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  • 1Undecided
    1Undecided Member Posts: 8
    edited October 2007

    I'm new at this,so don't judge me to hard.  I've been free of bc for one year and I still cry about it.  I've had both breasts taken, my left because it's the one that had the cancer and my right was taken of my own choice.  My new dilemma is a choice for breast reconstruction or not and if so, which?  Silicone or Saline?  I've read some articles about the pros and cons but I'm still have problems deciding.  Main problem is I'm afraid and I'm tired of surgeries and pain.  Plus, all the health problems that can come along with implants.  My sister tells me it's a sin to be vain and that this all happened for a reason.  I guess it's just my self-image to myself that bugs me.  Can anyone out there HELP ME make a decision, even though I know the decision is fully mine.

    Undecided

  • Desny
    Desny Member Posts: 371
    edited October 2007

    Hi,

    I too am in the undecided state.  I want to feel whole again but after the surgery and 6 out of 8 rounds of chemo, I also want to feel healthy and have some energy again.  So I think I want to wait at least 6 months after chemo to regain my health before trying to decide.  I hopes this helps. 

    p.s.  I don't want implants.

  • iodine
    iodine Member Posts: 4,289
    edited October 2007

    Hi undecided and Desny,

    If your hand had been amputated, would you consider reconstruction?  Of course you would, and it would be mostly for cosmetic resons.  Vanity has absolutely nothing to do with reconstruction!  It has a great deal to do with balance of your upper body as well as self esteem and body image.  As far as your sister goes, when she has bc and has a mastectomy or two, let HER make her decisions and remarks about herself.  Until then she doesn't have a leg to stand on.

    In fact, if that is her reasoning: ie: things happen for a reason: well, these docs have learned how to do reconstruction, haven't they?  God helped them learn it and also allowed the invention of implants and other means of recon, so hey, it means it's to be used.  That's MY way of thinking.  Otherwise, we shouldn't use all the great chemo that is available.  Or Maybe we shouldn't use the great antinausea drugs during chemo, since "everything is for a reason"??

    Boy, that just really chaps, me.  Sorry!

    There is a great book: The Breast Reconstruction Guidebook by Kathy Steigleit (or something)  it covers all of the types of recon and you can also ck out our recon board down a few scrolls.  Lots of good info. 

    Then go visit 3 plastic surgeons and see what is recommended for YOU.  Then make your decisions.  You don't have to do it now, or even next 6 mos  you have plenty of time to make your decisions and gain  energy to get over your surgeries and plan for your recons.

    good luck and don't listen to anyone who hasn't been there and done it.  They have NO CLUE!

  • boughtonl
    boughtonl Member Posts: 15
    edited October 2007

    Sherry,

     I would get a second opinion. Suppose it is too late to do anything in 3 months. I was diagnosed with bc on Aug. 21, and I had both breasts removed on Sept. 26. I had to have expanders put in and after my stitches come out they will insert saline into the expanders to stretch my skin for implants. I also hate the waiting! They are doing an oncotypedx test on my tumor which will show whether the cancer might come back in 10 years. If it is positive I will have to take a cancer pill and chemo, if it is negative I will just have to take a pill. I am also scared because I don't know what to expect. Hopefully I find out something on Monday. Hang in there and take it one day at a time. I have acquired so many new friends since my diagnosis. Good luck to you.

  • boughtonl
    boughtonl Member Posts: 15
    edited October 2007
  • susan7
    susan7 Member Posts: 9
    edited October 2007

    YOU WILL MAKE IT JUST FINE!  I didn't want to have this either..no lump, no history, and no symptoms!  thank heavens they found in a mamo...but it was stage three by then.  I have finished with all my treatment now and made it through just fine.  With the grace of God you can do anything...Hang in there.  you will find your children will be a rock for you.

  • susan7
    susan7 Member Posts: 9
    edited October 2007

    I am glad to hear you still cry about this.  I just finished my radiation in Jan.  had a mastectomy, and 8 chemos plus 32 rounds of radiation.  I am not taking Femara and I just cry alot...I am not really sad, I am just emotional..I just wonder if this is normal?  I too, have not had reconstruction yet.  I am a size D on one side and nothing on the other.  It doesn't bother me too much so I am waiting for at least 5 years before I decide what to do.

  • susan7
    susan7 Member Posts: 9
    edited October 2007

    PS  I meant to say I am now taking Femara the estrogen blocker.  Anyone else on this one?

