Starting Chemo in JAN 2007
Comments
-
Great Hallowen pics, Rebecca. My kids costumes were rather lame this year...repeats of previous years, so I wasn't compelled to take pics. Paul was a Reggae Mon again and Jac was a witch. They had a ton of fun, getting candy. DH took Jaclyn out and walked w/our neighbors, Jack and Jorge....for which I was glad because he's pretty shy and that gets him to know those guys better. Very nice guys. Jaclyn loved TorT'ing w/Ana, Maria and Nicole. Paul went off with two buddies solo this year, sans parents. He did have his cell. He had fun. I'd never allow this if we were living in FL.
Wendy's DH was hired today. Hallelujah! He's been out of work from the same company as my DH, since Aug. He does communications so it isn't such a niche job. Nice he was hired, though, right when their benefits were running out. So they have lots of reasons to celebrate.
I cleaned out my ENTIRE kitchen this am...put together at least six HUGE boxes of plates, mugs, bowls, glassware, pans, etc. and got rid of it all. Felt so good. Now, I open my cabinets and it looks spacious. I just kept the stuff I really, really use. That whole feng shui thing, lack of clutter, makes me feel relaxed. And it's a free therapeutic activity for me, so...
OK....getting tired, so I'm gonna call it a night. Happy Halloween my amigas!
-
Hi Girls,
Wow, tons of messages I haven't read...I'll try to read them later this evening. Quick glance shows some really great pics!
I've been busy fighting with American Airlines for the past 2 days. It's been absolutely awful! I was 'supposed' to be flying to the Bahamas tomorrow but of course, the darn Tropical Storm forms. I was literally on the phone with them 6 or 7 times today with no luck. They said I could change my travel with no penalties for Friday or Saturday, but all the flights are booked so I could do nothing. I got different stories on what, if anything, it would cost to change the tickets. I talked to supervisors and their supervisors. So I was driving home and again on my cell phone trying to get something on Sunday, but they couldn't do it because that date didn't fall within the rules. The guy says, why don't you go Friday or Saturday? OMG! I said 'because you can't get me there, all the flights are booked'. He said, well, why don't I check. I said 'sure'. Then I lost my cell phone connection....argh! I get home, bring Ally to get her haircut, get back home and happen to log onto my American Airlines account to see if they cancelled my flight tomorrow and to my surprise, there are reservations for flights on Saturday and coming back Wednesday. What? Huh? Who did that? I nervously called and asked them to confirm and they did confirm the seats (me and Shelley). I don't know who got us on the plane on Saturday, but I have to believe that my persistence paid off. Unfortunately, my sister and her daughter are still not booked on any flights, so we'll see about them. what a fiasco.
I got a call from my pcp the other day. Now what? I couldn't imagine what was up since I only saw him about a month ago to get him to refer me to the spine guy. Well, he got a copy of my blood work that my gyn ordered. Evidently, 'Impaired Glucose Tolerance' is a real diagnosis (I googled it). He wants me to have a different fasting test and make an appt. to see him.
Oh, the ps's nurse called me the other day. I think they only do 1 delayed DIEP each month, mine is in December. She said they have a cancellation for November and asked me if I want to move up. I laughed and said no thanks, I have too many things to get done in 6 weeks, no way am I ready to go in 2 weeks.
I have not gotten any work done in the past 2 days, so I'll be working hard tomorrow and Friday to get caught up before my vacation.
Now off to catch up on posts...
-
Joni,
Thank you for thinking of me. I just started a part time job last week. I am doing collection calling. It is a slave job and it's just temporary until I get the job at the hospital or something else that is full time. I really don't like it and would rather be doing graphic design or something.
I decided to take the first thing that came along cause I was not making it on $84.00 per month on unemployment.
I found that it is hard to find a job when your on unemployment and just went through cancer treatment. No one wants to hire you. So I took this job for now.
Pray that I get a real job soon!!!
Oh, I notice that alot of you are doing the genetic testing. If you are low income and can't afford it I found a program that will give you aid. I guess the test is $3000.00 for the blood draw.
Hope everyone is doing great ending their treatment and getting on with our lives.
-
Rebecca, adorable pix. Your kids all have such pretty eyes, even with dead makeup and masks around them. Dead gymnast is a very creative costume.
Caya I forgot to answer you earlier about the delay in getting Grendel. It's because he has to be weaned first, and the sellers believe dogs do better if left with the mom for two months. The mommy dog is great, very sweet tempered and attentive to her pups. His daddy is big for a Lhasa but also seems good-natured, so I hope Grendel will be too.
Mer it sounds like you have a toxic work environment. I hope that if you can't let it go you are able to make a switch somehow, since that kind of stress is not conducive to our healing. I'm not savvy at office politics but maybe someone else has some concrete suggestions.
I'm still fuming over Kristy's situation. Did anyone else who has or had a port not get a script for blood thinner with it? - Skye -
Lynn, I was just signing on to ask when you were going to the Bahamas. Noel is bringing a lot of rain to south Florida today and the Bahamas is so close. It's been a slow moving storm, but I'd hope by Sat. it will clear more out to sea... I think that's the track for it.
