Athletes with reconstruction
So when in doubt ask a woman that has been there.
Thanks a bunch,
climbergirl
Comments
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Hi Climber,
I chose to have a double mastectomy after my diagnosis with ILC. I had to give up a piece of my pec because the cancer was close to it, so had to have muscle to replace it for reconstruction. I chose to have the latissimus dorsi reconstruction with cohesive gel implants and came to that decision after researching all reconstructions. I too was nervous about the idea of implants under the pec but this was ruled out with part of the pec removed.
With Latissimus dorsi reconstruction, I was concerned about weakness in the shoulder and back due to missing lat muscles. My plastic surgeon told me that the other muscles in my back would make up for the loss, and that the lat muscle was a helper muscle. I found that to be true, once I restrenghened all of the back muscles. The only deficit I have is that my back fatigues when sweeping and mopping floors. Can you imagine?
I am very active and was very concerned with the weakness issue. I am a black belt in tae kwon do and although I'm not doing it now, still participate in pilates, yoga, step aerobics, latin dancing, anything I can do to keep the endorphins running high. In both pilates and yoga, I'm still stretching to get better range of motion for some of the moves. My arm strenght is doing great, shoulders are strong and back is strong. I'm able to do pushups so the muscle manipulation has not interfered with that. But do realize, I've worked very hard to rebuild all muscles after my bc journey.
Best of luck to you in deciding what to do. I had asked my plastic surgeon if I had implants under the pec, would it weaken the pec muscle. He told me that the pec muscle would atrophy and thin, which would be no big deal for a non athlete. I also asked if you worked at strenghtening the pec would it prevent it from happening. He told me he didn't know.
Best of luck in deciding what will be best for you. Learn all you can about all of the reconstruction, although some are ruled out if you don't have enough fat. Never thought I'd have problems with reconstruction by not having enought fat.
Lisa
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Hi, Climbergirl,
I was a nationally-ranked track and field athlete before my dx. Ironically, I had just retired two months before to go to graduate school when I got the news.
I opted for a bilateral with expanders once I found out the pec was not cut during the procedure. I also had radiation, which affected the skin on the cancer side and the implant eventually had to come out.
But here's the kicker: I began a new activity - karate - during rads (I know - probably not the BEST time to start, but it seemed like a good idea at the time). Lots of pushups and arm stuff to do in karate, but I never missed a step (other than learning what the heck it was I was supposed to be doing) during the expansion, exchange, removal of one implant and even after the IGAP that followed (almost 3 years later).
My first ps did say the pec muscle was extremly thin (not shorter, though, as it would have been had it atrophied) during the exchange, probably due to the wrecked blood supply from rads. But I never noticed a weakness or anything on that side AT ALL. Now that the blood supply has been regenerated a bit from the IGAP, my skin is healthier on the rads side and I'm sure the pec is probably not nearly as thin. The only real down time I had was post surgical - following the exchange, removal and IGAP, and when I came back, I was always able to do what I'd been able to do before (punching, running, lifting) and even some new stuff I'd never even tried before, lol...
Nobody really knows how your body will react after major surgery, but I'm sure you won't have nearly the same issues with expanders or a DIEP as you would with a TRAM, especially since you are so active. Listen to your docs but take what they say you will/won't be able to do after reconstruction with a grain of salt as you know your body better than anyone.
BTW - I am also really thin and was told I probably wouldn't be a candidate for anything other than a Lat Flap, but I was able to have the IGAP, where fat (NO MUSCLE) is taken from the bottom of the butt near the crease. Have you looked into that? Recovery time is long, though (six full weeks for me)...
All the best with your yoga studies and your reconstruction decisions)
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Climbergirl,
Good luck on your decision.
I have a pretty eclectic sports background, white water kayaking, road riding, running and sports fishing (Try hauling in fish all day long!). I am also a PT and work in a climbing/kayaking/mtn biking community and have had the pleasure of working with some nationally ranked kayakers and climbers. Yes there are other muscles that will do the same thing as the lat but a climber needs their lats for scapular stability and postural strength.
