Tired of being brused off

Options
milyla
milyla Member Posts: 5

I am 39 years old and have had two mammograms due to the fact that my paternal grandmother and all seven of her sisters have had breast cancer and their mother died of uterine cancer. I have been trying to get someone to take me seriously for eight years.

It all started with pain in my breast. It would not go away, I could not even stand for it to be touched to do an exam. I was put on vitamin E and also had to forgo caffeine. This did not help, they sent me for a mammogram and I was told I had very dense breast tissue but that was all. So I went seven more years suffering, then last year I noticed a mass forming along my ribcage just under my breast. It hurt as well. I once again went to the dr and was told yet again you are to young to have breast cancer, I was 38 years old. I had another mammo due to family history and they did not see anything yet again.

Now another year later and this mass seems to have enlarged and I now have little bumps like a rash or chicken skin along my breast. Also I have a hard ridge under my breast and three hard lumps. I also have pain when I lift my right arm.

I am worried I will be yet again brushed off, yet at the same time I don't know if maybe I am being paranoid about it all.

Has anyone else experienced anything like this. I do not know what to do.

Oops I meant brushed off for the headline. :)

Comments

  • Shirlann
    Shirlann Member Posts: 3,302
    edited November 2007

    Hi honey, with your history, this is the time to demand treatment.

    I kinda am worried about an odd sub-type of breast cancer that is very rare, so I hope I am not scaring you, I don't want to do that, but you need to be aware of Inflammatory Breast Cancer.  Why?  Well, it is rare, it does NOT show up on either a mammo or an UltraSound, it can be diagnosed ONLY with a biopsy.  I am sure this is not what you have, but I would go to a breast center, if you can, and be sure to bring up this type, many docs/oncs have never even seen this.

    I surely do not want to scare you half to death over nothing, but I don't like the way they are treating you and I don't like the family history AT ALL.

    At the very least you should be seen frequently, and by all means have the BRCA gene test done. 

    So please forgive me, I probably shouldn't have even mentioned this type of BC, and obviously, this is not what was wrong 8 years ago.  So with a little luck, nothing serious is wrong this time either.

    I am beginning to blather.

    Gentle hugs, Shirlann

    PS:  You are not too young to have breast cancer, although it is much rarer at your age, but in my mind, your family history overrides your age.

  • milyla
    milyla Member Posts: 5
    edited November 2007

    Thank you. I have heard of IBC, and am going to bring it up at my appt next week.

     I will also mention the gene test.

    Thanks for the support.

    Michelle

  • KarenC
    KarenC Member Posts: 66
    edited November 2007

    Michelle,

    I totally agree with Shirlann, she has good advice.

    Please take of yourself, no one should be treated the way you were-we are all worth respectable and reasonable treatment along with good manners.

    Karen

  • cp418
    cp418 Member Posts: 7,079
    edited November 2007

    Michelle - change doctors and find someone who will listen and take you seriously.  The doctor you describe sounds very negligent IMO. Best of luck, Joann

  • iodine
    iodine Member Posts: 4,289
    edited November 2007

    I personally wouldn't waste my time with a doc who has brushed me off for this long, not with your family history.  You should have been having ultrasounds and diagnostic mammo, if not MRIs for a LONG time. 

    It's time to take yourself to a breast center.  If you have to travel, well so be it.  I go 2 hours each way to my oncologist and I assure you it is worth it to be treated like an adult with a brain. 

    Hopefully, nothing will be found and all this will be just a scary memory, but you should have had a full work up long ago with your family history and personal complaints.  And you should have been followed closely after that.  It's just what you deserve as a patient.

    I'm not trying to scare you either, 80% of breast stuff is benign and with your dense breasts, it could be any number of benign things, but you should have good baseline exams to compare to from now on.

    I agree, change docs. 

