June 2007 Chemo
Comments
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Go DebbieK!!! My hair sounds a lot like yours but the top isn't as filled out - looks like receding!! The back is the fullest - looks and feels like a baby chick! cheep, cheep.
Cyndi - I agree with that comment but I have a feeling we'll all be fussing about bad hair days eventually - won't that be awesome!!
Dawn
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Hello all!
So are we all done now???? No more "chemo girls"? Congrats to ALL of us!
Debbie I'm almost to the point of "no hat" also..... maybe another week or so; I'm getting tired of being called sir, when people don't look closely at who they are speaking to, LOL.
I went for my 6 month post dx mammo today..... ALL CLEAR! They did both mammo and ultrasound on both the reconstructed side and the reduced side. I was a little nervous, not so much that they would see something, but because of the "changes in the boob geography",
. The tech was actually going to look to compare my leftside (reconstructed) to my last film. HA! I said don't bother honey..... it's completely different..... a lot less there!
Anyways I've also got 11 of 28 rads done! Hurray!! I'm really starting to see that light at the end now........and with the holidays upon us, I'm hoping and praying that the new year will be bright and healthy for ALL OF US!!
Hope you're all well!
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Cyndi, woohoo on your upcoming LAST chemo. It's such a feeling of relief to be done with this portion of treatment. I wish you minimal SE. Kudos on the new job, sounds very interesting and working from home, can't beat that!
Bonnie, great news on your 6 months mammo! "All clear" is about the best two words in the english language.
DebbieK, I'm almost there on the no hats policy. Sometimes I forget to put it on when I'm leaving the house and make one of the kids run in to retrieve it for me...hey, isn't that what kids are for? LOL
Has anyone heard from Kathleen? When was she visiting her daughter in Italy, about this time I think. Can't wait to hear about her travels. Hope she's doing well!
I am so stuffy from a cold, ugh. Had a blood test done today for diabetes which I've been neglecting due to my cancer tx. Hope the numbers aren't too horrible. Tomorrow is a second opinion visit with another onc about starting an AI, I just want to click with this dr so wish me luck that it happens.
My port site is sore too, or where the port used to be. I think it's just scar tissue but I'll have the onc look it over tomorrow.
Hope everyone is having a wonderful week! Enjoy the waning days of fall.
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Today was my first day at work without my head covered. It went very well. I told my husband that I didn't even hear anyone run out into the hall and scream after they saw me!
It was soooooo nice to not have my head covered up, and I am glad I took the plunge.
I have finished 7 radiation treatments, and they are going fast. So far, I feel fine. I am so happy to be able to go to work and feel good all day long.
Terry, my port site is still sore too. It is on the bad side so I suppose the rads aren't the best for it either. Sorry you have a cold, take care of yourself.
Can't believe we all are done with chemo; it seemed like it would last forever when we were writing to each other in July!
Take care all,
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Hey! I'm not done yet...but I will be on Thursday!! At least I hope so. I have a cold too and a sore throat and I hope that doesn't delay anything. Does anyone know if they make you wait if you're sick? I will be crushed if they postpone my last tx.
I have noticed that some of the no color fuzz on my head has darker roots! So that must be new growth. Nothing in the eyebrow or eyelash area though.
Terry, thanks for the good thoughts. I hope you click with your new onc. It's such an important relationship, isn't it? I had my blood sugar tested last week but haven't got the results yet. I was supposed to go today but cancelled because I just didn't feel like going. I had gestational diabetes and both my parents developed type 2 so I am at high risk. I totally understand ignoring it during BC tx but make sure you watch it. It can cause some nasty problems.
DebbieK, glad you didn't scare your co-workers! It must feel so good to not have to cover your head. When you say your port is on your bad side, do you mean the side you had BC on? I hope the soreness goes away soon.
Bonnie, congratulations on the all clear!! That is fantastic to hear!
Can't wait to join you all!
Cyndi
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Howdy all. I am well into rads now but like to check in with you all to see how it's going.
Shrink - Congrats on finishing up with chemo. I love the quote about the high "maintence costs".
Dawn - Congrats! You deserve the celebratory cake!
Cyndi - That's so great you found a good job that will allow you to work from home.
Terry - My eyebrows made it all the way through chemo then last week they almost disappeared, too. What's up with that??
DebbieK - You are so lucky to have your hair coming in to the point you don't need a hat. Mine is thin and fine with scalp showing but, hey, it's better than bald.
Hope all are having a good week.