I opted for silicone implants and can't say that I miss my optimal pec function but I have had to work hard to regain the strength in my serratus anteriors which are also important for scapular stability in climbers.
There is no easy answer. All reconstructions effect muscle balance but I think that some deficits are more easily overcome than others.
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I've had issues with a sore side after my implant.
I notice that my balance differs between sides and I think some of that is because of the implant under the muscle.
It's not a bad thing to work on yuor balance, this just gives me another reason to do it.
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Hi. I had a bilateral mast with expanders in June. Still have the expanders - hope to do the swap this winter after chemo finishes. I run (4 marathons) and cycle (3 centuries), and have had no problems athletically with the expanders. I was too thin for the other types of recon, and additionally I didn't want the long recovery times and additional incisions & muscle issues.
My PS gave me permission to resume running 4 weeks after surgery - he just told me to wear a good running bra. I really feel no difference from my pre-surgery self.
My only problem now is the chemo - it's reduced me to a pathetic jog/walk of 3 miles at best. Can't wait 'till it's all over.
Good luck with your decision. -
ACGW: This is just what I was looking for....I have had 2 lx already and it was relatively easy to get things back to normal function on my left. The snb was more of an issue but that came along as well with all the yoga that I do however... I do not expect the mx to be as easy as the last two ops.
I have heard that the shoulder can get unstable after mx from my chiropractor, which for yoga also is an issue for all the inversions etc. My left side is already my weaker side and the climbing was starting to help that actually. :0 Fantastic!
FigsG: The chemo is nothing but pain in the ass. I did abraxane instead of the taxol because the steroids were making me nuts but the SE's are just as bad with that. After my LX I did not have to take anything but advil but the pain that I had with the neulasta/abraxane was a combo of flashing nerve pain, joint pain and muscle pain. Right now I still have neuropathy in my hands and feet but it seems like it is lessening a tiny bit. I am done with the chemo part and am finding my energy returning quickly, so don't worry you will get back fast as well to do your thing! I think that is where all of our exercise pays off ~in the bounce back.....god knows we deserve some kind of pay back. So much hard work, healthy living and still we get BC!
The only auto recon that I might even remotely consider is the sgap or the diep ~ but that is pretty remote. I have a friend that has done anest. for flap recons @ NYU and the length of those ops scares the hell out of her. She is pro-implant for me as is my main surgeon. Going to see a ps to have all my questions answered on Oct 9th but thanks for helping me see which way is up.
Climbergirl,
kd
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climber - I had a lumpectomy with SNB first - that was the hardest surgery to recover from regarding activity - I had my rotator muscles tweaked from the inside during that surgery. As I explained it, it felt like someone took off my shoulder and didn't put it back on right. Then did chemo.... A month after chemo I did my preliminary Black Belt test in Tae Kwon Do and was already back to doing push ups and had full range of motion. A few days after that did mast with expander. I took it a little slow with rehab after that because I had (ugh, chemo brain, that implanted skin to make the pec longer) and didn't want to tear that out. I also really felt that I didn't want to screw this up by trying to do too much too fast because this healing of the pec was what I had to live with the rest of my life. I chose saline because, between the risk of getting kicked or punched in the chest I also ride (and occasionally fall off of...) horses. I wasn't comfortable, knowing the likelihood of the implant rupturing, going with silicone. I was pretty much back to full strength by the time of the exchange surgery and didn't lose much more than a beat after that surgery.
That was in January. I've spent this year working hard on my strength since I'd worked on the range of motion so well from the beginning. (Even threw my arm up over my head as soon as I woke up from the exchange surgery just for them to come in a half hour later and tell me not to do it. It did a lot for my morale to know that I could do it!) I've been training hard at TKD and working out at the gym religiously all summer in preparation for my Black Belt test a couple of weeks ago. I'm doing nautilus and definately am weaker thru the pec than the other areas but in real life it doesn't matter. I'm back to 75 pushups and have all the strength I need. Range of motion is perfect. I thought that was pretty good for this old (51) bod.
