Starting Chemo in September?? where are you ladies
Comments
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I was checking out the humor/game board and it had some nice threads that took my mind out of the funk. I thought it would be cool to introduce a few things in here for a more positive vibe.
What kind of lunch box did you have?
Name a toy(s) you remember playing with?
Name a product jingle you remember?
Describe something or a time you were really excited about as a child (if you had a traumatic childhood, please don't upset yourself)?
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I had a bright yellow Mork and Mindy lunch box. My brother had an orange Muppets box.
Toys:
wacky wall walkers
tinker toys
lite brite
color forms
easy bake oven (i made dog treats the dog wouldn't eat)
spirograph
play dough barber shop set (i loved this so much)
Jingles:
Confident! Confident! Dry and secure...raise your hand, raise your hand if you're SURE
I'm a pepper, your a pepper, wouldn't you like to be a pepper too?
A memory that sticks out:
You had to have a new pair of sneakers you took to school that you used only for gym class. I got a pair of suede Mickey Mouse shoes that I loved so much I slept with them before I took them to school and I looked forward to gym every day just to wear those shoes.
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Hey there Paxton, What a great idea and a wonderful distraction from all this chemo stuff--
I had a lot of lunch boxes, since my parents packed my lunch for me every day and I was rough on them! My favorites were The Beatles, a red one with a picture of a Go-Go Dancer on it and a matching Thermos (I loved it but I didn't quite fit the image), Star Trek. I also had a metal one that I decoupaged all kinds of favorite music and tv stars, horses, peace signs, etc. all over it. Yep, still have that one!
Let's see, my all time favorite toy was my Lincoln Log set. I nearly wore those things out, but my parents kept them for years and years. Also my Spirograph, which I still have. I had a Tonka metal car carrier with metal cars. And of course Barbie dolls, which I still have! And I gave them all extreme hair cuts, especially Midge. In fact, we resemble each other a lot right now.
Jingles: I love The Jetsons theme song; plus "plop plop fizz fizz oh what a relief it is..."
My best childhood memory was the local horse show that my parents took me to every July. It usually last three days, and we'd try to go all three, but always on Saturday night to see who the Grand Champion Tennessee Walking Horse was- and we'd always buy those wonderful hot dogs from the concession stand. We didn't eat out much, not like now, so that was a real treat!
Can't wait to see how others respond!
Thanks again Paxton-- hope you're feeling well. I've been a tad nauseated today, but nothing major, and a little more tired than the first one, but still at work and going strong. I hope you don't have to miss your hunt! Hope you're not too lonely and not having too much difficulty being by yourself. I've threatened hubby if he doesn't take me camping next weekend for at least two whole days. The steroids make me really moody and I think he's afraid of me right now
And Laurie, Nancy, Janice, Urbie, Marietta, Rachel, Trigeek, Karyll-- I hope you are all doing well this afternoon!
Love and big hugs to all!
Mary Jo
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Paxgirl I was just pulling your leg..hehe.. I feel soo comfortable with you gals to make silly jokes remarks.
Hmm lets see..
What kind of lunch box did you have?
It was Bugs Bunny tin lunch box and I got clobbered with it when I rode in the back of the bus by mistake -- and no ! that does not have anything to do with my present condition
Name a toy(s) you remember playing with?
A barbie doll that I used to stick in pencils and then operate on. ( dont get any ideas now I did NOT have a violent childhood )
Name a product jingle you remember?
hmm I left the US when I was 6 so really do not recall much.
Describe something or a time you were really excited about as a child (if you had a traumatic childhood, please don't upset yourself)?
My father would not buy me a 2 wheeled bicycle saying that I did not know how to ride one.. well duhhh!!!
So I borrowed the neighbors bike and learned how to ride by myself and dragged my father to the store that night to get a beautiful green bike -- can you see the trend I still am a cyclepath !
Keep it coming gals !
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Paxton,
What a great idea!
Lunchbox --
I never had a lunchbox growing up -- I always ate lunch at school for some reason. My mom was a stay-at-home mom, but I guess she never felt like making our lunches.