I've had those same experiences w/airlines. You call up and get one person and there are no seats avl. Call again (wait another hour on hold), get someone else and WELLA! Seats available. It's a bizarre industry, with prices changing constantly.
Have any of you read the articles this week about how the major airlines aren't ordering new planes? They are flying aircraft that is on average, 15 years old. They said Northwest was one of the worst offenders, operating a 35 year old plane! The American MD-80's are in pretty bad shape too. Scares me as I used to work for the director of quality assurance for an aircraft parts reconditioning company in Florida, that supplied all of the major airlines, and my boss alwaaaaaaays said fly newer planes...at that time industry average age was 5 years and he said ten was bad. But 15 and 35? Yikes. He also said to always avoid prop planes. Safety record is bad. He was tops in his industry and a SUPER guy. He passed a way last fall at age 70... had prostate cancer ten years ago and it metastasized into colon cancer last year. Apparently he hadn't done colonoscopies. Poor guy. He was sooooo good to me when I lived there and had no family down there at time.
OK.... back to my de-junking around here. I'll try to get another carload for Goodwill.
-
Great photos, Rebecca - thanks for sharing. Frances is the most beautiful dead gymnast I've ever seen - good makeup job. I am always transfixed by the eyes in all your children - they are so beautiful. Did they get those from you? Ana is a gorgeous cat, and Owen is as always just too cool. Sorry you missed the sweater vest version of his costume.
Mary, HUGS. I'm so sorry your work environment is so crappy right now. Maybe you do just need a day off to detox - might be worth losing the extra pay. How long have you worked there - is a job change possible at all? I don't know about the rest of you, but I'm not inclined to put up with as much of that kind of stuff as I used to be. Don't let it poison your life - and I hope things will get better.
Tina, I cleaned kitchen cabinets out yesterday also - AND dh's closet. I cannot tell you how many t-shirts I threw away. Several dozen, and his closet is still full. Anyway, Goodwill is getting a big bag of kitchen stuff. I'm just getting started, too. It's kind of fun - very satisfying - and the less clutter I have, the more serene I seem to feel.
Lynn, it's amazing how your flight worked out. Now I hope the weather isn't an issue to ruin your trip. Keep us posted. I hope you are able to go and have a wonderful time.
Robbin, glad you are working at least part time, and hope that something more satisfying (not to mention more lucrative) comes along. I'm sure it will, and maybe working at your current job will help future employers to see that you are physically capable of being at work now. I'm sure your talents could be better utilized in another job - this one sounds pretty grim, but at least it's income.
Skye, I never had blood thinners when I had my port, but after I was done using it all the time, it was taken out during my mastectomy. I think around here they just have you heparin flush it once a month, is all - no oral anticoagulants.
Well, we are going to an art gallery show opening tonight - it's always fun to go the first night for wine, and to meet the artists. Unfortunately, we usually always find something we can't live without. These artists are modern Australian aboriginals, and they do some very exciting stuff. We got hooked about 10 years ago - now our walls are filling up - we have quite a collection. Anyway, I have to get busy and get my errands done early today - usually I manage to get out of the house about 2:00. Just not a morning person, obviously.
Have a good day everyone.
-
Just got back from Herceptin # 8, and then went to visit my MIL as she is in the hospital right across the street - and she is doing very well. It looks like they'll keep her in over the weekend, which is better as of course she will have 24 hour nursing care.
Skye, I have a port, never had a blood thinner. Do most people? They flush it every time after my herceptin infusion - so far no problems, but maybe I'll ask next time.
Thanks to everyone who has voted for Cassie - she's a great kid. I hope she gets the internship, but a few more kids have sent in videos over the last few days, so who knows. I'll keep you posted, we probably won't know for a couple of weeks.
-
Caya, meant to mention, I wasn't able to hear much of Cassie's video. It kept shutting down after she introduced herself. Not sure why. It would freeze. I still voted and I hope that "took".
Well, ladies, you learn something new every day. My gyno. called today to say she read my surgical report from Jaclyn's delivery and noted that yes, the bladder and uterus were fused by scar tissue, which I knew, but that during the process of separating them, my OB/GYN in Florida knicked my bladder and had to repair it. He never told me. I remember having a very weak bladder right after I had her, but it went away. I dunno... it just feels so unethical to me that he didn't tell me. He's a great doctor, very Type A, but also was very concerned with the legal aspects of practicing medicine. I could tell that by some of the things he would say. Anyone else think this was unethical?
Anyway, my dr. here said not to worry about further bladder injury or having a bladder surgeon present during my hysterectomy. She said that's the advantage of having surgery at a major medical center vs. Boca Community Hosp.: they have urologists available 24/7 and if she had ANY issues, someone would be in immediately. I like her. She's very confident yet very down to earth.
-
Tina I do think that's unethical. It's certainly the kind of thing I want to know. I understand that there are risks with every surgery (dont we all) and I would think he could at least present it as 'this was a possiblity and it happened."
