Anyone start rads in October?
Comments
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Hi Layne, nice to see you here today. Sorry that you have a cold. But glad you had energy to walk to your rads appt. That is pretty convenient to have it that close!!
My nipple is bothering me the past few days, it's swollen and darkened. The Dr. says that is common. It does hurt a bit to lie/roll on it.
I seem to need a bit of extra rest on the weekends, but other than that, no crushing fatigue, thankfully so far. Tx 20 today 2/3 done Yay.
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Hello everyone. Thank you for the birthday well wishes. It was a splendid weekend away from responsibilities. What great indian summer weather we had here in New England.
Layne, I guess it isn't enough to contend with work, radiation, and life in general but then you have to throw a cold in there. I'm glad you at least opted to work from home and still enjoyed your walk.
Helen, 20 tx down and you're doing okay? That's inspiring.
I hope everyone is getting on well with their treatments.
Debbie
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Hello all,
11 down and 22 to go--sounds like a third of the way there. In hindsight it's amazing how quickly those 11 have passed by. I got sent to the store after tx today too Ferretmom to purchase Cort-Aid. I sortof expected it, as the nipple area is so-o-o itchy. The trials and tribulations of being a Glowing Goddess!
Brenda
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Brenda, you and I are right in synch. I had #11 yesterday also. We'll both finish the day before Thanksgiving, if nothing or no one gets in our way. :-)
I have noticed the itchy boob. I'll keep the cortaid in mind to help manage it. So far not too bad.
Is anyone doing any serious blistering yet?
Debbie
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Debbie, we're the early birds this morning! Whatever you do don't scratch! I was constantly waking up scratching in my sleep and now I'm paying for it. Hydro-cortizone 1% over the counter. Just don't wear it to tx and I'm happy to report that it helped. Didn't feel like it was helping at first, but then I realized that it was less itchy and I only woke up once in the night and managed not to scratch. Just think, by this time next Tues. we'll be starting on the 2nd half of tx.
And I didn't even mind using the Aquaphor samples that they finally gave me yesterday for some of the other dry areas.
Brenda
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Good Morning everyone.
Yes, the Cortaid cream helped a lot. I do not seem to be reacting much now. Not so many new blisters. Very tender nipple, a shooting pain here and there, but certainly not anything to complain about.
10 down, 26 to go.
Is anyone able to watch the monitor during rads and exrays? I asked if I could turn my head to watch, but it is just enough change in positioning that it throws off the alignment.
Disapointed, wish I had known to ask before the mapping session, maybe that could have been done so I could see the monitor.
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I just had number 5 done today. Somedays it seems like an endless number, but probably best not to dwell on it. I got a book on cd for the drive home in traffic which is really nice.
Has anyone noticed their chest muscles seem tighter since they started? I think mine are so I am trying to do lots of exercises to keep them moving.
Joanne
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Hi Glow Girls and Octo-braless goddesses!!
Debbie, I'm glad you had a nice weekend! Yay!!! Yes, it seems a small miracle that I've continued to have energy through Tx 21 today! The Rad Dr. said I could feel tired later, we'll see.
Nice to see you Layne, glad the cold is going away. Ugh. I thought that I was starting to get one today, but it didn't materialize so that is cool. I'm glad I'm not the only one with a cranky nipple. I am pink, but not dark red like a bad sun burn, which is what I thought I would have.
Today they drew on me - second time since the initial tattoos at the beginning. It seems some of you are getting written on regularly - that's a bummer. Today they set me up for my boosts next week and drew all around the area where I had the lumpectomy. So more magic marker.
It feels good to be setting up for the boosts, as that mean the end is in sight. Yay!! This has gone really fast - I hope it goes fast for all of you.
Joanne, great that you have a CD to listen to on the drive. What are you listening to? I've been listening to Joyce Meyer tapes - she is a lady preacher. She always encourages me.
Brenda/Ferretmom I may have to get some of that cream - haven't been desperate enough to make a trip to the store - seem to be managing ok with the Sween cream and the Aloe Vera so far.
Nice to see you all today and be on this journey together.