Toys --
I loved Creepy Crawlers -- you poured this goopy stuff into this metal plate with shapes and baked it in this oven. I also loved spirograph. We also had the first of video games called Atari, I think it was.
Jingles --
Oh I wish I were an Oscar Meyer Wiener, that is what I'd truly like to be, cuz if I were an Oscar Meyer Wiener, everyone would be in love with me!
Stay-free Mini Pads -- No Belts, No Pins, No Mess!
Favorite Childhood Memory --
I guess Christmas Eve my whole childhool life was the best of times for me. There was just something magical about it -- we'd hang our stockings up on our stairs and just lay there all night waiting for Santa to come. We'd also make Christmas cookies and listen to Christmas music. These are traditions that I have kept up with my kids.
Thought I'd add this one--
Worst Thing I did as a Kid --
In my school, the teachers would count how many children had brought in milk money for a mid-morning milk. She'd write the number of kids who had bought milk and the delivery person would leave the exact number of milks to equal the number on the board. Well, for some reason, one day (and I was a shy child) I decided to play a joke on the teacher. She left the room, and I marched to the front of the class and erased her number. But, being only in second or third grade, I wasn't very smart about it. I must have put some really large number up there, like 100 (we had only 20 kids in our class) because she noticed the difference right away. She confronted the class and asked who did it -- I never fessed up to it. So then came the threat of no recess unless someone confessed. Much to my surprise, one of the other students (whose name I still remember) raised his hand and said that he had done it. Do you know, to this day, this still bothers me! Well, we got to go outside for recess, except for this little boy!
Can't wait to read what others have to contribute!
Laurie
PS -- I really am a nice person!
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Here's my awful kid story:
I was a bumble bee in our elementary school paul bunyan play. It was being filmed on the cable access channel. My part was small and ended with two of us flying into our hive. As the door on the hive was closing, I thought "I really need to do something exciting." So I gave the double bird.
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That is so funny --- I can just picture you as a bumble bee with the double bird. Did you get in trouble?
Laurie
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I'm going to sound old, but my favorite lunchbox was a Bobby Sherman lunchbox. Do you guys remember him? I also had a Donny Osmond lunchbox. I guess I was a little boy crazy, even though I was a tomboy.
Favorite toys....Barbie, Chrissy doll (her hair could be long or you could wind it up real short). Green army guys (w/my brother). Easy bake oven, didn't have creepy crawlers but thought they were cool.
Product jingle - "I can't believe I ate the whooooole thing!"
"Reach out, reach out and touch someone"
"Where's the beef?" "It's not nice to fool mother nature!"
Well that was fun...thanks for coming up with that Paxton.
Have a great night everyone!
Marietta
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I saw the NP today. My white count is .9, so I am laying low. She gave me a script for Emend. My insurance would only pay $90 on it, so I had to pay $207 for three pills. She also gave me a script for Decadron. I am supposed to bring all of them to chemo next week and will start taking them there.
My frustration is mounting, this has taken over my life and I wonder if I have allowed it? I forgot to ask her the time frame on the Neulesta building back up my WBC. I have a huge family thing Saturday night and I hope none of them are sick!
Nancy
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Hi everyone
Paxton excellent idea!!
I never had a lunch box only the brown paper bags and there was only 4 of us the ate lunch at school back then! Only 2 moms worked out of the home!
MJ I had a Crissy doll too...my younger sister got jealous and cut the pony off the doll...I was so mad at her. Also had the usual barbies and easy bake off. Loved the game "operation" and ker plunk.
I can't think of any jingles!
My best memories are of sunday nights... we all would sit down after supper and watch wild kingdom and then the wonderful world of disney.
Nancy fight back ...can you bring a mask with you. I have a family wedding on saturday and I plan on bring a mask just incase there are sick people there this will help keep the germs away.
Have a great weekend everyone
Janice
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Good Morning , isn't this insomnia thing supposed to happen BEFORE you stop taking the steroids? sheeeesh
I just had a paper bag lunch but came home most days. I really wanted a Partridge Family lunchbox/binder/pack though. David Cassidy was my hero and Bobby Sherman was ON that show.