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited October 2007

    You can have delayed reconstruction, several other ladies on this board have done that. and I agree with Dotti, reconstruction is not vanity, it isn't like you went out to get a "boob job". Reconstruction is not like breast augmentation, you have to lose your boob in the first place. I liked Dotti's comparison to amputating your hand or any other body part. My mom had a single mastectomy 6 years ago at age 60 and did not opt for reconstruction. I am 47 and had bilat mast this summer and am in the middle of reconstruction and it is not a vanity thing. I just want to look normal.

    I still grieve the loss of my breasts and sometimes when I think about my surviving BC I cry. Saturday is the local Race for the Cure, I have participated since 2001 for my Mom but this year we will cross the finish line together as survivors and I will probably be crying as I cross the line. (I am crying as I am thinking about it now)

    Sheila

  • KeyWestEm
    KeyWestEm Member Posts: 16
    edited October 2007

    Just remember, in most cases, your insurance is only required to pay for reconstruction for two years after your mastectomy.

  • susieq2102
    susieq2102 Member Posts: 2
    edited October 2007

    This is my first time here. Hope I know what I am doing.

    My friend said you may have lost your boobs but you did not loose your sence of humor.

  • susieq2102
    susieq2102 Member Posts: 2
    edited October 2007

    I did not know this What if you are still having problems with the reconstruction?

  • Harley44
    Harley44 Member Posts: 5,446
    edited October 2007

    Susan,


    I was very emotional at first, too!  I would cry at the drop of a hat!  That was back in April, and I was dx'd in March!

    Hang in there,

    Harley

  • Harley44
    Harley44 Member Posts: 5,446
    edited October 2007

    Hi Undecided & Desny,

    I agree with Dotti.  Only YOU can make the decision about reconstruction!!  No, it is NO vanity!!  The way I look at it, for me, at least, I wanted to be restored and to be made whole again; the way I was BEFORE the breast cancer dx. 

      

    I  guess I just want to say that the choice is up to you and only you.  We can not go back to the way things were BEFORE bc, but we can  try to restore our bodies and our lives to the best of our ability.  In my case, I believe that the reconstruction is an important part of my healing.  I know that every time I look at my chest, and see those scars, I will think about bc and how it changed my life.  Now, I know that I will still have the scars, but having my breasts back is an important step for me, in healing.  But that is just how I FEEL about it...

    The decision is yours... don't let ANYONE try to tell you what to do.

    Hugs,

    Harley

  • Jesuzzfrk
    Jesuzzfrk Member Posts: 1
    edited October 2007

    Hello All,

    I'm new at this ,my mom is the one who has BC,she's had it for about 2 years,and she starting to hit her worse stages,I'm a member because I need to find another Doctor for her,we need a second opinion.They basically told her that they have done all they could,but I have 100% faith that God will heal her body,do any of you know good websites I can search to find her a better Doctor?Feel free to email me jesuzzfrk@yahoo.com.

    Thanks and God bless you all.

  • LucyM
    LucyM Member Posts: 1
    edited October 2007

    Diagnosed with cancer both breasts 6weeks ago.Had mastectomy and lumpectomy.Awaiting radiotherapy on hormone feeling worse at times.Have enjoyed and cheered me up reading your comments. Thanks and god bless you all. Lucy

  • Sierra
    Sierra Member Posts: 1,638
    edited October 2007



    I sure do second

    what Dottie posted above



    These people (your sister)

    dont walk in your shoes

    It is up to you re RECON

    or anything for that matter



    Best to you on your decision

    and path



    Sometimes, on this journey we

    have to reset boundaries

    and will be met with resistance



    We only live once

    Be Big

    or Go HOME!
    ((((Harley))))
    For those who are crying, cry away
    then, let things clear, crying is
    good for the soul, and with this DX
    Do not let anyone intimidate you
    or make less of it ...

    THE TIME IS NOW





    Hugs







  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited October 2007

    Hi everyone,

    My best.. is a boss and over 40 employees (all men and 2 women) who help me daily. My boss told me he would stand by me always. My boss has paid me full time no matter how many hours I work each week. (I'm 24 mths of continued tx)  My co workers drive me to appointments.  I have not been able to drive for four month because I have very bad neuropathy.  They pick me up and take me home. 

    Best of all they say they can see Christ working in me.  And I'm a great example to them that I put my trust in him.

    My next best...my surgeon tells everyone I'm her "poster child" on how to do treatment and have a life in the middle of cancer.

    Living in hope.