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Joanne Elizabeth,
I almost fainted when the neighboor announced my business to the party!!!!! I didn't say much but definately wanted to!
I have a question....I had lumpectomy, and chemo so far for grade1,1/11nodes positive, ER/PR+. I am a nurse practitioner for pulmonary med and have recently seen 2 women with metastatic breast CA after 5 yrs post treatment. I am now really scared again. I read about subcutaneous mastectomy where the skin/nipple is preserved. Does anyone know about this and am I crazy to consider this? I just don't want to go through all of this again at a later date....I figure I better think about all of this prior to radiation....
thanks everyone! Barb -
Barb, it sounds like you have a very recoverable form of BC. It's a very early stage and low grade. I am stage 2, grade 2 with 1/10 nodes positive, ER/PR+. My suggestion is we cross that bridge IF we come to it. But is there anything in your family history to suggest otherwise?
The one thing that radiation does prevent is ever radiating that same breast again.
Just like you can find women with metastatic cancer, you probably don't know all the women around you who are 5 - 10 - 20 year survivors of BC who are living normal lives.
Just my two cents.
Debbie
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Helen, I'd have no problems getting drawn on if I were approaching the boost phase of treatment. Yahoo!
I do see that I'm ready for the end of treatment. I don't mind the daily visits since I get to leave work early. :-) But I'm getting tired of being in the system and not just being the regular me. I was never sick and only had my annual visit to the doc. This whole thing can be tiresome but I'm a marathoner so one foot in front of the other.
I have also been listening to a book in my travels to the clinic - Middlesex. Strange tale so far. :-) I am probably the only person who owns an iPod with no music on it. I only use it for books.
We're getting there!
Debbie
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Hello everyone,
I'm Kerri and I've been a member for only 2 weeks.
I'm not starting my rads. until 1st November, but that's almost Oct. just out by a day, so I hope I'm ok to add to the conversation.
My Mum also has bc and will be finishing her rads. on the same day I start mine. I've been able to see what happens by watching her have the treatment. She's in her 5th week and now starting to have skin reactions and burning on the nipple.
I had the call just a week ago telling me when I was starting rads. and til then I'd been handling things pretty well. But that call changed things for me and it's really hit me hard as to what I'm dealing with. I couldn't stop shaking after the call. I've had lots of surgeries in the past for different things, so the lumpectomy was just like another operation. Now it's really sunk it that I really do have cancer. So roll on the next chapter. I know it's going to be even rougher then the previous one.
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Boy, Kerri, what a perspective you have. First your mom and now you. And isn't it ironic that you are starting your radiation the day your mom finishes.
It is funny how we have these moments where it hits us with the magnitude of the situation we are in. You've come to the right place. We're all in this together.
Debbie
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Thanks Debbie. The support I've had from everyone here since joining has been very strengthening. Even though I'm new I feel very warmly welcomed.
As for my Mum and me starting and finishing on the same day, the people at the clinic were hoping to try and get some of our appts. together, but didn't workout that way.
But as I have already been in a few times with mum I won't feel like a stranger, even though it still feels like a strange place where I don't feel I belong, especially mentally. Does that make sense?
I'm glad you've included a photo of yourself but I've got to say you don't look very old. I'm 36. Your smile is a very warm one.
But I just hope I get my head around it all soon so I can accept what's going on better, especially when I start rads.. But then again, alot that I've spoken to who've had or still have bc have said sometime you never get your head around it. I'll have to wiat and see.
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My wife starts radiation next Tuesday. We had surgury (lumpectomy) back on September 10 and chemo finished up in August (DD AC->T). Right now we are testing for hypercoagualtion and CYP2D6 before proceeding with Tamoxifen. My wife had a blood clot back in July caused by her port-a-cath and the coumadin caused internal bleeding after surgery. It's been a painful couple of months. We are looking at a ommerectomy next summer and switching to an aromatase inhibitor.
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Hello everyone,
Layne, I think I had port films done on Monday. Exactly what do port films show them? Bad boob is definitely heavier that good boob and I don't have any cycles at all to blame it on. And I've lost weight. Anyone else have that problem?