I loved the coke commercials = "It's the REal Thing" and Melanie :I gotta brand new pair of roller skates, you gotta brand new key"
AND I sold all my barbies (house furniture, clothes) to buy a brand new ten speed bike! That was exciting.
I am on day 8 post chemo. I feel pretty good, but sleep was just not forthcoming last night even with mega drugs.
ThanksGiving in Canada this weekend so got a check list of all that is going on there tomake and plan and putter about. I AM in SLO MO. I'll probably try and nod off a couple of hours this morning.
Karyll
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Janice I can't believe your sister cut the pony off!! That made me laugh, thank you! Sunday nights with the wonderful world of disney was awesome!
Karyll, do you have ativan? I had a few bad nights sleep because of diarhrea and decided to take an ativan and it really relaxed me and I slept the whole night. Happy Canadian Thanksgiving! eh? p.s. I LOVED the Partridge family too. When we lived in L.A. I found the house they used to film the outside...
I went for a walk last night, that felt great! It feels good to feel pretty "normal" again.
Hang in there ladies.
Marietta
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I am still here, but because my brain is so fuzzy I cannot remember any of my childhood. I read these posts last night and for the life of me cannot remember my lunchbox or any toys. I don't know if it is the chemo or the anti-nausea drugs, but I am very spacy. I am supposed to go pick up my wig today, but I don't think driving is a good idea. My tx was Monday, when will I be able to stop taking anti-nausea stuff so I can think straight?
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My bf called last night. He got a big moose yesterday morning. He recruits some locals and they spent all day cutting it up. Sounds like he'll be heading home Saturday. I'm really happy for him and I'm really happy he's coming home. I'm just bummed I didn't get to go.
And I'm wondering if I'll have diarrhea forever. I've decided to eat more things since nothing seems to help anyway. I had to put incense all over the house because it literally smells like rotting road kill.
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Paxton,
You are so funny! Just don't invite me over for lunch! Seriously, I hope you start to feel better soon. Do you like to eat moose meat? I've never had it, but my boss just killed a moose and he is going to bring me some of it. We'll see if I dare to try it.
Have a good day.
Laurie
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Paxton, the idea of even being in a 100 mile radius of someone cutting up a moose right now would kill me. My husband deer hunts and I like the venision, but the cutting up part is more than I can stand to think about. Even taking a fish hook out of a fish is too much for me , even with no chemo stomach!
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I've tried a lot of different meats, but never had moose meat. I'm sure I'll like it and I better cuz we'll be eating a lot of it this winter.
I don't mind cutting meat up. I don't like seeing living things suffer though.
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marietta even the ativan failed me last night *woeeeeee* is me. I did catch a couple of hours, I think it might have had something to do with the 16 hours I slept the day before and I am quite sure I will sleep well tonight too.
I was taken to a casino for the first time in my life last night - perhaps that is what had me all upside down hearing ching chings everytime I closed my eyes....hehehe
Still tired today, and taking an odd antinauseant - but I only took them regularly for about 4 days because like you I was ZOOED - some of my friends said, Karyll I hate you are going through this but man those must be good drugs!!!
And all I could think of was the Partridge Family song, so now they think I am nuts too, not just stoned!!!! hehehehe
Karyll
"I think I love you, so what am I so afraid of, I am afraid that I'm not sure of, a love there is no cure forrrrrrrrrrrrrrrrrrrrrrrrr"
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Karyll you are so funny! I love that song. About 10 years ago one of my girlfriends and I went into a music store looking for the Partridge family on CD. The kids that worked there looked at us like we were from another planet...we were singing that song for them and everything, they thought we were nuts and did not have the cd.
Sorry the Ativan didn't work, I hope you get some sleep tonight.
Paxton is the moose meat gamey? Can you grind it up for burgers? I'm so curious about this. I tried buffalo for the first time last year and really enjoyed it.
Hi Urbie, Laurie and Janice.
Where's MaryJo, I hope she's doing ok.
