If you have just been diagnosed....

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  • countrygirl07
    countrygirl07 Member Posts: 2
    edited September 2007

    I made a mistake and said that my cancer is inconclusive but I meant to say it is invasive. This is all new to me so  I am sorry. I haven't had the surgery yet but will have the mastectomy October the 19th.

  • Sunny
    Sunny Member Posts: 4
    edited October 2007

    Hi.  I am new to this forum and finding it very informative.  Family and friends have been very supportive, but they don't have the answers.  I never realized how much control you need to take when dealing with breast cancer.  So many decisions to make, and very scary because they are about your survival.

    I had my lumpectomy two weeks ago today. .5 IDC. Cancer is estrogen positive.  Margins were clean, lymphnodes were clean.  Finally some good news. I am having radiation in a few weeks for 6 1/2 weeks, 5 days a week.   Surgeon would like me to see an oncologist.  She said probably I would have to take an aromatase therapy.  Anyone with information on this.  I thought that aromatase therapy was given after tamoxifen.  I was  hoping to just have radiation.  The side effects are not as bad as tamoxifen, but still (osteoporosis, bone pain, elevated cholesterol). I'm 60 and in good health except for bc.  Is there anyone who has opted not to take hormone therapy?Or has taken any of the three aromatase medications after radiation.  I definately will be seeing a few oncologists. 

  • Sunny
    Sunny Member Posts: 4
    edited October 2007

    Dear Grace:

    I too have recently been diagnosed with IDC.  Recuping from surgery and waiting for radiation which will begin in a few weeks.  It's very confusing.  All this information coming at you and you have to make the decisions.  I know what it feels like.  Family and friends are very supportive, but they cannot give you the answers.  You need to talk to people in your situation and speak to your doctors and then make a informative decision. 

    Good luck

    sunny

  • Shirlann
    Shirlann Member Posts: 3,302
    edited October 2007

    Hi gals, the decision about the aromatase I THINK depends on if you are Estrogen Receptor Positive or Progesterone Receptor Positive.  I was a Triple Negative, so I did not do anything but lumpectomy with radiation.

    This is written on path reports as ER+ and PR+ (or negative).  I am 9 years post treatment and doing well.

    Hugs, Shirlann

  • Sunny
    Sunny Member Posts: 4
    edited October 2007

    I guess what I am asking is:  How bad are the side effects of aromatase therapy.  I know about tamoxifin, but what about the aromatase therapy.  My surgeon mentioned arimidex or aromasin, not sure about the spelling.  Also has anyone with estrogen positive decided not to take the aromatase after radiation?

  • lizws
    lizws Member Posts: 1,892
    edited October 2007

    Sunny, I have been on Arimidex for almost 2 years.  I had some joint pain and some abdominal weight gain but am getting rid of those.  I do take glucosamine for the joint pain and am walking over 3 miles now.  I didn't do radiation but did do chemo. 

    See the oncologist and take it from there. 

    Liz

  • Sunny
    Sunny Member Posts: 4
    edited October 2007

    Thank you Liz.  I am seeing the oncologist next week.  I hope I am as lucky as you if I take Arimidex.  Those side effects are managable.  I am a walker and taking glucosamine is not so bad.  Thanks for the info. 

    Sunny

  • Lisa78
    Lisa78 Member Posts: 1
    edited October 2007

    I was just dignosed with having type 11 breast cancer.  Mine did not show up in the Mamogram it was detected in the Ultrasound after bringing it up to the specialist that I had a knot that I was concerned about.  After getting two referrals I have been told to get the Mast since mine is not being detected by mamograms and my risk are greater that it would not be detected if it appeared again. My surgery is set for the Oct. 19 and it is a little scary.  Thank god I have a very supportive group of people in my life that is helping me think postive and be strong.  The hard part is not knowing what to expect after surgery.  Any words of wisdom would be greatly appreciated.

  • ConnieB
    ConnieB Member Posts: 3
    edited October 2007

    Just recently diagnosed with two separate invasive carcinomas and both involve margins.  Also within the same breast I have 4 additional microcalcifations with proved positived for DCIS.  I had a needle localization biopsy done about 3 weeks ago.  I have gone to a second opinion which the outcome is the same but her approach is different.  I have an appointment with a reconstruction surgeon on Monday.  I definantely need a mascetomy of my left breast with reconstruction at the same time.  I was told that I will definantely have chemo but not sure about raditiation yet.  Will be taken the sential node biopsy day of operation.  I am just so overwhelmed with this and no one to talk to.  No one really undersands what I am going through except for someone who actually has gone or is going through it themselves.  This is just scary.  I have gotten a sonogram, and an MRI so far.  Has anyone out there gotten the tram flap for reconstruction and are you happy with it.  There are just so many options its all too confusing.  Thank you and God bless all of you.