My daughter told me a funny. Her sister-in-law recently had a partial mastectomy. My daughter saw her over the weekend-and this is not rural Ky. mind you, but in Calif. suburbs--and asked how she was doing. The sister-in-law proceeded to whip out bad boob---while standing right in the middle of the front yard.
My daughter, rather shocked, told her, well that wasn't so bad-----and S-I-L proceeded to whip out good boob so daughter could compare. I guess we somewhat lose our sense of modesty when we're observed by all these docs----And I couldn't help but picture the scene, especially if the neighborhood patrol had pulled up, while this woman is flashing in her front yard! Imagine trying to talk yourself out of an indecent exposure citation! or having to go before a judge-
Off to #13! More Cort-Aid please--I itch!
Brenda
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Hello Kerri, Hello Joel,
Joel, you and I are almost neighbors. Definitely found the right place. My fears of radiation would have taken over my life without the Glow Goddesses. United we stand! And I thoroughly agree with you Kerri, just keep on glowing and don't let the bastard win!
Brenda
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Kerri,
Going through treatment feels like it takes forever, but it's really passing by quite quickly. It was scariest when you didn't know what to expect and you're already ahead of that. It requires setting your mind to it--No matter what--I will get this done
It's like living two lives. I go to work, and then leave to go to tx and then back to work again. Co-workers and family can't comprehend what it feels like to switch back and forth from one life to the other. But once you get into the swing of things, you quickly adapt.
Brenda
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Layne, I'm almost a foot shorter than you (5' 1+1/2"). Jeeze, louise! I just turned 52 on Monday. Yee Ha!
I was walking around without a hat or wig on. Just bald. And when the sprouts started, I kept the hat off. Well now i'm at the 1/4" stage where it sticks out all over. Think it's time to wear the hat again.
Joel, welcome. Your wife is a very lucky lady. Sorry you are here but glad you found us.
I better get back to work.
Debbie
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Wow, I think I need to come here a few times a day to keep up! This has been a busy place. Welcome Kerri and Joel.
You know I was really nervous about Radiation, just the word freaked me out. But now that I've been going - it just becomes part of the routine, like Brenda said. Just go in there put yer gown on, walk down the hall, get on the table, say hi to R2D2 lol listen to the buzz, get up, change into your clothes and you're on your way.
Debbie, good for you, listening to books. I love to read. I don't have an ipod but my dh and dd do. I do have a friend who got an ipod to listen to books, so you're not alone and I don't think you're weird.
Layne nice to see you here today. It's always fun to hear your rambles. Congrats on being half way done. Yay. Ya, some nipple soreness here still - ouch - but minor in the grand scheme of things.
For those of you just starting, it really is more of a nuisance than anything. Just an unwanted errand to do everyday for 6 weeks and you are done.
I have to say that I still am maybe in denial that I've had cancer. Cancer is such a big scary word, and with DCIS stage 0 it means remove the cells, go to radiation, maybe take some meds, yer done. I don't know. I feel super duper thankful it was caught early. I'm not worried that I'll get it again. I have a family history of it, so I'll be diligent about my mammograms, etc. But I am looking forward to putting this behind me.
Tx 22 today and counting.
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I had my CT scan done today and my markings done so looks like I will join you gals next week when I get my first Zap, anixious to get this behind me and will be done before Christmas, my what a gift that will be, I`m so itchy now can`t imagine what it will be like in a few weeks, but the good news I got today was I don`t have to do the chemo so will gladly go thru the radiation part.
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Hello Debbie, Joel and everyone else.
This is what i love about being in this club, all the words of support and understanding from all who know what I'm saying and how I'm feeling.
I can't get enough of it, it's what we all need when dealing with "The Beast".
I didn't mention it before but since my surgery the doctors and I have found another lump. This time in a node in my neck,so I'm seeing the oncologist next Wednesday. I had a biopsy done on it 2 weeks ago but the doctor who was performing it messed it up, and as I was already stressed out I had a melt down as it hurt so much.
So I'm seeing a different oncologist and hope it'll go better this time.
She's been recommended to me by my breast care nurse who does my Zoladex injection, and have been told she's very nice and very good.