Linda
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Cindi,
I too can't wait for hair...I try not to get depressed about it but it is so hard sometimes. My last chemo was Oct 17th and I am seeing some growth...the thing is I did lose all my hair so the stuff that was left looks like an old lady's hair and now I have growth in between...not sure if I should cut all the old stuff off or just leave it....
Terri,
I lost part of my brows too without knowing it after the hair loss...right in the middle of the brow I have no hair and the middle of the lash line is missing.
Dawn, Congratulations on your last chemo...hope you are feeling well! I think I had last stomach problems with the last one because I knew it was the last!
Everyone have a great day! Barb -
Bonnie - good to hear you got the all clear - such a relief to hear some good news!!
Terry - hope the cold blows over quickly and your sugar numbers come out okay - I love the fall, raking and all!!
Go DebbieK!! I can't wait to not worry about covering my head. I never thought I'd be this vain and it's probably not the correct word but I sure get tired of being "looked" at and I do believe it would have been worse without a cover.
Cyndi - tomorrow's the day!! I think as long as you don't have a temperature that you'll be good to go. Check in tomorrow to let us know you are done, done, done!!!
Linda - good to hear from you - guessing rads is going well for you!!
Barb - I had a real hard time with the last A/C - explained it to my family that it was hard mentally knowing how crappy I would feel but I was much better with the last taxol!! Such a big difference between side effects. I will continue the herceptin through next August and start radiation in about two weeks. Not seeing the light at the end of the tunnel just yet but so very happy to be done with the toxic drugs.
Here's to all of us getting our hair back asap!!!
Dawn
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Ciao Everyone!
It was great to come home and read how well you all are doing!
Cyndi, you should be done with chemo now! Congratulations!
Shrink, I was so happy to hear you were done and the tumor had shrunk so much. What wonderful news!
I want to respond to each of you, but I'm still recovering from jet lag so I will make this short.
I just got back last night from 12 days in Italy...Rome, Cinque Terre, Florence, Venice, Milan and Lake Como. Nonstop travel with my best friend as we were celebrating our 50th birthdays and visiting my daughter who is studying over there. I had a wonderful time. I was achy and sore from walking and walking and walking and stair climbing up Duomos to see the views, but it was worth it. Honestly, other than having to put on a wig every day, I almost forgot about the bc. If I can figure out how to post pictures, I will post a couple pics in a day or two.
Like I said, I really didn't think too much about the bc during my trip, but when I was almost home and in the bathroom at LAX there was an older woman with a bald head. I saw her and didn't say anything, not knowing her situation. But on my way out another woman was speaking to her, telling the woman her own story about breast cancer and her hair growing back. So I came up and pulled off my wig to show my head, and then another woman walked up and did the same thing. It was amazing and brought tears to my eyes. Here were four of us women, all of different ages, all with this common bond. It honestly brought tears to my eyes. We spent a few minutes hugging and chatting and then went on our way. But I will never forget it.
I know most of you are doing rads and chatting over on those boards. I wishyou all the best of luck with that. I questioned my oncologist and surgeon about my doing radiation, but they both agreed I didn't need it after my bilateral mast. It's funny how I didn't want treatment in the beginning and at the end it's almost as if I can't get enough treatment. I will continue on this board for a while as I will be getting Herceptin until next August.
I said this would be short and instead I rambled. I think it's time for a nap. Take care and hooray for all the June 2007's!
xoxo
Kathleen
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Welcome back Kathleen! I'm so glad to here your trip was great. I so want to go to Italy someday.
Boy , that sure was a "goose-bump" moment at LAX! We certainly do have a sisterhood don't we.
I'm not doing rads either. I'm now on tamoxifen. Battling hotflashes.
Well , I hope jet lag isn't to bad. Good luck with the herceptin. Melody
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Kathleen - Your trip sounds wonderful. I've been to Venice, Florence and Rome and my SO and I are planning to go to the Amalfi coast in June.
The story with the women on the plane was very touching.
Did you have any lymphedema problems with the air travel or ever after your bi-lat mastectomy?
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Good Thursday, Everyone! Well I have been taking Arimedex for over two weeks and other than a few hot flashes, no major problems. I was worried about having bad hot flashes but so far it hasn't been bad. My onc. told me that some women don't have much of a problem and others have lots of problems with it. He said it does reduce bone density and they did a baseline bone density scan on me. My density is normal so that was a relief. I am taking lots of calcium and I have always been a big milk lover.
