Anyone starting Chemo in August 07?
Comments
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Hi All,
Thanks for thinking of me, Kaye. I have not been on the boards much. I finished chemo 2 weeks ago and am feeling really good. I went back to the gym today and am going to attempt spin class tomorrow. Yikes! I'm hoping to start volunteering at my kids' school too. We've been crazy busy with soccer etc... I see my onc. at the end of the month, then every 3 months for a while. Now I want hair and my exchange surgery. I can't wait! I hope you're all doing well. Hang in there!
Eve
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Harley - NO FAT????? WOW I probably had enough extra fat for boobs at 8 yrs old. (sounds funny but no joke).
Jackie - Yep sounds like typical Taxol side effects to me. Im going to say his again be sure your bowels keep going!!
Wish I had some helpful info on tram flaps. Ive been looking into reconstruction to. And Im disappointed in the pics Im seeing online. Most natural looking seem to be implants, but because of rads I dont think I can have them. Maybe we can help each other out researching?
Im counting down the days to double mastectomy. 11/28. Have to go thursday for preop testing YEA more poking and sticking. Not looking forward to it. As a matter of fact can I vent for a minute here?
Im tired of being poked!!!!! And I know Im no where close to being done. I have bad veins and from Wednesday to Friday last week had 7 IVs started. Plus I only have one arm they can use so you can imagine what it looks like.
OK OK had chemo #6 Taxol Friday Im tired and maybe feeling sorry for myself.
Thanks for listening.
Hugs
Kim
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Hi Girls,
I have enough fat to make boobs for all of you!!!I'd be more than happy to share! LOL.
Kim, I will be happy to help with research. So far I've been getting differing opinions. Some say implants can be put in with no problem after radiation, others say they will be rejected. I'm going to see the plastic surgeon tomm so I will get back to you.
I hear you on the feeling sorry for yourself. I think Taxol exhausts us so much. I have no energy and it makes me feel sad and tired. Also, my veins are starting to go also. Hang in there. There has to be a light at the end of the tunnel.
Hugs and hugs, Jackie
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Thanks Allot Jackie - Good luck with tomorrows app.
Kim
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Girls,
My PS said 25% of implants fail after radiation. He said he doesn't like those odds and strongly recommends implants with radiation.
I'm not sure what to do either. I originally had lumpectomy, but oncologist suggested a mastectomy could improve overall survival. But I have to have rads and don't want the major surgery of a DIEP or tram flap.
I am glad to be done with chemo, but as I still feel like crap this week, I'll appreciate being done more when I can move without hurting and can feel me figners and toes again.
Hope you all enjoy the Thanksgiving holiday,
kidsmom
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Hi Everybody,
Ah, yes. Taxol and fatigue. They do seem to go together. I just get randomly tired out of nowhere sometimes. I learned this week just how hard the Taxol is on my WBC counts. I've been getting the Nuepogen shots two times a week, and then my chemo every Friday. Last Friday my WBC before chemo was sky-high at 19.2, and my neutrophils were 16.2. Both numbers were twice as high as the high-end of normal, so I was a little concerned that maybe I shouldn't get the Neupogen shots this week with my numbers so high. Well, just to be sure, we did my blood counts on Monday, and just three days after my Taxol tx, my counts had dropped all the way down to 5 for WBC and 3.2 for neutrophils. Even though those numbers are still in the normal range, it illustrates just how harsh the Taxol is on the old blood counts! Heck, if it can make your counts drop by 75% in just three days, it's no wonder it makes us feel tired!
Just thought I'd weigh in with what my PS told me about the implant question. He said that putting in implants after radiation has more complications. I currently have an expander, and he wants to do the implant exchange before I have rads. He said that the studies are now showing a better outcome if the implants are in place before rads are done. There is greater risk of infections and healing problems if done after rads.
Now, that is not to say it can't be done. I work with a woman who had a lumpectomy and radiation about three years ago. Then she had a recurrence last year so had the mastectomy and expander, then implant. She experienced a lot more pain because of the radiated tissue, but she's been pleased with the final results and hasn't had any other complications.
I trust my PS a lot, I heal pretty quickly, and I'm eager to get this mini basketball out of my chest, so I'm going to do the exchange before rads. But, I guess we all just have to do what we feel comfortable with.Kimmie, I'm so very tired of being poked too. I just had that same thought today as I got my 2nd Neupogen shot of the week (good gravy those are stinging little buggers!), and I started counting up how many times I get poked in an average week. Too many was the answer! I'm putting your surgery date on my calendar so I can remember to send lots of warm, healing vibes your way that day.
