Breast MRI

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  • ravdeb
    ravdeb Member Posts: 3,116
    edited November 2007

    So...because of my very dense breasts and the radiologist last week saying mammogram and ultrasound were limiting her, my onc and surgeon both wrote recommendations for breast MRI.

    I just made the appointment and she told me I need to come in twice..one appt for each side.

    I've read that there are machines that do both sides at once. I didn't know I'd need to make two appts. I don't live in the States but I'm having it done in the hospital where my cancer center is and they boast of being the hospital here with the most digital and high tech machines of all hospitals in the country.

    So, what is going on here? Can somebody explain the breast MRI to me? I'm more nervous now than before!

  • avasmom
    avasmom Member Posts: 26
    edited November 2007

    Hi Ravdeb-

    I have had 3 breast MRI's so far - 1 just last Friday.  I also have very dense and since my DCIS dx a year and a half ago, they rotate Mammos and MRI's every 6 months. 

    For me they do both at once, I've never heard of one at a time so I am assuming this is new thechnology...which can only be a good thing.  I would imagine it runs about the same though.  I had to lie face down(head to the side) on a table that had 2 openings for my to fall into.  I was given a small IV so the techs can inject what I assume is contrast during the procedure.  They also give you ear plugs because the machine is loud...kind of like a jackhammer at times.  The table moves you into a tunnel/tube and you will hear a series of loud noises.  You are able to talk to the techs at all times and are given an emergency botton to get you out if needed.  The first time I didn't like being placed inside the tunnel or tube as I'm a little claustrophobic but it was manageable.    The second MRI I took a xanax and it relaxed me.  This past one I was totally fine with, I just tried to relax and think positive thoughts. It took about 20-25 minutes.  Maybe with yours being done individually it will be a shorter duration??  Not sure.  The MRI itself is really easy and not painful at all. I would take it any day over a mammo!  Also keep in mind that although it's a very useful tool for those of us who are dense, it can also pick up more false positives than a mammo.  Basically it picks up every little thing.  This is good, but has it's drawbacks.   I know I get nervous at every new test/procedure I've been asked to do, but this one is not so bad. 

  • ravdeb
    ravdeb Member Posts: 3,116
    edited November 2007

    Thanks Avasmom. Actually, she said it takes 45 minutes for each side and this is the reason they won't do it all at the same time. I actually believe that they have a regular MRI that they have modified for breast MRI and it is not the most up to date, which is upsetting me. I'm looking into finding a different place, if possible, to do it. I will need to be injected with the contrast twice..once for each side.

    And..this was actually the first time I was told that my mammo and US are limiting because of dense breasts. They've written words like fibrocystic, marked fibrosis and fibroglandular, but not once have they actually said that it is difficult to see anything. I was diagnosed over 2 years ago. This is by far not the first time I've had mammo and US. I really think they just didn't want me fighting the insurance for the breast MRI. I'm aware of the false positives and am willing to take the risk!

  • avasmom
    avasmom Member Posts: 26
    edited November 2007

    I'm shocked that it's going to take 45 min for each side.  I think the first MRI I had took about 30 minutes, but that was the max.  When I had a full body MRI they split it into 2 different days and they were about 45 min each, but for only your that seems long. 

    Yes, I am sure your correct that the reason you didn't get an MRI to begin with is because of the cost related to insurance.  My docs had to fight insurance to get mine the first time but no issue since (knock on wood for this last one).  Hope you don't have any problems with insurance covering it for you.  I agree with you about the risk...not even an issue.  Good luck on your MRI

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2007

    I've had 2 breast MRIs (high risk due to LCIS and family history) so far--alternating every 6 months now with mammos-- I've never heard of them doing each breast at a different time, I wonder what would be the reason for that????  I go on my back for the first 15 to 20 minutes with headphones with music, then back out to have an IV put in and flip over onto stomach, then back in for another 15 to 20 minutes with earplugs, arms overhead on a pillow, breasts thru 2 holes.  It is very close quarters and noisy in there, so I just keep my eyes closed, lay very still, and do slow deep breathing, saying prayers to myself all the while. Keeps me calm, I almost fell asleep the first time!  Actually not a bad test at all, except for the IV (they always have trouble with my IVs).

  • GrandmaWolf
    GrandmaWolf Member Posts: 88
    edited November 2007

    RavDeb,

    My second primary dx of lobular required an MRI.  I found that

    breast MRI has to be performed with a dedicated breast coil.

    About 90% of the MRI scans are of no use for evaluating breast cancer," said Beryl McCormick, MD, clinical director and acting chairman, department of radiation oncology, Sloan-Kettering Cancer Center, New York, New York, United States. "Most of our radiologists won't even bother reading the film."

    I know some of the older equipment can be updated with these special breast coils, and this may be the case where you are going.    Let them know that you know doing each side separately is not the standard, and ask them why.

