list of supplement/minerals do's/dont's

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list of supplement/minerals do's/dont's

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  • lindaDK
    lindaDK Member Posts: 99
    edited October 2007

    There's been so much discussion about what we should and shouldn't take, I thought I'd start a separate topic.   If anyone else is like me I've changed my supplement regimen a thousand times since finishing treatment.  Yesterday I saw a naturalist herbalist for the 1st time.  here is the list he wants me to take.  Now mind everyone, we are all different and what works for one may not be best for another.

    In my case, I'm post menopausal, osteopenia, so absolutely no Vit A supplements for me, so that leaves out a multi-vit I have yet to find one that doesn't have Vit A.  Im to get all Vit A from foods I eat.  

    This list I have sounds like a awful lot of pill popping to me, I should begin rattling when I walk !!  I don't even want to think whats its going to do to my pocket book!!  I'm very interested in what everyone here has to say about what supplements/minerals they take and why.    

    B6  =  50 mg  P5P50 activated B-6

    B12  =  1000 mcg sublingual

    Biotin = 1 G

    Calcuim = 600  mg w/magnesium 300 mg/Vit D 300 IU

    Vit D3  = 1000

    EGCG  = 200 mg  or 3 cups green tea daily

    Vit C = 1000 mg

    Vit E = 400 IU

    Grapeseed Ext  = 150 mg

    Reservatol = 200 mg

    ALA/NAC  = 200/200 mg

    Mushroom Blend Ext = 150 mg (mitshake,reishi,shiitake,hiratake)

    CoQ10  =  100 mg  

    Omega 3 x 3  = mega 3 EPA 240 mg/DHA 240 mg

    Flaxseed Oil w/lignans: 1 spoon daily,  NOTE: IM ER/PR -

    Green Food formula powder = barley grass/wheat grass/spirula grass/blue green algae

    Fruit Formula powder = rasberry, blueberry, strawberry, apple, cranberry,bilberry

    Selenium = 200 mg

    Vit K = 90 mg (I have UC and after several bowel surgeries over the years, Im Vit K deficient)

    Zinc  = 30 mg

    Probotics = 30 billion viable cells per capsule

          

  • Rosemary44
    Rosemary44 Member Posts: 2,660
    edited October 2007

    I'm very happy you've been told about vit. A.  Are you taking both b6 and p5p?  Usually, it's one or the other.  I'd drop the zinc till they do more research, excess might cause macular degeneration.  That's new research.   Vitamin E should be the mixed type.  I don't take as many since there just isn't enough time in the day.  That's a good list.

       

  • bomber410
    bomber410 Member Posts: 564
    edited October 2007

    Linda, what is the timing for these supplements?  All at once?  Timed throughout the day?  I have to say I'm gagging <sorry> at the thought of all these pills.  I used to take a lot of different supplements.  I got to the point where I was sickened at the thought of taking them all.

    Presently, I'm down to a multivitamin from Trader Joe's, one 1000 mg Vitamin D, one 5 g Biotin, 2 Calciums.  I take the multi, D, and biotin at breakfast.  I take one calcium at lunch and one at dinner.  That's as far as I've gotten.

    Debbie 

  • lindaDK
    lindaDK Member Posts: 99
    edited October 2007

    Thanks Rosemary,  Its  P5p he wants me to take,  my list might be confusing.  He did mention vit E should be mixed.  Good info about the Zinc, I haven't started any of the above yet, I wanted everyone's opinions first.  

  • lindaDK
    lindaDK Member Posts: 99
    edited October 2007

    Hi Debbie, he has me take them throughout the day, start the day with the green powder, fruit powder mix, the B vitamins, probiotics, rest split between lunch, dinner and evenings take the calcium/mag. 

    I'm gagging at the thought of everything also.  I'm going to do some research and see if some of this I can't get from adding certain amt of foods to my diet.  I am limited on what I can eat though due to the UC, like the recommended amt of fruits, no can do... I get stomach cramps just thinking about it. 

