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  • iodine
    iodine Member Posts: 4,289
    edited November 2007

    Oh, goodie, not only do we have an idiot posting who cannot spell and doesn't know English, it thinks it knows my personality.  But it at least got that right!  I am a very happy person!

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  • casper25
    casper25 Member Posts: 2
    edited November 2007

    New to the site, Diagnosed 11/2/07, surgery, mastectomy planned for tomorrow. Devastated! Don't want anyone to know. Nervous about degree of lymph node involvement. Have not been talking to anyone. Any advice about surgery?

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  • shrink
    shrink Member Posts: 936
    edited November 2007

    I know you are feeling shocked, anxiious and devestated.  This site is a wonderful source of information and support.  Sorry you had to join us but glad you found us.  Please do no try to deal with this alone.  Surround yourself with those closest to you and ask for what you need - hugs, emotional support, physical assistance, food, whatever.  People will want to know how to help.  This is how you can give them an opportunity to do something for you.  If you don't tell anyone, you may feel very isolated and depressed.  It's difficult.  I cried every time I told someone new but no one called 911 because of my tears.  I haven't had my mastectomy yet (chemo first) but my thoughts and prayers will be with you tomorrow. Take someone with you to your appointments.  I remembered to ask all of my questions but I didn't hear half of the answers.  My boyfriend did remember what I forgot.

    Sending hugs,

    shrink

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  • simonacanada
    simonacanada Member Posts: 3
    edited November 2007

    hi im 46 got diagnosed last april going tru chemo right now i got 5 treatments done going for the last one in dec youpeeee cant wait then i got lympnode surgery plus getting a breast taking off getting breast reconstruction done thinking maby getting other boob off just in case then i get radiation help i dont know what to do going tru this alone cause huby works outa town aint easy being alone

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  • annie06
    annie06 Member Posts: 156
    edited November 2007

    casper25 and simonacanada

    I am sorry you have been dx'ed, but glad you found us! I was in the chat room yesterday and saw you both on there, but did not get a chance to talk to either of you. I just want to share that I have been through treatment...mastectomy and chemo...and to encourage you that you can do this!!! I know it is hard casper25 when you do not know what extent your cancer is and you have to make decisions regarding treatment. I was there too, and looking back, I really believe I made all the best decisions for me and my family and no regrets. We're here for you both!!!!! Smile

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  • acrzynativ
    acrzynativ Member Posts: 7
    edited November 2007

    omg! i am so glad i found this place and really wish i would have found it earlier, i was diagnosed in june, had bilateral mastectomy july 5th, and just finished 8 rounds of chemo. I will be starting 25 days of radiation in a couple of weeks. I still have issues and questions so i hope im not too late to join you caring peeps

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  • shrink
    shrink Member Posts: 936
    edited November 2007

    ojibajo - Glad you joined us.  You're further along in the journey than many of us.  I just finished chemo and am facing bi-lat mast on Dec. 3.  I'm sure you'll have much to share with us.  Your issues and questions are welcome.  You'll receive much support and info on this site.

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  • cutemup
    cutemup Member Posts: 2
    edited November 2007

    Being bald felt liberating in a way.  It makes people see you.  I felt exposed but beautiful. I didn't always feel so good but people always commented on how great I looked!

    Good luck to all try to enjoy the no shaving, waxing or plucking part.

    The silver linings are there.............try to focus on them.

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  • cutemup
    cutemup Member Posts: 2
    edited November 2007

    Sometimes it can be  the laboratory range-mine doubled but were in the normal range still.  Different labs have different values for normal ranges as well.

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  • Sophia4
    Sophia4 Member Posts: 1
    edited December 2007

    http://tinyurl.com/25eau8

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  • iodine
    iodine Member Posts: 4,289
    edited December 2007

    PLEASE IGNORE the above link.

    It may be to virus or put a cookie in your computer that will gain you messages you DON'T WANT.

    PLEASE DON'T FEED THE TROLL

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  • pamela52
    pamela52 Member Posts: 1
    edited July 2009

    i am a breast cancer survivor also. i was dx on june 6th, 2006/ what a horrible day it was. i am 52 and i was told i had breast cANcer...........its very hard but u can do it;.i lost all my hair and that was devistating to me. the chemo made me so sick but look now i am here and doing ok.......just hang in there and pray and the support of others will get u thru it.................thank god its all over but it was the hardest thing i have ever done. all the drs and nurses were so good to me . i love them alllllllllllllll............... and this has made me a stronger person........take care and god bless....................pamela

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  • pinkster
    pinkster Member Posts: 4
    edited December 2007

    I am brand new here, but not a stranger to cancer and reconstruction.  A routine physical revealed DCIS exactly 2 years ago, and I decided on bilateral mastectomy with DIEP reconstruction.  I now have some regrets about sacrificing my healthy breast (I had two different cancers in my left breast 14 years apart) because of the loss of sexual function.  When men face prostate cancer, the #1 concern about surgery is ,"Will I be able to have sex?", yet when women face prophylactic mastectomy of a healthy breast, no one warns us to consider the loss of sexual function.  Perhaps because it is obvious that if a nipple is gone it won't feel good; or perhaps nipples aren't thought of as sexual organs.  Whatever, I can't tell you how much I miss the pleasure even one nipple gave me.  My quality of life has suffered as my husband and I struggle to reinvent our physical intimacy.

    I wish someone had warned me about this:  I might have made the same choice, but it would have been and informed decision. 

