I am starting chemo in July 07. Anyone else?
Comments
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Wow...AC sucks! I was a little nauseous the first night...but it went away. I don't have much of an appetite...and I kinda feel like somebody ran me over with a semi. Much different than the Taxotere. I almost feel like I have the flu with the AC. I feel really weak. I just keep telling myself...only 3 left...
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Hang in there, my first treatment of AC was the worse then each one got better than the last, but I know everyone is different. Good Luck hope you feel better soon.
Pat
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I hope you're feeling better Abbey. I'd hoped you wouldn't get sick from it but most of us do. It does suck!
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Abbey, I, too, was hoping the AC wouldn't be bad for you but alas, I guess it's inevitable. Take heart, you will feel better in a few days. Although it didn't feel like it at the time, looking back now the AC part of my tx. flew by. And next time you will be halfway through
.My memory of the weeks of AC seem very foggy to me now. Anybody else noticed that? I wonder if it is the drugs or my brain protecting me!
Yikes, Margie! Sorry to hear you were so sick. Glad you are feeling better.
Well, now I can say I have more Taxols under my belt than I have left to do!!!!!!! YIPPEE!!!!!!!!!!!! Yesterday was #7!!
Abbi - It takes me a long time to get to my Gilda's club, too. It's in the middle of the city and I'm in a suburb and there are a ton of traffic lights along the way. Sometimes it's a pain. But I love, love, love the way it makes me feel. Both physically and mentally. And I do find that the mental part of this can be a lot harder than the physical. Such a long road!
Speaking of long roads, I asked my onc. his thoughts on whether I should think about rads even though I had a bilateral. I'm in that "Gray area" for rads. He suggested I get a consult, as it may or may not improve my survival benefit by much. I hate the idea because I have expanders and I don't want to wreck my reconstruction. I guess I'll see what the rad. doctor says.
Have a good week everyone.
Donna
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Donna, I had my consult with the radiation onc already and I have to have 7 weeks of radiation but he did ask me if I was going to be contemplating reconstruction in the future because in many cases they can alter the dose/strength to prevent any problems with future recon. Perhaps they can do that after recon also if you will need rads.
Tomorrow is my last DD taxol tx! During AC, there were times when I didn't think this day would come, but I agree that AC does already seem like a distant memory. It really is amazing how time does fly when you put your head down and just get through it and manage your life in two week increments. Two weeks after tomorrow's tx I should start rads. Hope to be done by the end of the year.
Linda
I
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hello,
im marilyn..i had finished all my chemotheraphies, last 2006 of october....im a stage2 a breast cancer patient and im taking tamoxifen
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Hey girls, had my lumpectomy on Monday and the dr called on Tuesday and said the pathologist said all is clear, so I went back to work today sore as all get out, but I am making it will start taxol on nov 12th not looking forward to it but got to press on, hope you ladies are doing well , the race on saturday was awesome i was so overwhelmed with emotion meeting all of the survivors and getting encouragement from them ,everyone should try to attend.
Thanks Tina
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Just finished Taxol #5 of 12 this morning..... keep counting them down. I'll be finished December 20.... I'm REALLY looking forward to Christmas.
In the meantime, docs have changed some meds (anti-depressents/anti-anxiety stuff) on me and I'm feeling so much better and stronger. Even gained a little weight (which I really needed to do).
Hope everyone is having a good week.
Abbi
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Had to go to the ER this morning...woke up with a fever of 101.4. I kinda feel like it was a waste of my time and money to go (but that's what my onc told me to do when I called him this morning) all they told me was that I have an upper respiratory infection (cold) and that my white blood cell counts were a little low. So, I got stuck with a $75 co-pay. I am going to ask him next time I see him why I couldn't have just waited until my regular Drs. office opened and went in there...it would have been a heck of a lot cheaper! I feel pretty lousy though...even if it's just a cold.
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Abbey,
Sorry you are feeling lousy, but you certainly did the right thing by going to the ER. I am sure that your onc will tell you that it is important to have every fever checked out no matter what!! With low blood counts you can never tell when something will take hold quickly and your body will have a tough time fighting. Reading the devastatingly, heartwrenching story about our community sister "pixiedust" brings that point home. Take care! -
Hi Ladies,
I am wondering how Rose and Lori are feeling haven't seen them post in awhile. I hope you ladies are hanging in there. Rose I think you have maybe 1 tx left, I have 1 taxol left Nov 5. Abbey, yes A/C sucks, cabbot argue about that, but it is doable. Have a great weekend all. Boo! Take care Charlene
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liven42day
I'm still hanging in there I have one more tx to take. I havent had the energy to even get on the computer lately. I don't know about you guys but I have been tired and weepy lately. My knees and feet are killing me. Onc says from cytosine? I'm am just so tired of all this I would love to be me again for just one day. Staying positive has been the hardest thing for me to do. Before cancer I was the most positive person always smiling now I'm not. Any suggestion on how to get myself back?