Probably the most important reason that all this happened so well for me was that I was working with a fabulous physical therapist from after the first surgery. She did alot of manual work that helped with the range of motion and guided me on the strength stuff - starting with the weakest of the therabands. I can't even believe I found those difficult!
I see no reason at all why you shouldn't be able to get back to full activity in yoga or in climbing (I'm not a climber - tried it once and frieked out when I was closer to the ground than I am on a horse! - but my husband is so I have a sense of what's involved) after an implant. I did a yoga class the other night and it was my sprained ankle that I had trouble with, not my shoulder/chest.
Good luck with your decision. I hope that helps.
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As an athlete, I would not and did not reconstruct. A lot depends on how quickly you need to get back to "normal" and how much physical therapy you can tolerate or can find time for. I could not "waste" any time and didn't want to tempt the unknown in terms of my muscles. My simple mastectomy(no nodes) was a little over a year ago. Although I had full strength in all muscle groups after about 8 weeks, complete range of motion still took almost a year and I still have a few sore tendons requiring a bit of attention. I cannot imagine how far set back I would have been adding any kind of reconstruction to the mix. Just another point of view to consider...
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Hey climbergirl,
I climb, too! And am facing bilateral mastectomies with some kind of recon. If I can do the implant/expanders, I will. I had rads 5 years ago to the left side, so I'm hoping this is still an option for me.
No way would I do TRAM or lat flap procedures. As you know, those muscles are critical for climbing.
I'd do DIEP if it was my only option. But the length of surgery and recovery, not to mention having to go out of state for it, do not thrill me.
Please keep me posted on your decision.
Anne
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Hi There,
Thanks for the input again....Jorf it sounds like you really have it going on and your experience sounds pretty close to what I imagine it will be like coming back from the mx and recon with implants. If you can manage 75 push ups then I am not going to sweat it with 10 plank poses and downward dogs. The idea of not having the arms over the head is pretty weird and congrats on getting back your range so nicely. I too noticed with the snb that things were more tweaky and even now on some days if I don't manage to do my lay down twists I notice the difference on my left side.
As for not doing a recon I totally understand the attraction
and would consider it more if I was not so fussy about clothing and bras already. I feel like I do not want to be even more limited in what I wear and have to buy "special" bras etc. It is hard enough already finding things that I like! With yoga/climbing tank tops I def do not want to be bothered about wearing a prosthesis while climbing. I am having visions of my fellow climbers being killed by a falling prosthesis from 50 ft up
I am small enough to not have to wear a bra and never wear one during yoga or climbing. Didn't Lynn Hill or one of those gals that are mad climbers get implants? I have a hard enough time not coming out of a strapless bra whilst climbing....never mind the other stuff.
Which leads us to the DIEP...the convalescence with that surgery would most likely make me wacka-doo, although from what I have seen the resulting work can be just lovely. I keep looking on me for some
spare tissue/fat but I am not sure that I qualify. I have no idea how much is enough. Am meeting with one ps next week so he will be able to tell me the deal.
Sometimes I just want to forget about the mx thing and just do the rads....and I did tell my onc this. Obviously, not a popular choice with my medical team concerned aobut DCIS but there you go...if I was more than my present B cup I would be able to do a third lumpectomy but that is not the case. Grrrr.
~climbergirl
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I think Jorf has got it down.
If you have any breast surgery and sit around for 6 weeks afraid to move your arm because it is a bit sore then you will lose strength and motion.
If you have breast surgery, listen to your physician, and keep moving then you're likely to be nearly as good as new before too long.
We've been doing "Wheel" in Yoga, and I will say that I notice it more on the implant side the next day, but it never stops me from doing it again the next week
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I'm in awe of anyone who can do the wheel in yoga. I just have never had the strength for that one. Nor can I do a headstand.