    I would never tell anyone what to do, but merely share my experience for you to ponder as you weigh your options.

    A caring DIEP sister. 

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  • shrink
    shrink Member Posts: 936
    edited December 2007

    I think we're so wrapped up in the shock and immediacy of the life and death struggle with bc that sex takes a second, third or lower place in our planning.  I had a bi-lat last week and will be on anti-estrogen therapy after radiation.  Having been so upset and with lowered estrogen (I was on HRT before), I've had zilch in terms of desire.  However, you're right, someone should tell us all that we can expect so that we can make the proper choices for ourselves.

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  • Beesie
    Beesie Member Posts: 12,240
    edited December 2007

    Please, DO NOT CLICK ON THE WEBSITE LINKS IN THE ABOVE POSTS.

    These individuals are "trolls" trying to getting people to their website.  Someone from here investigated a bit and found out that this person is paid based on every 'click' on their site.  So please, DO NOT GO TO THIS SITE, EVEN OUT OF CURIOSITY.  DO NOT SUPPORT SOMEONE WHO PREYS ON CANCER PATIENTS.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2008

    This was spam...

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  • Beesie
    Beesie Member Posts: 12,240
    edited December 2007

    Please, DO NOT CLICK ON THE WEBSITE LINKS IN THE ABOVE POST.

    Sophia 54356 is actually someone named Steven Chang (or works for or is related to Steven Chang). This individual is a "troll" who is trying to getting people to his website.  Someone from here investigated a bit and found out that this person is paid based on every 'click' on their site.  So please, DO NOT GO TO THIS SITE, EVEN OUT OF CURIOSITY.  DO NOT SUPPORT SOMEONE WHO PREYS ON CANCER PATIENTS.

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  • JoyRebecca
    JoyRebecca Member Posts: 787
    edited December 2007

    Dear Troll,

    You have way too much time on your hands!

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  • GaleTx
    GaleTx Member Posts: 85
    edited December 2007

    Troll, You should be ashamed of yourself!

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  • GaleTx
    GaleTx Member Posts: 85
    edited December 2007

    Thanks so much Bessie. I am new at this.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2008

    This was spam...

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  • sophia84572
    sophia84572 Member Posts: 1
    edited February 2008

    This was spam...

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  • Sophia847354
    Sophia847354 Member Posts: 3
    edited February 2008

    This was spam...

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  • Sophia847354
    Sophia847354 Member Posts: 3
    edited February 2008

    This was spam...

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  • Sophia847354
    Sophia847354 Member Posts: 3
    edited February 2008

    This was spam...

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  • iodine
    iodine Member Posts: 4,289
    edited December 2007

    PLEASE IGNORE THE ABOVE--THE TROLLS ARE AT IT AGAIN.

    DO NOT CLICK ON THE LINK---IT'S A MONEY MAKER FOR THE IDIOT DOING THIS AWFUL POSTING.

    NOT GOOD FOR US AT ALL.

    also, please report the comment so it will be removed.

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  • Beesie
    Beesie Member Posts: 12,240
    edited December 2007

    Just bumping this up so that, to Iodine's point, people can PLEASE REPORT THE COMMENTS above from pain-in-the-ass Sophia (who is actually a man named Steven Chang).  If enough people report the comments, they will automatically be deleted.  Please don't click on the website links in the posts, but just click on "Report this Comment" button at the bottom of each of the posts.  Then confirm this with another click of the "Report this Comment" button at the bottom of the next page that pops only your screen.

    We may not be able to keep this scumbag off the site, but we can at least get rid of his posts more quickly!!

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  • jaw53
    jaw53 Member Posts: 6
    edited January 2008

    Hi, my name is Jesselyn.  I had been diagnosed with breast cancer in may of 2007. When I was diagnosed, my tumor (on my right breast) was 7-by-6 centimeters and it has metastisized to the lymph nodes Since then after a series of tests, I have been on chemo to shrink the tumor for over six months.  In December, I had an ultrasound for possible blood clot on my right arm due to lymphodema and another cat scan and when I saw my oncologist on the 27th of December, he had not felt any lumps or anything.  There was a small spot in the lung and fibrosis in the uterus, but he says that those areas were benign, which was good.  However, I went to see the surgeon that same day for possible surgery aspects.  And nodules were found on the left side of my upper back.  My surgeon said the nodules were cancerous and it has spread to the skin.  She stated that this cancer has not stopped spreading and it may be terminal.  Also surgery is not recommended at this time.  I was so upset at what she said.  I merely cried because everything was going so well.  This past Thursday, i ran into my oncologist who said he had discussed my case with the surgeon and said that I may possibly have radiation treatment.  can you tell me your definition of terminal.  I will beat this for sure.  I will survive.

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  • iodine
    iodine Member Posts: 4,289
    edited January 2008

    Hi, I left you a post under your second post.  More hugs.

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  • grammieof3
    grammieof3 Member Posts: 2
    edited January 2008

    I found out Dec.20 that I had invasive ductual cancer. I have been married for 28 years, I have 3 daughters, 2 grandsons & another grandchild on the way. I'm scared that I won't be around to see them grow. my decision is still up in the air as to what to do my doctor wants me to have bilaterial mastectomy were breast cancer runs in the family, but I would prefer to know if I have cancer on both sides or not. I'm not so afraid of loosing my breast they say they can do reconstructive surgary. I'm more afraid of loosing my hair and my self image.

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