Hugs and prayers
lori
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Just hang in there, Lori.
This treatment just takes so long. I think we're all feeling the same way about now. I have 7 more Taxols to go (8 weeks), then the rads, then the Tamoxifin. And I'm really sick and tired of being bald and being tired and being scared and being weepy and all the rest of it. I hate that I have to take anti-depressents and anti-anxiety pills and sleeping pills. Will it ever end? ...... well, actually.... no. I'm now a breast cancer patient for the rest of what I hope will be the rest of my very long life. But I have to believe that it will get better.
The person I was before BC is gone and there's a new person in her place. But that doesn't automatically mean a negative. This is a very long and very hard year, but there is a light at the end of the tunnel. Think of all the survivors out there enjoying life. We'll be there some day too.
But until then, we can just take it one day at a time. Just keep focusing on that light at the end of the tunnel..... that's what I tell myself every single day.
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Hi everyone -
I just finished my LAST chemo treatment (I hope for good) today...4th taxol. I do not have to do the Neulasta shot this time. Just have to get through this week, then a follow up CBC next week, then port flush in 6 weeks, then blood work to check tumor margins on Jan 21 (every 3 months after that). Rads were discussed at length, and it was decided I don't need them. I am triple neg, so no hormone therapy, either.
I feel like I have to "catch up" with my life. I feel like I've been neglecting my little guys between feeling crappy one week and trying to get things done the next. I can't believe I got through all that I have up to this point...from mid-May until now.
I do not get on here much, but I am always thinking about all of you.
Take care,
Karen
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Wow Mom,
Congratulations!!!!!!!!!!!!!!! Catch up on life, take a deep breath!
Charlene
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Hooray, Karen!!!!
I'm very jealous. Enjoy your new life!!
Abbi
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Congratulations, Karen! I can't wait until I am in your place. Good luck as you move on and take your life back.
Lori, Keep on hanging in there.
This does seem to get harder as time goes on. Sometimes it seems like it will never end! Fortunately there are more good days than bad, but I hate that one day I will feel great and another day I will feel like crap or will have no energy at all. It seems so unpredictable to me. Last night I had a horrible time sleeping, so today I am not feeling so great at all.
Yesterday was Taxol #8 so I am officially 3/4 of the way through my chemo. Last week, one of the women I've been seeing at chemo every week had her last tx, and yesterday there was another one. I am always so envious! But then, there was also a woman yesterday who was getting her first AC. I always feel sorry for the newbies. The AC is so rough! Anyway, the fact that I had a tx yesterday probably accounts for my trouble sleeping. Hopefully tonight will be better. We had such a beatiful summer here and fall has been equally beautiful and I get frustrated that I am missing it. And my husband is a hunter, so he is gone all day Saturday and Sunday these days. He would be home more if I asked him to, but he loves hunting so much I hate to ask him. Oh and I had to buy new pants because I have gone up a size. I guess I am just having a pity party lately!!
But on the bright side, we just booked a trip to Key West for February and hopefully I will have lost the weight I've gained, and I should have had the swap surgery to change my expanders for silicone implants. Oh and of course I hope to have some hair by then. Looking toward the future.........
Abbey, glad you are on the mend. I agree you were right to go to the ER. I recall reading about Pixie Dust and it scared the heck out of me!
Happy Halloween everyone. I got a halloween print "chemo helmet" (my term for scarves) at chemo yesterday, so I will be wearing it to hand out candy. Some nice lady made a bunch of them with various holiday prints, and donated them. Got one for Christmas also.
Donna -
And Abbey, I'm thinking this must be your "off week" from the AC. How are you feeling? I hope it finds you feeling pretty much like your pre-AC self.
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karen - I can't wait to have that feeling of being done! your luckey
abbi, donna and charlene - thanks for the uplift! I'm feeling alot better today I hope tomorrow is just as good. You never know from one day to the next what to expect with me. lol
Does anyone know how to put pictures on this site? The August group is always posting pictures. I like to read their site too they are really humorous if you have never read the post on that site.
I think I have decided to not reconstruct since I had sooooo much trouble with it before. Do any of you guys need to make that choice and if so how did you decide? They tell me I will have to go with a back flap since I lost so much tissuse and I just can't see scaring up my back, sides, and front just for boobs. My dh doesn't care either way he just wants me to be happy with myself. I think I just need to learn this is the new me and maybe I will get use to the sunken in area where my boobs were.
Thanks for always being there.
Hugs and Prayers
Lori
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I just had a long post typed out & hit cancel instead of submit - argh!
