Anyone starting Chemo in August 07?

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  • kimmie39
    kimmie39 Member Posts: 319
    edited October 2007

    Hi all,

    YEA!!!  EVE'S a GRADUATE!!!!!! Let me envy you for a moment. Not much envy in the world of chemo but Im so happy for you. Im bringing up the rear, last chemo November 9th!! 

    As for working I own a company (SMALL!) with my husband and I only go in when I feel like it.  But the first time I had cancer I took off on short term disability. I think you gals are so strong to keep it all going. But if you cant there is no shame in taking some time .

    Nash - Im right there with you on the school thing. Have you ever seen the commercial where the guy is singing and jumping thru the isles of a store clicking his heels together as he buys back to school supplies? LOL

    NACHOS!!!!!   YUM YUM

    Hey yall going trick or treating with your kids?   I could be Fester Adams from the adams family. LOLX2

    Hugs from Va

    KIM 

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  • nash
    nash Member Posts: 2,600
    edited October 2007

    Kim--love that commercial--I think it's for Staples? Anyhow, my DH and I always hum "It's The Most Wonderful Time of the Year" right along with it every fall. And I will sing it at the top of my lungs tomorrow morning as I shove everyone out the door. While I am enternally grateful that my house didn't burn down, 8 days with two kids who couldn't play outside has gotten a touch trying.

    As far as the working thing, more power to y'all who are going in to an office. I work from home--very few hours, as I cut way back on clients when I was diagnosed. Have no idea what I'd do if I had to go in to work. I have one client who I work on-site for, and after a couple of hours, I'm really pooped. Fortunately, he's really understanding.

    And yes, will be dragging myself around the block on Wednesday, trick or treating. I have a touch of straggly hair left, and currently look not unlike Filch, the caretaker with the cat from Harry Potter. 

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  • wackyjackie
    wackyjackie Member Posts: 669
    edited October 2007

    Eve,

    Congratulations...woo hoo!!!!! I am so happy for you.   I hope and pray you get the slightest se's ever.  Just keep in mind it's done.  That is wonderful. 

    This really has to be the worst year ever....i fell on valentine's day, just getting the mail during a snowstorm, and broke my wrist. My husband got laid off from work, got a new job in August and they just sold the bank he's working for!!!LOL..if you don't laugh, you will cry.  I must say I've been trying to laugh a lot. 

     I think we all have the new year to look forward to and after all we've been through it should be like starting a new life.  I hope.  Anyhow, I couldn't have gotten through without all of you girls.

    Lots of hugs, Jackie

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  • yellowtownhouse
    yellowtownhouse Member Posts: 142
    edited October 2007

    Hey to Everyone,

    I have a little more information to share with you all.  I put in a call today to our national Director of Rehab Services.  She is a great

    lady who has been in her field for many

    years.  I asked for advice re: the neuropathy from chemo.  She stated the following:

    1. any sort of electrical stimulation (used in neuropathy for diabetics) is contraindicated for cancer patients.

    2. Gently massage affected areas 2x's a day.

    3. Immerse your hands (or feet) in raw rice and rub with your fingertips and toes and balls of feet.

    4. Rub your hands and feet over different textures of fabrics.

    5. Stand slightly away from a wall and lean forward placing your palm againest the wall (this stretches the nerve endings).

    She said she would also do some more research for us and get back to me.

    Eve:  WAY TO GO!!!!!  You did it girl!  :>

    Kimmie:  You're not bringing up the rear, I finish on Nov. 16th.

    Kaye:  How was the luncheon?  Are you still on vacation?

    Nash:  "Oh happy days, oh happy days"  God, do I remember blizzards in the midwest with no school for days at a time and sometimes no electricity or heat.  :<  It would be so cold we couldn't bribe the kids to go outside.

    DeAnn:  You asked about everyones working hours:  I work 4 days a week (most weeks).  However, when I was on A/C, I missed one h***** of a lot of work days. 

    Tami:  I found it really interesting that your bone pain started 48 hours after tx. and lasted for 5 days.  That's EXACTLY what I had.

    Anyone else fall into this parameter?

    Angie:  So glad to see you posting girl!  Keep us in the loop, ok?

