    Well, it's time to post in behalf of my mother. it' s a long story. My mother was diagnosed with breast cancer and positive lymphnodes back in 1991. After radical mastectomy and chemo in 1992 she was officialy diagnosed with recurrence in 2005 in axillary and suvraclavicular lymphnodes. Her tumor tumor markers were dangersouly high. CEA was 405 and CA125 over 100. Followed taxol ad carbo plus radiation. The result was new mets, too numerous to count in liver, left lung, bones, plus pleural effusion. Second her onc, her prognosis was 3 months. But no one told us about Herceptin. I found infos about Herceptin right in this page. We asked about an IHC test based on her biopsy back in 1991! The results were that she is HER2+. Started Herceptin and since July 2006 my mother is NED! Maybe if Herceptin was available in 1992 she would avoid the recurrence.

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  • marejo
    marejo Member Posts: 1,356
    edited January 2008

    WOW.....what an encouraging thread.  I love it and love that we are NED.  Awesome, awesome, awesome.

    I was dx June 24, 05 - stage 2B - 2 sent. nodes removed and 1st one had ONE (I repeat ONE) microscopic cell of invasion.  Second node clean.  No vascular invasion.  Did 4 dose dense A/C - 4 taxol dose dense also started herceptin with first taxol dose and received that every 3 weeks for one year.  Finished chemo Nov. 30, 2005 and finished herceptin Oct. 11, 2006.  Also had 28 rad. treatments. 

    Has had a PET/CT when dx - normal (other than right breast) - radiation onc. ordered a PET/CT when rads were finished and that too was normal.  Abdominal CT this past Sept. (ordered by GI doc for digestive issues) - normal - and a bone scan done Dec. 27 for left thigh ache - also normal.

    So ladies, add me to the NED list.  2 years and 5 months as survivor and counting.

    Praise God,

    Mary Jo

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  • nitewind
    nitewind Member Posts: 64
    edited January 2008

    I was diagnosed in May of '06, lumpectomy July '06, Er/pr- and Her2+++ had 4 A/C followed by three taxotere, 32 rads, and finished my one year of herceptin on Dec,7th '07.  So, I'm 17 monthes out from my surgery, feeling okay, just nervous. It's like someone took away my security blanket! Seeing my oncology nurses every week gave me a feeling of safety, now I won't see the onc till February. Hopefully, at that time he will order an echo for my heart and let me schedule a date to have my port removed.

    Hugs

    Susan

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  • jerseymaria
    jerseymaria Member Posts: 770
    edited January 2008

    hi, i'm stageIIIB, 9 + nodes out of 27.  had mastectomy march 07, 4 ac, 4 taxotere and 6 weeks radiation.  1st herceptin last jan. and last one this coming monday so it's almost 2 years since diagnosis.  onc is planning a pet scan about a month later.

    my markers have always been totally normal.  then in nov. my cea went from 2.8 to 20.8.  we repeated it and it lowered to 18.4.  so of course now in ready to go into panic mode cause onc said since ca27-29 was still normal this could be a sign of a totally different cancer but could also be an inflammation since it's not terribly high.   but hey, i'm a classic worrier so i will be frantic till after this scan.

    maria

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  • jerseymaria
    jerseymaria Member Posts: 770
    edited January 2008

    sorry...that was surgery march 06.

    maria

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  • bettie
    bettie Member Posts: 3
    edited January 2008

    Hi! I was stage IIa & IIb, bilateral idc (two separate tumors). one was er+/pr- & her2+++, the other was er+/pr+ & her2-. diagnosed 7/13/06, bilateral mast on 8/8/06 & started 4 dd ac 9/06. then 4 dd tax/herceptin. finished chemo in 12/06. 5 weeks of rads, hyst/oooph in 2/07, continued with herceptin all the while. Had a minor break for about a month & a half as the muga showed my ef went from 57% to 49%. Echo done, all good. Started herceptin again & finished on 12/21/07!!!! Best Christmas present ever...NED!!!!!!!!  

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  • Sassa
    Sassa Member Posts: 1,588
    edited January 2008

    Diagnosed 12/06 right breast IDC, stage 1c, ER/PR -, HER2+. 

    Mastectomy on 11/17/06. Sentinel node biopsy negative

    4 AC (finished 2/07) followed by 1 year herceptin (will finished at end of Feb 08).

    Following funky mammogram report of left breast, had mastectomy of left breast 6/07. Pathology showed benign changes of aging breast tissue - hooray. (Since I was extremely big-breasted, I love being flat).

    9 months out from end of chemo - NED.

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  • florencedonna
    florencedonna Member Posts: 131
    edited January 2008

    I already posted in june 2007 but now it is jan 2008 so I am now another 6 months out from diagnosis!!