  • LittleOldWineMaker
    LittleOldWineMaker Member Posts: 16
    edited November 2007

    HI MILIYA

         Change doctors and change doctors NOW!!!!!  If you have to change doctors from now until Kingdon Come!  My sister (now 62) had a lump (that she could feel) went to her regular family doctor whose 'attitude' was 'oh let's just wait and see'.  At the YMCA running track she stopped the OB-GYN I go to (and she had worked for a few months) and explained the situation (there was NO family history involving women - breast and/or ovarian - NOTHING.  He told her to call his office and tell the 'receptionist that the 2 of them had talked and he was going to 'work her in', she went to him, he felt the mass (an although she was young, small breasted woman.  He called a wonderful surgeon (we've both been to him with 'lumps') that very afternoon; he felt it and although she was 'young' he did not think it was adviseable to take a 'wait and see' attitude; she was IN THE HOSPITAL THE VERY NEXT DAY, for a biopsy.  It had NOT spread outside the breast tissue (had not invaded any of the lympth nodes) but he laid out all the option (lumpectomy all the way to total mastectomy) and told her if he got in there and it was something cancerous - he would remove the breast, if that is what she chose.  She chose to be awaken, told the results, and surgery the next day.  He removed her breast...could not have immediate reconstruction because they had to put in some sort of skin stretcher, but it healed, and me and our other sister asked if we could see the 'mastectomy'.  Since it only involved breast tissue, she looked like a little 8-year-old girl, with no nipple, and a scar running at a 40 degree angle from her chest bone up to her arm pit.  HOWEVER, the plastic surgeon also offered Plan A - Plan ???.  She did not want to have an implant so she chose some sort of rotation flap surgery using her stomach muscles...I tried for weeks to discourage this because at the time (20+ years ago, it was a VERY new procedure) and the attorny I worked for had won a lawsuit where a woman had this surgery; the blood supply to the reconstructed breast, yes that 2 of them, got cut off, he did not seem to be concerned; but later she had to have MAJOR surgery for a double mastectomy and they had to take out all the muscle and graft skin...she was NEVER able to have any type of reconstruction.  Something very similiar happened to my sister...he ended up with about 23 hours of 'plastic surgery', each time he attempted to close the incision the blood supply was cut off.  She ended up with a small implant and a hole in her breast.  Again, sisters wondering if this might happen to them asked to see it, she relunctantly showed us.  Not a 'pretty' sight, but certainly not so gross as to make you want to 'throw up'.  The implant had started leaking (noticeably) so she went to the surgeon recommended by her GYN and he sent her to Plastic Surgeon...scheduled to 'repair, if possible' the breast involved.  In the meantime she had a yearly physical and a mass showed up in the other breast, so they moved the surgery up to this past Monday, depending on the biopsies of the mass and 1/2 the lymph nodes, they were able to do immediate reconstruction - using muscle from her back.  It was 'successful' according to her plastic surgeon.  I have implants which make my breast dense...all 3 lumps have been found by me, I've had biospies/lumpectomies on all three and clear tissue around all clean.  I told the surgeon that if it was cancerouos, I wanted to be awakened, told the diagnosis, and do a double mastectomy (husband in room - doctor sweet as an angel, said 'let's not start building and burning bridges before it becomes necessary, and then, we will talk again about your decision'.  My lumpectomy done the very same Monday.  It was, Thank you GOD - B9.  My Mother has ovarian cancer, but at 87 years old, we along with doctor decided that we should not put her through any treatment.  Given her age, she would probably succumb to a heart attack or stroke before the cancer - just draining abdomen to keep her comfortable.  Two times on the previous Monday my sister was called and told that Mother was 'unresponsive', but we all just pray she can continue to stay in the Assisted Living Facility and die peacefully in her sleep...she apparently has almost done so twice.  BUT AGAIN, CHANGE DOCTORS, DEMAND A SURGICAL BIOPSY...PITCH A TEE-TOTAL TEMPER TANTRUM...YOU HAVE MORE RIGHT TO DO SO THAT I...all I had to do was call GYN, tell him I felt lump about the size of a pea, that my husband had also felt it, and I was in his office immediately.  CHANGE, CHANGE, CHANGE, CHANGE, DOCTORS!!!!!

Categories