    Hope I haven't left anyone out.  You all have a great evening.

    June

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  • katoMato
    katoMato Member Posts: 645
    edited October 2007

    Hi Ladies!

    Back from the ashes with a smile on my face. (Boy, did we need to get away!)

    Jackie and all you bone pain gals - what a drag! I may be joining you in bone pain pergatory when I start the Arimidex - but i sure hope not. Thanks for the graphic  descriptions. Now I'm freakin'. All things considered, I'll be trying June's remedy of the 1/2 glass of Chardonnay FIRST. (I'm not COMPLETELY out of my mind.)  If that doesn't work, I'll drink the OTHER half.

    Tami - I'm sorry about your fatigue, too. There's nothing like being too fatigued ...except like maybe having your lips go numb. (LIPS go numb? Are you KIDDING ME?? The neuropathy is supposed to be in your EXTREMITIES. Where ARE your lips???) Be careful kissing things. You could cut yourself.

    Or get them pinched in a door jamb. You're going to HAVE to pay attention.

    DeAnn - I'm glad the blood in the urine seemed to resolve itself. What did the culture result show, anything? My thought with that is always kidneys. I had a HORRIBLE kidney infection years ago that snuck up on me and almost did me in. Please keep tabs on that.  Are you drinking lots of water?

    Eve - Congratulations on finishing...you did a great job. You're STILL doing a great job. To answer your questions about follow-up, all I know so far for me is that I have a "recheck" exam (whatever that is) in January. Mammograms every 6 months from then on. (I'm starting rads tomorrow, but that's not really "follow-up", it's more like the connecting flight in this trip.

    Uncle (Kimmie) Fester - You and Nash as Filch trick-or-treating on my street and my 21 year old may have to re-think terror as he knows it. Actually, I think we could all give these kids a run for their candy if we just removed our hats, stripped to the waist and answered the door. 

    (MhhoooooohHAAHAAAAHAAAAA Haaahaaaa!) 

    And finally, JUNE - I'm lovin' the homeopathic instructions for neuropathy. I don't have neuropathy but i really wanted to try them. (Who DOESN'T want to dig their hands into a bowl of raw rice and play with it, i ASK you? And TOES TOO?) It's just so tactile I'm in heaven. Ask your friend, if I rub it on my temples will it stimulate my brain to work, too? IMPORTANT NOTE: The rice MUST be raw. When cooked, it gets stuck in your ears. Then you just can't hear.

    Nash - sorry you're feelin' so bad. I missed you,and Eve, and I did NOT have a nacho for you or anyone else, because I was "BEING GOOD" and had a SALAD. Then I went back to the hotel room and ate a pound and a half of cheese before dinner as a reward for my virtue. 

    WhatEVER. 

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  • nash
    nash Member Posts: 2,600
    edited October 2007

    Well, dang, Kaye, I was hoping you were eating something more interesting on Sunday than I was (I had ramen noodles). Hey--saw the brunch picture of you gals--what a cute group! Cool

    Like your Halloween idea. I get enough weird stares with my hat and clothes on, so I bet I could really make a statement if I doffed them.

    Rads, tomorrow--holy moly! Are you on the daily for six weeks plan?

    Oh--and I win the bringing up the rear on chemo contest--Dec. 6 is my last round. Good grief. It's endless.

    My mom is currently down at UCSD with her second opinion onc this morning. We got the hard copy of the CT/angiogram report that had diagnosed her pulmonary emboli. Our crazy onc forget to mention that there are new mets in her lungs as well. Details. Very frustrating, b/c we were operating under the impression the past few weeks that there was no new disease in her lungs. And for some reason the report doesn't say how many masses or how large, just that they are there and are bilateral. So I'm just a wee bit agitated. 

    Anyhow, shall now go and stick my head in a bucket of rice, b/c you're right, Kaye, that actually does sound soothing. 

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  • DGHoff
    DGHoff Member Posts: 624
    edited October 2007

    Nash, I'm so sorry to hear what your mom is going through. How frustrating to not get all the facts. I'm keeping you both in my prayers.