Have a good one everybody!
Marietta
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Hey everyone, I'm here! I've been checking in and reading every so often but not had time to respond-- I've been so busy in the past week at home and at work and feel like I've run a marathon! I have been feeling good, just a little more nausea this time than after my first tx, but nothing intolerable. Seems I've had more gastric problems in general-- one day diarrhea pretty bad, but got over it-- Paxton girl, you have all my sympathy for enduring yours for so long! The one thing that is really wrong with me right now is that I stepped on the scales and got a SHOCK!!! I've gained almost 10 pounds and I just cannot do this!!! Does anyone have ideas on how to lose it? Food is starting to taste a little odd, so maybe this will resolve itself soon. The NP at the cancer center told me to walk daily, which I have not done yet but plan to start immediately. Since last October I lost about 45 pounds until my dx, and I know most of the gain is due to my increase in carb intake. Should I just limit my carbs and see what happens? I would love anyone's ideas here, because I just cannot gain this weight back-- for both my mental and physical health!!!
Well enough about me. I hope everyone is doing well. I have loved reading everyone's nostalgia and count me in on the Partridge Family and Bobby Sherman too! Paxton, sorry you didn't get to go on your moose hunt but congratulations to your bf on his harvest. Please let me know how the meat tastes-- I haven't had it either but would sure love to try it. I love venison and we prepare it so that we never have the 'gamey' taste. It is all in how it is aged before you cook it. Karyll, (Happy Thanksgiving this weekend!) the casino sounds like so much fun, though I've never been to one in my life! I would now if I had the chance though. Urbie, I am having the fuzzy brain thing too-- is that what is called "chemo brain"? Some things I can do fine, like at work, but the simple things like ordering at McDonalds is getting me. Nancy and Janice, good luck and enjoy your family gatherings, but be safe and stay well. Nancy, I think the Neulasta starts working about 7 days after chemo-- is that right, everyone? Laurie, hope you're feeling well!
Well gotta go get some rest if my steroid withdrawal will allow it. Take care everyone and have a great weekend!
Mary Jo
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I just got back from dancing at the bar. I'm not a drinker but I used to go dancing a lot; good way to keep in shape. This is like the second time I've gone since dx in july. Our state went smoke free in public places Oct 1st so I was curious to see how the bar would be; everybody in these rural towns smokes so I couldn't imagine. I myself don't smoke. I have to say, it was really nice. I wasn't my usual dancing machine self but it was fun.
My bf will be back tomorrow afternoon. I guess he only has the moose quartered so we're going to his folks' house with everyone we know to cut it up. I will have to wrap; can't risk getting cut with a fillet knife. Yes, marietta, we'll have burger; and roasts, steaks, sausage, and the usual cuts. They'll probably take trimmings in and have burger and sausage made. Last year with the venison, we saved some trimmings and made summer, potato, and breakfast sausage.
MJ: don't know what to tell u about the weight gain. I know I've lost 60 ish pounds over the past few years and gained 10 lbs just during the first month I was diagnosed. But between diarrhea and not being able to eat I'm not worried about too much weight gain right now. Though my stomach is ballooned way out from all the gases. Its tough when you can't exercise much either. I guess I'd suggest eating slow; it takes something like 20 minutes for your brain to register you're full from the time you start eating. I know if I feel like eating seconds but set my plate aside and wait ten minutes, I almost never feel like eating it then. I'd try to do the little things cuz its tough. Good luck.
K, I'm pretty sure I should be sleeping right now.
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hey Paxton,
Glad you had fun dancing and you needed to go out and have fun! How nice to be able to go somewhere smoke-free like that. I don't think the smoke-free thing would happen around here in these parts, since it seems everyone is a smoker here too. Dancing is fun and is great exercise. I used to be a clogger and never had a weight or fitness problem. Maybe I should go back to doing it. That is how I met my husband-- I was on the clogging team and he played in the bluegrass band that accompanied us. I know you'll be glad to have your bf home. Good luck on the meat packing-- hope you get it all worked up ok-- it is truly hard work and it's good that you're getting help and yes, stay away from the knives. DH just left for bowhunting this morning-- hope he gets one for our freezer. Sure wish I was going too.