  • LizM
    LizM Member Posts: 963
    edited October 2007

    Linda, I noted you are ER/PR negative and your list should be different from someone who is ER/PR positive.  Some of the supplements on your list have estrogenic properties and would not be good for those of us with this type of breast cancer but would probably be fine in your specific case.  I consulted with a natural health nutritionist shortly after my treatment last year.  I still use some things she recommended but not all.  I will post the list later.  Thanks for starting the thread.

  • saluki
    saluki Member Posts: 2,287
    edited October 2007

    Yes Linda,  It does sound like a good list with Liz's cautionary note about

    considering your hormonal status when taking some of the supplements.   As good as my intentions were at the start of this journey I too, found myself paring down for the same reasons.---not enough hours in the day.

    I would add if you are having cognitive problems giving the Phosphatidylserene a chance.  It was mentioned as possibly being helpful by the Doctor at the last BCO online conference.

    Also in my regimen is Silymarian--Milk thistle extract if you are taking

    any meds that are hard on the liver or have elevated liver enzymes.

    The brand I've been using is Thistlyn by Natures way.

    And of course there's the one mineral I can't say enough about--magnesium.  And apparently unless you are outside the US and can get Magnesium Pidolate your next best choice is magnesium citrate.

    Apparently not all magnesium is created equal and the citrate absorbs better than the others.

    Since I need to take Protonix,-- and the acid blockers cause malabsorption of B12 .  I augment that vitamin more in the form of Cyanocobalamin.

    I think we should emphasize that this thread does not apply to those

    currently undergoing chemotherapy or radiation. Most of us have gotten instructions not to take supplements during chemo and rads---Although there has been some reports that Co Q10 can help prevent cardio problems with A/C.

    These are what some of us have found helpful afterwards or have gotten warnings to avoid. 

  • Rosemary44
    Rosemary44 Member Posts: 2,660
    edited October 2007

    Linda,

    If there is a specific reason to take p5p, then for sure, but if there isn't one, then it's better to go with B6.. saving p5p till when you really need it, say for serious hand problems...carpal tunnel. 

    If you can't eat fruits, then for sure on the powder drink, but check out the vitamin nutrients on the label to see if there is much in there, those powders are costly and I was surprised to see so little nutritional value in some of them.

  • saluki
    saluki Member Posts: 2,287
    edited October 2007

    Funny you should mention---Cost!  It certainly is an issue.  You really want the best quality-- and quality is sometimes costly.  Especially now--

    considering some countrys like China are the biggest producers of some

    of our vitamins like vitamin C and others--- 

  • lindaDK
    lindaDK Member Posts: 99
    edited October 2007

    Yes Liz, I want to eliterate, I am definitely ER/PR negative, so some supplements on my list others may want to avoid.  Also I am well past all treatments, chemo/rads.   Hopefully someone would start a list on what is beneficial for er/pr + and what to avoid. 

    I think I will go with B6 rather than P5p. Not sure why he mentioned P5p, I have no issues you mentioned.

    And yes I am finding cost can be a issue.!!  Funny you should mention about a lot of vitamins coming from China, one thing I have been doing today is trying to research and products made here in USA.  I did find one that looks promising- Andrew Lessman's vitamins, sold on HSN.com.  His plant is located in Arizona, he claims he adds no additives or soy, and his plant is ran totally on solar.  Even though he makes his vitamins here in the states, I'm still trying to find out if his ingredients are from US or shipped from China, you know what I mean?  His supplements do look to be expensive, but if I am going to take them, I do want to be assured in exactly what I am taking.   

    I will probabaly pare the list down some also.  Good info about Milk Thistle, the only prescription I'm on is Boniva, and of course I go back and forth on that one also.  Scared to take it, scared not to...  And I did find magnesium citrate  so thanks for that suggestion!

