anyone with tumor below the nipple area?

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sharonlouise
sharonlouise Member Posts: 66
edited June 2014 in IDC (Invasive Ductal Carcinoma)
anyone with tumor below the nipple area?
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  • sharonlouise
    sharonlouise Member Posts: 66
    edited November 2007

    Hi,

    was wondering if anyone here has/had a tumor below the nipple? and was wondering what treatment was recommended for you? I have a surgeon telling me i need full mastectomy---and that I'm not eligible for a skin-sparing mastectomy, even--i mean cutting out nipple/arerola skin, leaving the rest if the skin. (it was a 1.6 tumor, e+ p+/HER negative--it was removed, but had positive margins). I'm getting a second opinion, but was curious if anyone else has dealt with IDC around the nipple.

    thnks,

    sharon 

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  • Jellydonut
    Jellydonut Member Posts: 1,043
    edited January 2008

    Comment deleted by Jellydonut.

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  • roxy42
    roxy42 Member Posts: 495
    edited November 2007

    Hi Thats what happened to me.I had a 3 cm tumor involving the nipple area.I had one node positive.I had two lumpectomy and now going through kemo.I will have done 6 months of kemo when all said and done.Jan I will do rads for 7 weeks..Godbless and stay positive through your journey....roxy42

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  • lisaelder1972
    lisaelder1972 Member Posts: 171
    edited November 2007

    My 2 cm tumor was at the very bottom of my breast. I had a bilateral by choice and have silicone implants.I don't have a fold under the breast on the cancer side.

                                                                              Lisa

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  • sharonlouise
    sharonlouise Member Posts: 66
    edited November 2007

    to roxy42---so with your lumpectomy I presumed they removed the nipple (which is what I'm facing at the very least, although I've been told mastectomy though my lump was 1.7 cm). Are you getting reconstruction?

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  • roxy42
    roxy42 Member Posts: 495
    edited November 2007
    Hi I had two surgerys.First one the dr left the nipple,but when the pathology came back that he dident get clear margins we went for the second surgery in a week then he took the nipple.I have been doing this journey for 6 months.In the beginning i wanted a masectomy but my surgeon told me that they are both the same.I did four month of kemo to shrink the tumor and then two surgerys and now going through 2 more rounds of kemo.I'm 5 days out now from kemo.My Dr are doom and gloom and they only give me a 55% to 60% to beat this due to node involvment.There are alot of women on these boards doing well years out with node involvment.Stay positive and stay away from negative people.You will get through this.I had to stay away from negative people it was stressing me out to bad.You need possitive support through this journey.Anytime you would like to talk e-mail me at roxannebrg@yahoo.com  godbless roxy
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  • carpediempenny
    carpediempenny Member Posts: 90
    edited November 2007

    HI, My tumor is right above the nipple. The surgeon thinks she can spare the nipple but of course won't know for sure until she gets in there to do the lumpectomy. I have a feeling it will end up being a mastectomy. (just a gut feeling) My tumor is a little less the 5cm and I am doing chemo first to shrink the tumor. She won't let me out of the operating room until she gets clear margins so i won't have to do a whole bunch of surgeries.

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  • Simone
    Simone Member Posts: 16
    edited November 2007

    sharonlouise

    I had a lcm tumor just behin de nipple of my right breast.  The nipple had been removed by surgery.  The margins were clear.  And I had no positive nodes.  After the surgery, the surgeon offered me the chemio, the radiotherapy and for sure medication. I refused the chemio as ,from my point of view ,it would have made 1% difference for the recurrency. And I had radio, and I am taking Femara now.  It was one year and a half ago.  At my last mammography and tests, everything was fine. 

    I don t know if I missed something but it appears to me that matectomy is more common in USA than in my contry (Canada)  Usually the surgeons try to avoid mastectomy. They prefer to remove the tumor and have the chemio and  the radio therapy even when there are positve nodes.  I have a friend who a two tumors (one in each breast)  about 2 cm each.  Stade 2. No positive nodes.  And a family history.  They never offered her a mastectomy. I am volunteering in a cancer center and I don t see very oftent patients who had mastectomy.  Am I missing something..

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  • tjamison
    tjamison Member Posts: 1
    edited February 2008

    I have a question. My sister and mother had breast cancer. How bad is the chemo

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  • peggyht
    peggyht Member Posts: 1
    edited February 2008

    I had a lumpectomy 1-21-07 at the bottom of my breast and 2 lymph nodes removed that were clear. The tumor was 1.8cm and I've been back twice to get a mammosite so I could start internal radiation, but the breast has been swollen, red, hard in spots and temder. No one seems to feel that it's an infection but I was wondering if anyone else had similar problems after the surgery.

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