Nipple Retraction

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lherridge
lherridge Member Posts: 10
Nipple Retraction
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  • lherridge
    lherridge Member Posts: 10
    edited October 2007

    A few months ago, I noticed my left nipple pulling in when my arm was raised above my head. I didn't really thing anything of it. Then a few weeks ago, my left breast started feeling 'strange' when I was sleeping on my stomach. I just happened upon a lump this past Saturday night, at 11 o'clock right above my left nipple. Went to family dr. on Monday at 11am, she felt the lump as well, (hard, not moving oval shaped) and noticed the nipple retraction. Had a mammogram and ultrasound yesterday afternoon. Lump would not show up on ultrasound, dr.s office just called and said mammogram was negative, I just have very fibrous breasts.  I was too shocked to asked questions and am waiting a call back. What do you think? Should I be worried? Should I ask about a biopsy? My dr. seemed concerned when she sent me for the mammogram.

  • purplehaze66
    purplehaze66 Member Posts: 136
    edited October 2007

    I would definetly talk to dr. sometimes it may not show on mammo, but you could ask for a breast mri and ultrasound....I hope it is nothing but I would make sure to get follow up testing.... mammos can miss things..good luck. speak to your dr. about your concerns..... they should follow up if just for peace of mind. Michele

  • nash
    nash Member Posts: 2,600
    edited October 2007

    I would go to a breast surgeon. An MRI would be a good idea, as well as a biopsy, if the breast surgeon feels it's warranted. A lump that can be felt is a lump that can be biopsied.

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008



    Welcome lherridge,



    You've come to a great place to ask this question and get support. I'm sorry for your worries.



    Between the nipple retraction and the mass, you're right, you shouldn't stop there. Why don't you find a really good breast center, one which treats lots of breast concerns and ask them for a couple of names of highly regarded breast surgeons and see what he or she thinks?



    Unfortunately, mammograms are inaccurate at least 10% of the time, and in dense breasts,much more, and ultrasound, while good, can miss things too. You sound like the perfect candidate for a breast MRI, a test which shows the breast tissue very well (and also has high false positives because of this). But in your situation, the MRI may just lead the doctors to the reason for the lump and the nipple pulling.



    Your family doctor should be able to help you out with ordering a MRI while you wait to see a breast specialist.



    You're instincts are right: better to keep looking than to look back.



    Take care and post again should you like,

    Tender

    Oops, sorry Nash. I didn't see you coming! T.
  • lherridge
    lherridge Member Posts: 10
    edited October 2007

    Thanks everyone for your comments. I spoke with my dr. and she said basically the same thing her nurse had told me. They didn't see anything on the mammogram or the ultrasound. Okay, well then when she felt it and the ultrasound technician felt it, why didn't they say it could just be fibrous tissue? I had one ultrasound about 6-7 years ago due to pain my left breast, they didn't say anything about fibrous breasts. My dr. said she would not have a biopsy, but that that is just her. She is a very careful dr. which makes me feel a little like I am over reacting if I ask for a referral to surgeon, which she said she would be happy to make. However, my husband's sister was an ob-gyn nurse for many years and she said absolutely she would have it biopsied. My dr. is going to send me the test results, by the time I get out of work it is too late to go by and get them.  My boob just doesn't feel right. Am I crazy?

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited October 2007

    You are not crazy, you are trying to be pro-active in your health care. I would press to go to a breast specalist and ask for MRI and biopsy. The only good lump is in a jar.

    Sheila

  • leaf
    leaf Member Posts: 8,188
    edited October 2007

    I agree with Sheila-if I were you, I would investigate this further. You are NOT crazy. I would get the breast surgeon consult. Biopsy is the only definite way of telling whether or not you have breast cancer. If you do have breast cancer, they would likely give you an MRI. (MRIs are expensive, if you are going to have a biopsy anyway.)



    Most women with breast cancer do not have pain as one of their symptoms, but some do. It is not a reliable symptom of breast cancer. But only you know how your breasts feel from the inside.



    If you really think there is something wrong, then insist on a biopsy no matter what the doc says. If you are wrong, you will have peace of mind. If you are right, you may have saved your life.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2008

    There are some types of breast cancer that will not show on a mammogram.  Inflammatory breast cancer is one of those.  Go to a breast surgeon and ask for a biopsy.  It is the only way to know for sure whether the lump is just fibrous tissue.

  • lherridge
    lherridge Member Posts: 10
    edited October 2007

    Thanks everyone for all of your support and advice. I just called and told my dr.s office that I would like a referral to a surgeon.

    I am not having 'pain,' but something just doesn't feel right, and with the nipple distortion and the fact that that started about 2-3 months ago, I am concerned enough that I will not have peace of mind until I find out FOR SURE.

