To cut my hair or not before chemo

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Joncey
Joncey Member Posts: 10
To cut my hair or not before chemo

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  • Joncey
    Joncey Member Posts: 10
    edited October 2007

    Hi,

    I need some advice...I have long curly hair and will be starting 4 doses of AC chemo next week.  My oncologist says that I will have complete temporary hair loss.  For those that have lost their hair, would you recommend I get my hair cut short, before I start?

    It would be fun to get a really cute hair cut, that I wouldn't normally attempt otherwise.  Any thoughts?

    Thanks.

  • BrendaK
    BrendaK Member Posts: 55
    edited October 2007

    Hi, 

    Sounds like fun!  I too had long hair and had 4 AC treatments.  I did not cut my hair until it really started to fall out, which was exactly 2 1/2 weeks from my first treatment.  However, I waited 3 days after it started to fall out before I shaved my head.  I think that caused me more grief walking around with my hair falling out, right after I shaved my head, the weight was lifted and I felt so much better about myself.  Sounds like you will have fun with a short cut, sometimes I wish I would have got the short cut before it started to fall out.  Remember, "I am not my hair".  Our hair does not make us the person we are inside.  Being bald is not a big deal to me.  Get some hats and scarves, maybe even a wig. I do not wear wigs - they are too hot and too expensive for me.   

    Remember to stay positive.  Hugs, thoughts and prayers to you.

    Brenda

  • bomber410
    bomber410 Member Posts: 564
    edited October 2007
    Is it long enough to donate to Locks of love?  Mine wasn't.  But I'd bet it would feel good to do something useful and proactive under the circumstances.   In fact, someone here just recently on one of the boards said their spouse cut his long hair and shaved his head for her.  He donated his hair to locks of love. 
  • tooyoungtohavebc
    tooyoungtohavebc Member Posts: 779
    edited October 2007

    Losing my hair was one of the worst parts of treatment for me. I just did not want everyone to know I was sick, but I did shave as soon as it started coming out and you would not believe how many compliments I got on the short hair..cuz it took a while to go completely bald. Even men were complimenting me. Shaving it off helped me cope with it better.

  • Bonnielv
    Bonnielv Member Posts: 353
    edited October 2007

    I don't think there is any right answer.  You need to do what you are comfortable with - after all this is all about you.  I start chemo next week and onc told me I will lose my hair.  I met with a wig/scarf consultant today and she asked if I was planning on cutting my somewhat short hair shorter or waiting and then shaving.  My husband almost had us on the floor, he wanted me to get a crew cut (seriously)!  Anyways for me I felt it would be to difficult to cut my hair short and then  a few days/week later having it shaved.  I made an appointment for go "natural" a few weeks after I begin chemo.

  • Joncey
    Joncey Member Posts: 10
    edited October 2007

    Thanks, great feedback.  I've made an appointment for Tuesday and start chemo on Thursday...should be fun!  I hope I don't end up with a curly little 'fro:)

    This is the right decision for me, because I rather not see long strands falling.  I'll have to look into locks of love, because I have colour treated hair.

    Thanks again.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2007

    I was told I had about an 80% chance of hair loss before I began my chemo.  So, I had my long hair cut short 'just in case,' and held out hope I would be in the 20%. (Not to mention I figured it would be easier to deal with short hair leaving me than the long hair I had.)

    I was told, "if it doesn't come out in the first two weeks after chemo chances are you're going to not have to worry about it."  Well, I hit the two week mark and thought, 'fantastic.'  The day after the two week mark I'm sitting on the couch withe one of my nieces and my head starts to suddenly itch..badly.  I scratched my head and as I pulled my hand away from my scalp...my niece's look on her face said it all...there was a large amount of hair in my hand.  She pats me on the leg and says, "Na-na, if it's itchy, just don't scratch it." (How cute.) I was bald in about four days. 