Hugs all around.
DeAnn
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Hi Ladies,
Hey Eve - I'm so glad you're feeling so good! It's so great to get back into the mainstream of life again, isn't it? I walk over to the rad office (5 min) and walk back (5 min) and someday I may bring my running shoes and try to run a bit. (15 seconds. max. if i can make it that long.)
I feel so good, that it shocks me when I look in the mirror and realize - i have no HAIR. WHAT?!?. All summer long I couldn't have cared less what I looked like, and now it's like: What the heck HAPPENED???? And WHY DO I LOOK LIKE THIS??? And HOW CAN I FIX IT???
Then I come to my senses and realize what just happened. And I'm just glad to be here. I'm grateful for every day. I'm grateful for each one of you girls for walking with me.
Thanks ladies,
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Hi all,
Sounds like allot of good things happening. Kato WOW it seems so lond ago I cared about my looks either!! Im finished chemo but still neck deep in cancer land. I know there is a light but Im not close enough to see it at the end of the tunnel yet.
DeAnn thanks for the healing vibes. Im SOOOOOOOO confused about the reconstruction. I still have plenty of time to figure it out but I think focusing on it gives me a constructive diversion. My Taxol from Friday is taking its toll and boy am worn down.
Hey yall ocycodone makes me itch, have you had anything else for bone pain that works?
Kim
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The reconstruction issue gave me such a headache when I was pondering it that I gave up and just went with the lumpectomy. Although my boob looks so bad (the surgeon removed an entire quadrant of my already not very large self) that it really could use an implant to make it boob shaped again.
My surgeon said she has about a 40% fail rate with implants after radiation.
This is totally off-topic, but I just have to share b/c it was so annoying, although in retrospect it is really pretty amusing in a pathetic sort of way. When I was picking up my son from school today, some idiot mother illegally parked and left her truck, blocking everyone in. When she returned with her child, she glared at me as she randomly leapt in from of my car with her child in tow, as I was trying to manuver around her stupid truck. Being in a cranky sort of mood, especially since this was the second time in two days some idiot mother lept in front of my moving car out of nowhere and glared at me, I rolled down my window and shouted, "You can't just leave your truck right there!" She screams back, "But I did--HA HA HA!"
Good grief.
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Hi Girls,
Just thought I would weigh in on the implant issue. I went to my ps today for a final boost on my skin expanders. He does not want to go with a regular implant on my right breast (cancerous) because I will be getting radiation. He says the radiation effects your skin on the inside and the implant gets very hard. He refuses to even consider putting an implant in before radiation. Halfway through my rads I have to go there to see how the radiation is effecting my skin(burns?). Then we will discuss a dorsi flap or tram flap on the right side and regular implant on left. I hope I'm explaining this right.
Anyway, he seems to be against the nice, easy implant at all on my right side. I'm a little confused, but I really feel comfortable with him and his staff. I do trust him. But I just don't want another surgery. They gave me info. to read so I will check it out.
If any of you had the implants before rads or right after can you let us know how it worked out. Thank you.
Lots of hugs, Jackie
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Hi all,
Nash - I will never understand what people are thinking about when they do stupid things AND THEN ARE RUDE ABOUT IT. I just don't get it. I do stupid things all the time, but I'm (a little sanctimonious arrogance, here) usually pretty apologetic about it when it's brought to my attention. And I think it's getting worse...the older I get, the stranger and more in-your-face people become. And I love that her children watched the entire episode. Do I see a pattern emerging?
Rads are going well. I've begun to have a little rash about 4 inches up from my nipple from them. It's really itchy, somewhat like a heat rash in the summer. The 2.5% hydrocortizone they gave me is doing very little to alleviate the itch, but it's only been 2 days. Ah, but now the good news: I've done 13 of 33. My math tells me that's 1/3rd done.
More news: I CUT MY HAIR. (And my son NOTICED.) I had 13 that were about an inch long and looked as though they were desperate to escape. So I let them go in peace. Now I have a nice even 1/2 inch snow-white buzz. I look like a Pug. However, I think my eyelashes are finally going. Isn't THAT interesting. I kept my brows, and my lashes this entire time, and NOW they go. I had heard somewhere the second week of rads will do it. It's probably residual chemo...they don't regenerate quickly, so it's just taken them this long to figure it out. It's ok. I'll look like a light bulb for christmas.
Hey girls, Hope everyone is ok.