Maybe from now on we should all request copies of our surgical reports not just the path reports.
Did I ever tell you guys how on the morning of my mastectomy surgery they had everything written up to remove the WRONG breast? I ended up reading my entire file that day before I went into surgery (just in case).
Caya - does it matter if votes for Cassie are from outside of Canada? (I don't know if you can even tell). If it doesn't matter then I'll forward to a few friends.
-
Hello all,
Tina, I would wonder why he didn't tell you, when he wrote it in the surgical report. My doctor insisted I receive a copy of my surgery report. It tells all about what they did, how they separated all the segments, the SNB, and how I did during the surgery. When is your surgery, I know it is soon. We will all be here for you!!!
Jan, they put a big "X" on the breast that was to be removed prior to going into the operating room for me. Yikers...I'd be reading everything if they were going to take the wrong one too!!
Caya, your daughter's video was really enchanting. I sure hope she wins. It will be like the "January" chemo girls winning!!!
RobbinJaye, I hope you get the permanent position you are looking for. Nobody can live on that pittance they were giving you per month.
Lynn, I wish you well on your trip to the Bahamas. They say that "Noel" is heading for the Maritimes in Canada, and that there are already 84 deaths attributed to it. Be careful!!
Rebecca, your kids are just sooooo cute. I agree with whoever said that their eyes are just incredibly beautiful!!
Skye, that little dog is DEVINE!!
On the 13th of November I will have been on Tamoxifen for 6 months already. I still have horrible hot flashes....especially at night, so if anyone has a remedy (other than pills), let me know.
I went to my Yoga & meditation class today. We have a really great group of girls. One lady was saying how she detested these 6 cats in her neighbourhood, because they were always messing in her garden. After her diagnosis, and being home more often, instead of getting mad all the time at these cats, she wrote a book about them all. She went to each of their owners and asked lots of questions about each one, and then wrote this book. Now she loves them!! Funny how we can easily change our perspective!!
This "Mindfulness" study I'm in is really interesting. We also have to practice all these exercises for "Staying in the Moment". I'm really loving it.
I had 172 ghouls and goblins last nite. Some really wonderful costumes, and Thor was a really good boy, not scaring any of the kids, but just sitting and watching everything!!
Hope everyone is having a good day. Big hugs to all!!
Joni
-
Tina -OMG - that is horrible about the doctor not telling you. I think it is unethical. I think he should be more afraid of being sued over a "cover-up" than the actual deed. But it happens. When I had my hysterectomy and bladder lift in May 2004, I did not recuperate very well. I was so weak, just couldn't bounce back. One night when my DH was out of town I called my mother I was so weak, she raced me up to the local hospital (I was short of breath, very anxious). Turns out I was anemic. My GP then asked for the surgical report and the bloodwork they did on me right before I left the hysterectomy hospital, and it turns out they sent me home anemic. No wonder I was so sick for 3 weeks until this happened. I told my obgyn when I saw her for a postop check up - she apologized profusely, told me the resident who was in charge of my dismissal from the hospital that day missed it (obviously)- but admitted that it was ultimately her resonsibility and she missed it. So I accepted her apology, I did not want to start a whole thing. But I'll tell you, I always ask to see my bloodwork now.
Jan - Thanks for voting for Cassie. I think the votes can come from anywhere. I don't think the city where you come from is a required field. I know people from Michigan and Buffalo have voted. As Tina mentioned, other people have told me they had difficulty with the sound. I think the site might get alot of hits at once and this might affect it. So if you can pass this on and have people vote for her, great.
Joni - Thanks also for voting for Cass. I told her the entire Jan. Chemo Sisters Group is pulling for her. We had about 275 kids last night. At times groups of 8 or 10 would come to the door.
Rebecca - Yes your kids are all gorgeous with beautiful eyes.
Mel - have fun at the art gallery opening tomorrow night. I know what you mean about not being able to resist temptation. But what the hell- enjoy!! Art is good for your state of mind and thereby your recovery. This is what I tell myself when I indulge in retail therapy.
Robbin - at least you have something. Perhaps with the busy Thanksgiving/Xmas shopping season coming up you could find something better. Have you tried a temp hiring agency?
Hope some of you gals will be on chat tonight.
-
Hi gals,
Sorry I will miss chat, I'm on web radio, the Star and Jesse Show at www.psytalkradio.com at 9 EST. They archive the shows so you can listen later.
Tina I also agree it's unethical not to tell you something like that.
Mel I wish I could go to that art show with you! I love Aboriginal art. Enjoy!
Wow, I'm surprised that none of you with ports were put on the blood thinners. I wonder why I was? And Kristy evidently should have been but wasn't. These treatment scenarios are such mysteries. It must not be the standard of care, then, which means she wouldn't have legal recourse if her condition gets worse.
Caya I had Herceptin too this week, and dragging as usual from it. I slept til 9 AND needed a nap today.