I have to get control of my eating. I think I just need to cut carbs, mostly sweets. I know how I would do it if I weren't taking chemo, but I don't want to risk skimping on nutrition. If I could just get back out in the woods and do what I was doing before, I'd be fine. I did shoot my bow a few times this week, did fine until the last shot, I just hit a wall-- couldn't move a muscle. I've never done that before and it was sure discouraging
I may have to turn down the poundage on my bow just a bit for a while, but I'm only pulling about 48 lbs as it is. I feel like a big wimp and can't seem to build my muscles back. Guess I should just be grateful I'm not having worse side effects.
I got a big surprise at my work yesterday. I work at our local school system where I maintain school bus routes on computer at the bus garage. The bus garage is also in the same building as the school maintenance dept. and I work with about 30 guys and 3 other ladies. We all work real close and are all buddies. Well, everyone pitched in and donated money and surprised me with it yesterday morning, along with words of support and encouragement. I was so touched that I cried like a baby-- I love them all so much and don't know what I'd have done without being able to go into work and have their support. I am finding small but very meaningful blessings out of all this bc experience. Even though we have great state employee insurance, I have worried about how to pay for all these co-pays I have to shell out with every chemo and Neulasta shot, and all that adds up quick. I am certainly blessed in a lot of ways.
Well sorry for my long posts- I'm rambling now and I'll go get in the shower and start my Saturday morning chores-yuk- and maybe hit a garage sale or two. I hope everyone has a great weekend and is feeling well!
Mary Jo
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Hi - I had a very bad experience last night. I will say that I have always had a weak stomach and have taken medication in the past for acid stomach problems but this was pretty bad. I was feeling pretty good so I decided to have a beer while making homemade pizza for the family. I drank about half of it and my stomach started hurting so badly that I was on the floor in tears. My daughter came in and found me on the floor and my husband got home from work and I was in so much pain that I couldn't get up. We paged my onc and it turned out to be very bad gas up under my ribs and stomach. It was a long hour until we got it under control with Prilosec and GasX ~ and finally Ativan. The only thing that I had in my stomach was a fruit smoothy that I made for my kids after school so the fruit and the beer made a really bad combo on my stomach. Someone told me to have a beer because wine tastes so bad.... Never again. My onc says no more fruit smoothies either and I will listen because I don't want to go through that again. And I didn't get to eat the pizza either! My kids and DH said it was good. I got Saltines...
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Hi Urbie ---
That must have been so scary! I find that I have severe heartburn with my treatments and I take Prilosec starting a few days before my tx and I stay on it for about 1 week after my tx. That has helped me tremendously! It is interesting how different every oncology practice is -- my onc suggested this to me. It hs made a big difference in my handling the heartburn acid reflux that I get. I haven't had a whole beer yet since my treatments began (and I have craved one), but my onc told me to stay away from alcohol for some reason, so I have. I have had a few sips and they tasted really yummy. For some reason, when my doctor tells me I can't have something, it makes me want it even more --- so, of course, I have been craving a nice cold beer. Has anyone else been told not to drink alcohol during tx?
Urbie, you are doing the TC combo, right? Same that I am doing. I also take a senakot tablet for the first few days of chemo, too, to keep from being constipated. Do you do this? My treatments go like this: The day before chemo, I take Decadron in the morning and in the evening, then I have my treatment and I take Emend and Decadron that day; then for the next two days I take Emend. What are your usual treatments like?
Have a good day.
Laurie
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Laurie you're treatment regimen sounds a lot like mine with the senokot, decadron, emend....I was also told to avoid alchohol during treatment...I'm not much of a drinker anyway. I started taking nexium this time around because the acid was so bad.
