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  • Scottie1958
    Scottie1958 Member Posts: 6
    edited September 2007

    I was wondering if anyone can tell me about their experience after radiation and reconstructive surgery?  Thank you Scottie

  • Scottie1958
    Scottie1958 Member Posts: 6
    edited September 2007

    I was wondering if anyone can tell me about their experience from radiation to reconstructive surgery?  What was the recovery period from radiation until the surgery?  Are you happy?

    Thank you

    Scottie

  • LizzieG26
    LizzieG26 Member Posts: 1
    edited September 2007

    It's great to see all of the women banning together giving each other support through their difficult times. My name is Lizzie, I'm a 41 year old single Mom of a 3 1/2 year old girl, Suzanna..the light of my life.

    I was diagnosed with breast cancer back in July of this year. I had a lumpectomy. The tissue around the tumor was clean and so were my lymphnodes. However, because I was stage 2 I will be undergoing chemo therapy next week on Wednesday. I will be having a total of 4 treatments.

    It's so important for women out there to be their own doctors and advocates as it can really make a difference. I would also like to recommend that if it's possible that when you go for mammograms you also ask for an ultra sound as it can show things that can't be found on the x-ray.

    There was a great personal quote that I found on the internet and here it is:

    "My hair used to be straight and wispy, and then grew back curly and thick. ‘Your hair looks so good!' said a friend. ‘Where'd you have it done?' ‘Paoli Memorial Hospital,' I joked." Laughing

    - Gerry

    My heart goes out to all of you and would love to be able to commuicate with some of you to share experiences.

    There is a saying I'd like to share with all of you..."Fall down seven times..stand up eight"

    Take Care,

    Lizzie

  • boughtonl
    boughtonl Member Posts: 15
    edited September 2007

    Gaby,

    I was also diagnosed with breast cancer in August, my birthday month, I have done my mammograms like I was supposed to so the doctors think that we caught it soon enough. My surgery is on Sept 27 and I get more anxious the closer it gets. I am also having both breasts removed. The cancer is just in my left breast, but I decided to have both removed so I don't have to go through this again. I do not know what my treatments will be yet. I was scared at first and thought that I was going to die, but now I just want to help other people. Right now I just want to get it over with.

  • mem1280
    mem1280 Member Posts: 1
    edited September 2007

    GOOD MORNING:

    NEW TO THIS, I HAD A MASTECTOMY OF THE RIGHT BREAST ON MARCH 31, 2006. I WAS MISDIOGNOZED IN 2005, IF NOT THEY WOULD HAVE CAUGHT IT IN TIME AND I WOULD HAVE ONLY HAD A LUMPECTOMY. I HAD AND HAVE A LOT OF SUPPORT. I AM IN THE PROCESS OF RECONSTRUCTION SURGERY, IT WAS RESCHEDULED THREE TIMES, SO I FINALLY DECIDED TO WAIT TIL THE FIRST OF THE YEAR. I WAS JUST SCARED TO GO UNDER THE KNIFE AGAIN. I THOUGHT THAT MAYBE GOD WAS TRYING TO TELL ME TO WAIT, SO I AM. THIS IS THE THE SECOND TIME FOR ME WITH CANCER, FIRST TIME IT WAS UTERIN CANCER. BUT LIFE DOES GO ON AND THINGS GET BETTER. WE ARE ALIVE, AND THAT'S A LOT TO BE THANKFUL FOR.      

    MEM

  • sheshe48
    sheshe48 Member Posts: 338
    edited September 2007

    Dear ladies,

    I was feeling down myself today, its been 6 days since my surgery.  And I was feeling like there is a no light at the end of the tunnel.  Thank you Miss Shapen and everyone, we hope we all have life at the end of the tunnel.  Yes, we are in pain and uncomfortable right now, but to know I will live to hold a grandbaby or two comforts me.  Your comments made me cry, I have not really cried since I was diagnosed.  Its ok, it was a happy cry, I know I'm not as alone as I feel.  I do feel I can draw strength from everyone.  I'll know Fri, if there is cancer in my nymth nodes.  I have to keep positive and know it will be ok. 

  • Marlee
    Marlee Member Posts: 17
    edited September 2007

    When my son (18) found out I had breast cancer, he came into the kitchen and kind of loitered around.  He finally came over to me at the stove, put his arm around me, and said 'Thanks for making me mac n' cheese.'  I cried. 

