symptons

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babybellebooboo
babybellebooboo Member Posts: 18
edited June 2014 in IBC (Inflammatory Breast Cancer)
symptons
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  • babybellebooboo
    babybellebooboo Member Posts: 18
    edited November 2007

    hi all

      was wondering if any of you ladies have had the same symptons as me and still diagnosed with IBC. i have had a thickening across the breast and also a flat nipple(in other words it doesn't become erect).i don't have any red, sore or dimpled skin just those two symptoms. i don't go to the clinic for 2 weeks.can anyone help

                regards to all who are going through it all at the moment

                      karen

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  • kimmie39
    kimmie39 Member Posts: 319
    edited November 2007

    I dont think you have to have all the symptoms. But you have 2 and thats enough for you to follow thru and get it checked. As a matter of fact Im not trying to scare you but cancer is a serious disease and I think 2 wks is to long to wait. Call them and demand more prompt attention or go somewhere else.

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  • Jen44
    Jen44 Member Posts: 631
    edited November 2007

    I would agree with kimmie39 that 2 weeks is a long time to wait.  Not just because of the cancer, but because of what the waiting will put you through.  There will be times that you won't have a choice but to wait, this shouldn't be one of those times.  I just had a double max on Halloween because of cancer in both breasts.  The only symptom I had was a bruise on my right breast, which wasn't even where the cancer started.  I would definitely push to get a sooner appt.  Sometimes all you have to do is say you would like something sooner and they will find you something, that is what I had to do.  Remind them that if something is going on that the sooner it is diagnosed the better!  Take care and let us know how things go.

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  • babybellebooboo
    babybellebooboo Member Posts: 18
    edited November 2007

    hi jen and kim

        many thanks for your replies.unfortunately im from the uk and the procedure is doctors and then referal to a breast clinic and he didnt think it was urgent hence the 5 week wait.i have less than 2 weeks to wait now so ill keep reading all your stories.good luck with your recoveries.

                      regards karen

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  • Caseysmom
    Caseysmom Member Posts: 507
    edited November 2007

    Karen:

    The only symptom that I had was a dermatitis looking mass on my breast no other symptoms. 

    I think its terrible that they are making you wait that long to get in to see a breast doc.

    Keep us posted!

    Laura

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  • suefromuk
    suefromuk Member Posts: 3
    edited November 2007

    Hi, I am from the UK too and if a doctor suspects bc then you should be seen within two weeks at the breast clinic for a mammo and ultrasound. This is the law.

    Many doctors, unfortunately, are not familiar with IBC so you need to go back to your GP and tell him to refer you urgently.

    I am not an IBC sufferer but have had bc which affected my skin and was told it was eczema for months. Fortunately, I was finally diagnosed properly and treatment has got rid of my cancer. I can't help but think though that if I had been treated earlier I would not have had to go through such rigorous chemo as I've been through.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2007

    sue---I'm always amazed at the number of women being told it was only "only eczema".  I've had eczema my entire life (along with many other family members--very strong history of it ) in many different areas of the body, but never the breasts.  I don't think that is a common area for eczema, but perhaps general physicians don't know that (dermatologists should).

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  • babybellebooboo
    babybellebooboo Member Posts: 18
    edited November 2007

    hi caseysmom and sue

           i tried getting a cancellation today but you can understand they don't get many.anyway i am now on a week(today) waiting time so hopefully it will pass soon.i will keep you posted

          many thanks

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  • kimmie39
    kimmie39 Member Posts: 319
    edited November 2007

    Hi

    Just checking on you, keep us posted.

    Kim 

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  • babybellebooboo
    babybellebooboo Member Posts: 18
    edited November 2007

    hi all

        i cannot believe it...i have had a letter from the breast clinic today putting back my appointment for another week due to insuffiecent cover.what are they trying to do to me.ahhhhhhhhhhhhhhhhhhh.i am going back to my gp today to show him my breast again and all the changes that are happening

            regards karen

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  • Caseysmom
    Caseysmom Member Posts: 507
    edited November 2007

    Karen:

    Unreal it should not matter what type of coverage you have bc let alone ibc is nothing to mess around with.  If you doc has never heard of ibc he should google it or come to this web site. If this was someone in his family you can bet that they would get in ASAP.

    Just my two cents. 

    Good luck with your appointment.

    Big Hugs from Michigan

    Laura

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  • Teebone46
    Teebone46 Member Posts: 1
    edited November 2007

    Ive had those symptoms before. But Im sure you will be okay when you go to the doctors. If you have any serious pain and discharge , go to the emergency room to check it out. Praying for you.

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  • kimmie39
    kimmie39 Member Posts: 319
    edited November 2007

    Checking in again.

    Whats up?

    Kim 

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  • babybellebooboo
    babybellebooboo Member Posts: 18
    edited November 2007

    hi kimmie

         todays the day...i have my appointment at 1.30 pm gmt so will let you know when i get home.regards to all

                  karen

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  • babybellebooboo
    babybellebooboo Member Posts: 18
    edited November 2007

    hi all

         had my mammo,u/s and core biopsy today.doc says 90% sure its cancer with 2 tumors.i don't know anymore until we get the results of biopsy on friday only that they will be giving me a date for a mascetomy then.will post in diagnosed when i know.thanks all for your support in the last six weeks

                     regards karen

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  • kimmie39
    kimmie39 Member Posts: 319
    edited November 2007

    Hi,

    Im sorry its cancer!!!

    Keep posting us somwe can keep up with you

    Ill be thinking of you,

    Hugs in Va

    Kim 

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  • lexi4
    lexi4 Member Posts: 1,074
    edited November 2007

    Dear Karen,

    I am so sorry that you have joined our club. Please know that while the txs aren't fun, they are totally doable. You will get through it, one step at a time.

    You are in my prayers for comfort during this scary time. Hang in there.

    HUgs,

    Lexi

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  • mrs_X_Sunneedazee
    mrs_X_Sunneedazee Member Posts: 541
    edited November 2007

    Karen, I am so sorry!!!  (((((HUG)))))

    It is a scary time, but if it is indeed cancer, it is good to be diagnosed and start treatment!  This is truly a wonderful place for information and support.  Keep us posted, and we'll pray that it is the 10% chance that it isn't cancer.  The waiting is horrible, isn't it.  Good luck and be happy.  I heard a wonderful quote that says, "The day some people find out they have a terminal illness they begin to die.  Others begin to live."  Keep living each day.

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  • babybellebooboo
    babybellebooboo Member Posts: 18
    edited November 2007

    hi guys

         thanks for your comforting comments.i do indeed have cancer.....i have 2 in fact,ILC and IDC hr neg.i am having mascectomy on 4th dec. and would appreciate any feedback on what to expect in the future

                love to all

                      karen

    p.s i will shift over to the ilc forum now

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  • mrs_X_Sunneedazee
    mrs_X_Sunneedazee Member Posts: 541
    edited November 2007

    Karen, Good luck to you.  Are you having a single or double mast?  I am 4 weeks out from my surgery, and I am almost back to normal.  It is hard battle, but you are strong, and can do it!!!  Best of luck, and visit this site often.  It helps to connect with others who are going through the same thing as you.

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