    Actually, it seems I am bringing up the rear with the chemo. I still have nine weeks to go, so I won't finish my last Taxol until December 28th. Ugh! At least I won't have to go into 2008 with chemo! 

    DeAnn 

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  • nash
    nash Member Posts: 2,600
    edited October 2007

    12/28! Oy!

    Thanks for the prayers. 

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  • katoMato
    katoMato Member Posts: 645
    edited October 2007

    Wow, Nash. What a blow - how's your mom holding up? She's probably pretty discouraged, eh? I'm so sorry. I'm really glad she's getting a second opinion though. Is she going to continue with them for further treatments? Maybe your local center will work with UCLA to allow her to have treatments close to home? It didn't work for me, but I've heard some will do that.

    Ditto on the prayers.

    D - I'm hoping that time will just fly by for you - it does this time of year for us. Just think how great January is going to be. And STAY HEALTHY IN THE MEANTIME. It's all worth it. Miserable, but so worth it.

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  • katoMato
    katoMato Member Posts: 645
    edited October 2007

    Oh, Btw - lunch was fun, but without the history there were a lot of people to get to know in a short time.

    Yes, rads daily for 6 weeks. 1 down, 32 to go. The good news is that I'm able to walk to the appt. so I get to sneak a little exercise in every day. And the dr told me to NOT LOSE ANY WEIGHT during treatment. I told him not to worry.

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  • yellowtownhouse
    yellowtownhouse Member Posts: 142
    edited October 2007

    Hello to all,

    Kaye: This Arimidex you're going to take...I'm not familiar with it.  Is it supposed to cause bone pain?  Sure hope not. 

    'Rads'...connecting flight....now I love that analogy.  That's exactly what I'm going to remember when it's time for the surgery and then the radiation...thanks!

    Where is the brunch picture.....whine  whine....

    the rest of us want to see it too.  :>

    Nash:  I am so sorry about your mother.  Just so much of this damn stuff isn't fair and it's so hard to swallow when it's incompetencies from our health care providers.  I'm praying honey.  If you let Kaye and I loose,  we'd make mincemeat of that doc.  How do you feel about 'voodoo dolls'....I told you all I'm from the south!

    DeAnn:  You're so right...when you do that last tx., you can kiss 'ole sorry a..... 2007 goodbye and get on with a fabulous 2008. 

    A wonderful evening to all.

    June

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  • nash
    nash Member Posts: 2,600
    edited October 2007

    Hey--doctor's orders on the weight! Gotta love that! That's cool that you can walk to the appointment--what a good way to get the exercise in. So how did rads go? I hear the process itself is pretty fast. Did they have recommendations on how to manage the skin irritation, etc?

    My mom is back from UCSD. The onc there doesn't like to retry chemos, so she's suggesting clinical trials at UCLA. Don't know if that means we'd have to trek up there or what. Our crazy onc locally is willing to retry chemos (she's on a retry right now), so I think that's the way to go first. Crazy does have its place.

    Just got back from the funeral of yet another chemo friend. I don't bring this up much here, but we do know a lot of Stage IV people, as we spend all our time at the cancer center and therefore don't hang around with the healthiest bunch. Sigh. I'm thankful our group here on the boards is doing well in that respect.

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  • nash
    nash Member Posts: 2,600
    edited October 2007

    June--hey, chickie, we were posting at the same time. I may need you girls to come kick the onc's patootie one of these days.

    The brunch picture is over in the Get Togethers section, under the "San Diego" thread. Since I am still hopeless at pasting links, we will have to wait for Kaye's DH to come along and help. Or you can dig around over there--it's on the last page of that thread.  

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  • katoMato
    katoMato Member Posts: 645
    edited October 2007

    Mr. katoMato here....Presenting the San Diego Lunch Bunch:

    Melia, SoCal, Kato, lini, 3boys4me, Shirlann,LisaSDCA,

    Starfishlisa and in the center, BMD

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  • Monkeygirl61
    Monkeygirl61 Member Posts: 49
    edited October 2007

    Kaye, I really don't know what we'd do without you.  You totally had me lmao!  I guess I'll rub raw rice on my lips, although sticking my head in a bucket of rice sounds good.  BTW you look GREAT!

