Anyone starting Chemo in August 07?
Comments
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Hey Jackie -
"Assume the Position" - lol!!
My daughter noticed last night that when she sat in "my" spot on the couch she sank down and felt metal underneath...Hmmmmn. Maybe I'll get a new couch out of this when it's all over!
So after today, you'll be HALFWAY THROUGH!!! That's big.
Yes, next week is my last (4th of 4 tx of TC). Then rads sometime in Nov. I'm half aprehensive and half numb. #3 took me for a little ride, so I'm concerned that might happen again - and we'll be having a house guest for 4 days (my daughter's boyfriend, coming to meet the family!) But, knowing me, it will probably be GREAT because I'll rise to the challenge and not let myself drool on the couch and bump into walls. I don't need to LOOK like anything, all I need to be is coherent. It'll be fine. (And if it's not, it'll be a great story years later!)
Hope all goes well for you today! You know I'm praying.
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June--how did your chemo go last week? Hope it was better than the previous round.
Kaye--That is very cool that the end of chemo is in sight. I'm sorry you're having the nausea problems--that really blows (almost literally). The Emend really helped me last round. The trade-off is that you feel like someone nailed you with a stun gun, but it's better than barfy.
Hope everyone is doing OK this week.
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Kaye,
Sorry, but I have been in and out for the past couple of days, and didn't see your post...
I got a Rx for Relpax since I have been getting those migraine-headaches for the past few years with no success getting rid of them. I think they were hormone-related, since I am in very premature menopause due to an auto immune condition -- premature ovarian failure, dx'd at 35... I just got my onc's nurse to write a Rx for Relpax, and I filled it, but since I seem to be taking so many medications, I haven't tried it yet. I am anticipating getting them, especially when I start the dreaded hormone treatment which will take every last drop of estrogen out of my body.... sigh...sorry, I can't tell you how well it works, but my sister uses Relpax and she LOVES it! I was given a sample of Imitrex.... or something (I have chemo brain!) Anyway, it didn't work very well, last year when I tried it.
I'll try it when I start my Tamoxifen or other dreaded hormone treatment... then I'll post to let everyone know how it works.
Good Luck!
Harley
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Jackie,
How are you? Is today your LAST tx?? or just your LAST AC tx?Thinking of you and praying that you are doing well...
Kaye,
Did you say that your LAST tx is coming up? Is it this week?
Thinking about you, and I'm praying you breeze through it!My last TC tx is on Oct. 9th, and I can't wait! Then it's on to the Reconstruction on Nov 7th! YIPPEE! Can't wait for this to be OVER! But, I will STILL have to get the hormone treatment...
God Bless,
Harley
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Hi Ladies,
Jackie, I couldn't tell from the way it's recorded here ("22 hours ago"..What the heck does THAT mean?? They need to tell me "Yesterday". or "In the wee hours of this morning" but DONT give me numbers!!!)...sorry... I just couldn't tell if you had your #4 by then or not. (I knew it was Wednesday...) How are you doing?
June (YellowTownHouse)...We haven't heard. We're getting nervous...How are you doing? You were in bed for a week after the last one, so I'm hoping last Friday went MUCH better
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Hi everyone!
I haven't been on lately. I've been selfish again and have been having pity parties all by myself. #3 was harder, I should have been reading all of the posts and realized it was okay to be stoned, barfy, and exhausted.
The cat scratch is better. I didn't need to get the antibiotic refilled. Now I'm waiting for the yeast infection. My primary increased my bs medicine for the day b4, day of, and day after so maybe I'll feel better after #4.
I so happy for everyone getting close to the end. After #4, I get to have 4 taxol. At my last one a lady got a Procrit shot and she yelled about how bad it hurts. I hope I don't have to get that one.
My tongue seems swollen and is sore. I've been using the Biotene. Tonight I tried the "magic" mouthwash. It burned and was numbing. I think I'll stick to the Biotene.
Thanks to everyone for being here.
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Hi everyone! Sorry that I haven't been on here lately either...no real excuses that haven't already been listed. It's just that by the time I work all day and come home the only place that appeals to me is the end of my couch in my den. Or as my son calls it, my lair! I don't know how I'll ever be able to summon up enough strength to be able to move next month! They might have to move the couch with me still laying on it!