Cannot believe it's November already! DX anniversary month for me. - Skye -
Hi Ladies, Sorry I have been quiet, I had a stomach virus over the last couple of days and trying to work as well. At first I thought I ate something bad when this hit, but Jeff and I had the same thing except I had an apple too and he feels ok and I can't imagine getting sick from an apple?? I peel and core them, only way I can eat them with my botched up tooth issues. Starting to feel better though.
Skye...Grendal is supreme! I wish we lived closer, he and Lizzie would make some mighty cute babies!!!
Caya, I will go to Cassie's video next and vote as well. Shoot she has my vote with or without the video!
My sister went for her mammo and her Dr. wants her to have the MRI after learning about me. I am glad, since my mammo's didn't show anything until I could see the tumor myself. I don't want her to have to go through that nightmare. She is 4 yrs older than me, but we have done everything in sequence. Her oldest and mine are 4 months apart and our youngest are 2 months apart in age.Both by C-sections. We both had gallbladder's removed, she's had a hysterectomy, although I have not. She is really considering just having her breasts removed, she's about an A cup anyway so she figures she won't be missing much. I don't know though, I sometimes regret not having recon. Now I am just to beat to go through it. I am Dr'd out! This is everyone's anniversary time, I am getting weird feelings, such as anger, fear and like before, regret. Sometimes I think I need professional help. I don't like myself very much. I am irritable ( menopause) I have been having the nack for saying the wrong things, making people mad or looking at me like I have 3 heads. I'm not sure what is wrong with me. Ever look in the mirror and not recognize the person looking back? That is me. I am even pushing my DH away. Oh well , that is pretty much why I don't post much anymore, not necessary to bring all of you down with me. But I know I can turn to you when the need arises and I thank you all for that. Love you!
-
Hi everyone. If I mention nesting again, send the police after me, ok? I've started the painting - getting the trim and cutting in done in the living room. I'll start rolling the walls tomorrow night after work and finish the second coat Saturday morning in the daylight when I can see. I just want to get this done! A nice lovely cream for the living room and a very light blue for the kitchen/hallway. It's all open to each other so I'm hoping it all flows together color-wise.
Caya, glad your MIL is doing well.
Skye, Grendel is adorable. Truly!
Robbin, I'll be saying some quiet words for you to find the right job soon.
Lynn, good luck with your travel plans.
Wow, Joni - that many Halloween visitors. I think I had maybe 25. Then the older kids started coming around so I just turned off my lights and hid in the family room.
Nancy, it's so true that this anniversary time is emotional. I think the Effexor I'm on for the hot flashes have helped to keep me on an even keel. even so, reviewing the last year, wondering about the future....it all comes back and slaps me in the face.
Now I'm wondering what I can do to decorate my left breast so when I get into surgery the staff will have a moment of fun. It's not like there's any question which breast to remove since there's only one. Anyone have any ideas?
Time to go put on my jammies.
Cindy
-
LOL Cindy...you are so funny! How about decorating it like a ship leaving port...."Bon Voyage!"
-
Nancy, I'm sorry you are feeling down. It is an emotional time of year for us. My dx anniversary is next Wednesday and I'm not sure how I feel about it yet. We'll still be in the Bahamas, so I think we'll have a special lunch. I think it's a bit extreme for your sister to remove her breasts unless you and/or her test positive for BRAC1 or BRAC2 genes. Please do not stay away because you think you'll bring us down. We are all going through a lot of things and I think everyone would agree that you should always feel comfortable posting anything. That's why we are all so close because we can do that! Big hugs!
Cindy, when is your surgery? LOL about decorating your left breast.
Our doorbell rang once on Halloween!
Although we have plenty of neighborhoods around us, we live on the main road so not many of the kids venture up here. ah well. I do buy candy that I don't like so I don't eat the leftovers.
Skye, I wasn't on blood thinners either when I had my port.
Caya, I hope Cassie gets the internship!
Tina, absolutely unethical that the Dr. didn't tell you. Especially if you have problems from it.
Joni, the mindfullness study you are in sounds really great! I feel like I don't have an extra second of time to do anything like that. Everythign is so busy all the time and will continue to right up until my surgery. I have soooo much to do.
More drama with my trip. I logged into aa.com last night to check on my flights and the Saturday flight was not there, it disappeared!
I just could not stop crying. I was already so emotionally exhausted from the past 2 days of fighting with them. I happen to print out the itinerary the night before (thank God). So I'm talking to a supervisor and she says 'Well, all the flights on Saturday are booked' I just about lost it! I told her I have a print out that shows the flights were there. She says 'does it have the ticketing number on it that starts with 003'? Unbelievable! I said, no, and the website doesn't show that number. I can only print out what YOUR website shows me. OMG! She agreed to me faxing her the printout and said she'd call back. 1/2 hour later she didn't call so I call back into the number. I get another woman who looks at my reservation and says 'how could that happen'? She put me on hold and came back about 10 minutes later after talking to another supervisor that said they found the mistake and will get us back on the flights but have to wiat until morning becuase it's some special process (I'm sure they'll need to kick someone else off the flights). As of right now, I don't have flights going to the Bahamas, but I have a hotel and flights home. I had to take an Ativan last evening because I was so stressed out. American Airlines will be receiving a letter from me when this is done. I am never using American Airlines Vacations again.