    My last chemo is Nov. 29 and then 33 rads so I guess I'll still be going in 2008.  I (and my wallet) wish I could start now so I could get it all over with this calendar year.  My dh's cancer treatment crossed 2 years and I guess mine will too.  Oh well, at least we have insurance.

    I've been told not to lose weight too, that's the first time in my life I've heard that!  Gotta love it.

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  • katoMato
    katoMato Member Posts: 645
    edited November 2007

    http://www.mamm.com/highlights.php?&qbackid=46bcc4de50f86c19_86264&qbacktitl=Current%20Issue&seq=4

    holy cow. i think it worked. i may have a stroke.

    June - here is a link on Arimidex. Please note that I DID IT MYSELF.

    (Tell me if it doesn't work. i won't be surprised...i'll just have dh fix it.) 

    The article is the one called "Turning Off Estrogen".

    (oh my gosh, i'm so excited, i just did a link! HeHe!) 

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  • wackyjackie
    wackyjackie Member Posts: 669
    edited November 2007

    Hey Girls,

    On a light note...I am so full of candy!!!!!!Boy, it was fun.  Hope you all had a nice Halloween.

    Hugs,  Jackie

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  • katoMato
    katoMato Member Posts: 645
    edited November 2007

    Halloween - aaahhh. What better way to obey Doctor's orders and "not lose any weight", by jumping up every few minutes to answer the door which just HAPPENS to be next to a gigantic bowl of CANDY. There is a very subtle irony here that shouldn't be missed.

    Nash - To answer your question, the entire rads experience has been like putting the USS Enterprise into warp-drive to leap into hyper-space. One week I was calmly pondering what oncology radiologist to use - we had a consult one day, the next week he had me do a CT Scan, then 5 days later I'm getting toasted. The CT Scan (and whatever else they did - positioning, marking, tattoos, simulation?) was all done at one time in less than 45 minutes. The actual treatment is about 10 minutes max. I walk there (takes 5 minutes), take my shirt off, lay down, blink, get up, put my shirt on and walk back (same 5 minutes in reverse)...I'm back at work in under 30 minutes. Sure beats the 2 hour drive one way to my chemo infusions.

    He said I should feel fine for 2 weeks, then I can expect some redness, the fatigue would start sometime around then. He said cotton bras only (if any. "IF ANY"?) after week 2, Aloe Vera 100% jell 2x a day starting now, and if any irritation arises, call the nurse and they can advise me about it at that time. So far, it's not bad at all. (I'm not thinking about what damage might possibly be happening to me because of the radiation - but it's got to be better than cancer. Am I right?)

    Ah! It's 9:pm and all the trick-or-treaters are gone. I can finally stop eating candy.

    Nighty night, ladies. 

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  • wackyjackie
    wackyjackie Member Posts: 669
    edited November 2007

    Kaye,

    You make it sound so easy.  I'm going for my consult for rads on 11/30.  I finish chemo 11/21. I hope it keeps going well for you.

    Hugs, Jackie

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  • nash
    nash Member Posts: 2,600
    edited November 2007

    Thanks for the rads rundown, Kaye. I'm having a hard time imagining more fatigue on top of Mommy/Cancer/Chemo fatigue, but hey, it'll be what it is. Glad you're able to do rads so close to work. Can you imagine if somewhere in L.A. was the only option? Good heavens. My crazy onc referred me to a rads onc at UCSD (which is an hour away) when there is one right next door to the cancer center that's 10 minutes from the house. Sometimes I really think her mind is going.

    Anyhow, my kids had a blast trick or treating last night. Major candy hangover today for all of us.! Glad you had fun, too, Jackie! 

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  • kimmie39
    kimmie39 Member Posts: 319
    edited November 2007

    Nash - I so sorry you have to see so many of your friends pass on. I can only imagine what you go thru each time.

     

    It is so frustrating to here about your moms doc's.  I wish we could just pick a doc and then believe that the doc is going to to everything they are supposed to do and keep up with all the latest info so they are sure to be giving there patients there very best care. Then the patient could concentrate on getting better!  In a perfect world thats how it would be.

    Kato - Ha Ha Ha  way to go. Your way past me on the computer! 