Here goes again - Hi ladies, hope you're all feeling ok today. Congrats to those of you who are done, how exciting! Those of us who aren't we will be very soon! I had my 5th treatment of 6 yesterday, 1 more to go. My doc thinks surgery may be before Christmas. I'd rather wait until just after if I get a choice. After the crappy year I've had it would be nice to enjoy christmas with my family not in pain (and be able to have some well earned drinks too!). Either way though I'll be glad to have it over with. I'll know soon what my date will be. I'm feeling great right now. Last treatment I felt good until day 3 when I started the Neupogen shots. They really kicked my butt for a week last cycle. Praying it doesn't happen this time.
Donna, I hear you on the weight gain! I've been no where near as active as I was pre chemo, and eating whatever I feel like. It's paid off in a 10 lb. weight gain. Oh well, I keep telling myself I'll lose it when I feel good again. Gotta do what it takes to get through this crappy part, right?
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Definitely a difference without the Neulasta shot! Not as sore and knocked out. Still crappy, just not as crappy!
I have had the weight gain experience, too - about 10 lbs. I had gained a few before my mastectomy because they told me to, then during chemo, any time I felt good, I ate! Not being very active doesn't help much, either. But I figure, I have enough stuff to worry about now...and why start dieting during the holidays? 2008 is a new year, and it will be a better year. And I will get my energy back and lose the weight. And I will have hair!
Karen
P.S. Lori, I think you can click the little icon with the tree to add a picture (though I haven't tried it).
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Hi all...glad to hear that you are done Karen! Lori...hope you are feeling better and able to sleep ok. Margie...I hope your surgery date works out for you to be able to enjoy Christmas. That would be really nice. I have my last chemo on Dec. 20th..I'm hoping that I will feel ok by Christmas Eve (that's when we have relatives over) and Christmas Day when we celebrate with just our family. I am so looking forward to it! Donna...thanks for asking. Yes, this is my week off of AC...next week I go in for another poisoning. I'm starting to feel a little less sick everyday too...still have a nasty cough and runny nose...but feel tons better than I did last Friday and through the weekend. Have a great Halloween!
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Hi Kids,
I called the chemo center nurses yesterday, my feet have not recovered from the taxol as they have with my last 2 tx's.
I have had this weird tingly, burning, numb feeling in the bottoms of my feet with each tx, but this time it hasn't gone away.
They said the onc will probably reduce the dosage of my final taxol on Monday because this can be permanent neuropathy. Has anyone had this feeling in the bottoms of their feet that didn't go away within 1 week after taxol? I am on dose dense X 4. I cannot wait till Monday is over! Chemo will be over!
Abbey, so glad to see your doing better.
Lori, Hang in there kiddo, your almost done!
Have a great, safe Halloween! Charlene
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charlene
Congrats on almost being done! You will be able to really enjoy the holidays knowing this is behind you. I really hope your feet start to feel better soon. Im not on taxol so I can't relate.
I can't believe the holidays are almost here it just seems like yesterday I was wondering how I would get through summer. I am really wanting to get back to work I'm starting to really miss a routine (other then sleeping all day) lol.
Hope everyone has a safe and happy Halloween.
Hugs and Prayers
Lori
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Hi, Ladies!
I have been posting in the TCH thread - it seems like most of the July-starters are on AC. I had my LAST TREATMENT yesterday and now just have Herceptin. I must say that my course on TCH was pretty tolerable - chemo mouth, fatigue and hair loss being the only side effects. I had to have six cycles, which is typical, but the plus is that when you are done with your 6th you ar DONE with CHEMO.
Any other July starters done? Hang in there if you are not there yet - better days are ahead, and the best side effect of chemo is how wonderful you will feel when it is all OVER!
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Hello everyone...I just wanted to check in, been away from the boards for a while. Wow, what a differance it is to have chemo behind you...hang in there everyone, there is life after chemo. I had my last tx 24 days ago and WOW. My hair is growing back already, it's white and real fuzzy but it's there. I am using nioxin (I think thats what it is, still a little chemobrain) shampoo but I couldn't tell you if thats helping or not. I still have a bit of body aches....leftover from taxol i'm afraid. I do find that I still get tired easily but I have had a bit of energy and have gone back to the gym now and then. Food taste pretty much normal again and no more mouth sores. So hang in there, I promise it will get better and your hair will come back.
I went today for my mapping for radiation. I'm afraid that was a bit emotional. I knew that when he did the mapping I would have lines on me but did not know there would be so many and that they had to stay on during the whole 7 weeks. And he used a purple marker and some of the lines go up to my collarbone. Now if I lived in cold weather that wouldn't be an issue but I live in Florida and my main attire is tank tops. Well not anymore, I think i'll need to go clothes shopping this weekend. I think the radiation itself will be a piece of cake (especially after chemo) but it's bad enough looking in the mirror with a missing breast, a big bump where my port is and bald head but now I look like my 5 year old has been drawing on me with a marker. I think I will be covering up the mirrors in my house. Hey, by time the 7 weeks are up and I finally look in the mirror, I should have lots of hair

Hang in there everyone, I know it seems like the road is long but trust me, it is getting shorter and shorter.