  • sherry2007
    sherry2007 Member Posts: 19
    edited October 2007

    I was just diagnosed with lobular carcinoma IN situ stage ll on Friday the 12th. I had a second opinion today, they say I need an MRI. My question is the same as connieB. So much information at one time and its so confusing on what to do.  My husband says he doesn't care if I have one or none, he just wants me alive. But I'm not sure whatI'm going to feel like looking in the mirror and seeing one when there should be two.

    If you had it can you tell what we should expect?

    Its one thing coming from doctors its totally different coming from a real person who has went through it.

    Thank you and good luck to everyone.Kiss

  • dmichelbook
    dmichelbook Member Posts: 1
    edited October 2007

    I was just diagnosed with IDC stage 1. The surgeon plans to remove reminder of tumor and a couple of lymphnodes under my arm, then radiation.  I m almost 63(Nov.). this seems not real and my emotion are all over the place. My family is supportive, but I just want to cry.

    Thanks for listening, God bless all of you

  • amanns
    amanns Member Posts: 1
    edited October 2007

    Hi, Well I went with my sister today and she was just diagnosed today. She has had the simular test such as the mammogram first which was 2 weeks ago and then the needle biospy which confirmed that the mass was not cystic but was solid. The results was given to her today and all I could think about was all of you beautiful women and what you represent and stand up for. I continued to remain positive, even thou I felt like crying inside. Her mass was interductal and insitu with a size of 1.3cm. I kept telling her to stay positive and that we were going to get thru this.  After receiving the results I immediately scheuled her to have surgery to remove it in 2 weeks, because I felt there is not telling if it is a rapid growing or slow growing cancer because it was not there last year. She has a bone scan schedule for next week and received the chest x ray today.  I pray that this is the right thing. I can't believe how the mass grew. It did not show up on the mammogram last year. The surgeon recommended taking the mass out by performing a lumpectomy and remove the lymph nodes associated with that breast and after the surgery send the lymph nodes to biopsy and determine whether or not it had accually spread to the lymph nodes, this will determine whether or not she will not chemo. However,she will receive radiation to the surrounding tissue after the mass is removed.  The mass is estrogen and progestin receptor positive which means that it will respond to the oral treatment regime postoperatively. I am trying to give her support and after you get the news you are in shock. 

    Signed,

    Still in the shock phase praying that I did the right thing

  • Diana63
    Diana63 Member Posts: 773
    edited October 2007

    I am 44 years old & married I have a 26 year old daughter & a 23 year old autistic son, both are the lights of my life. I was diagnosed about two weeks ago with IDC; I am scheduled for a mastectomy of left breast on Monday Oct, 22. I will be so happy to have that part over with. I don't have any insurance so; besides the cancer I am worried about money. My husband, family & work are being so supportive; my husband says I'm not going anyplace until we pay the medical bills off. His way of saying that I will be here for a long time, and that we will get through this together.  Anyway these message boards give me so much hope and strength reading all of your stories, now I know that breast cancer isn't a death sentence. Thank all of you ladies for posting all of your inspirational stories for all of us newbie's out here in internet land; it helps more than you will ever know. When I can't sleep and my mind is  full I read your post and feel like everything will be fine.

  • sherry2007
    sherry2007 Member Posts: 19
    edited October 2007

    Thoughts and prayers are with you tomorrow!

    Let us know how things go. Smile

  • Diana63
    Diana63 Member Posts: 773
    edited October 2007

    Thank you, I just wish it were over, so I could focus on my life again.  I just keep thinking about all of you that have gone before me, and you made it through. I will post as soon as I am able too Smile 

  • sueps
    sueps Member Posts: 2,266
    edited October 2007

    Thinking of you Diane ...Good luck...and sending lots of prayers xx

  • jen45
    jen45 Member Posts: 4
    edited October 2007

    Hi I accompanied my mom today to the surgeon, he said that the lump is 10 centimeters, and that it was more than likely breast cancer. He has ordered an x-ray, mammogram,ultrasound, ct of the liver, bone scan and blood work. After these tests are performed he wants to do a biopsy. Right now everything just seems so surreal. My mom who is my best friend turned 70yrs young in August. I know my mom's thoughts are just racing right now. She has her family support and then some. The anxiety is not knowing until the tests results are in. Can anyone please share with me. 10 centimeters sounds so ominous. Thank you and God bless to all............