    Has anyone else had this diagnosis before (fibrous tissue) after dr. described it as a 'mass'?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2008

    I had fybrocistic disease for years.  I would have lumps (fairly big in size) that would come and be gone within a couple of months.  That is one of the reasons that I waited so long before getting this last one checked.  I was almost too late.  Please don't quit until you find a doctor who will do a biopsy.  Its the ONLY way to know for sure.  I really hate when these doctors are so willing to gamble with someone else's life.  I'm quite sure if this doctor herself had a lump she would be getting a biopsy.

  • lherridge
    lherridge Member Posts: 10
    edited October 2007

    I actually asked her that on the phone yesterday. She said she would not, she would be satisfied that there was nothing showing up on the mammogram or on the ultrasound and with the radiologists statement that I had very fibrous breasts.

    My husband said, I would just be happy if I got the message that the tests were negative; I said oh really, even if the dr. and the songram technician felt a lump on your penis? Would you be okay with not getting that checked out any further?

  • cp418
    cp418 Member Posts: 7,079
    edited October 2007

    Do not feel guilty or allow any doctor to dissuade you from getting further tests.  Fibrous and lumpy breasts  are all the more reason to insist and get an MRI and possible biopsy. It will be great news when YOU FEEL you have done all necessary testing to rule out any possible problems.  BC doesn't get better or go away over time so insist on taking action now.  Best wishes, Joann

  • iodine
    iodine Member Posts: 4,289
    edited October 2007

    I hate to say it but I bet the doc wouldn't say that if she'd ever been diagnosed with bc.  I also don't see a need for a MRI if you're going for a biopsy, unless you feel there are even more lesions in your breast that are not being felt.

    I don't get why these docs think they can diagnose with their finger tips??  It just cannot be done. 

    Go for what you feel must be done to make your life comfortable and help you sleep at night.  That's all that matters.

  • lherridge
    lherridge Member Posts: 10
    edited October 2007

    Boy, my eyes have really been opened throughout this whole experience.

    You are the strongest women I've ever met. 

    At first I felt like I was over-reacting, but I know my body and my boob just doesn't feel right!

    Even if it does turn out to be psychosomatic because I am worried, I will feel MUCH better knowing FOR SURE that it is nothing!

    I am waiting to call back the referral office at my dr.s office, they left a msg. on my home phone yesterday but did not call my cell or work phone.

    I will let you know what they say as soon as I talk to someone.

    Thank you so much for all of your support.

    No one else really gets it!

  • lherridge
    lherridge Member Posts: 10
    edited October 2007

    Okay, I've got my appt; two weeks from tomorrow, October 26th at 11:30 am with a woman surgeon (Dr. Jacqueline Bays) who specializes in breast cancer diagnosis.

    I am near Syracuse NY, if anyone has any great recommendations besides, I would like to hear.

  • Nan72
    Nan72 Member Posts: 1,572
    edited October 2007

    Glad to hear you are going with your gut feeling on this one, I agree with the other ladies here, second and third opinions are sometimes what it takes to get to the real diagnosis.

    Good Luck , please be sure and let us know how things go for you.

    In my thought and prayers for the best.

    Nan

  • Shirlann
    Shirlann Member Posts: 3,302
    edited October 2007

    Good for you! If you have anything that is not the norm, going to a specialist is always the call. They see hundreds of breasts, way more than a regular doc, and they are then much more experienced in diagnosing things that don't fit the mold, so to speak. Good for you!



    Hugs, Shirlann

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited October 2007

    Good for you.



    I had a lump . . . didn't show up on a mammogram and ultrasound and I was told I was fine. A year later I found out it was cancer. If anyone questions you, tell them my story. You are doing the right thing.

  • iodine
    iodine Member Posts: 4,289
    edited October 2007

    Way, to go!  Be sure to let us know what happens and come on back any time and chat if you like.  We're here.

  • erika-canada
    erika-canada Member Posts: 142
    edited October 2007

    Hi:

    I could have written "almost" exactly what you wrote. I find this very interesting.

    Because I have fibrocystic breasts, and some "calcifications" in the very back of the left breast, right by chest wall was told to have a yearly mammogram and US which I did.

    In April/06 had the same yearly ritual again. However, felt a lump

    the size of a big pea (hard) close to the nipple. Told it to the mammo Tech and asked her to tell the Radiologist. I was familiar with the Radiologist (worked for him and Radiological group in that Hospital for years). I stopped in at his office before leaving and asked him if there were any changes in the findings, he assured me there weren't. I, being in a hurry, as was leaving the Country the next day wasn't really concerned as he said it was o.k.

