Taxotere + Sutent , anyone??

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  • Boo46
    Boo46 Member Posts: 539
    edited March 2007
    Thanks for the update Anita
    Hugs
    Sue
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  • Falken58
    Falken58 Member Posts: 22
    edited April 2007
    I've just been to the hospital for my blood tests, (my 7th day blood test) and yes, they are low (the whites) but not as low as the time before. I am going to my mother who lives in a real remote area of Sweden and will have to make a new blood test there. (Providing they have nurses, I am not sure...)
    Feel off and tired but what the heck; could be worse.

    Hang in there, I am!

    Best of all and lots of love,
    anita
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  • Falken58
    Falken58 Member Posts: 22
    edited April 2007
    New report; just came back from treatment 5. My bloodtests were fine. I am on medication with Beta-Pred, Taxotere, Sutent + Neupogen. Had a new CT done on Monday, reply will be sent to my oncologist. Had a wonderful Easter weekend at my mom's and also a visit to the archipelago outside Stockholm. Now I am back in Stockholm for hospital visits and bloodtests and treatments.

    It feels ok!

    Best of all to all of you!
    anita
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  • NarberthMom
    NarberthMom Member Posts: 615
    edited April 2007

    Anita -- Glad your trip to the archipelago went well and you didn't need to find a nurse! Good news about your treatment!

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  • Boo46
    Boo46 Member Posts: 539
    edited April 2007
    Anita,
    Glad your weekend was good. How are you feeling during this treatment? How are the side effects? Let us know about the CT, I'll be praying for a great report.
    Sue
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  • Falken58
    Falken58 Member Posts: 22
    edited May 2007
    New report; My CT was fine; further diminished mets since last CT (on March 5). Those were the good news.
    Bad news; my treatment nr 6 has been postponed one week. Should have gotten it tomorrow May 9, but will now be at May 15 instead.
    This is depressing. I want to get rid of all this cancer-shit NOW and FOR ALL!!!!

    Hang in there! I am!
    Love,
    anita
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  • darification
    darification Member Posts: 5
    edited May 2007
    Hi Anita - I'm so glad to hear that these meds are working for you! It also brings to other trip. negs. for another tx. option. I was wondering if you or anyone else knew if there was a similiar trial with these meds in the US. Wishing you continued success with this tx.
    -Daria in NY
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  • darification
    darification Member Posts: 5
    edited May 2007

    Hi - It's Daria again - I meant to say this trial brings hope to triple negs for another treatment option.

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  • Falken58
    Falken58 Member Posts: 22
    edited May 2007
    New report; my bloodtests were fine and today I am going for treatment nr 6. Yippie!

    I feel fine and I am very happy to have my treatment!
    Hang in there, I am.
    Love, anita
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  • jin
    jin Member Posts: 17
    edited May 2007
    Hello, Anita: I was reading your progress and want to know how are you doing now? Hopefully you are feeling well. God bless you!!!

    Jin
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  • Falken58
    Falken58 Member Posts: 22
    edited May 2007
    Hi Jin!

    I am doing fine actually! Waiting for my CT results but not very nervous. Actually.

    Have not had very tough side effects of this treatment, luckily.

    Love,
    anita
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  • jin
    jin Member Posts: 17
    edited May 2007
    Hi, Anita: Very glad to hear you are fine and I believe you will get clean CT report too. My sister has triple neg stage III dx on Feb. and she is under AC/T chemo treatments (total 8 times and she just has 6th today). I start to view this board every day and got a lot of inf. This is a great place to know about breast cancer. I hope all of posters can recover from this nightmare soon. God bless you.

    Love
    Jin
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  • 2curvy
    2curvy Member Posts: 183
    edited June 2007
    Dear Anita: Just saw this thread. How are you doing? Thank you and a big hug for being so brave and helping so many of us with triple neg.
    Colleen
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  • Falken58
    Falken58 Member Posts: 22
    edited June 2007
    Hi again!

    Time for a new report! A week ago I had my 7th treatment. (Now I have switched broadbands and I am back home again!) My bloodtests were just on the curve of being approved but my nurse urged me to take a long walk which I did, and...YES! The white blood cell count jumped up a step, and my treatment was injected.

    YES YES YES. (For now.)

    Result of CT was "only mm regress" but as my oncologist explained this can be because "you don't have a whole lot of tumour cells left".
    Nurse had me sign a paper where I approve that they treat me with only the medicine I am in the study for. (Sutent)

    They check us carefully, but as nurse said last time "not a whole lot of heavy side effects" so we might have to skip these meetings.

    Love to you all and hang in there!
    anita
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  • Jillt
    Jillt Member Posts: 60
    edited June 2007
    Anita - Thanks for the update. You treatment sounds promising.

    Jill
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  • Falken58
    Falken58 Member Posts: 22
    edited June 2007
    Next report; had my 8th treatment on Wednesday. White blood cells count just above the approved limit, but still...
    (I still take Neupogen for this, by the way.)