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Nash - Kato couldnt have put it better (she has such a way with words) so Ill just say DiDDo about the ignorant mom.
When you ladies that are considering reconstruction went to the PCs office did the PC have good pics to show you? Most all the pics I see are just not appealing. Its upsetting to me. It would really make this easier if I felt like in the end Ill be able to have some cosmetically appealing boobs. Yea Yea I no all the logics, AND YES YES YES LIVING is Far more important. But I would like to have boobs like most other women. Is that Really so much to ask?
I read some sites for reconstruction and some say things like "It is our goal to make the reconstruction cosmetically appealing while clothed"
Im like WHAT??? Thats your goal??? What about when shes all alone or when shes being intimate with her spouse? Isnt she entitled to be appealing then as well?
I feel like they are saying its OK to be left mutilated as long as the general public cant see it.
Ok I know Im ranting again. Feeling the pressure these days. To many unknowns to much bad.
Once again Just to make me feel better
I WANT MY OLD LIFE BACK!!!!!!!!
I m stopping now , Thanks a mil for putting up with me.
Hugs in Va
Kim
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Kato - Im SOOOOOOO Sorry for not responding to your post! I was busy ranting and raving and got tangled up.
Im smiling from ear to ear (really) at your rad progress!!! Continue to blaze a trail for the rest of us. AND a hair cut, I just gave my friend my shampoo. she was out and Im not going to need it for awhile when I do need shampoo I'm gonna celebrate.
I love the way you write. You should consider writing in some capacity. You keep me laughing and your sweet positive attitude helps me stay realistic when Im feeling really negative. Thanks
HUgs to all
Kim
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Kim--I PM's you some reconstruction picture info from youngsurvival.org. Some of those women have gotten very good results with their surgeries.
Kaye--I think being a light bulb for Christmas will be very festive!
And thank you, girls, for validating my irritation with the idiot parking lot mom. The sad part is her behavior in front of her kid. What's also sad is that people like this bring out the worst in me--it took a lot of self control not to leap out of my car and strangle her. I keep telling myself I must not inflict cancer frustration on the general public, however rude they may be.
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Hi Girls,
Hey, I did Taxol #6 today which means I am halfway done!!! Only 6 more to go. Whoo hoo!! They really haven't been too bad for me, but I do miss my eyebrows and eyelashes which finally gave up the ghost completely in the last two weeks. I do, however, still have leg hair. How is that fair?
I'm so glad to hear that rads are going OK for you Kaye!! I am totally laughing over your light bulb comment. First we scare the kids at Halloween and then we light up at Christmas!
Nash, thanks for posting the info that there are pics at youngsurvival.org. I'm also very curious about what I can expect. Everything says that they try to make you look as normal as you can when wearing a bra. Well, I pretty much hate wearing bras and go "au naturale" most of the time with just a camisole or tank top underneath my shirt. So I have no idea what I will end up looking like, but I've kind of gotten past caring. I don't even wear a bra much with my expander unless I'm wearing something "ahem", form-fitting, and since I have no real form, I would look a tad lopsided! Its amazing how much of the current fashions are designed around boobs and cleavage! Makes it a bit tricky to shop. Good thing it is now winter here in MN and I can wear bulky sweaters!
DeAnn
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DeAnn--I PM'd you about the photos.
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Kaye,
I'm so happy that all is going well with your rads. I love the fact that your hair is growing back!!!! Keep up your sense of humor!
Lots of hugs, Jackie
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Hi Ladies,
Thanks so much for the kind words...(It helps to have a drugged, captive audience.)
Congrats to DeAnn - halfway done is halfway done!!
I have a great idea for all of us who still shave their legs (twice a month...but still) Transplants! The Leg Hair to the Eyelashes. We could get rich! There's got to be a way.
Ok, Nash was being all useful again
, and i got jealous so I thought I, too, would be useful. So I dragged dh into the office from his morning repose and made him teach me to insert a link. Again. So what we have here is something I found on these boards somewhere that was fascinating to me. (sorry. I'm fascinated by flying dust and dead bugs, too.) To my understanding it is a bc survivor who happens to be a photographer and she documented her hair growth by weeks. I printed it out and wrote my own dates above the pix just so i have a sense of progress. (Time has now stood still.)
The link is to the photos. (I think dh is just showing off.)
http://www.karinstack.com/images/hair/HS_grid.jpg
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Kaye,
HOW did you get your hair to grow so fast?! Mine still looks like pic#3 of yours!, and I am almost 6 weeks post chemo!!! I am SO jealous!!