No one has told me not to wear deoderant during rads. But I have heard it mentioned on the rads board. Does anyone know why we are not supposed to wear it. I am still wearing it since the doctor hasn't told me not to. 8 treatments done today! Yay!
Kathleen, you trip sounds so wonderful. What a great opportunity for you. Thank you so much for sharing the airport story!
Take care all,
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Welcome back Kathleen! I had a feeling we'd be hearing from you soon. I would really like to see Italy,too - especially all the art and architecture. Maybe one day.. The airport story is amazing. It's like a meeting that was meant to happen somehow.
Debbiek - I am on almost the same rad schedule as you. My rad onc said don't use anything on the affected boob except a cream she prescribed. I have never heard anything about deodorant use. I don't use it just because I am super careful about ingredients in everything. Garnetann my have some input as she is in rads, too. Maybe she will check in with us here.
So far I can't find much to complain about with rads. Just glad for an effective treatment.
Have a fabulous Friday.
Linda
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I AM DONE!!! So I think the Junies are all done, right? Is there anyone out there not done?
My treatment was kind of anti-climatic but that's probably because I'll still be going every 3 wks for herceptin till the end of next summer. So no big farewell to the nurses but I did get a little teary and then when I got to the car I sobbed. My husband didn't understand but I'm just so relieved to be done with this part. I feel like my life has been on hold for six months in a lot of ways. And part of the tears was because even though I'm done with chemo and everyone expects me to be back to "normal", I know that it will never be the same. The challenge now is to make sure life is better than before BC.
Kathleen, welcome back!! Your trip sounds wonderful and I hope you can post some pics. And your LAX story was so great! It just shows you that we have a huge sisterhood out there that we are not even aware of. And it makes me realize that anyone I run across could have been touched by this.
I'm exhausted so I think it's bed time. I'm so glad to join the "done" group. There were times when I thought I wouldn't make it...BUT I DID!!!
Cyndi
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Cyndi - Welcome to the Done Group! We done did it!
Shrink
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Cyndi, congratulations! In a few weeks you will realize how much better and more normal you are feeling. It just gets better from here on. I know I felt emotional too when I was finished and so relieved too.
Rest up, you'll be better soon!
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Hi, Kathleen, your trip sounds fabulous, what a terrific 50th birthday. I hope your daughter is doing well and enjoying her studies.
The LAX story made me tingle with love. Who would think you'd find support in an airport restroom. Just goes to show how this disease affects us, hopefully for the most part, for the better. I'm so glad all of you reached out to one another.
Cyndi, woohoo, it's official, YOU"RE DONE, girl! Welcome to the finish line. :-) I think it's difficult for those who've never had chemo to realize how much it affects us both emotionally and physically. I completely understand your reaction after your last infusion.
I had my second opinion meeting with a new onc on Wed. I like this dr a lot better than my old one and have decided to make the switch to his practice. He is, however, parroting my old onc on the topic of hormonal treatment. Even though my tumor was ER neg and slightly PR pos, he said I would still receive a small benefit from continuing with this treatment, one that will outweigh the side effect risks. They drew blood to check my FSH status but I've decided not to take Tamoxifen if I'm premenopausal and I'm thinking hard about an AI if I'm post.
If anyone has any personal experience with either of these drugs, I'd like to hear from you. DebbieK, it's good to see you're not experiencing any major side effects.
Today in western NY it's very cloudy and I can see teeny-tiny snowflakes in the air. Not sure how much we're supposed to get though.
Hope everyone is in the thick of Thanksgiving plans and enjoy your weekend!
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Kathleen - your trip sounds awesome and what a wonderful reminder that we aren't alone in this journey. The entire scene would not have happened if all of you had been wearing wigs or not spoken up when you saw a bald women.
Melody - hotflashes on Tamoxifen (or at all!) SUCK!!! I had them when I did T for 15 months...................... they did settle down eventually thank goodness.
Debbie - I had my mapping and info session yesterday and they said no deo because of ingredients (aluminum) and the rads. It boggles my mind how each office does things differently.
Linda - good to hear rads is going well. I have my simulation on the 27th and my first on the 28th. Here I go!! woo hoo!!
YEAH Cyndi!!! I know you are doing the happy dance even though you, Kathleen and I will still be doing the herceptin!!! I have my first 3 week dose today and a muga on Monday.
Terry - snowflakes that you don't have to shovel are my favorite! I do like a GOOD snowfall too so I can have a snowman in the yard but just a couple times a winter!