    Another not expected side effect; my hair is back! True, it is without pigment, and short but very thick and strong.

    That's all for now, folks.
    Hang in there, I am.

    Love,
    anita
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  • Traci-----TripNeg
    Traci-----TripNeg Member Posts: 2,298
    edited July 2007
    Anita,
    How are you doing?
    I just found this post.
    Please let us know.
    Thank you,
    Traci
    Triple Neg also.....
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  • LemonDrop
    LemonDrop Member Posts: 18
    edited July 2007
    Anita-
    I would like to know how you are doing on Sutent. I am a triple negative and will begin a clinical trial of Sutent today. How has this been working for you? I have read your old posts and hope you are continuing to see a positive response. Please post and let us know how you are doing.

    Thanks,
    Sandy
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  • Falken58
    Falken58 Member Posts: 22
    edited July 2007
    Hi again!

    I am doing fine (physically) on Sutent. They have diminished the daily dose of both Sutent and Taxotere since I had heavy side effects of them. Infection and heart condition. The infection was due to Taxotere and the heart condition was due to Sutent. Now I eat Sutent 1 capsule á 25mg/day for 14 days in a row, then I have a break for 7 days.

    New report; yesterday I had my 9th treatment, all tests were fine. Last CT result showed no significant changes but just to give you an idea; I have 4 enlarged lymphnodes + 1 met in my lung. The largest tumour is a lymphnode of 3cm that is now 1,5cm. The met in my lung has diminished from 1,7cm to 0,8cm.

    That's it from Sweden right now, and I hope you are all hanging in there, I am just barely.

    Love, anita
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  • LemonDrop
    LemonDrop Member Posts: 18
    edited July 2007
    Hi Anita-
    I always look first at this thread for any new posts from you. I started Sutent last week after having failed several other chemo drugs before. I had Taxotere several times but it was not able to help me. Sutent has been chosen and I am hoping for a good long trial with it. I will be scanned in 12 weeks to check for status of lymph nodes. I am encouraged reading your posts. Thanks for keeping us updated. I think we will be hearing more about Sutent in the future as another choice in the treatment for breast cancer.

    Sandy
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  • Falken58
    Falken58 Member Posts: 22
    edited August 2007
    Hi again!

    Just having survived my 10th treatment, I am back here to tell you about it. Apparently, all my tests were fine so I chose to go through with it. Although my tumours have all shrunken down to 50% of what I started out with, last report of my x-ray proved that a lymph node had increased by 3mm. Could be due to erroneous calculation, my nurse explained. She didn´t seem to think 3mm was too much of a hassle. (Since my mets were small to begin with...)Now I also understand why they say that more than 6 treatments of chemotherapy are unnecessary.
    I have a new date for x-ray: Aug.22.
    If nothing has happened then, I might consider giving up chemotherapy and only eat Sutent.

    That's all for now, folks! Hang in there, I am!

    Love,anita
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  • Falken58
    Falken58 Member Posts: 22
    edited September 2007
    Sorry, I am now currently eating only Sutent, and have not had any "careful" scan.
    Turned out the erroneous miscalculation of 3mm wasn't a miscalculation. Next time it had grown another 3mm. Therefore we decided to stop chemotherapy (not helping). So now I'm only eating Sutent. Has gone up from 25mg/day to 37,5mg/day and yes, I have basically the same side effects as before. "Metal" taste, bloody nose etc. BUT my tests prove better. (Only feel a little fooled...)
    I am supposed to increase my daily dose up to 50mg/day.

    Hang in there, I am.

    Love/ anita
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  • Lauralynne
    Lauralynne Member Posts: 123
    edited September 2007

    Hi Falken58-

    I was on a clinical trial of Sutent 50 milligrams 14 days on, 7 days off.  I had an MRI/CT scan a few weeks ago and had a "mixed response" to Sutent so got pulled off the trial. # cancer nodes shrunk but a new cancer was discovered in my chest.  Also 50 milligrams was so hard on me, I hated how much fatigue it caused me.  You have been taking Sutent for quite a while now and I hope it continues to work for you (and that you tolerate the side effects better than me!).  I will be watching for your updates!  

    Hugs, 

    Laura  

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  • zarowny9
    zarowny9 Member Posts: 328
    edited October 2007

    Anita how are things? Sutent is in trial here, and if the xeloda and avastin stop working this is an option for me...

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  • zarowny9
    zarowny9 Member Posts: 328
    edited October 2007

    Anita how are things? Sutent is in trial here, and if the xeloda and avastin stop working this is an option for me...

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  • zarowny9
    zarowny9 Member Posts: 328
    edited October 2007

    sorry double post...

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  • zarowny9
    zarowny9 Member Posts: 328
    edited November 2007

    bump...anyone here from Anita?

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  • celia088
    celia088 Member Posts: 2,570
    edited December 2007
    bumping this up for zarowny9
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