        

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2007

    What is the NAC in the ALA/NAC?  You're "talking" to a dummy here so be careful how you word it. LOL

    Shirley

  • lindaDK
    lindaDK Member Posts: 99
    edited October 2007

    Shirley, LOL.. your not a dummy by any means.  NAC is N-acetyl Cysteine, a anti-oxident.  From what I understand it is good for lung support, if prone to bronchitis.  Here is some info on it;

    N-acetylcysteine is an excellent source of sulfhydryl groups, and is converted in the body into metabolites capable of stimulating glutathione synthesis, promoting detoxification, and acting directly as a free radical scavenger. Administration of acetylcysteine has historically been as a mucolytic [mucus dissolving] agent in a variety of respiratory illnesses; however, it appears to also have beneficial effects in conditions characterized by decreased glutathione or oxidative stress, such as HIV infection, cancer, heart disease, and cigarette smoking."
       Acetylcyteine may also prevent toxicity to the kidneys during x-ray testing after injection with a contrast material in the bloodstream. 

    I'm a recent x-smoker, so he wanted me to take this.   I was also prone to bronchitis in the past, sure it was due to smoking. 

  • saluki
    saluki Member Posts: 2,287
    edited October 2007

    Shirley,

    ALA is Alpha Lipoic Acid and I've been using that for quite a few years.  It supposedly is good for neuropathy.  NAC is N-Acetyl-Cysteine an amino acid

    that I had also heard good things about with neuropathy.  I think its also supposed to be good for the kidneys and is supposed to help immunity. 

  • nevaeh
    nevaeh Member Posts: 85
    edited October 2007

    This info is awesome.  I have some questions and will truly appreciate any responses.

    Why do you need to avoid Vitamin A if you have ostepenia?

    I will be starting rads soon - why do you need to avoid supplements?  Any particular ones?

    To get started with a regime do you recommend seeing a naturapath or some other means

    TIA

  • OneBadBoob
    OneBadBoob Member Posts: 1,386
    edited October 2007

    Hello all--

    I am ER/PR+ and am using an integrative medicine oncologist and have met with his nutritionist.  He is Dr. Barry Boyd, who has written the book "The Cancer Recovery Plan" which is full of information on nutrition, exercise and stress-reduction in the treatment of cancer.

    I had left mastectomy with reconstruction, no rads, so these supplenets may not apply to all.

    These are the supplements I am taking, started them before starting chemo and continuing through chemo (two CMF down, four to go).  

    1.  EPA/DHA (Omega 3 fatty acid) EPA 300 mg DHA 200 mg (one capsule three times a day with each meal.

    2.  GLA (Gamma Linoleic Acid-Borage Oil) 1,045 mg one capsule daily

    3.  Selenium 200 mcg one capsule daily

    4.  Calcium+Magnesium+Vitamin D (Caltrate plus chewable) one tablet three times a day

    5.  Vitamin D3-1,000 mg once per day, in addition to the above

    6.  Multi-Vitamin with less than 200 mcg/day of folate (folic acid--very importent during chemo--this supplement is needed during pregnancy, but can interfere with chemo treatment)--hard to find, so I take two per day of Pure Encapsulations UltraNutrient multi, where the label prescribes four per day for a normal healthy person.

    7.  Curcumin 250 mg one capsule three times a day with each meal.  (This is the active ingredient in Tumeric the spice)

    8.  Coenzyme Q10-100 mg. one tab daily in am

    I noticed a difference in my skin and hair within two weeks of taking these supplements--

    I had taken all of the supplements I had been taking previous to dx with me to my appointment withthe nutritionist, and when we reviewed them, some had too much of certain vitamins and not enough of others, so rather than get totally confused, I just turned all my old supplements over to my husband, and started on the above regime.

  • Rosemary44
    Rosemary44 Member Posts: 2,660
    edited October 2007

    Vitamin A interferes with vit. D absorption.  You'd have to really double up on the D if you want to supplement A.  It could cause  hip problems to not have enough D, and those who smoke shouldn't supplement A.  The opposite is true if you eat foods that are a good source of beta carotene, that is suppose to be good for the lungs.