Anyway, I haven't even begun to think about packing and have to work all day. Better get to it!
Have a great day!
love and hugs,
Lynn
-
Nancy, I second what Lynn is saying. This is exactly where you should come to vent. No matter how much our families and friends care, unless they have been through this, they don't understand. I look fine, actually feel fine, but I think the emotional side of it didn't really hit until the last month or so. We are all coming up on our anniversaries, and I think we are all just realizing just how difficult the past year has been. So do feel free to rant and weep; this is a very safe place.
Gosh, Lynn, what a drag to have to deal with the chaos of the reservations! Hopefully you will be there tomorrow and can unwind. Have a safe and happy trip.
Caya, I voted for Cassie today. She is lovely! Glad your mil is doing well. I am sorry you and Skye have to deal with herceptin and the fatigue it seems to cause.
Tina, how is your husband holding up? How are you?
Off to work for me. I leave Sunday on the five day business trip and have a ton to finish today to be ready. One " side effect" of bc is a near phobia about driving, and there is a lot of driving involved over the next several days. I will either come to terms with it or be a pretty nervous person .... I have broken the trip down into manageable segments, am staying at very nice hotels, and made sure they all had room service. One of the perks of making my own travel arrangements. Anyone else more nervous about driving than you were before?
Melia
-
Hey Amazing Ladies,
Melia, I've had some nervousness about driving but mostly fear of getting too tired to make it on a long trip. But I did make the 4-hour drive this weekend with no problems. However I do blame chemo-brain for going through a red light the other week. I'm trying to be extra-cautious at intersections and no "zoning." I think your plan to break the trip into segments with lovely hotels waiting for you is a great one. Also remember to pack good car snacks like almonds and grapes and chocolates.
Tina I've been wondering how you and dh are doing too.
Nancy, everyone is right, this is your place to vent. I'm absolutely overwhelmed when I think of how my life has changed over the past year. All the meds and steroids and poisons we've absorbed to boot, this is bound to be a challenging time for us. But I also know we will get through the mental and emotional processing like we did the physical treatments. Together we are very, very strong.
Lynn, that plane ticket fiasco is unbelievable, I'm so sorry you had all that stress before your trip. My son just left this morning on a Jet Blue for NYC to visit a college friend, so I'm hoping his flight goes ok. He has been sick with flu again all week and had bad asthma last night from it but no way was he going to miss this trip. But I hope you have the best time in the Bahamas and forget all about the ticketing snafu. Just don't drink the red shots in Senor Frog's or go snorkeling in the deep ocean! :-)
I am just catching up on routine chores and trying to get some major writing done here, DH is turkey hunting so I have the house to myself, a treat!
Here is a poll question: How are everyone's eyelashes? Mine have not yet attained their former length. I'm glad to have them but would have thought they'd be longer by now. I'd say they are about halfway there. So I'm lashing out, haha. - Skye -
Melia - Yes I have been nervous to drive long highway distances. I don't have to that often, as usually DH does it. But a couple of weeks ago I had to drive the DH home from the hospital after he had a routine brain MRI to check on his aneurysm (he's ok). It was a 40 minute highway drive, and I was nervous.
Skye - so funny that you mention the eyelashes, mine are not nearly as long as they used to be, I was just thinking about this the other day. Could be the herceptin, I don't know. Have any of you other ladies noticed this?
Nancy - whine away all you want, that's what we're here for. I think the one year anniversary of dx is upsetting for all of us, it's natural to be moody etc. Also I think you are on Tamox., that can make you irritable too. We just have to adjust to the new normal, the new us.
Lynn- sorry for all the aggro you are having with American and your trip. You should document all this and try to get a freebee vacation from them.
Cindy - your paint colours sound lovely. When is your surgery?
Just going to do some work today, then later this afternoon the DH and I will go down to the hospital to spend the evening there with my MIL. Looks like they will send her home tomorrow.
-
Lashing out, huh? LOL! My lashes are definately not back to what they were either....but I had a secondary lash-loss a few weeks ago. My eyebrows are still much thinner than before BC, which is actually OK, because they were a bit bushy before. I have an added bonus that I have not yet mentioned....I have virtually no hair on my legs or under my arms any more! yipeeeeeeee! It came back after chemo with all my other hair, but it has been slowly falling out since then, and I am now at the point that I have not even had to shave. I think it must be the hormones...but this is one side effect I am not going to complain about that is for sure!
Nancy...please do not isolate yourself. We love you, and if you need support that is why we are here. We have all taken turns at the bottom.....we need each other to ensure that we can climb back out.{{{Nancy}}}
Lynn that really stinks about the airline...maybe they are just trying to make you really need that vacation (ha ha). Seriously that is totally ridiculous....I think it would be less bothersome if they were at least consistent....is it cancelled or not? UGH
Melia hang in there for the business trip...I agree with Skye, do not forget the chocolate! I am also partial to books on tape when I have to drive like that.
ok...quiz is almost over now, have to get back to some real work. Have a great day ladies!
