New Triple Neg News

Options
nosurrender
nosurrender Member Posts: 2,019
edited June 2014 in Triple-Negative Breast Cancer

Hi girls,

If you want to pop by my forum I have some great new info on the latest in Triple Negative breast cancer research and treatment.

Click  HERE and it will direct you straight to the thread.

Love,g 

· Share on FacebookShare on Twitter

Comments

  • PineHouse
    PineHouse Member Posts: 416
    edited October 2007

    Nosurrender,

    THIS IS GREAT!!  Thank you for doing all that work to put the information together and making it available for all of us.

    · Share on FacebookShare on Twitter
  • Negative3Grade3
    Negative3Grade3 Member Posts: 111
    edited October 2007

    Thank you so much, Nosurrender.  I'll take the info to my oncologist tomorrow and see what he says.

    · Share on FacebookShare on Twitter
  • CaNatalie
    CaNatalie Member Posts: 70
    edited October 2007

    Nosurrender,

    Thanks for the great info! I enjoyed reading it and found it very informative. I love your website and outlook!

    Natalie

    · Share on FacebookShare on Twitter
  • nosurrender
    nosurrender Member Posts: 2,019
    edited November 2007

    Thanks girls!

    I am glad I could help!!!!

    ((HUGS))

    g 

    · Share on FacebookShare on Twitter
  • ravdeb
    ravdeb Member Posts: 3,116
    edited November 2007

    That article is heavy and difficult to get through but my concern is this...I've read articles written during this past year that continue to say that the prognosis is poor because most triple negative tumors are very aggressive. 

    As I skimmed through the article that nosurrender linked us to, I found lots and lots of drug names but I wonder if they have all been tested to the point that we can know that they actually work for us.  For example...Avastin is a drug generally used for lung cancer. It is now being tried with bc mets patients and most of that, I believe is in clinical trials. And yes..it is working for some. But they are still studying this as well as the other things mentioned. Triple negative is getting more popular finally, for research.

    So, yes..this article gave us a brighter picture...but within the triple neg group, are other subgroups and all of this has not been sorted out yet...cultural differences, BRACA, new proteins similar to Her2, etc. There are so many things that have not been studied yet. They are only at the beginning of it.

    I'm just trying to be realistic...

    · Share on FacebookShare on Twitter
  • CarolC
    CarolC Member Posts: 179
    edited November 2007
    I was just called and told that the pathology report from my surgery on 10/15 came back and it showed I had 2% ER/PR receptors instead of totally negative as it stated on the path report from the core biopsy.

    The nurse practitioner who knows I'm concerned abou being a Triple Neg told me that she's not sure it's enough to make a difference since it's so minimal, but at least there was something. The report was sent to the oncologist who I am meeting with tomorrow.

    Am I still considered a Triple Neg in your opinion? Or is too little to change treatment recommendations?

    · Share on FacebookShare on Twitter
  • nosurrender
    nosurrender Member Posts: 2,019
    edited November 2007

    Hey Ravdeb,

    Yes it is heavy on the info!

    But when I was first diagnosed six years ago there was NOTHING out there being done about tripleneg disease... now look at all the work being done on our cancer! It has to lead to better treatment and better prognoses.... and the new chemo discoveries are making a difference right now in how Triplenegs are getting their tx.

    Carol, I think they refer to your case as "weak receptors"- your onc will have to go over this with you in more detail!

    But this could be a good thing for you!!

    · Share on FacebookShare on Twitter
  • CarolC
    CarolC Member Posts: 179
    edited November 2007

    Thanks Gina, you're right I've learned it is referred to as weak receptors. My onco is now suggesting that I do a round of Aromasin if I decide not to do chemo.

    This will be interesting because I have friends telling me I'm crazy if don't do the chemo and others telling me they wouldn't do it if they were in my shoes. The onco says it would improve my chances a small amount but so far I'm not convinced it's enough to make a difference.

    Thanks for providing so much invaluable new research - your website is excellent.

    · Share on FacebookShare on Twitter
  • ravdeb
    ravdeb Member Posts: 3,116
    edited November 2007

    G.. I agree that they are now talking about triple neg. And that there are possibilities of having more drugs out there to try. I guess I meant that one should be cautious as the final results as to whether they are all effective is still not there.

    But..thanks for sharing it with us.

    · Share on FacebookShare on Twitter
  • gsg
    gsg Member Posts: 3,386
    edited November 2007

    Hey, Gina.  I just sent you a PM and got an error message...not sure if it went through.  Could you let me know if you received it?

    Also, thanks for posting this study!  It did a world of good for a girlfriend of mine who is triple negative.

    Take care-

    Patrice

    · Share on FacebookShare on Twitter
  • petunia66
    petunia66 Member Posts: 1
    edited November 2007

    I am triple neg but have 5% receptors for estrogen.  My oncologist says all her colleagues and research say 5% is next to negative, and too small amount of receptors to respond to the anti hormones.  She says those drugs have their own risk and side effects, so taking them for precaution is not recommended because of the tiny, if any, benefit.  And I am 15/17 + nodes, stage 3c.  I'm hoping for new treatments to improve our lot.

    · Share on FacebookShare on Twitter
  • ravdeb
    ravdeb Member Posts: 3,116
    edited November 2007

    I was never told my percentage. It just said negative.

    · Share on FacebookShare on Twitter
  • CarolC
    CarolC Member Posts: 179
    edited November 2007

    Hi Petunia,

    Your onco's opinion is just the info I was looking for. I have both ER/PR weak receptors - 2% and I was uncomfortable with my onco's opinion that I take Aromasin if I choose to not do chemo (which I'm leaning toward) From what I've been reading and what you're sharing, I just don't believe there is enough of a benefit to offset the side effects. Thanks so much for sharing this!

    · Share on FacebookShare on Twitter

Categories