    A footnote, though...I would suggest getting it cut short, it will be easier on you mentally.  I also took the opportunity, knowing myself, that I wouldn't deal well with the hair loss, so I had my doctor put me on a anti depressant.  She did, thankfully, and I dealt with it and the overall experience alot better than I would have without it.  Good luck.

  • Joncey
    Joncey Member Posts: 10
    edited November 2007

    I ended up getting a cute little cut a few weeks before I started chemo.  I also thought I was going to be a part of the 20% because my hair didn't start to fall out until 19 days after my first dose.  It started with a few strands each day, but yesterday, two days after my second dose, it just came out in clumps while I was in the shower.  My mom cut some of the longer strands and then when my husband got home, he shaved my head for me.  Although I was expecting it, it was a little sad to see it go.  I know it's just hair and it will grow back, so I've over it today.  It's good to know that I have a cute little round head:)

    If you've been told to expect complete temporary hair loss, have fun with it.  Get a cut you'd never try in a million years.  Go hat, scarf or wig shopping and as the other ladies have mentioned, we are not our hair.  Watching it fall out, means the treatment is working.

    Good luck and thanks for the support.

  • snowyday
    snowyday Member Posts: 1,478
    edited November 2007

    I waited until it started falling out before I had my son shave it right down.  My hair hurt when it fell out, I talked to another women having chemo beside me and she said the same thing it felt like when you wear your hair up for too long and take it out but it felt like that all the time. At one point I grabbed the scissors and started hacking it and throwing it in the garbage but it still hurt under my turban thats when my son shaved it.  Did anyone elses hurt?

    If you have nice hair and I was told they want virgin hair (don't know if that's true anymore). I would cut and donate it.  Losing my hair didn't really bug me but my eyebrows that makes me nuts silly but thats what really bugs me.  Good luck it's such a change.  I know my problems will start with it growing back I get impatient and what it back fast and that doesn't happen.  It is great not having to shave legs or get sugared little tiny bonuses.  Good luck and be proud no matter what.

  • vhqh
    vhqh Member Posts: 535
    edited November 2007

    I have always had long hair and have decided to wait and see, I know it's only a 25% chance I can keep it and even then it is likely to get thin but neither my sister or mother lost their hair during chemo, of course they were on different meds.  It it goes, it goes and I'll start playing with hats, I don't like the thought of a scratchy wig but I may pick one up just in case.

  • my3girls
    my3girls Member Posts: 3,766
    edited November 2007

    I hoped and prayed that I would not loose my hair, but of course the doc was right..and it all came out.  I found it helpful to cut my long hair to a chin length hairstyle.  It was cute and fun, to have a whole new hairstyle.  Then when the hair started coming out, I had my head shaved..and that was very liberating!  I wear a wig to work, and hats most everywhere else.  At first I wore allot of scarves.  Have fun, it's only temporary.

    My hair is now over an inch long...and I am ready to take off the wig and show off my new hair...in about a month..haha.

    good luck to all

    xoxox

  • conniehar
    conniehar Member Posts: 954
    edited November 2007

    I waited until it started falling out and I am glad.  I just finished chemo and trust me you want to keep your hair as long as you can.  Cutting a new short do would be fun, but I wouldn't shave it until you have to.  I am really sick of being bald and wearing my wig so I am glad I had every day I could with my real hair.

  • jay66
    jay66 Member Posts: 112
    edited November 2007

    I had my hair cut short before my first round A/C. I found on the 15th day it started to fall out and got very itchy.By the 18th day I had my brother buzz my head as I found it annoying to have hair everywhere,floor, pillow, shower and shoulders. So off it went. Feels weird and looks, well cant decide yet. But on the other hand it will grow back so onward and forward.

