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BLESSED4
BLESSED4 Member Posts: 109

Hi,

  I was diagnosed 8/06 with IBC i have bone mets.  I am on Gemzar.  I don't know if it is normal for me to be having such a hard time with all of this after all this time.  I really haven't had much good news the past year although I have a PET scan this week.  Second one in a year so I am nervous.  I just hope this chemo is working.  It has been really hard on me.

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  • Jen44
    Jen44 Member Posts: 631
    edited November 2007

    Hi Blessed4,

    I am sorry you have had such a rough year.  I don't think when it comes to cancer there is a "normal" way to handle things.  I think we all do the best we can.  I know that having a positive attitude can help, but I also know it is not always easy to keep that positive attitude.  Try not to be so hard on yourself.  When the news keeps knocking you down it is sometimes more difficult to jump right back up.  Just keep trying and I am sure you will get back up.  Just remember to look to God and let him handle some of the pain for you.  I will be praying that the chemo has been doing its job and that this PET scan will bring some long needed GOOD news.  Take care.  Come back and let us know how you are doing.

    Jenny

  • shrink
    shrink Member Posts: 936
    edited November 2007

    All cancer is scary - IBC in particular.  I was dx in May of his year and have just finished chemo.  Surgery's scheduled for early Dec. Just this morning I said to my SO, "I keep hoping this is a very bad dream."  Well, it has to be the longest nightmare in my history. There are many times I feel very frightened and sad but I'm trying to squeeze the sweetness out of each day.  I hope the chemo works for you.  You're in my prayers.

  • kimmie39
    kimmie39 Member Posts: 319
    edited November 2007

    Hi Newbie,

    Im really sorry you have to be in our club but we welcome you.

    This is my second go around with BC. First time was 11 yrs ago and I was 27 yrs old. Last yr I had my breasts lifted and made the same size to mark my "end of  worrying about cancer". I mean it had been 10 years. GEEZ 6 months later IBC BOTH breast AND in my nodes. Good news for me is my bone scan is clear. But Im right here by your side so to speak . No one wants to be here, NO ONE deserves to be here!!!!!!!But here we are and were making the best of it.

    Ive met some extraordinary, wonderful gals here.

    You can come here and get support. We answer each others questions. listen to each other vent, make friends.

     I dont know what Id do without this site. 

    IBS scares the s**t out of me most of the time. The seriousness of this disease is just to big to get my head around it. Where do you put that kind of fear? I just dont know.

    You said you want to raise your babies. How many children do you have? ages?  I have 3      19-7-4

    All girls. And raising them is definitely my goal as well.

    Im having a double mastectomy on 11/28.

    I am NOT looking forwards to that. So much for those boobs I had lifted. Im still making payments to the Plastic surgeon. Bummer hu.

    I recently finished my chemo. Taxol and carboplatium.

    Im supposed to have 6 wks of radiation after surgery. Then nothing but ??????????????????????????????????????????????????????????????????????

    What has been your treatment so far?

    Hows your family holding up?

    My husband is a mess. But hes trying real hard and getting better at his new role, having much more responsibility than hes ever been used to.

    Kids know mommy is sick or tired ALLOT lately. Yes we use the term cancer around them but we dont give details on how serious it is. I think they see cancer as the same as the flu or an ear infection. 

    Well I hope that tells you alittle about me and hopefully make you feel comfortable talking here.

    Ill be checking back soon.

    Hugs from Va

    Kim 

  • BLESSED4
    BLESSED4 Member Posts: 109
    edited November 2007

    My babies are ages 15(girl)12 and 9 (boys).  My husband has been so wonderful.  I Hold alot in because I don't want to stress him or my mother out.  But they have been great. Thanks for the support I can get stressed and it nice to be able to let loose and be understood.

  • mrs_X_Sunneedazee
    mrs_X_Sunneedazee Member Posts: 541
    edited November 2007

    Hi Blessed4....

    I am 29 years old with IBC with mets to the bones and lung.  I was dx May 10, 2007, 6 months ago now.  It is a hard place to be battling this disease with young kids (I have 5, yes I know I'm crazy...  I'm just glad that I had them while I was young otherwise it would have been too late)

    I remember when I was first diagnosed, I thought I would be dead in 6 months after reading about IBC on the internet.  But here I am, doing better than I was before I was diagnosed.  I did 5 months of chemo (Taxol and Herceptin weekly, monthly zometa) and I will be doing weekly herceptin the rest of my LONG life.  I had a mastectomy on 10-25, along with a hysterectomy (removed uterus and ovaries).  I am on daily Aromasin to supress estrogen. I will also have radiation, and start that whole process next week.  Ugh!