So my treatment may end up including chemo after all. Just have to wait and see.
Just to let you all know too, I often join the chatroom so maybe I'll talk to some of you there sometime.
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Ladies, it is so nice to read your accounts! I am having treatment in Germany and don't speak the language. In turn, I don't get the individualized information and questions answered. If I had not found information on these sites, I would have no idea what was to come. I'm filling in the broken English with info I have picked up online.
I'm starting radiation today, and have already had my markings done. I thought it odd they marked me with a marker, and put tape over it. I've been worried the whole time I would lose the tape and have to go thru the marking appointment, again! One thing I didn't know about is the special deoderant. I wonder if my doctors will fill me in on that one...!
Thank you for all of your info...in my case, it's more than just chat!
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Debbie and Layne,
thank you for the settling words...I need to calm down. I see too many bad things at work, and need to realize there are those who do very well! I think I might talk with a surgeon to see what they have to offer andgo from there...
I guess my rads won't start until Nov anyway due to the fact that I had a late chemo completion date. I can't wait until this is all over and yes, feel normal again! Barb -
Good morning!
Hello Clessie, Hello whoablaze, Radiation tx starts with a single step and just keep taking those steps til it's done. We're all doing the same dance---just watlzing through the steps, but geez, I'd rather jitterbug!
Helen, I'll now be looking forward to the day that they start making new markings on me in preparation for boosts.
I hope my rad clinic gives me a suggestion card to fill out at the end. If they had told me in the beginning that itchies could be helped by Cort-Aid, I wouldn't have scratched all last weekend, til I was already sore by Monday morning. A little knowledge in advance would have prevented little raw spots.
Brenda
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Hi all,
I am new to this forum, and look forward to exchanging our experiences during radiation. I finished my chemo treatment yesterday (4DD AC and 12 weekly Taxol/Herceptin). I will continue the Herceptin every 3 weeks through 8/08. I have a follow-up appointment with my surgeon today, who wants to be involved in deciding the radiation treatment. On Monday I have my first visit with the radiation oncologist. I am hoping to get started in two weeks or so. The chemo was a long haul, and for now I see the radiation as the "easy part". I hope I am right!
I have a question for those of you who are ER+/PR+: Are you starting the hormone treatment during radiation or waiting till after? I am not sure yet what to do.
And a question for those of you who have had chemo: Are you being offered new scans after finishing the chemo? My oncologist advices against new scans unless I have specific symptoms that need to be checked out, and says that frequent scans just cause the patients more anxiety. I am trying to feel comfortable with his point of view.
I wish everyone a great day, and look forward to your comments.
Lise
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Hi Gals,
I'm an "old timer" 3 1/2 months out of rads, and a dear friend of Laynes. I like to check in from time to time to see how everyone is doing. About the itching, please don't scratch your rash or red spots. You can use Cort-aid, Benadryl and other anti-itch lotions to help with the itching. There's a risk of infection if the blisters pop open. A remedy my rads nurse suggested for my little blisters was a cold damp handkerchief applied to my breast. Then you let it dry on you. That really helped with the soreness and itching. I had rads during the summer and I would do this and lay on the couch under the ceiling fan. It provided a lot of relief. Of course, all the other creams and Aloe Vera the doc's recommend works wonders, as well.
Best of luck to all of you. You're in my thoughts.
Brenda in VA
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Hello I am new to this board. I will start my rad next month. I have read through the messages posted on this topic. Several mentioning about " break and boost". What is the "boost" means, anyone? Thanks.
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Hi everyone,
Just finished my first full week of rads. Only 5 more weeks to go - LOL!
I don't get the boosts either, I am due to have them but have no breast left to boost. They apparently do them to the area of the breast where the tumor(s) were.
I definitely have more muscle tightness so I am glad for 2 days off.
Hope the rain lets up soon.
Layne have you considered FIOS although thankfully the rain hasn't gotten my DSL so far.
Joanne
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Hi Rads Peeps,I only have 8 treatments of 33 to go. It wasn't til the 3rd week I got side effects. I have one killer armpit, red and peely, and a tender breast. Anyone have the same? I am on 3 advil every 4 hours.
B
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