  • ANN-MARIE
    ANN-MARIE Member Posts: 1
    edited October 2007

    Just diagnosed - surgery scheduled - what's next?  Can you work during treatment?  I'm the sole breadwinner so this is important to me!

  • Jen44
    Jen44 Member Posts: 631
    edited October 2007

    Hi Anne Marie,

    I am sorry that you have joined the club too.  I wish I could answer your question, but I was just diagnosed Sept. 5th and will be having a double mass on Oct. 31st.  I have been doing a lot of reading and I have found that treatment is different for everyone.  Some people are able to still work a full time job, some have to go part time, and some have to quit until it's over.  The good thing is there are so many new medications that your doctor can give you to help with many of the side affects.  I think the big thing is to keep the people you work with aware of what is going on.  If you are blessed and able to still work you will still need to be easy on yourself and realize your body is going through a lot right now.  There are also organizations that can help with some of the medical bills.  The most important thing is to make sure you take care of yourself.  I know that you are probably saying to yourself that the most important thing is to keep bringing in a paycheck, but if you don't take care of you there will be no paycheck to bring in.  Good luck with your surgery and I will keep you in my prayers. 

    Jenny

  • dasmiths
    dasmiths Member Posts: 1
    edited October 2007

    I have just been diagnosed with Lobular Carcinoma, and they want an immediate decision on if I want reconstruction or not...It has only been diagnosed in one breast, but there is a 10% chance it will go to the other...I am leaning towards Bilateral...and no reconstruction, but my Doctor is pushing reconstruction.  Currently they are not talking about radiation or Chemo...I got it very early...Thank God for yearly Mamos...anyone have input on reconstruction or not?

    Thanks

  • vettegal
    vettegal Member Posts: 287
    edited November 2007

    New to board, just got the news last thursday, my appt with the surgeon is this monday and this has been the longest week of my life. I am 42 and my mom has breast cancer. Shw went 5 years without a mammogram and was in stage 2 when she went. I have been going everyyear since she got it. I am hoping for early detection. I feel like that commercial "LIFE COMES AT YOU FAST"

  • Jen44
    Jen44 Member Posts: 631
    edited November 2007

    Sorry that I didn't see your post before now.  I hope you are still checking back.  You are so right when you say "Life Comes At You FAST"!  It sounds like you have been doing everything right so I pray that it is in early stage.  Just remember that if the worst happens and it isn't in the early stage that you still have a life to live.  There are so many woman on this board that were not diagnosed in the early stage, me included, that are planning a long life.  I am in the beginning part of this as well, diagnosed Sept. 5th with double mastectomy on Halloween, but I am planning to fight this with all I have.  I am stage III and had two grade 3 tumors and one grade 2 tumor.  For me all that says is I have to have more chemo and fight that much harder.  I refuse to let this cancer have me because I have people that have already claimed me.  You will get through this.  I will be praying for you.  Keep us posted on how you are doing.

    God Bless,

    Jenny

  • SISKimberly
    SISKimberly Member Posts: 762
    edited November 2007

    Tell me how you managed as a teacher? I've just been diagnosed 10/10/07 and my worst fear is leaving my 130+ middle school language arts kids in the hands of a long term sub, or worse numerous subs if they can't find a long term sub to cover the whole time, in my absence. I'm facing bilateral mastectomy with reconstruction. Chemo, Then removal of my ovaries to decrease estrogen production as much as possible since my cancer is ERPR + and I have a family history of cancer. Apparently, breast cancer that is ERPR positive is linked to ovarian cancer as well. I fear chemo will weaken my immune system and being exposed to all the illnesses schools inherently have would be a bad thing. Also, having so many essays to correct (7th grade is the state writing test, so I have to prepare them for a variety of potential types of writing before April), and hearing fatigue and foggy thinking etc...makes me stressed all ready. How will I do it?