    I didn't supplement during rads, but I ate those veggies and fruits.

  • saluki
    saluki Member Posts: 2,287
    edited October 2007

    "The opposite is true if you eat foods that are a good source of beta carotene, that is suppose to be good for the lungs."

    Just to show how complicated and confusing this all can get---for years

    we've been told bata carotene is a good thing--but now it may be unless you are getting it as Rosemary says in your diet--it may be problematic and I'm wondering if these kind of studies are what is making Dr Norton stop prescribing multivitamins.

    -----------------------------------------------

    In the Alpha-Tocopherol, Beta-Carotene Cancer Prevention Trial, 18 percent more lung cancers were diagnosed and 8 percent more overall deaths occurred in study participants taking beta carotene. In CARET, after an average of four years of receiving supplements, 28 percent more lung cancers were diagnosed and 17 percent more deaths occurred in participants taking beta carotene and vitamin A than in those taking placebos. Neither of these studies showed a benefit from taking supplements.

    Because the interim results of CARET were similar to the ATBC study, the intervention was stopped 21 months early. Both of these studies involved people who were specifically invited to participate because of their high risk for developing lung cancer.

    The Physician's Health Study was completed at the end of 1995 and showed no benefit or harm in people taking beta carotene supplements for more than 12 years.

    # Why did CARET stop early?

    The study itself was not stopped, but the participants were told to stop taking the beta carotene and vitamin A or placebos. The Safety and Endpoints Monitoring Committee for CARET and an ad hoc committee assembled by NCI saw that the interim results clearly showed no benefit from the supplements and also showed there was a possibility that they were harming participants. CARET investigators made the decision to stop the intervention, but they will follow the study group for five more years to determine the long-term effects of the intervention.

    The intervention was halted on January 11, 1996, by the CARET investigators. Letters were mailed to participants by January 13 and a public announcement made on January 18.

    http://www.cancer.gov/cancertopics/factsheet/Prevention/betacarotene

     

  • lindaDK
    lindaDK Member Posts: 99
    edited October 2007

    "The opposite is true if you eat foods that are a good source of beta carotene, that is suppose to be good for the lungs."

    Good food sources that provide beta carotene are; 

    sweet potatoes, carrots - raw, kale, spinach, turnip greens, winter squash, collard greens, cilantro, fresh thyme, cantaloupe, romaine lettace, bell peppers - red-raw,  and broccoli.  Several foods have amounts of beta carotene, but the above seems to be riched in this nutrient and one or more can be easily incorporated into a daily diet. 

    I didn't supplement at all during chemo and rads.

  • arby
    arby Member Posts: 126
    edited November 2007

    I'm new to this and am into rad.  But I listen to Dr. Oz and also read alot and eating fruits and veggies is so much easier than buying and taking pills.  Also they are made for body absoption by nature and the fiber is a huge boost for the entire system.  I do drink Monavie, 2 oz a day.  and I nap in the sunshine on the floor in front of a window.  Getting outside and raking in fresh air has been a great energy and emotional boost.  Anyone else into nature and non-pill regimine?          love to hear more; the discussion boards are way more informational than the commercial web sites trying to sell me supplements.  What a blessing to be on the recovery side of cancer!!! arby

  • bomber410
    bomber410 Member Posts: 564
    edited November 2007

    I eat as much good stuff as I can but not always successful.  I too enjoy pulling my Vit D from the sun.  However, as added insurance I do supplement but my list is short - a multi, Vit D, Calcium and Biotin.  I haven't identified any additional requirements beyond this list. 

  • SISKimberly
    SISKimberly Member Posts: 762
    edited November 2007

    Arby,

    I am on the beginning side of treatment, and I so want to do this as chemical free as I can get away with.

    Any advice on how to get through surgery and chemo without dealing with too many pills and chemicals?

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