    Fortunately my husband is wonderful and we have lots of family around that have really helped.  Kim, I'm sorry your husband is having a hard time.  I sometimes wonder that my husband keeps it all in and doesn't talk about the burden on him...

    I have some days I worry and lament the fact that I have cancer, and some days I am okay with it and optimistic.  This site is great for when you need support or have questions.  We welcome you with open arms and hope you will be able to find strength and friendship here. 

  • lexi4
    lexi4 Member Posts: 1,074
    edited November 2007

    Just wanting to send you big hugs. You are such a pretty young woman with lots of life yet to LIVE. I hope that your scans will show improvement. If not, there will be another med to try. Hang in there. You have a wonderful family that needs mom around for a long time!

    Hugs and Prayers,

    Lexi

  • BLESSED4
    BLESSED4 Member Posts: 109
    edited November 2007

    Thank you all for your support.

  • kimmie39
    kimmie39 Member Posts: 319
    edited November 2007

    Help,

    Here I am trudging along begrudgingly in cancer world.

    Just starting to find some sort of peace with my diagnoses and

                                             WHAM

    I get THAT call, Im sure some of you have had it. The oncologist calls to say my last CT shows several spots (she used a medical term) that may be cancerous. Now Ive JUST fininished Chemo a wk ago so yhese are new spots that if cancerous have started WHILE in treatment. How can that be????????????????????I know there are other ladies that are fighting this crap called cancer and its spread to the bones. Help me, Please.

    I was already having a hard time finding positive thoughts BEFORE  this.IBS has almost no positive things to hold onto. Have you found articles or such that help you find hope for survival of cancer once in the bone???????????

    I dont know how to take this new news.  SH*T I did the damn chemo , Im having BOTH my breast cut off, then rads what else do the cancer gods want from me?

    Help

    Kim 

  • Caseysmom
    Caseysmom Member Posts: 507
    edited November 2007

    Kim:

    I do not know how to answer this.  So here as some very very big hugs coming your way.

    I am praying real hard for you.

    Laura

  • BLESSED4
    BLESSED4 Member Posts: 109
    edited November 2007

    Kim,

      I know what you are going through.  I wasn't even done with rads when I found out it spread.  The RAD ONC said it looked like it's been there.  No one knows when they will have a recourrance.  It could have been there but not enough to show on a scan.  I struggle with this everyday.  I am trying to take one day at a time.  I will be praying for you also.

  • lexi4
    lexi4 Member Posts: 1,074
    edited November 2007

    Kim,

    I am sorry that you have gotten this blow. I guess until ca is confirmed, I will hold on to hope that it isn't. I have read that some women will recur while on tx. Your docs will find the right chemo combo to knock the heck out of those ca cells.

    Please know you are in my thoughts and prayers now.

    Hugs,

    Lexi

  • shrink
    shrink Member Posts: 936
    edited November 2007

    Kim, how discouraging to say the least.  I have read, however, that even with mets to the bone, women can do quite well for a very long time and that bone mets are treatable.  It stinks but it's better than spread to other organs.  I do know what you mean about trying to be positive when you keep doing what you're supposed to and getting hit over the head with crappy news anyway.  It's like swimming in glue just to keep moving forward.

    Have you checked out ibcsupport.org?  There's loads of info and support there too.

  • kimmie39
    kimmie39 Member Posts: 319
    edited November 2007

    Thanks for the support, Im really just wigged out.

    How can I wait another 6-8wks to confirm? This is true torcher.

  • mrs_X_Sunneedazee
    mrs_X_Sunneedazee Member Posts: 541
    edited November 2007

    Kim, I am so sorry about your bad news.  I have extensive bone mets and I did taxol and herceptin and had my ovaries removed and am on Aromasin.  I was scared to death when I was first dx, but it sinks in, and you deal with it, and carry on.  It sucks, it stinks, and it isn't fair.  I am praying for you, and know you will have the strength to carry on and keep going and be there for your husband and sweet children.  Big hugs to you!!!!!!! 

  • kimmie39
    kimmie39 Member Posts: 319
    edited November 2007

    Thanks sunneedazee,

    Yes Im terrified, it helps to talk to others who are like myself and understand what it feels like. 

    My local oncologist wants to see me Monday, keep your fingers crossed for me.

    hugs

    kim 

  • Caseysmom
    Caseysmom Member Posts: 507
    edited November 2007

    Kim:  Good Luck on Monday I'll be praying for you.

    Hugs

    Laura

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