     In hindsight, think he may have focused on the calcifications.........and me not discussing the lump with him was my fault, for sure. Tech assured me she discussed it with him, and he truly is an excellent Radiologist took his word for it. Believe  me when I say, I have learned my lesson!!!!!

    About 6 weeks later, breast hurt and felt somewhat "warm" to the touch, me thinking it was a cyst acting up.

    Returned to Canada approx 6 months later, insisted on a biopsy.... cyst or whatever.............

    As soon as he was talking about blood pooling as he did an Ultrasound core biopsy; I knew it was bad news.

    Next morning got a call from my GP to come to the office ASAP; that's when I was told I had IBC.

    If only I was more persistent, I believe the 6 months would have made a huge difference; perhaps lymph nodes woudn't have been involved.

    So sorry for prattling so much.....forgive me!!

    Erika 

  • althea
    althea Member Posts: 1,595
    edited October 2007

    >>Has anyone else had this diagnosis before (fibrous tissue) after dr. described it as a 'mass'?<<

    I had two small cysts show on my '03 mammo.  I've had cysts before, which were aspirated by a surgeon.  This time, however, it was different.  My nipple was also inverting a bit and there was an area that wasn't really lumpy but it felt different, hardened. 

    That time the surgeon couldn't find the cysts to aspirate them, and he said the hardened area was 'aging breast tissue.'  Next mammo showed 'suspicious shadowing'.  That was nine months later.  Nipple was noticeably inverted by then.  

    I didn't know back then that there's more than one kind of breast cancer.  I have to wonder if the doctor I saw knew that either.  You are very smart to pursue an appt with a specialist.  Surely a specialist will know of the different types of breast cancer and how to find them.  I was dx'd with lobular.  Thankfully, it was slow growing or I might not have lived to type this message!   

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2008

    Lherridge

    You are doing the right thing.  Any doctor who would say you are overreacting or dismiss you is not worth a grain of salt.  Please keep us updated.  Two weeks is really fast to get in with a breast specialist.  Sounds like your primary care fast tracked you when she made the referral maybe,  kudos for her.

  • lherridge
    lherridge Member Posts: 10
    edited October 2007

    >>My nipple was also inverting a bit and there was an area that wasn't really lumpy but it felt different, hardened. <<

    Wow, this is pretty much how I feel, it is not a 'lump', at least it doesn't feel that way to me, it feels more like a flattened hardened kidney bean.

    Thank so much to everyone for their support. I know I am doing the right thing and I feel so relieved.

    I might be wrong in saying she is a breast specialist (the surgeon) but her profile (and others in the area) says that she specializes in breast cancer diagnosis.

    I will keep you all informed and keep all of you in my thoughts and prayers.

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited October 2007

    Glad you pursued your gut feeling and are getting into the specialist's office.  When I had my first abnormal mammo it took me 3 weeks to get the appointment for the breast specialist, then 2 weeks later I was having a needle biopsy. fortunately for me that time it was B-9 but I was put on the 6 month watch program. Because of the close watch, I was dx with very early stage DCIS this spring.

    Sometimes we do need to listen to our 'inner doctor' if we feel something is wrong we need to pursue until we find out what is going on.

    Sheila

  • Amy33
    Amy33 Member Posts: 4
    edited October 2007

    When you say nipple retraction what exactly do you mean? I just recently started SBE and found that when I raise my arm, the left nipple goes a little inside with something like a dimple around it, it come back to normal when I put my hand down, my right nipple is always out (does not change when I lift my arm). Should I be concerned or is this normal? I'm not sure if it was always like this. I did breast feed 2 kids and I never had an inverted nipple problem, but not sure while raising the arm. Thanks for your help.

  • Heena
    Heena Member Posts: 1
    edited August 2018

    Hi amy pls tell me abt ur case of nipple retraction. Did u get ur check up done. Im also having same symptoms and worried. My nipple also pulls inward wen i raise arms. Otherwise it looks normal. Pls help

  • Liverpool14teen
    Liverpool14teen Member Posts: 3
    edited June 2019

    Hello I’m 59 and my already flat nipple sinks in when I raise my arm due to see consultant on Wednesday does anyone have any positive outcomes they can share p

  • Moderators
    Moderators Member Posts: 25,912
    edited June 2019

    Liverpool14teen you may want to read our section on benign breast conditions. We hope you find this helpful.


  • Liverpool14teen
    Liverpool14teen Member Posts: 3
    edited June 2019

    hi can I ask what was the result of your breast issues what was the reason for the nipple inver

  • Liverpool14teen
    Liverpool14teen Member Posts: 3
    edited June 2019

    Hi Amy can I ask how you got o

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