That IS your hair, right?? WOW!
HARLEY -
Definitely fascinating!!!!!!!!!!!!!
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That's a really cool link, Kaye. I miss my hair, big time.
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Harley, Harley, Harley....nooooooo. This is the hair of some photographer. Her name is Karin Stack. I'm at about #6 if you count left to right. Mine will never be that COLOR of course. But it gives me hope that someday I, too, will be able to use hair spray.
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I miss my hair, too, Nashie...don't worry. Our hairs will find their way home again someday soon. You'll see.
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Hair , right now its a four letter word
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Have any of you seen a therapist?
My oncologist recommended a lady for me and Im supposed to go Wednesday but I dont know if Im going. She charges 140.00 for 50 min!!!!
Shes not even a psychiatrist. Shes Psychologist. Im I wrong in feeling like thats alot to charge?? It just seems excessive to me.
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Hi Kimmie,
I'm not well versed on therapists, but common sense says to me that's a lot of money - have you tried free options first? Frequently local churches have counselors that serve the community for no charge. I am aware of good results from some of those. To be fair, I'm also aware of what I would consider bad advice from both "professionals" and local church individuals. As in anything, the counselors themselves make the difference...not the amount of green that passes hands.
I'll do a little research and see if I can pm you some names of churches in your area that might help.
It would be a place to start.
(Just want you to know that I understand...big hug to you.)
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June - how are you? My calendar says your last tx WOULD have been last Friday, but that didn't happen, (or did it?) So how are you now?
I hope you're feeling better.
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Yes, I was thinking about June this morning, too. Hope you're feeling better, June!
I had tx #5 last Thursday. Sure do feel the cumulative effects. Dang.
Kim, I think Kaye's suggestion of free options for therapy first is a good idea.
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Hi Everyone,
Thanks for thinking about me. No, I didn't have what should have been my last Taxol tx on the 16th. They just flat out said no more chemo. It's been 10 days since last tx (#7) and I am just barely coming around from the side effects. The bone pain was also pretty awful and again lasted exactly 5 days...strange huh? The absolute worse though was the n & v. I know how many of you suffered through horrible nausea with the A/C and yet with the A/C I never had one moment of nausea. Everything else maybe but not that. Oh well, I've gone as far as I can down this road and await my surgical consultation and follow-up ultrasound on the 30th. I don't know how long they will wait after the lumpectomy to start my rads. I don't suppose they can start radiating on skin that isn't totally healed. Anyway, it's good of you all to think of me. Just been to "pooped to participate". :>
Eve: Spin classes???? I'm dizzy already and it's NOT because I'm a natural blonde!
Kidsmom: How is the neuropathy? My feet aren't as bad but boy oh boy my hands are paying the price.....feel like they are more numb each day. Oncologist said it could take up to a year to return to normal.
Kaye: I think of you each day and am so glad the rads are going well. Have you found anything that helps the rash? More than 1/3 of the way through now.....you go girl!
Kim: Congrats on finishing the "nasties" (chemo)
After trying multiple meds for bone pain, the only thing that helped me was 50 mg. of Demerol. It doesn't actually make the pain go away...just knocks me out so I'm not aware for about 6 hours.
Nash: Sorry to hear about your fatigue...God, do I relate. It sort of sounds like you are one of a few on our board who had a lumpectomy. Did you stay overnight? How fast did you heal?
I haven't heard any of you all talk about your holiday plans. Is everyone staying home and cooking or carrying in or what? In spite of everything that we've all been through this year I know each and every one of us is so grateful to be here and able to fight the good fight. I pray that next Thanksgiving each of us will be able to say thank you for I am cancer free!!!!!!!!!!
Wishing all of my sisters a blessed and wonderful holiday.
June
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Hi, June--I'm glad you're on the upswing. You've had more than your fair share of chemo angst, and I'm glad it's over for you. The onc wouldn't have pulled you off of the stuff if it wasn't for good reason.
RE: lumpectomy. Mine was easy. It was done as day surgery. I just had a SNB, so no drains. It was actually a quadrectomy, as the tumor was fairly large, and the surgeon had to take out pectoralis muscle b/c of the tumor location, but the pain was very manageable. I only took Tylenol for about a day. I was driving after five days.
My DH is cooking for Thanksgiving--I am just responsible for pie.
And that's only b/c I'm insisting on baking, as I really love to. We have my BIL coming over, and that's it. I, too, hope everyone has a wonderful holiday.
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