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  • nash
    nash Member Posts: 2,600
    edited November 2007

    Thanks, Kimmie <<<<<hugs>>>>>>

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  • nash
    nash Member Posts: 2,600
    edited November 2007

    Jackie--are your alk phosphates still high? What has the onc said?

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  • nash
    nash Member Posts: 2,600
    edited November 2007

    Angie--How are you feeling? Did you get the path back yet?

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  • katoMato
    katoMato Member Posts: 645
    edited November 2007

    Hi Ladies,

    Angie, I'm so glad Nash reminded me - didn't you say you'd have the final path on Thursday - or was that a figment of my imagination? 

    Kimmie - is that thrush finally all gone yet? Hey, you have ONE WEEK LEFT, don't you?...I hope it goes quickly, and then you'll be DONE!

    I think Kidsmom will be done next Friday, too.  

    Nash - I've been thinking about your mom and retrying chemo. Isn't the theory that if it's not working, try something else?  I also heard somewhere of a "chemo resistance" that our bodies can develop to some of the chemicals we're on. Would you give her a hug from me? I've been missing my mom all day today. (She died 4 years ago.) so I need to hug SOMEbody.

    The "candy hangover" is exactlyright. My son said this morning as he was putting the 13th Tootsie Roll in his mouth that he heard the radio announcer say: "So how many of you are eating Halloween candy for breakfast?" I would have reprimanded him, but I did the same thing. (I'm such a good example.)

    Hope everybody is doing well.

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  • chemomom
    chemomom Member Posts: 171
    edited November 2007

    Hey ladies.  I called for my pathology report and it was mostly all good.  3 nodes were taken and all 3 were negative, so that's good.  Margins were clear.  Also good.  But there was still some minute traces of cancer left, so I have to find out from the onc if that will mean more chemo.  Initially, she said if there was ANYTHING left, I would have to have 4 more TCH treatments before rads.  I am a little bummed about that.  I was hoping that somehow I'd be clean & not have to have more chemo.  But I guess we'll see-- I will do whatever they tell me, but I am not excited to hear of more chemo...

    And it's been just over a week since my surgery and I still have both drains in.  One has either been plugged or unnecessary for most of the week and the other is still draining 40-50cc's.  I am so sick of these frickin' drains!!  I am sure many of you understand.  And the dressing and tape everywhere.  I am SICK of it and getting very MAD that I still have this crap on me!!!!!!!! 

    This bad attitude is why i haven't posted this before now.  So much good news and yet I am p*ssed!  Go figure.  And is it wrong of me to want to get a refill on my pain meds after a week?  I am afraid the doc will think I am a drug-seeker, but i just don't like sitting around feeling sore.  It kills my mood (obviously). 


    So I am having a rough day (or has it been days??).  Thanks for listening and for caring about my results.    Angie

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  • nash
    nash Member Posts: 2,600
    edited November 2007

    Hang in there, Angie. You don't have a bad attitude--anyone would be cranky in your shoes. The post-op period bites, and going into it after having done chemo must be really hard. Glad the path was mostly good, though. Sure hope you don't have to do more chemo, though. Fingers crossed.

    I'm sorry about your mom, Kaye. Hugs back at you.

    About my mom's chemo--some oncs don't like to retry chemos, b/c they're less effective the second time around. And yes, there is chemo resistance, but sometimes when you've been off of something for a while, it will work again for a bit. The problem with my mom's situation is that she's been on everything there is. The only thing left after her retry of Gemzar/Herceptin is to try Doxil, with is like Adriamycin, but not quite as heart toxic. She may also try a taxane again, because it's been a while since she's had one. But after that, we're looking at clinical trials, and if there's nothing feasible there, then it's the end of the road. So it sort of sucks, but is inevitable.  

    Anyhow, hope everyone has a good day. Am still recovering from last week's chemo round and the Nasty Neulasta. My goodness, that stuff is awful--I hope they'll let me do Neupogen again next round like I did before, b/c the Neulasta was no fun, and frankly, my WBC weren't that terrific yesterday when they checked my blood.  Grumble.