I had my 3rd tx today and except for the headache, I feel pretty good... aske me how I feel again in 4 or 5 days and it will probably be a totally different story though. The onc said that my labs were GREAT today and couldn't believe that I'm getting along well without a Neulasta shot or any extra nausea meds. My main problems have been more with watery eyes, heartburn, exhaustion, and bowel issues. I'd rather have these (most days anyway) than the barfiness.
Since I only have to have 4 tx of AC, I'm in the homestretch with only 1 more to go. It will be on October 17...not that I'm counting or anything though!!!!
My hair is down to bald spots and fine stubble, not many eye lashes left, but my eyebrows are still all hanging in there. I haven't had to shave my underarms or legs for 5 or 6 weeks so that's been a plus! Maybe that hair won't grow back!!! One can only hope!
Hang in there ladies ~ Debbi
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You poor little Monkeyl!!!!!! Of course it's ok to be stoned, barfy and exhausted. Honey, Ya gotta do what ya gotta do. And I know what you mean with the pity party (However, I'm still not forgiving you for not inviting us.) For some reason after #3 there were about 3 (maybe more?) days (ok, all of last week.) where I just wanted to crawl under the couch. I don't consider myself a depressive person, but I was clearly possessed by one then. It was weird... nothing triggered it, no catastrophy, just blue. Period. Arrrgh. I hate that. (all fine now! It does go away.
) Yay with the cat scratch, Boo with the Yeast Infection. (I'm amazed I haven't had one yet - probably a matter of time.)
Procrit shots hurt? That doesn't sound fun. Then again, we gotta weigh the benefits against the side effects...
Hang in there, girl. Hope your week goes quickly.
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Hey Debbi,
I forgot you had to move next month - holy cow...how is THAT going to work? How far away - down the street or in the next state?
I'm glad your labs were so good, and it's great you've been doing so well without the Neulasta...feels good to be seeing the finish line, doesn't it? (Ok, so that's a "caution - crime scene" tape...whatever.)
I've had the whole bowel thing, too. Bloating, constipation. It's a drag. (literally.) but some of you have mentioned probiotics - so i bought some, and I THINK it's helping the bloating. I dunno. I burp so loud I scare myself.
I hope this week goes quickly (and uneventfully) for you.
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Yep, Harley,
"The Last" tx #4 of 4 TC is a week from today, Oct. 3rd. I'm about 7 days ahead of you, aren't i?
I've got an appt. w/ a rad onc 3 weeks after that, then I don't know how many tx's will start sometime in Nov., then the Tamoxifin (or whatever it is they decide on...I need to look into it again to refresh my memory.)
I bet you're looking forward to the recon. Fortunately, I don't have to have any more surgery. I just want a tummy tuck. ok I want a stomach transplant. A tuck isn't going to cut it by the time I figure out how to stop eating. It will require major reconstruction and complete removal of this prodigous and continually expanding abdomen. Maybe they can sell it to a State Fair for a kids amusement area..you know, where kids can bounce and bounce until they get sick and heave up their cotton candy all over their moms.
That kinda place.
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Kaye,
You are TOO funny! I am picturing a ride at the amusement park, kind of like a trampoline! lolI have been SO HUNGRY since starting txs, because of the steroids we have to take with the TC. I guess it's good, though, because I lost alot of weight from all the worrying while I was dx'd, and waiting for my mast.
I don't want more surgery, but my drs. wouldn't do the immediate reconstruction. Good thing, though, is that I will only need ONE surgery, since I will be getting the permanent expander/implant all in one...You ARE ahead of me, with the tx's! October 3rd isn't too far away!
Good luck with your last tx! Hope the rads won't be too harsh on your skin. I hear that the rads aren't as bad as they used to be, just as the chemo has been much improved. Also, I believe that they have some creams you can use to minimize any damage.