    Fla

  • nurse4life
    nurse4life Member Posts: 3
    edited October 2007

    I am sorry about your being diagnosed with cancer. I know this is off the topic here. But, I need to talk to someone who has been through all the doctor visits & stuff. I am 22 years old, and about 2 years ago, I started noticing that my  breasts were really sore, and that I had these knots coming up on them. I went to the doctor and they told me they were just fibroid cysts. But now, I have noticed 2 more places that are much smaller and harder. They feel like little BBs. I have made an appointment with my doctor, but I am afraid that because of my age they won't order me a mammogram.I am SCARED to death about this being breast cancer!!!! Also, I have a pretty significant family history.My mother has 7 aunts on her dad's side, and they all have/have had breast cancer. Also, my mother's first cousin and that side of her family has breast cancer & she is only in her 30s. My mom's mother walked out on her when she was only a child, so we know nothing about her medical history or her family's. What should I do/say to get a peace of mind about this????

  • ekerlin
    ekerlin Member Posts: 3
    edited October 2007

    Hi everyone, I'm new to this site.  Initial BC diagnosed June 2005 and metastasized (lymphatic system around chest and neck area) in July 2006.  I got off very lightly with the first round of chemo/radiotherapy in 2005/early 2006 - able to work right through - a breeze.  I too chose the hat or scarf look rather than the wig and always had very positive comments from my work colleagues about how well I looked.  But, this second bout of chemo and radio therapies has really knocked me off my rails, having to give up work in April as I was so weak.  Not working means that I have lost one of my support networks, although some of my closer colleagues do ring me regularly.  The only other support I have is my family and my partner who are all great - but they are going through their own 'hell' as well.  I had a down day today, but having read all the great, positive comments here has cheered me up, and I will come back here as I know I will get the kind of informed support that I need, from people like me who are living with the disease.  Thanks everyone for being there.

    Eileen

  • livinginboji
    livinginboji Member Posts: 85
    edited November 2007

    Go to your doctor, explain your HIGH family history. If you don't like his/her answer then find a specialist that will listen and insist on tests. You have every right to be concerned, hopefully for nothing, but you still have the right. I had NO family history, had a mammo in Dec. (negative) and found a 2.5 cm lump in July that I swear was not there the day before. Good luck to you.

    Wishing you peace!

  • miserymaddness
    miserymaddness Member Posts: 1
    edited November 2007

    Wow.. It seems like you're really going through a hard time. Just know that you will get through this. They will find a cure! I'm a high school journalist and I was wondering if I could interview you. I'm currently working on an aritcle about breast cancer. If you're interested, Please let me know. <3

  • peachees6674
    peachees6674 Member Posts: 1
    edited November 2007

    Hi Everyone,I'm new to this group.and i have a question..My mom died of breast cancer at the age of 42,,i have had a momogram every year for 15 yrs,and it always takes a week or more to get results,my dr got the results in 1 day,is this a bad sign? i have to wait until monday to find out...

  • iodine
    iodine Member Posts: 4,289
    edited November 2007

    Hi Peaches,

    I wouldn't say it was a bad sign.  It may mean they just want more views.  Or an ultrasound to rule out a cyst.  We usually don't worry around here till we have a real something to get way worried about!

    Try to have a good weekend and not get too uptight about this.

    When I get my mammos I get the results before I leave the x-ray dept., so that's not too soon to me.

    Be sure to come back and let us know--OK?

  • linda8
    linda8 Member Posts: 1
    edited November 2007

    i was diaognosed may2007,i had my chemo  in june to aug. but my doctor told me i had a nice shaped  head,i always thought i had a big head ,iam now in radiation and herceptin ive stayed really strong through this with the support of my family and friends,my hair is growing back some i cant believe its all gray it was always blond,i was in the mall the other day this older lady came up to me ask how far in treatment was i and gave me a hug i got the chills she made me fill so gd  those hugs help alot

  • baby2415
    baby2415 Member Posts: 4
    edited November 2007
    u are all idiot because womanYell don`t die from breast cancel stupid fool
  • baby2415
    baby2415 Member Posts: 4
    edited November 2007

    u stupid maxima pig

  • baby2415
    baby2415 Member Posts: 4
    edited November 2007

    u stupid maxima pig

  • baby2415
    baby2415 Member Posts: 4
    edited November 2007
  • cerj1515
    cerj1515 Member Posts: 1
    edited November 2007

    RECENTLY WENT FOR ANNUAL BREAST CANCER CHECK-UP, BLOOD DRAW WAS NORMAL BUT MY  MARKERS WERE SLIGHTLY ELEVATED. IF ANYONE HAS HAD ANY SIMILAR EXPERIENCE, WOULD LIKE TO HERE FROM YOU. HAVE TO TYPE IN CAPS SO I CAN SEE WHAT I AM WRITING.                                       THANKS, CERJ1515

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