    Kimberly

  • qhlover2
    qhlover2 Member Posts: 1
    edited November 2007

    Hi, I'm just sick. I was just told tonight that my core biopsy has come back cancerous.  I"m only 43 years old, 2 beautiful children and I feel like ending it all right now.  I can't stand the thought of being sick and not be able to care for my children.  I now have to have more films and then go to a surgeon.  My life is over isn't it?? I feel like I have just been handed my death sentence.  They thought it was just calcium deposits again like 5 years ago.  I was totally blown out of the water tonight.  I"m soooo scared.  I don't think I can handle this, the surgery, the treatments.  Heelp!  Is there anyone out there that is going through the same thing right now??  Kitty

  • SISKimberly
    SISKimberly Member Posts: 762
    edited November 2007

    Oh Kitty,

    It is awful. I know it is, but really there is so much hope for cancer patients these days. The survival rate is great, although the process sucks for sure. Your kids will be your strength because you know they love you dearly and want you here with them. You will trudge to those tests and do what needs to be done and in the end find it really is all going to be OK. Cancer is not a death sentence anymore.



    I literally just found this site today. I am just at the point where I was diagnosed 10/10/07. I'm 46. I have infiltrating ductal carcinoma ERPR+ HER2-. I have had lots of tests, and will have two biopsies tomorrow - second lesion found in PET and confirmed in MRI, and auxillary lymph nodes, and a visit with the plastic surgeon on Wed. I have seen the oncologist and my surgeon. Things are moving along. I'm not pleased with this diagnosis, but I know that there is so much more out there than when my dad was diagnosed with breast cancer...yes, I said my dad, who by the way is doing fine.



    There are so many wonderful voices here at various stages of the process. Be kind and gentle with yourself. Ask for help and hugs and shoulders to lean on. We are here for you,

    Kimberly

    After my appointments today, I have my surgery date- December 6th. bilateral mastectomy with reconstruction.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2007

    BreastCancerTreatment.us is also a god place for info on different treatment options

  • Diana63
    Diana63 Member Posts: 773
    edited November 2007

    Kitty, just keep reading all of these ladies stories and you will see that it is not hopeless, cancer research has come so far in the last 10 years. Don't read about statistics, read these stories and you will draw strength from them. Anytime I get crazy thoughts I come here and just read, they have been through so much but they are still here and living their lives. From what I'v seen its not easy but you will get through this.

  • Yadisa
    Yadisa Member Posts: 5
    edited November 2007

    Hi. I'm 27 years old, and on Halloween I found out that I have breast cancer.  There is no history of breast cancer in my family.  I've had my bi-lateral MRI, CAT Scans, Bones scans- my right breast is the one with cancer. Stage I.

    I'm scheduled to have a mastectomy by the end of this month. I have chosen to remove both breasts and have them reconstructed. I can't live my life worried about my other breast.  The past two weeks have been so confusing. There is too much going on in my head; way too much information to process. I mean, I'm 27! I don't have children yet. My husband and I met with the plastic surgeon yesterday to discuss reconstruction. I feel so overwhelmed - Still can't believe that this is happeneing to me.  I'm trying to take things 1 step at a time, and remain positive. I'm a positive person, and I won't let this destroy my spirit. I have wonderful supportive friends and family that are there for me every step of the way.  I've started reaching out to support groups and other women. I would like to know how other women feel, and how they were abe to handle everything- the ups, the down, everything. It's a lot to handle and I know I can't do this on my own.   

  • Beesie
    Beesie Member Posts: 12,240
    edited November 2007

    Thank you to the moderators for deleting docrob's post and link.

  • Jen44
    Jen44 Member Posts: 631
    edited November 2007

    Kitty you are so NOT alone.  I am 44 yrs old with two great kids too.  All of this is beyond overwhelming, but by NO means is it a death sentence.  There are people on this board that were actually told it was a death sentence and are still kicking.  There are new treatments being found everyday.  Like the saying goes "This isn't your mama's cancer".  That is so true.  My mom died of cancer 14yrs. ago.  If they had the treatments then that they have today I believe she would still be with us.  That is why I know that I will be around for my kids.  There are a lot of us here that were blind sided by this because we believed something else was going on.  I had gone in for a routine check of a cyst we thought was growing only to discover it was a 2.5cm cancer mass in my right breast.  The mass had not shown up on the ultra sound 1 1/2 years earlier.  After having two lumpectomies and having an ultra sound to make sure there was no cancer in the left breast we discovered through an MRI that I wasn't suppose to get that I also had a 2cm mass there.  After having a double mastectomy a 4mm mass was discovered in the right breast that had never even shown up on the MRI.  As you can see blind sided has become my new name, but I refuse to let this cancer have power over me.  I will not let it take me from my family.  I will fight with all that I am and I do plan to win.  Don't allow yourself to think this is the end.  It may be the beginning of a tough fight, but as woman and mothers we are well equipped for tough fights.  Don't give up and know that there are many caring people on this board here to hold your hand through it all.  God bless and I will keep you in my prayers.

    Jenny

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