Harley
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Hi Girls,
I am halfway through my treatments!!!Done with A/C and in two weeks start taxol. my onc told me that if i did well with ac, taxol should be okay. i must thank each and every one of you because i would never have gotten through any of this without the information, encouragement, tears and laughter (especially from kaye..the resident comedian!!). i really mean that. with all the support from my family and friends...i look to you guys for the real support. let's face..only we know what we're going through, and when i read that we're all going through a lot of the same symptoms it makes me feel okay. not that any of us chose to go through this. but i feel we will all be better and stronger women.i will be getting radiation after chemo and i would LOVE to get a tummy tuck, because kaye, i could be in the new jersey carnival..bouncy machine for kids. and having my boobs removed makes my belly look sooooo big. but i never, ever, ever lose my appetite!
everyone, have a great day...feel good..
Love and hugs, Jackie
p.s.--i guess we'll all get a new couch out of this too!LOL
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Hello to Everyone,
Kaye and Nash and all the rest of this oh so wonderful club that my pitiful brain won't recall your names. I had my last (#4) A/C last Friday the 21st. She came a'calling again with even bigger sledge hammers than before! Today is the first day I've really even been out of bed since last Friday. My counts have been down even with the Neulasta so they gave me a Procrit injection in my IV last week. I go back to onc tomorrow for blood work so am anxious to see if some improvement. She had talked about the possibility of stopping the Neulasta when I start the 4 Taxol txs. However, the only way to do it is to just skip the injection after chemo and see what happens.....that's scary too! Speaking of which brings me to Stacy...have been praying and praying for her, so wish we could hear an update on how she is doing. My se after this last tx. were just the same as before.....total exhaustion, can't drink and can't eat. Again, I have not been able to go up and down the stairs....almost to weak to get out of bed and to the bathroom. I really had the headache much more severely this time for 3 days afterward and much more rib/neck/and shoulder pain from the Neulasta. Have you all had cummulative pain from the Neulasta? Am scheduled to begin the Taxol on Oct. 5th and would really like to hear from any of you all that are doing Taxol. My onc keeps saying it's soooo much easier than the A/C.....but she's been wrong about so many things that I am afraid to even be a little bit hopeful. Sorry ladies, I'm one of these that if it turns out better than I thought, then I'm elated. It's so wonderful to hear that so many of you are nearing the finish line with the damn A/C!!!!! I kind of feel a cross between having run (and won) the Boston Marathon or having been run over by a Mack truck!!!! In any event, the A/C and I have parted company/ totally divorced/ no reconcillation possible...ever!!!!!!!!!!!!!!!!!!! I do have to say though that the onc and surgeon do see regression of the tumors, especially in the two lymph nodes.....so to give her her due....she's doing her job I guess. By the way, I refer to "her" in the female gender, because only something feminine could be this strong!!! My love, prayers, support, and thoughts to each of you. Hang in my sisters, there WILL be a better day.
June
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Hi June,
I had my first taxol Monday 9/24, it really wasn't bad, It is much better than A/C......... Neulasta is what did me in this time, but here, 4 days later and feeling fine, almost 90%. Take extra strength tylenol for Neulasta pain and I am taking B6 for the tingling in my fingers and burning feet. So far taxol is much easier!
Take Care, tx end is around the corner for lots of us! Charlene
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Jackie,
Congratulations on reaching your HALFWAY point!! YIPPEE!!
Oh, and just so you know, we already ordered a new couch after my FIRST treatment!!! lol It should be delivered by the end of October, I think.
Since I am near the end of my treatments, with my last coming up on Oct. 9th, I just want you all to know that it has been great going through this with ALL the wonderful ladies on this thread, cheering each other through all the very different, yet similar experiences we have shared.
Hugs,
Harley
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Oh, June, I'm sorry to hear your last round was as bad as the previous one. I was worried when we hadn't heard from you. I hope the taxol will be easier.
Congrats on nearing the end of chemo, Harley. Woo hoo!
Hope everyone is feeling OK today.