    10/10/2005 diagnosis, stage IIIa IDC, last herceptin end of jan 2007

    donna

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  • bonny1963
    bonny1963 Member Posts: 450
    edited January 2008

    My diagnosis was Sept 12, 2006.  I had lumpectomy, mastectomy two weeks later, 4 DD A/C and 4 DD Taxotere, 33 rads and just finished my Herceptin on January 7, 2008.  I am getting my port out on Jan 22.  I am so excited.  Bonny

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  • sdurantmd
    sdurantmd Member Posts: 40
    edited January 2008

    Hi all,

    My sister is her/neu+. But she is stage IV with mets to liver by scan and pet and small areas to lung and left hip. She' s doing herceptin. Can I hope that she can be NED too. Because most of you are not stage IV. Thank you guys, for giving me strenght everyday.

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  • sbledsoe
    sbledsoe Member Posts: 2
    edited January 2008

    Dx May3rd, 07; Stage 1/tumor grade 3 (1.8 cen.) / ER/PR Her2/neu +.

    Masectomy on right breast June 11th 07.

    Chemo started end of July. Cytoxan, Taxotere, Herceptin every 3 weeks except for herceptin, every week.

    Ended the 6th cycle the day before Thanksgiving, and Herceptin treatments will be 3 weeks for a year.  Will be starting Arimedex soon, and reconstruction on Feb. 8th.  What is NED?

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  • stacyofhavertown
    stacyofhavertown Member Posts: 10
    edited January 2008

    No herceptin for me when I was dx.  I hit my 5 year mark Dec 27th.  Yeah me!!!!

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  • nagem
    nagem Member Posts: 353
    edited January 2008

    Yeah, you, indeed, Stacy! Congratulations! You're a role model for the rest of us.

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  • beara
    beara Member Posts: 3
    edited January 2008

    I was diagnosed Dec 06, L Mastectomy Jan 07.

    1cm, Stage 11A, ER+HER11+,Grade 111,0 nodes.

    Started Taxotere, Carboplatin + Herceptin (6 doses)  will be on Herceptin til March 08. NED Jan 08.

    Mary C

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  • Maire67
    Maire67 Member Posts: 768
    edited July 2010

    .

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  • Denny123
    Denny123 Member Posts: 1,886
    edited January 2008

    I will do an update:

    Dx Dec 2002, immediate Stage 4 with liver mets.  4 years on Herceptin. Liver in remission for 3 1/2 years.  Will have Herceptin for life.

    Denise

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  • karluway
    karluway Member Posts: 22
    edited January 2008

    2003 I was diagnosed DCIS lumpectomy and 33 radiation treatment

     HER-2/neu no tamoxifen or any other treatment.  September 2007 Recurrance ILC .  Modified radical mastectomy Jan.2, 2008.  Tumor size less than

    0.5cm clear margins negative lymph nodes stage 1  pT1N0.  Oncologist does recomend no chemo or herceptin because tumor is so small

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  • jcs13
    jcs13 Member Posts: 27
    edited January 2008

    Diagnosed in November, 2007 (stage I).  Will be starting 12 weeks of Taxol and 12 months of Herceptin; 6 weeks of radiation to follow chemo.  My 1st oncologist was not in favor of me having chemo/Herceptin.   I think I need to go the aggressive route.

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  • bluewillow
    bluewillow Member Posts: 779
    edited January 2008

    Hi JCS,

    Our cases are quite similar, and you definitely did the right thing in going the aggressive route.  I chose it also, just so I'd never look back with regrets.  I did 4 DD Adriamycin/Cytoxan, and just finished Taxol yesterday (had no problems w/Taxol, just the Benadryl knocked me out + the steroids made me wired! Surprised) and I begin solo Herceptin until Nov. 2008.  I'm so glad to be done with chemo, even though my problems were very minimal (no nausea, just a bit of fatigue toward the end).  I have read more and more that it is actually "favorable" (not sure if that's the correct wording) to be HER2positive rather than negative just because of the great results from Herceptin! YAY!!

    Take care and best regards to all!

    Mary Jo

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  • Sassa
    Sassa Member Posts: 1,588
    edited February 2008

    I am a one year survivor today (last chemo 2/13/07).  One more herceptin dose next week.  I am still disease free as far as my doctor and I know.  She plans on doing a CT/PET scan sometime this summer.

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  • BethNY
    BethNY Member Posts: 2,710
    edited March 2008

    congrats sassa!!!

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  • jewelsinalabama
    jewelsinalabama Member Posts: 33
    edited February 2008
    dx July 2005, last dose herceptin 11/06. NED.Laughing  Feel GREAT!! 
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  • jcs13
    jcs13 Member Posts: 27
    edited February 2008

    Mary Jo and all:

    Had my first round of Taxol/Hercepting yesterday.  Was up at the gym at 6:00 a.m. this morning and feeling great all day.  I know that the chemo has a cumulative effect and I will not feel this great all the time.  But today, all is good.

    Glad to be part of this HER2+ network.  I'm learning a lot.

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  • carol1282
    carol1282 Member Posts: 2
    edited February 2008

    Dx Feb 05 finished Herceptin 10/06

    Two tiny spots liver 10/07 and redone 12/07 - no change

    Oncologist says still NED and I'm staying with that (though

    do worry a bit!!!!)  Will do another in May/June as a doublecheck.

    Anyone had anything like that.

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