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  • kimmie39
    kimmie39 Member Posts: 319
    edited November 2007

    Boy we have alot of yucky stuff in our sisterhood today. Moms sick or gone, drains, pain, it reminds me why were all here. Were sick. And at times no matter how positive you try to be, or no matter how many times you tell yourself a good attitude helps it all seems overwhelming.

                                    CANCER SUCKS!!

    Chemomom - You are NOT a drug seeker and I dont believe your doctors will think you are. Get the help you need. Im so sorry your feeling bad. I completely sympathize with you. Ive had those drains and they are a big pain in the *ss. I am however excited to hearyour path report is mostly good.

    Kato -  Yes my thrush is gone YEA. I still have a sore throat, looks like Im going to keep it straight thru till my next chemo.   Boo.

    My last chemo is Friday. Then surgery November 28th.

    Hugs from Va

    Kim 

    . 

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  • DGHoff
    DGHoff Member Posts: 624
    edited November 2007

    Hey all,  Do any of you remember that movie "Planes, Trains, and Automobiles" with Steve Martin and John Candy?  We could probably do our own version of that movie called "Pains, Drains, and Loss of Mobility." Probably would not be a great sell-out at the box office though, huh? 

    So sorry to hear that things are not going that well for everybody. Thanks for the reminder to hug my own mom, Kaye and Nash. Even though my mom is healthy, she's having a hard time watching me go through this whole ordeal, and is probably suffering a lot more than me. Knowing that you are missing your mom, Kaye, and that Nash's mom is going through so much right now, just makes me appreciate my mom that much more.

    Angie - I'm so glad to hear that your nodes were negative, but bummed that you might still have to do more chemo. I'm still on chemo for 8 more weeks, so I'll be hanging out there with you for awhile if that happens. Oh, and I hear you loud and clear on those pain in the butt drains! I only had one and found that it was hard to dress, hard to try to bathe, it got in the way, and it made my neck sore because I had it in a pouch I wore around my neck. I called it "My Albatross".  With two, you've got twice the headache. You should not feel at all bad about needing more pain meds.  If you hurt, you need to have them. End of story. Everybody reacts differently and gets different levels of pain, so you should follow what your body says you need. Hang in there. Once you get those drains out, I think you'll feel a whole lot better. They just sort of suck the joy out of you along with all the drainage.  

    Kimmie - Glad to read that the thrush is better and that you only have one chemo left. It is so encouraging to hear about all of you who are finishing. It helps me remember that, yes, someday soon we will all be done with all of this.

    On that note, I went to my fourth of 12 Taxol/Herceptin infusions, but, alas, I was not able to get Herceptin, and my onc does not feel I can get it again due to my harsh reaction to it last time. As she put it, quite rightly I must say, it does no good to cure you of cancer if you have a life-threatening reaction to one of the drugs. She is concerned that I would have an even worse reaction this time, and it might not be so easy to get me out of it. 

    They actually had a woman have heart arrest one day last week due to an allergic reaction, and I really don't want to go down that road myself. 

    She did, however, suggest that I go to Mayo Clinic to meet with the doc there who originally gave me my second opinion and prescribed the specific regimen that I'm on now. Maybe I could do Tykerb, or maybe they have some thoughts on Herceptin and my reaction. At any rate, I'm only doing Taxol now, and I actually feel a lot better without the Herceptin. I didn't have to take a post chemo nap this time, which I ALWAYS needed before, so maybe I have been reacting badly to the Herceptin all along and it just came to an ugly head last week.  I'm not going to worry about the no Herceptin thing yet, and we'll just see what happens when I go back to Mayo. 

    Hope everyone else is doing OK this week. I just realized I have written quite a hefty book here. Sorry. The steroids are kicking in! A good weekend to all. 

    DeAnn  

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  • nash
    nash Member Posts: 2,600
    edited November 2007

    Kim--so glad the end of chemo is near and that the thrush is resolving. It's weird--I get a random sore throat with every chemo round that doesn't seem to be thrush related. It just spontaneously resolves every time.  Hope your's goes away soon.

    DeAnn--I think your movie title is great. Sealed What a bummer about the Herceptin, though. Good idea about going back to the Mayo.

    Have a good night, everyone! 

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