MaryJo, I have had weight gain also. My onc said it is water weight due to the steriods. He also said it will come right off when treatment was done. I was up 8 lbs after my first tx and it freaked me out. I started drinking as much water as I could and walking and 5 lbs came off before my 2nd tx. I have not weighed myself this week. I'm back to walking and pounding the water and will weigh myself next week and let you know how that goes. I have found that even with the weight gain that my jeans still fit...that's why I believe my onc. about it being water retention. I too have been eating way too many carbs...they are my comfort food. I also worry about the fact that no matter how badly I feel, the one thing I can always eat is pizza....:) I'm a good old italian girl.
I hope this helps.
Have a great weekend ladies.
Marietta
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Well, my bf got back today. We spent the day at his folks' cutting up the moose (I packaged and labeled). He's out with the guys now. I feel emotional. I could hardly look at him. I just wanted to go home and cry, and that's what I did when we were done. I'm not really sure what my problem is. I ate a little supper with everybody and now have diarrhea again so I've decided to just call it a day and go to bed. Here's a picture of the moose. He wouldn't appreciate his photo being online so don't tell anyone
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Hi Paxton,
That is one nice harvest for the freezer! DH just got back and didn't even see a deer, nor did his brother. The weather has turned off real hot again here and nothing moved today. I don't blame you for feeling emotional. You probably feel like you were "abandoned" this week and in a way, you were, because you felt badly, plus you didn't get to hunt. I think bf owes you a lot of cuddling and attention and pampering!
Maybe the moon phase is our problem. This has been my worse day yet. I have had diarrhea all day, out of the blue, and have been housebound except for a quick trip to the grocery store where I felt like everyone was staring at me, and that's not the normal me to feel paranoia like that, even with no hair. DH was supposed to hunt until noon, but just walked in about 9:30, and though I didn't show it, I was a bit miffed at him for being gone all day and me sick when I really wanted him home to take care of (pity?) me.
Pax, do you know what is triggering your diarrhea and is this a common symptom after chemo? I hope you get relief soon and hope you get a good night's sleep. Tomorrow will be better. Take care...
Mary Jo
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Hi Marietta,
Thanks for sharing your experience with the water weight gain. Oddly, my clothes are still fitting also, and I've noticed some slight swelling in my fingers and feet, probably due to decreased activity. I've tried to change my diet a bit, and I've ended up with diarrhea all day. Not sure where that has come from. This has just been a depressing day for some reason. It seems I'm ok during the week when I'm at work, but the weekends are getting harder. Too much time alone thinking, I believe. I love Italian food and when I start feeling better, I plan to dive into a pan of lasagna asap. I know that will make me feel better
Thanks and take care everyone!
Mary Jo
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Hi Paxton,
Of course you were emotional! Think of all that you have been through since your diagnosis -- and you are feeling sick with the silly diarrhea for days which drains your system anyway. Hang in there! I can't wait to find out how the moose meat tastes. I hope you have a much better day today and that today is the day that your diarrhea diminishes so you can start to feel a little better.
Laurie
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Soda crackers are my mainstay, because I am taking some pretty horrific hard on the gut meds for back pain, I swear I wake up with a soda cracker in my mouth. It's like grab a cracker, grab the water bottle, try to chew without moving, get one cracker down, drink water, take a pill or (ten) eat a cracker drink some water and just lie there for about half an hour. Then I can get up and get going on some things. Today is turkey day, so i am letting the pills work now as i sit and wait to get going on all the fixings for the day. Nice cup of tea (why have I gone off coffee?) and typing. What could be better... lol. Back to work for me on Tuesday, I Am going to have to set my clock an hour earlier just to get UP, then I still have a couple of weeks of work before next tx. I will cross my fingers that I follow this "pattern" where day 4 and 5 post chemo are "Do not pass Go, Do not Collect 200 dollars and Do not plan on being up more than a few hours" so that I can continue with my full time job at least 90% of it. But I do have some vacation if I have to use it. That'll go down in the books - So Karyll, how was your vacation? Are you going away this year? (I travel every year usually), I'll just say yup, all the way to the cancer clinic, the pharmacy, my bed and my bathroom!!! Woohooo. Just think this time next year, I might be taking a REAL holiday. Have a great day everyone!
Karyll
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- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team