  • noxap
    noxap Member Posts: 1
    edited January 2008

    I am to start chemo on Friday and am thankful I've found this posting as I am not alone in this.  I have long, red curly hair & am dreading it being gone.  Worse than that, is just the thought of having to deal w/chemo in general.  Anyone else out there that's gone/going through this w/children?  I have 5 & 3 being under 5 years.  I think I'll go short & sassy b4 shaving though.  Thought a short cut w/died black ends would look very cool.  For anyone interested, I finally found a website with hats I like:  www.softhats.com.  Thanks for the postings!

  • petelzmom
    petelzmom Member Posts: 170
    edited January 2008

    Boy I remember the stress of waiting for my hair to fall out. I cut my hair short just prior to starting chemo. I really resented it. My hair actually looks best short but I got into a snit over it.

    I would pull on my hair every day to see if it was coming out. The first day that I got a few extra hairs I shaved my head.

    I found between my first and second chemo my scalp felt funny. Shaving it brought some relief. Here is a tip, your scalp will still have some whiskers that grow and then fall out and you get itchy. I would use a tape style lint remover on my scalp and remove the whiskers each day and it kept me from having the "haircut itchies".

    Good luck ladies, keep the faith and stay strong!

    Carolyn

  • susangreenan3
    susangreenan3 Member Posts: 1
    edited July 2011

    hi my name is Susan,i have just joined the forum.i was diagnosed with invasive and ductal BC on 2nd june,had SNB 22nd june and am due to start chemo 14th july the FEC-T treatment.feel sad about it.its all happening so fast.i am sad to be told i will lose my lovely long black hair.i know hair is not the important thing but it means something to a lot of people.does hair always fall out during FEC-T treatment or should i wait to cut my hait after first treatment.dont know what to do.and for anyone thats had this treatment do you get very sick and fatiqued,i have 4 children and want to prepare myself.thank you all x

  • mamachick
    mamachick Member Posts: 229
    edited July 2011

    Susan- I am not real familiar with all the terms, so I am not familiar with  FEC-T. I too had long curly hair that I was not ready to part with.  I decided to get a really cute bob cut before I had any surgery and chemo.  I found that it helped my 3 kids and prepared my husband also, who loved my hair.  We also had a head shaving party when my hair started falling out, at Christmas.  Shaved it the day after Christmas.  It helped to do this and we invited people to share the experience and kept it real positive.  I found losing my hair very hard.  Once it was gone I felt better because I couldn't do anything about then. Not that you can anyway.  Wish I could answer more about your chemo, but I am sure someone on here can give you some answers.

  • MissBoyd
    MissBoyd Member Posts: 1
    edited June 2017

    I know this is a very old thread, but it is apparently timeless. I have donated to Locks of Love before. A few years ago, I went to the Paul Mitchell Beauty School and asked them to let a student cut off a dozen inches on a whim. They made it quite a party! I recommend considering offering the opportunity to a student/class demonstration. Now, I have about 36" of thick virgin hair (2 small shorter spots from surgeries not noticeable). I have wrestled with impending hair doom and gone back and forth. I had first AC chemo yesterday. I now decide to get braids this week or early next, and to get them cut next week, to keep and make my own extensions or to affix to a wig. Looking forward to this helps me assuage my current attachment to the comfort of my hair at my elbows and on my back.

  • Denise-G
    Denise-G Member Posts: 1,777
    edited June 2017

    MissBoyd - thanks for your post and your experience with Locks of Love...

    Wishing you all the best on this new hair loss. Hair usually begins to fall

    about 12 to 15 days after AC #1. What a great idea for your braids!!


  • Scarlett1
    Scarlett1 Member Posts: 23
    edited June 2017

    I have had chemo three times so far and have tried 3 methods: 1. Do nothing - just wait for hair to fall out. 2. Shave head just before chemo starts so hair does not fall out everywhere. 3. Cut hair very short with clippers so less hair falls into bed/clothes etc.