Shrink - how are rads going? I guess I need to get over the rads board and check in for Nov and Dec!!
I think the only person who's not done may be Pam - she hasn't checked in for awhile but I've seen her on other topics so hopefully she is well.
Have a wonderful weekend everyone!
Happy Thanksgiving too!
Dawn
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Lastminute - Thanks for asking. I'm having bi-lat surgery on Dec. 3 prior to rads. The chemo shrunk the tumor to make it operable and hopefully stopped the cancer from spreading systemically. It seems like a very long road. I won't be done everything (except oral meds) until late February.
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shrink - well, duh me. I knew you had chemo first and didn't even think about that you still needed surgery, just figured you were on to rads since you were done with chemo. see, duh.
Are you doing reconstruction as well? I had a mastectomy on the right side with an expander put in - came home with two drains the next morning. I did not have that much pain and the drains were pretty easy to take care of - just hold on to them tightly - if you let go - it HURTS!!!! when it hits bottom mid air. (yes, from experience - only happened ONE time!!!)
I'm saying a prayer for your surgery. Please let us know how that goes; I'm sure you are doing the countdown already...............
Dawn
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Thanks, Dawn, for your prayers. I'm not having recon right away. I've read a lot on these message boards about pain and infections with some of the reconstruction. I hope yours was OK. I think I'll just have the bi-lat for now and, like Scarlett O'Hara, I'll worry about that tomorrow. I will miss my breasts even though I'm 66.
I'm counting down to Dec. 3.
Happy Thanksgiving to all the June bugs.
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Shrink , good luck to you. I will be thinking of you and praying for a sucessful surgery and a quick recovery for you.
Dawn , yes hotflashes do suck! Sometimes I get them hourly , and my head just gets dripping wet with sweat. And when I'm at work it is most embarssing and uncomfortable. So I am gonna ask my onc for something. You have a great weekend too.
Hugs to all and Happy Thanksgiving everyone!
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Shrink, good luck with your upcoming surgery. I'm so very happy that the chemo worked to shrink your tumor!
We all have very much to be thankful for this holiday season. :-)
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Shrink - I'm not sure what I would have done about reconstruction if I had had a bi-lat but with having one taken off I didn't think I could handle waking up with a D on one side and zippo on the other side. As it was, I woke up with a B - kind of weird for a few weeks! Also, not sure what my thoughts would be at 66 - I'm 45, hoping and praying to see 66 at this point. Some of the stuff I've read scares the pants off me. The one in my head right now is that 80-85% of recurrences metastasis within a few months............. I think I read this in Susan Love's book which doesn't take herceptin into account, but................. I can't help it. I'm not freaking, it's just floating around sometimes.
On another note - everyone please be careful in the bathroom!! I slipped on some water - my leg went forward and I fell on my butt pulling the muscles in the back of my thigh badly, been limping around since Thursday morning! I'm so very graceful don't ya know!!
We certainly do have lots to be thankful for!!
Hugs to all!
Dawn
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Hi Dawn:
Glad you were lucky in the bathroom.
That recurrence figure is frightening but, as you say, it doesn't take into account the newer meds which could make a huge difference.
Wishing you well,
Shrink
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after a long break I started my chemo back up on the 14th. The old port site doen't loook good and they are going to have a PS close it back up in the near future.
But I'm back on my chemo schedule and the next set of scan isn't due until mid Jan.
Thank you top all thta wished me a happy bithryday. This has been a crazy month and I'm ready for things to settle down some.
Hugs & Prayers to all
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Well, it's official, I'm in menopause according to the FSH blood test. Don't know if it's nature or chemo induced though and therefore, which hormonal therapy to take, if any....??
I think I need to check in again on the hormone therapy thread and ask some questions there.
Hope everyone is doing well and getting ready for Thanksgiving.
b445, good luck with your new chemo schedule and hopefully the PS can fix the port site. {{{{hugs}}}}
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Happy Thanksgiving Everyone!
We are having dinner this evening at our house. I am so blessed to be feeling well and able to do the usual Thanksgiving dinner with all the trimmings.
13 rads down and 20 to go! So far, no major SE's to report.
Hope you all are feeling well and having a blessed Thanksgiving.
Hugs,
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I hope everyone had a wonderful Thanksgiving!! I know it's a day late but I just wanted to say that one of the things I'm most thankful for this year is finding all of you in this group. I don't know if I could have gotten through the last six months without you!
Cyndi
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Hope everyone had a Great Thanksgiving!
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