Makes me think I should do more yoga.
I'm hoping to get in one more climbing session this weekend--I may be having my surgery next week (bilat with expanders) and who knows when I'll be able to climb again...sniffle, sniffle.
Anne
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Anne, you'll be climbing again before you know it! All the best with your surgery next week...
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OK, not being a yoga person I had to go see what the wheel pose is - didn't we used to call it something more descriptive in elementary school? Like back bend or - oh, I know, wasn't that the bridge?
I'd think that with working up to it (however you would do that!
) someone with an implant could do it. I can't! But then again I haven't tried anything like that since elementary school!
I don't much like yoga but I'm impressed with any 50 year old that could do that!!! (and hasn't been doing it since elementary school!)
Jorf
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Anne,
How are you doing? Was wondering how things were going in regards to the operation.
I have seen 2 plastic surgeons and am not really eligible for a DIEP...my only options are s gap or implants. The S-Gap is around a 12 hr microsurgery that involves getting an artery that passes into the piriformis which means that it is also near the sciatic nerve. That and the amount of time it takes makes me nervous. As far as implants....one of the ps told me that when you do rads it increases the chance of problems with the implants by a whopping 40 percent. That increase is the same for doing rads both before and after. I think that 5 years should put you out of the woods for that tho.....I was told by a doctor friend that the longer you wait after mx the better off you are as far as recovery. I really wish that I did not have to get rads...it makes things more complicated for recon.
Let us know how you make out and best of luck with all of it! At present am unable to climb as I appear to have done something to my achilles tendon. Am wondering about low estrogen and tendon health at this point as I have NEVER had any issues like this before.
Take Care~
climbergirl
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Hey, climbergirl!
One week post-op and doing pretty good. My PS said that my radiated breast acted just like the other. The skin is in good shape. I didn't have any skin issues with rads, but perhaps the 5 years helped.
Five hours of surgery were a-plenty for me. Not sure I could handle the microsurgery and be far from home. It's an option if the expanders/implants don't work, but my inital feeling is that if that happened, I'd be flat and deal with it.
My recovery isn't too painful, and I have great arm mobility already, since only one node was taken this time. I've been thanking my strong abs and lats for all their support in getting me up and out of bed!
I know it's way too soon to even think about climbing, but I miss my gym buddies. A friend is coming over tonight to tell me about his trip to Red Rocks last weekend. I so wanted to go...
Anne
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AnneW - Did I ever tell you the address of my favorite post-op site? www.stayingabreast.com
It's an easy program that is quite specific about what to do. I followed the schedule by week and never had a problem. I think we get into trouble when we start jumping ahead of ourselves.
Jorf - I think a lot of success in Yoga is attributable to the teacher. It's not all brute strength, it's getting yourself warmed up and positioned right. I could never be a Yoga teacher because you have to talk all the time
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Cool, Rose, thanks for the site!
Anne
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I am hoping to find more athletes (and recent updates) who have gone through reconstruction. What has your experience been like?
My UMX was last week, with immediate reconstruction. I play roller derby. I'm very fit (which is why I think my recovery is going so quickly), and eat rather cleanly. The hardest part about the whole cancer process is resting post-op. I so badly want to work out.
My docs say that I should still be able to play my contact sport, but I can't imagine getting back to the track for a while. Anyone else out there young, fit, athletic, and getting/ received recon?
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I am hoping to find more athletes (and recent updates) who have gone through reconstruction. What has your experience been like?
My UMX was last week, with immediate reconstruction. I play roller derby. I'm very fit (which is why I think my recovery is going so quickly), and eat rather cleanly. The hardest part about the whole cancer process is resting post-op. I so badly want to work out.
My docs say that I should still be able to play my contact sport, but I can't imagine getting back to the track for a while. Anyone else out there young, fit, athletic, and getting/ received recon?
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