-
Nancy - you never bring us down, please post anytime about anything you want. That's why we are all here. I've certainly been going through the same feelings. Your question about not recognizing yourself in the mirror really hits home.
Rebecca & Skye - My lashes aren't back to their regular length yet (and I don't have herceptin as an excuse). I think my brows are still too thin too - but I'm not sure anymore what they used to look like. Rebecca - just in the last two weeks I've noticed that I rarely (maybe twice a week) have any need to shave under my arms. My leg hairs seem to be diminishing also. At least there are a few benefits to early menopause.
Lynn - I hope your airline fiasco gets straightened out soon. I swear with the way airlines treat their customers I think they want to go out of business. It's horrible.
-
Nancy, girlfriend - you are certainly allowed to not post when you are ill, but otherwise, please post away without worrying about bringing us down with you. We need you here. We love you here. Your posts are always so authentic, and one of the things I love about you is that you just are able to cut right to the heart of the matter. You speak for all of us, and we are all going through the same stuff. It is helpful for me to read your posts and think "yes, that is exactly how I feel, too." So please don't stop posting. And there is nothing wrong with you, nothing not to like. You're a human being, you've been through an awful year, and you're coping as best you can, but you are so wonderful and so special, and I am so very proud to be able to call you my friend. Don't be so hard on yourself.
I think we are all going through the same feelings of anger, fear, loss, etc. now - I thought once I got through the treatment I'd be done, but now I see the work is just beginning. I also have to be careful not to push my dh away because I'm not feeling great about myself. I try to remember that he loves me even when I don't love myself, and that he has had a hard year too, but sometimes it's still hard.
Cindy, you are going to have one beautiful sitting room, it sounds like. I admire your energy. Definitely decorate your remaining breast - might as well have some fun.
I can't believe how many Trick or Treaters you Canadian girls had! We had exactly 0. None. We usually only have two or three groups, as we are on a circle of patio homes, which are not favored by families with children due to the fact that they only have two bedrooms. I buy candy that dh likes and not me. Hard to do, because I tend to like most sweets.
Lynn, I can't believe all you've had to go through with your trip. As if a tropical storm weren't bad enough, you have to deal with American Airlines too! I avoid American whenever possible - they are always unreliable, and so prone to delays once you are on the plane that I always swear I'll never use them again. Then I have to, and it happens all over again. I wish you luck. Once you get there, it'll be worth it.
Tina, it is totally unethical that you weren't told about the doctor nicking your bladder. No excuse for that except (I would guess) his big ego,not wanting to admit he made a mistake. That comes from working with surgeons for 30 years. Only secondarily would it be fear of legal consequences, as I'm not sure that would be anything you could sue over anyway. Anyway, it was definitely unethical, but I didn't find it particularly surprising. Most surgeons would probably tell the patient if that happened, but some wouldn't. There are a lot of things that don't get communicated to the patient, unfortunately.
Melia, best of luck on your trip, and enjoy the room service and anything else you can find to enjoy. I worry about driving, too. I just don't feel as sharp as I used to be, and I have made a couple of driving errors that could have caused an accident. I just can't relax behind the wheel like I once could, or I could be dangerous. And now I have the new car to worry about, too. Wouldn't have been so bad to wreck the old one.
Skye, my eyelashes are about 2/3 what they used to be, maybe - eyebrows are about half. Thank goodness for eyebrow pencil. The eyelashes have been very slow to come along, but they're finally getting there in the last month or so. Leg hair is definitely way less than before. I rarely need to shave.
Well, Harrison and I slept in until 11:00 this morning. How in the world am I ever going to manage a work schedule when I still need to sleep until 11:00??? And I needed to sleep that long, truly. Guess we will see next week, huh? I was going into Houston to shop today, now I barely have time. Guess I'll just go this afternoon and stay until after rush hour traffic subsides. I hate having to worry about traffic.
We ended up not going to the art gallery last night - it is 25 miles through rush hour traffic, and dh has had a hellacious week. I was very tired also. So we decided to skip meeting the artists, and we are going on Saturday. The art will still be the same, and less crowds. We are very lucky to have an Aboriginal Art gallery in Houston - there are only a very few in the country. Skye, I didn't know you liked Aboriginal Art, although I am not surprised, now that I know. Wish you could see our stuff. We have a little bit of everything. When we started buying, it was very inexpensive, and prices have gone up to the point that we can't just buy anything we want anymore, but as a result, we have ended up with a nice collection. The people who own the gallery are fascinating - we love going there.
Well, better get busy doing something.
-
Mel I don't blame you for not wanting to do the rushtime traffic thing, let us know how you like the show after tomorrow.
Cindy I forgot to mention earlier how much I love the idea of the surgeons opening your gown and finding original Cindy Art. Be sure to sign it too. The departing plane is good, or maybe a rocket with the words, "Lift Off!" Breast decorating, home decorating, you are truly in embellishment mode. The room colors sound soothing and lovely.