    Then, at the hospital the day after my mascetomy, he came to see me.  He stood at the foot of the bed and said, 'oooh, I didn't know you would have bloody hand grenades hanging all over you.'  I asked him to give me a hug; he did, and I proceeded to vomit (all liquid thankfully) all over him.  He then said, 'I think I'll go home and take care of the puppies for you instead.'  And he did.  When I came home from the hospital, he bounced outside to give me a hug and welcome me home.  I will always remember that day.

  • sherry11
    sherry11 Member Posts: 3
    edited September 2007
    Hi, I'm new to this I'm 38 years old I have 3 teenage boys.I went to the doctor today because I found some lumps well tom. I have a mamagram I'm scared .Can any one help me so I will no what to exspect.Cry
  • plgks51
    plgks51 Member Posts: 1
    edited September 2007

    I had a mamagram on the 26th of September and was called back for a sonagram on the 27th on my right breast.  At that time the doctor told me that he saw something, but he couldn't tell what it was.  He said that he wanted to try and draw fluid from it.  He said that if he got fluid it was a cyst.  If not it was cancer.  I don't know what to think.

  • sheshe48
    sheshe48 Member Posts: 338
    edited September 2007

    Hi Sherry11,

    After my mammogram and they found a lump, the very next day I was sheduled to meet with the surgeon, and about 1 week later or so I had my biospy, I had to wait 6 days for the results. I have Invasice Ductal Carcinoma. Be patient, you have to jump through a lot of hoops. Its one step at a time. I had surgery lumpectomy not even 2 wks ago, and they said they did not get all the cancer and now I have to have another surgery in less than 2 wks. It's very hard on the nerves when you don't know anything. Hang it there, and hope its not cancer. If it is then you have us. I was diagnosed Sept 4, I'm new and still wondering through this. I have met the nicest kindest people since I was diagnosed with bc. Good Luck to you. Life right now is one pathology report after another. Be patient 

  • mafanwi
    mafanwi Member Posts: 5
    edited October 2007

    You are amazing women. you give me hope  you give me smiles.

    I am waiting for tests to identify if i have  breast cancer- really scary stuff, you always think that this is someone elses problem and will not happen to you. If I have a negative diagnosis I hope I can be as strong , caring and loving as all of you . I will add you to my prayers for none of us travles the road alone.

    Mafanwi 

  • shrink
    shrink Member Posts: 936
    edited October 2007

    My SO has said a number of very nurturing things.  I told him that he will definitely go to heaven because of his thoughtfullness and support during the last 5 months since my diagnoses.  He said he'd already been there when he first met me.  I know it's corny but I still loved it.

  • sherry11
    sherry11 Member Posts: 3
    edited October 2007

    Oh Dear God,

    I'm so,so tired and I'm hurting.I feel like I'm all alone in this no one here to talk to .My hubby trys but it's not the same.I have had mamagram and ultrasound and x-ray and I'm just so tired. Why is this taking so long ?Why is there so many test and the waiting is the worst of all. God please why me? I'm just so tired .Cry

  • Coltsneck
    Coltsneck Member Posts: 180
    edited October 2007

    Hi Sherry,

    Don't despair - you will get through this awful time.  Thank God there are so many tests because each of them serves a different purpose and some are used to confirm what is found in the others.  For me the waiting was the worst of it also, but now, almost a year and half later, it's just a fading memory.

    You have 100's of friends here on this site who have gone through what you will and perhaps even more than you will.  They will be your support and inspiration over the next months.  Your husband is trying his best but he is not the one with breast cancer so it's difficult for him to find the right words. Also, he is probably almost as scared as you are.

    This board is full of 1000's of women who might have asked themselves "Why me?"  There is no answer to that question and if you focus on that, you will find it very difficult to move on. 

    My guess is that all the stress you are feeling right now is draining you and that's why you feel so tired. It's our body's way of dealing with overwhelming situations.  Once you find out your results and have a plan of action, you won't feel so alone and powerless.  Right now you are in limbo and once you get concrete information, you will feel better (as ridiculous as that may sound, it is true).

    Just keep coming to this board and you will find support and understanding.