Ginger
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Ginger, My plastic surgeon uses purple marker too! He used a purple Sharpie to draw the lines for my mast., and he always uses one to mark the spot to inject the saline in my expanders.
I have to say I can relate to what you say about looking in the mirror. When I am in front of a mirror naked, it's kind of alarming! That's when my husband says I look like a store mannequin - no hair and no nipples!! (Of course I probably looked more like a mannequin before I gained the 10+ pounds!!).
But Karen, etc., you're right. There is enough to worry about without worrying about a few pounds right now. I was pretty upset about gaining weight, because about a year prior to diagnosis I had worked very hard to lose 35 lb. But I also came to the realization that I gotta get through this however I can. And if a little emotional eating helps, then so be it. I'll lose it when I'm done with tx. and am feeling better. Also, my onc. said a lot of the weight gain can be attributed to the steroids. So now I can blame it on the 'roids, and feel less guilty eating the Halloween candy.
So whose hair is starting to grow back? After 8 Taxols I have a lot of hair! (relatively speaking). I think I will try to post a picture. I've decided that as soon as my whole head is covered with hair, I am going to stop wearing scarves. Today I wore my wig because I felt like having hair.
Charlene - there is a nun who I see at chemo, and she was talking a few weeks ago about pain in her feet and something she discovered that helps a lot. If she is there Monday, I'll ask her what it is and report back.
Happy weekend everyone.
Donna
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Hi all. I just finished my 4th Taxol. Doing pretty well overall. So much better than the AC. I've been having some funny feelings in my heart area. They come and they go. Not sharp pains, but more like a gentle squeezing. It's hard to explain the sensation. I wasn't sure if it was the port, but it was some sensations I've never experienced before so I told my onc. He ordered an echocardiogram. I got the results when I was at my last tx and there was a change in the squeezing fraction on my heart or something like that. Apparently the reading was not dramatically different, but he wants me to get a muga scan in 3 months. He says it's nothing to get alarmed about and it's probably will go away once I'm done with chemo. I know that the AC can be tough on the heart and I hope that it didn't affect mine. I personally think it has something to do with the port. I've always thought it kind of pulls. I will be so glad to get the port out. When I was at chemo the other day, a friend of mine from chemo asked her onc when can she get her port out (it was her last tx) and he said he wanted her to keep it in for two years. Yikes! I won't be looking to keep mine in for that long. I'm counting the days until mine comes out. It's been a blessing to have during tx, but I sure won't miss it. What have people been told about their port removal?
Karen - Yippee! How great to be done

Ginger - I read on the rad thread that crying and getting emotional during the rad markings and beginning rads was so common. It was good to know.
Charlene - Hope your feet feel better. My friend was on the same Taxol regime as you, but she would get head to foot pain for one day and then it would be gone. Very strange.
Lori - Another friend of mine decided to not reconstruct. She wanted no more. Period.
Donna - Congrats on getting hair. I'm looking for mine and I see a fine white fuzz. Hardly visible, but it's there! I laughed at your comment about the Halloween candy. I had just finished popping in a Kit Kat as I read it.
Have a good week.
Jane
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Hi gang. Haven't been on much lately.
I was in a big, deep hole of depression, but I'm starting to climb out.
I've now done 6 of my 12 taxol with zero side effects. It's like they're giving me water. THAT I can be very thankful for.
My hair has started to come back in. I have a good 5 o'clock shadow going at the moment all over. I'm hoping that by my birthday (March 16) I'll be over the scarf thing and be back to some sort of "normal" short hair style.
Still struggling with having my life "on hold" at the moment, but I've been volunteering at a local food pantry and joined a local quilting group, both give me a reason to get out and think about something other than cancer.
Been seeing a therapist as well which is helping a great deal. They changed antidepressent and anxiety meds on me which are working great. Only problem is the antidepressent (Remeron) makes me really hungry. I've already gained back that 10 lbs I had lost ..... and the halloween candy is calling to me all day as well!
Well, I'm jealous of those of you that are ending treatments and moving on, but happy for you. It's been nice to be able to share this journey with others who understand.
For those of us still doing it..... let's just keep hanging in!
Abbi
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Well ladies, I am starting to get nervous about starting taxol next monday, the ac was rough enough, will I need a driver to drive me home, or will I be able to drive myself, I heard they give you benadryl before they start. I am still waiting on my genetic testing to come back, I went ahead and had the lumpectomy on the 22nd and they didnt even find a lump when they got in there, the ac really kicked but.I really would rather not have the radiation after chemo, but I guess if i keep the breast it will have to be. Hang in there everybody
Tina
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