I guess I'm glad I'm not the only one with short lashes. My brows are thinner too and I've had to fill in with pencil. Pits have also stopped growing, and I barely need deodorant, just a little Tom's of Maine does the trick. Leg hair is much slower too, and they used to be a brunette jungle if I let them go. I consider this all a great perk, except the lashes.
My weekend to myself fizzled. Nate called around noon to say his friend caught him just before he got on the plane to say he was deathly ill in New York. Since Nate has been sick too, he was relieved not to have to go and reticketed for next weekend. So he will be back any time now. Oh well. Probably best for him. Maybe he will go spend time with his new girlfriend from the petting zoo farm.
Have a great weekend everyone. - Skye
P.S. Is anyone near the Visionary Arts Museum in Baltimore? I just signed on to be a speaker at an event there March 29. -
Hi Guys,
Just checking in quick here. Not too too much new. Melia, no, no driving phobia here at all. I drove all over the country this summer and I found it to be a good mental escape.
Lynn, I'm worried about you getting OUT of Boston w/the 70 mph winds they are expecting on Sat. Hope it all works out because you deserve that vaca!
Went to "Entres Vous" today w/three friends. One of them won a party of four (three meals each) and we went and put together the meals. It's like Super Suppers or Dream Dinners. Very nice of Kim to ask me along. I made the Chicken Florentine tonight and it was very good. Very easy.
The deal at DH's work still isn't settled. His official resignation date was Oct. 12 but they haven't ironed out the details. He was paid as usual on Oct. 26, the normal amt. and I was glad as that meant my insurance premium was paid. I figured the next check, they'd just retract the add'l funds in the 26th's check. Well, today, don't I sign on to pay a bill and discover they DEBITED our account for the entire paycheck amt. Which translates to my insurance not being paid. I FLIPPED OUT. Our lawyer has been in trial all week. I called the company directly. Supposedly it's straightened out, but I don't know. I don't trust them and I cannot afford to be uninsured even for a minute because if I have any lapse, an insurance company will do all the can to get rid of me. I know I can do COBRA, etc., but I didn't even want to go there. Fortunately, the DH made a lot of calls today about jobs....that pay far less, but I don't care at all. Nothing panned out today.
Nancy, hang in girl! Things will get better!
-
Hi girls,
I finally got ticketed this afternoon around 4. It's been quite the whirlwind. We're all packed and leaving the house around 5:30am.
Tina, I fly out of Hartford (thanks goodness). The winds aren't supposed to be bad at all, just around 20mph. And we're flying out early in the am, so we should be out by the time it gets bad.
Thanks for all your support!
-
Lynn, I hope you have a good trip after all you've been through.
Nancy, hang in there, we're there for you.
Skye, not near Baltimore but have been there for the aquarium!
My leg hair is much less and pit hair nonexistent. I'd say my brows are about 10 percent less. I never had very good eyelashes - so no loss there.
Melia, funny you should mention driving. I tried to drive home in the dark in my DH's car with him in the passenger seat from my DS's college last weekend and couldn't do it. I was so panicked by the dark, the semis, the road. I finally pulled over and made him drive. I'd have been much better in my own car.
Caya, I hope Cassie wins. I couldn't hear the video (my speakers are off) by she looked mighty cute.
Ds#1 is lonely in TX - I told him he should volunteer or do something on the weekends to meet some good people. He travels to his fiancee's once a month but the other weekends are lonely. What we have to do these days to get a job! He's coming home via Chicago next weekend for the actual bday celebration. Ds#2 is now sick with a cold, but when I saw him last weekend some cute girls sat with us at church -- guess someone is interested in him!
I'm glad the weekend is here. Next week starts my awful hours. My boss of 30 years and I exchanged terse emails at the end of the day. I tried to explain that unhappy employees means they lose. They don't seem to get it. Tomorrow is the big rivalry football game - U of M v MSU (where my DS went). Going to a friends to watch the game. It should be fun although we are a major underdog.
Amera and Mizzy, where are you?
Robbin, hope you get a better job soon. Good for you for at least taking what was available.
Jan, Tina, Mel,
Vinnie, Rebecca -- thinking of you. We are a special bunch.
Going tomorrow to my DH's friend's house whose wife just had a mastectomy Tues (a month ago she had a lumpectomy and they found more). Her name is Mary too. Keep her in your thoughts. She is down and out. Her DH has lost so many jobs these past few years and now they have foreclosed on their house. Now this. They are faith-filled people but you have to wonder how much you can take. Hugs
-
Tina that Entres Vous place sounds like a wonderful idea. How great would that have been during chemo? The check deposit problems, however, not so wonderful. It's like his old place of employment can't stop messing with your lives. It's encouraging that your dh is finding a bunch of places to talk with, though, and even if he takes a lesser job he can still keep looking. I think it's easier to get a job from the position of being in one.
Robbin I hope you keep looking too, it probably will be the same way for you. Enduring a "meantime" job shows employers you are willing to do whatever you need to. Hope you find one soon.