    Let us know the results of your tests.

    Maureen

  • vivskid
    vivskid Member Posts: 5
    edited October 2007

    And I couldn't agree with you more. I have had to become strong and assertive this past year and a half.  When I start hearing the horror stories I say, "If this story doesn't have a happy ending, I can't listen, I'm sorry."  Don't really care how they feel about this, you have to educate people about empathy and sensitivity....You will get through this, I promise....Like my husband told me in the begining...."Don't let the cancer have power."  All the best, sending good thoughts and strength!

  • vivskid
    vivskid Member Posts: 5
    edited October 2007

    Yes, I agree, it was the hardest thing to deal with and as I told people who said, "well, I cut my hair shorter than yours...." and I said, that was your "choice", it's ok to feel bad about it, I struggled with my self confidence, and it was a loss and it made me sad at times. It's OK, just feel what you feel and you WILL come through this.  I'm just feeling ok about my hair as I have about 5 inches now, I used to have shoulder length hair and people have said I should keep it short, well, I'm growing it out again because it's what I want!  Will keep you in my thoughts and prayers.

  • vivskid
    vivskid Member Posts: 5
    edited October 2007

    Hi there, this makes me want to share a son story as well. As my hair started falling out, my husband took me to my hairdresser and we decided it would be less traumatic to just shave my head.  That was a difficult thing to do but better than seeing all my hair fall out. He styled my wig and we went home. I thought everyone was staring at me and they just "knew" I had a wig on. So I get home and my younger son went out, told me my wig looked great. I didn't want either of them to see my shaved head that evening. My older son, who was 21 stayed in that night.  I went in my room and stayed there the rest of the night.  I took my wig off and went in the kitchen to get a glass of water, I thought my son had gone to bed. It was dark in the kitchen and I was startled when I saw him at his laptop at the dining room table, I froze and tried to turn around without him seeing me and we just stared at each other for a moment...and then he said, "aw mom, come here and give me a hug....." I came over, hugged him and cried and told him what a wonderful son he was and he said, "you look like Demi Moore in GI Jane"......

  • iodine
    iodine Member Posts: 4,289
    edited October 2007

    Hello Sherry,

    I'm so glad you found us.  So sorry you had to.  You are in a really tough place right now.  It will be tough for a few more days.  Next time you talk to your doc, ask him for something to help you sleep at night.  You will need all your strenght to get you thru the next few weeks.  You will have a lot of decisions to make and good rest will be a big help in making those decisions.

    The way you feel is perfectly NORMAL!  We have all been there and felt about the same way. 

    Please come here as often as you want, say whatever you feel, we'll understand.

    Hugs.

  • livinginboji
    livinginboji Member Posts: 85
    edited October 2007

    Hi Sherry,

    I don't know that I can add much to what anyone else has said other than you can do this! It won't be easy and you'll have lots of ups and downs.  I know that waiting is one of the hardest things...this coming froma woman that as a child had been known to open her Christmas presents and then tape them back shut so no one would know. lol! I agree that maybe you should get something to help calm your nerves, if not a sleeping aid maybe an anti-anxiety pill. The best I can say is to educate yourself, when you finally have some answers to research. This website is an excellent start!

    Please know that we've all been where you are at...you are not alone.

    Peace to you,

    Cheryll

  • plums44
    plums44 Member Posts: 1
    edited October 2007

    I could have written Sheryl's letter except for the husband...My name is Sheri and I will be starting treatment on the 15th of this month, and am scared...I try to be brave but when I am alone I am scared...Now with the new report about one of the drugs (that I having) can cause heart problems...not that I don't have enough to worry about now this...I realize that I was lucky that my breast cancer was caught really early and a good prognosis but that really doesn't help..I am scared...Sheri

  • Drawmagirl2
    Drawmagirl2 Member Posts: 2
    edited October 2007

    I understand what your going through

  • Drawmagirl2
    Drawmagirl2 Member Posts: 2
    edited October 2007
  • sherry11
    sherry11 Member Posts: 3
    edited October 2007
    Ok ,here goes I need help . I just got off the phone with the doctors nurse she said they want me to wait 3 months and have another mamagram and ultrsound.The radiogest said it was big the nurse said it benigne what should I go by.I feel something is not right I hear different things and I dont no who to beleave. The nurse said they want to wait and see if the lump gets bigger.There was 3 lumps one they said was a cyst thank god .But they want me to wait 3 months another long wait should I find another doctor? Can some one help me please.Yell
  • BarbaraElsa
    BarbaraElsa Member Posts: 2
    edited October 2007

