recently diagnosed advice or at least info

Hi, so sorry you had to join the club no one wants to be a member of. 

If you go down the topics page a bit there's a section on ILC.  I'm sure the ladies there will have lots of advice and support for you.

Take care of yourself. ((hugs))

Hi dear, you show no evidence of Metastases, that is "mets", so stop worrying about that. If it ever happened, it would be way down the road, and will most likely never happen.



I would get Dr. Susan Love's Breast Book, I don't think ILC is rare, I had Medullary breast cancer, which only 5% of the breast cancers are this type. (clumsy sentence, sorry). But that doesn't mean much.

With Dr. Love's Book, just read as far as you need to, the later chapters you will never use and they will just scare you. Take a small tape recorder so you don't have to take notes.



If all your scans and other tests came out good, then forget Mets. That is what mets are, cancer that has gone elsewhere. I presume, with multi-focal cancer, you will have a mastectomy? Sounds right, then chemo and radiation. You probably will have hormone therapy, because you are ER+ & PR +, this is a good thing, but happens later, when all the other treatment is over. But in any case, this is waaay down the road, don't worry about this part now.



This stupid disease is done in stages, which drives us all to drink. Slowly they move through the series of tests, treatment options are discussed, and you slowly go nuts. But when the whole picture becomes clear, all of it makes a lot more sense. Sounds to me like you have a good diagnostic team. Many of your worries they will answer eventually. Just have to play the waiting game and see what turns up.



I am 9 years post treatment, am ER and PR Negative, am doing fine and almost went crazy with the slow, step by step "dance" that breast cancer requires. Do remember that MOST, not all, but MOST breast cancers when large enough to be found by any means are 8 to 12 years old. So a panicky rush is not the way to go.



So what part of the recommendations so far are you reconsidering? I am just curious.



Gentle hugs, Shirlann

Yes we will, Carol, and you are wise to take something when the squirrels start running around the ceiling of your bedroom. Those darn squirrels are everywhere. The (NO SLEEP) squirrels.



I took something on the days of treatments and procedures too. Just helps to get up, get dressed, try to carry on a semblance of your life, and get all this done on top of everything else. And we thought we were busy?



You have the right attitude. Resigned disgust. Perfect. That is where we all eventually get to.



But with so many women recovered, it will be you too. Promise.



Gentle hugs, Shirlann

Hi there, not sure if you are still on the forum but just wanted to check on your status. I too have been diagnosed with invasive lobular carsimona and am trying to read up as much as I can on what to expect.