Mary, my heart goes out to that woman who needed the lumpectomy and then mast, with all their other problems. Makes you wonder why some of us seem to get picked for such a heavy load. I'm glad they are people of faith, it's just too hard to get through stuff like this otherwise.
I intend to work this morning then go see if I can find a new winter coat later on. Tomorrow when dh is home we plan to go visit Grendel so he can keep getting to know us before we bring him home. I have this urge to go to a pet store and buy puppy stuff.
Lynn if you check in I'm so glad you finally solved the ticket quandary and wish you a marvelous vacation. - Skye -
hey there the weekend is here & the weather is starting to get cooler .
Caya : I voted for cassie she is charming , good for both of them getting good news and such . Feels good eh ? our Halloween here was slow maybe 10 kids , but we are on a main arterial rd and no sidewalk on our side . My oldest still dressed up this year and youngest worked . This is it no more trick or treaters in my house , maybe parties !
Mary : I have found that i pay no attention to the petty things at work anymore , i get a tad angry just for a sec but then quickly let it go ...... it seems easier for me now not to let the little things bug me i can relax myself and carry on . Try not to let it bug you its not worth it ! There have been bigger things we have overcome ! Work will always be full of pettiness . There will always be the power hungry gonads out there . I have worked at my place for 20 years and still there's the "newbe" boss thats gotta remind you that "they" "know " Ya ya i say ok words fly like the wind and disappear quickly let them fly mary .....
Robin hope that this job leads to better , network girl latch onto anything you can you never know where a connection might lead. You could also try volunteer work ..... that can lead to opportunity and you meet alot of people . I volunteer for our local ospca and am going to our big agricultural fair next weekend i help at the booth and answer questions about animals adoptions , animal cruelty and stuff . Be resourceful that dream job will be there !
Lynne have a good holiday hope the storm missed you .Our atlantic provinces are bracing for the storm too .
Rebecca my kids are too big for treats your look great ! and puppies are adorable .
Nancy vent vent vent we are here !
I had to go and have my physical last week along with a appt with the ear nose and throat specialist . I have ringing between my ears and am off balance to the right side . They also found a spot on my kidneys during my bone scan . Sooo after both visits I am off to get a ultrasound on my kidneys and a mri on my head ! On top of that i had to have my blood drawn for my onc apptment next week and they had trouble getting blood , my veins are shot , blood was leaking out of my arm and it took about 5 min to fill the tubes ... Yuck yuck yuck it never ends....... Soo I know i have an inner ear problem and there is not much they can do about it the chemo did make it worse the dr indicated that can happen ... the mri is to double check and that makes me feel better the cat scan i had showed nothing . Just the rinnging between my ears gets annoying .
The kidney is likely a kidney stone . Great !
Soooo i am off to do my Sat chores hope all are doing fine ..... we are carrying on , trudge trudge ..... swagger swagger
-
Oh, Sharon, glad to hear they think the spot on the kidney is a stone. That's a relief.
We had a lot of kids, as usual, for Halloween. I'd have to guesstimate betw. 75 and 100.
Skye, I was first introduced to Dream Dinners after my mastectomy. A neighbor sent over six fully prepared dinners for my freezer. I went back myself the following month and did it on my own. Intially, it sounds pricey, but when you really think of it....say $23 to $27 per meal, but that serves six (or four w/good appetites), it's not that bad. Plus, the ingredients are totally fresh, herbs, etc. Fresh herbs alone can set you back $5-$6 and you end up throwing away the extra because you never use it on time. Plus, my all time favorite part: takes the planning out of dinner. More days than not I say at 4 pm "Damn! I didn't take anything out of the freezer!" I'm not a good food planner at all. Or cook for that matter.Oh well. I like to eat!
-
Hi, I finally finished skimming through the posts I missed while I was gone. Boy! Have you been busy bees posting up a storm.
Our trip was pretty good. My hubby's aunt looked really good. The nursing home staff had her hair and make up done especially for our visit. She had on a nice blouse and jewelry, too. The way she hung on to my hubby's hand it was like she didn't want him to leave.
We saw some of that nice Fall Color that we don't get in this part of Texas. The trees were so pretty down through Illinois, Kentucky, and Tennessee. The small section of the Natchez Trace we traveled was very pretty. I even saw a couple of deer on our way into Collinwood.
On Friday when I went to my water aerobics class, the ladies remarked about how my hair is growing. When I get the photos from the September lunch back, I'll compare them with the ones I took last week with my digital camera. I'll post them if they come out good.
Skye, I like that term "lashing out." I'm so happy to have them back that I don't care if they are a bit shorter than before. The mascara always smudged my glasses anyway. I'm starting to grow some sparse armpit hair, but the hairs on my legs are few and far between. I guess it won't be too long before I need a bit of a shave.
We had only 18 Trick or Treaters at our house. Luckily the bag of fun sized Hershey bars had 22 in it. I remember some years not that long ago when we had 80 or 100 show up. We had 4-5 bags of candy and had to hand out dimes when it ran out. My hubby believes in buying only the candy he likes. That way the leftovers don't last too long.
I hope you all have a good weekend.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team