    Hi! My name is Barb and I am an RN----I have been developing blotches on both my breasts since Sept 1 and now have some sharp stabbing pains.  I went to my GP----she basically blew me off---so I booked an appoitment with a dermatologist for tomorrow.  I am very fearful it is IBC---what should I do if ths doc thinks it's nothing too?  I have read IBC moves fast and furious, and I am quite fearful of dying. As I am sure we all are---unless we are 100 years old...I'll be ready by then.  Thanks for listening. I live in the chicagoland area.

  • BarbaraElsa
    BarbaraElsa Member Posts: 2
    edited October 2007

    I am an RN and would definitely have the bilateral mastectomy done!  I wold not even have to think twice about it!  You go girl and may God bless you! BarbaraElsa

  • iodine
    iodine Member Posts: 4,289
    edited October 2007

    Sherry, Make an appt with the doctor and have him go over the report with you.  You deserve to hear what he has to say, not what the nurse tells you over the phone. 

    I'm unclear about what the rads doc said to you--only that it's big.  Most times if you have a cyst, they insert a needle in it and drain it.  That's almost standard practice.  It's so on the next exam it doesn't hide a lump.

    You have to become pushy with these medical people--they sorta want to brush us off, and we can't let that happen.  It's our lives on the line. 

    If the doc doesn't explain things to your satisfaction, get the films and report and take them to a breast surgeon at a specialty hospital.

    good luck and let us know what happens, OK?

  • iodine
    iodine Member Posts: 4,289
    edited October 2007

    Barbraelsa, Hi, from one RN to another, get thee to a breast surgeon at a major breast center.!

    IBC is a rare breast cancer which most breast docs haven't seen let alone regular docs and can only be diagnosed by biopsy. 

    As you have already researched, it can kill you.  If the derm. won't bx. it, move on rapidly to the breast center and tell them you think you have IBC and push to be seen as soon as possible.  Camp out on their steps if need be.

    Please come back and let us know how you are doing and what is happening, OK?

    hugs

  • red5902
    red5902 Member Posts: 72
    edited October 2007

    A nice thing my daughter said was simply "Mom you have a nice shaped head, you look good with no hair"

    This is a bit off topic but I was watching "Criminal Minds" the other night and at the end of the show the main character quoted Eleanor Roosevelt and I felt the quote was meant for me. 

    The quote was "You gain strength, courage and confidence by every experience in which you stop to look fear in  the face.  You must do the thing which you think you cannot do."

    I started to cry.

  • CarolL
    CarolL Member Posts: 4
    edited October 2007

    I was diagnosed in December of 2005 and have since had two lumpectomies, radiation, chemo which made me bald, a bilateral mastectomy, more chemo which only made my hair thin but made me lose my eyebrows and eyelashes for a while, and I now have infusions of Herceptin for a year.  HOpefully I'll be done after all of this.  I was the most scared of losing my hair, but it actually turned out to be liberating!  I got a great wig that looked just like my own hair so people didn't always know what was going on.  Since it's grown back, it's been an adventure and a new hairdo every step of the way!  If anyone is facing chemo, the anti-nausea meds worked miracles and I actually had more energy because of the steroids in the chemo...I feel I was blessed to go through all of the treatments and feel very good.  So, it can happen - not everyone gets sick with chemo.  Hope that helps if you're facing starting chemo soon.

  • figsgirls
    figsgirls Member Posts: 253
    edited October 2007

    I am bald and my eyelashes and brows are falling out. One day while using my brow powder, I mentioned to my 20 year old daughter how hard it is to feel attractive while going through chemo.

    Last Wednesday was my birthday. My daughter, who has been so wonderful throughout, gave me a really pretty handmade card. Inside, she had glued a magazine picture of a very handsome man, with a word bubble coming from his mouth. Inside the word bubble she wrote "You still look beautiful".

    I cried, not because of what she had written, but because I was so proud of the sensitive, caring, kind adult she is turning out to be. 

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