    You may want to ask them, for information on the equipment they have. Their machine may be modified for breast MRI as you say.

    Check around to see if there are any other "qualified" resources in your area.   I had both sides done, and it took an hour tops.

    Good luck on getting the best

    Grandma wolf

  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited November 2007

    Hi RavDeb,

    I've had a few MRIs since my diagnosis. Where I go they have you change into a gown in a dressing room. They wrap me in a warm blanket to walk to the room where the test will be done. I lie on my back while they put the IV in for the contrast. This takes the longest time for me because they have trouble finding a workable vein. Then they have me lay face down with my breasts in what I call "jello molds." They have to adjust my breasts to just the right angle. My arms are above my head. They usually do several stop and goes. It seems like they are each 5-6 min. I play games in my head, like thinking of the name of an animal for each letter of the alphabet. Then I change to naming flowers. I like them to tell me how long each set is going to be. There isn't any pain and the tunnel is open at each end at the place where I go. They always ask me what music I would like to hear, but it is really noisy and I can't hear the music. They can talk to me and I can call them, but I never do. The doctor at my facility usually comes out before I leave and tells me how things are looking so I don't have to wait to hear.

    It's important to find a place to do the test that has a skilled doctor to read the results.  Your doctors should be able to help with that.

    I haven't heard of doing each breast separately, but then again I haven't talked to very many women having MRIs.  I would love the hear what their procedure is.

    I wish you the best of results!!!

    Warmly,

    Sadie

  • ladydi
    ladydi Member Posts: 94
    edited November 2007

    I had two MRI's done on my breasts. They were both done at the same time. It was the MRI that discovered I had a 2nd lump in my breasts. Without that we would not have known and have done a lumpectomy instead of Mastectomy. This MRI could have save me life!

    I would ask whey you can't do both at the same time as well.

  • ravdeb
    ravdeb Member Posts: 3,116
    edited November 2007

    We did ask why both can't be done. She said the professor won't allow it because it takes too long. They do without contrast and then with contrast. She said that this is why it takes longer.

    Thanks for your answers. I think I will call them back and ask them what type of machine is used. She will think I'm a pain in the neck since I first called and then I had my husband call again. But..I need to know.

    I've read on the internet that when the machines are not the newest, they do each side separately and have to inject the contrast each time, as well. I have bad veins since chemo and wonder how they will manage that both times.

    Thanks for all your input Ladies! I'll let you know what happens...

  • Rosemary44
    Rosemary44 Member Posts: 2,660
    edited November 2007

    I went to a place that used the older machines.  It took two days to do it, and I got a stack of films instead of the new computerized digital read-out.  I wasn't happy either with having to go back twice nor did they didn't tell me about that upfront.   On the older machines they can't do both breasts at the same time.  I forgot the reason for that.

  • ravdeb
    ravdeb Member Posts: 3,116
    edited November 2007

    They apparently don't have the newest equipment of a type of coil that both breasts can fit into and be tested with at the same time using the same contrast.

    I finally found a place here that has the breast MRI and can do it in one appointment but now my insurance company is giving me trouble, telling me that they don't work with that hospital. That is nuts. My surgeon is at that hospital and he is from our health fund. I'm in for a big fight, I see.

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited November 2007

    My first MRI was like yours, both breasts on different days. This past week I had one that allowed both breast at teh same time. They said they could do it that way now because of an upgrade in the software. So your facility may be lagging a bit on the software (plus I believe it is expensive, my breast center got the upgrade for only one of the MRI machines).



    Ultimately you want the hospital that is best at reading the MRIs, not necessarily the one that can do tehm both at once (though that would be nice).



    Also, all women who have had bc and still have breasts should have an MRI, dense breasts or not, it is an important screening tool and we all are at enhanced risk.



  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited December 2007

    Had mine last Thursday, both done at the same time. I had to lay face down.

    Janis

  • ravdeb
    ravdeb Member Posts: 3,116
    edited December 2007

    I've still received a negative answer for approval for the mri. My appointments are for next week though they called to change it to January. Good point Member, about being at a place that reads it best. That would be the place where they do it one breast at a time. Thanks for that reminder. But, it makes no difference. I just asked 2 days ago how things were going and the secy said..well, I understood you didn't get approval. I told her I was still working on it. But a week ago they said they were still discussing my case. This is ridiculous! I'm very angry about this. I'm not giving up. Just letting them talk more and I will call them weekly til I get a definitive answer.

    I do have something I took from the internet that says that personal history as opposed to just family history places one in the high risk category. I finally get credit for something! DUH

  • carstell
    carstell Member Posts: 53
    edited December 2007

      like Dianne above I also had a MRI that showed a tumor in the middle of my breast that was not seen on mammo. I will be having a mastectomy on 12/21. We had initally hoped for a lumpectomy. I had both done at the same time, about 40 minutes. The were also able to asses my nodes at the same time. Keep at them. It's there job. You are your own best advocate.

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