    Of the three, I strongly suggest # 3 - have your hair clipped short.. My reasons are as follows. When I tried #1 - just letting my long hair fall out.... I found it to be very traumatic. Hair was everywhere - all over my clothes, my sheets, etc and it looked terrible with patches of baldness. The next time I went through chemo (I have had 4 cancers), I thought I would play it smart and shave it all off to avoid hair trauma. I went to a salon and had it all removed to the scalp. I did not consider that my hair is always growing, however, so - I had short little hairs always falling onto my pillows and clothes - like the short hairs you have after a haircut that you must shower off before getting into bed. I itched terribly and had tiny little hair everywhere and would never do that again. With #3, my hair came out easily with no trauma or mess - no itching or big patches of baldness. I strongly suggest the 3rd method to make the hair loss an easier issue to deal with. Good luck! Be Well!

  • Larlour
    Larlour Member Posts: 1
    edited July 2017

    Thank you Scarlett. I am starting chemonext week. Your experience reassured me in my decision to cut my hair short.

  • Catok
    Catok Member Posts: 1
    edited July 2017

    Thanks for the info. I start chemo 7/28/2017. Have hair to mid back. Hard for me. I have spent years growing it out. Struggling with decision to cut it short now.

  • molliefish
    molliefish Member Posts: 723
    edited July 2017

    I had shoulder length very thick hair that I braided every day for work. I didn't shave my head but had it cut short after the first round of chemo.. I started chemo on August 14 2015. I did have it cut short about 3-4 inches in length but even then I was losing hair so rapidly that I had my head shaved on the 2nd of September 2015. So 19 days. It was awful for about the last 5 days before I had it shaved. It was coming out in massive handfuls and it would fall out and drift down my arms when i was just sitting there. It was a constant reminded of the situation. I'm not sure why but after I shaved it I felt so much better. More in control of something and less sick. I'm not saying this is for everyone but it sure made me feel better after watching my beloved hair fall out every day, and having bald patches in the strangest places. On the upside I am almost 2 years out from first chemo and I have about 5'inches of the curliest hair I could imagine. It's been a real treat and opportunity to try new things with my hair. Too bad for the reality of it, but hey when life serves up lemons............
  • octogirl
    octogirl Member Posts: 2,804
    edited July 2017

    while I think I may be in the minority on this, I chose not to cut my hair or shave my head, even after it started to fall out. At one point I had made an appointment with my regular hairdresser to shave it, but I cancelled the appointment. My hair was very thick and wavy (though just shoulder length) and losing it honestly was the hardest part of chemo for me. ...but anyway, I just couldn't bring myself to shave it; I kept thinking that if I did I would always wonder what would have happened if I hadn't shaved it. Would it all have fallen out? I kept thinking I would shave it if it felt right to do so, but for me it never did feel right...I did use lint rollers actually on my head (which seemed weird but felt really good for the itching).....and yes, eventually it did all come out. leaving me totally bald.

    And I was sure my hair would never come back, but while it took its sweet time, in fact it has, much curlier and softer than before chemo. It took me a long time to embrace the new curls (even though objectively I knew they looked good) but now, about a year after it came fully back, I've finally gotten to the point where I can admit to myself that my hair is nicer than before chemo. At first it was awkward and even hurtful when I get started to get compliments from people who don't see me often and who didn't know I'd lost it ("Oh, I love your new hair style! you look great! did you get a perm?" ) Now, I just smile and say 'thank you', and can admit to myself that I like the new hair.

    Would I want to go through that again for the same result? Hell no. I still miss my old hair and my old self.

    Octogirl

  • Meow13
    Meow13 Member Posts: 4,859
    edited July 2017

    No one tried cold capping?

  • GerryM24
    GerryM24 Member Posts: 1
    edited November 2017

    Thank you, Scarlett. I was not planning to cut my chin-length curly hair. Your post makes a lot of sense. Now I think I will get my hair cut very short. Although the short haircut won't last long (I start chemo next week), it will help me imagine how my hair might look when it starts to grow back.

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