Stephanie
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Hi June,
I just finished a/c yesterday and just got back from my neulasta. so far so good. i start taxol in 2 weeks and my onc. also promises it will be much easier. i hope so. sorry to hear about your se's. neulasta gets me about a week later. my whole body starts to feel like it's boiling(that's the only way to describe it), then I get low-grade fever and lots of bone pain, but it doesn't last too long. i am just constantly exhausted and my brain is on vacation. i think i still get the neulasta with taxol, i have to check.
i'm happy to hear that there is regression in your tumors. hang in there and stay strong. soon, this will be behind you.
lots of hugs, jackie
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harley,
i'm so happy for you. last tx October 9th. that is fantastic!!
the couch thing is so funny. i'm glad to hear you're getting a new one. Hang in there and stay tough. Do you have to get radiation?
lots of hugs, jackie
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Jackie,
No, I don't have to get rads, but I'll keep checking this thread for updates...and the radiation thread, if there is one... they keep changing this site around... maybe they just want to confuse us, since we are all so brain challenged, from the chemo...
I will be getting reconstruction on November 7th... I'll be getting implants (saline) with regular fills every couple of weeks til they are done. But at least I should be getting only ONE surgery, since I will get the permananent expander/implants so no exchange necessary.
An interesting development... I had my bi-lateral mast with axillary lymph node removal on May 2nd... and now, after my 2nd tx, I got a Neulasta shot in THE WRONG ARM!, I woke up with my left hand swollen. I called my surgeon, and the nurse scheduled me a 'fill in' appt. for tomorrow afternoon. So tomorrow morning, I go for bloodwork, then it's off to Whiteville to see my surgeon. I sure hope he knows what to do about the swollen hand... It hurts, too.
I don't know how I've made it this far, but I wouldn't have made it without you and the rest of the women here at this site!!
I know it is important to celebrate each milestone we reach in our bc journey...
God Bless,
Harley -
Hi Ladies,
Jackie - You DID it! DONE with AC! Sooooo great! (How many Taxol tx's will there be?)
Charlene - I'm glad the Taxol seemed easier. Does it follow a similar pattern (you know, "chemo week" is sorta lost then some sort of normal)?
June - You poor thing, I can't get over how you've struggled...it's absolutely awful. But, like Jackie - HOO-RAY. You DID IT!!! DONE with AC!! We're makin' it, girls...we're gonna get there. And, to amplify your analogy, you were CARRYING the Mack Truck when you RAN the BOSTON MARATHON. (And won! Good JOB!!) Is there a plan for future surgery?
Nash - Stephanie? "Stephanie???" You're not a Stephanie. You're a NASH. (And besides, my remaining brain cell will only hold a limited number of duplicate names. You're in the "Nash" slot forever. sorry.)
Have a good evening, girls!
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That's OK, Kaye, 'cause I'm also a Nash (maiden name).
Hope everyone has a good weekend! Hope we hear from Stacey's husband soon--I'm really concerned about her.
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Yes Nash, (and everybody)
Absolutely concerned about Stacey...Even my dh asks about her frequently.
I think something in him resonated with the fact that it was her husband asking for help...these poor guys. It's one thing to be us and going through it, (with the emotional lurches and swings and abrupt stops - plus the "stoned/barfy/exhausted" thing) but to have to watch helplessly while someone you love and want to protect goes through it... Brutal. He has said to me frequently - and I know he means it - that he wishes he could go through it instead of me. However, I think this way is MUCH better. (in our situation anyway). I'm SO glad it's me doing this and not him...
BTW: I wish there was a way to contact them (Stacey) directly. If something has happened, he may not want to or be able to get back on the board for some reason...On that track, if anyone wants my email address, PM me and it's yours. I intend to stay in touch with you girls for as long as you'll have me. I wonder how this works...I think we can still use this thread, can't we? Even when we're all done?
Ok. on to other things. I thought I'd take the bull by the horns and tackle the teary/twitchy/puffy eye thing. My eyes have been getting puffier by the week. I'm squinting as I write this...squinting and twitching. Lovely. So I tried an OTC allergy eye drop. nothing. Might have even made it puffier? Yesterday I tried Benedryl. Nothing. So, as previously suggested, PATIENCE, might be the only answer unless anyone has any other suggestions. (At least I had no headaches this time, and I'm not nauseated anymore.) Feelin' GOOD. (ok, twitchy, but GOOD.)
June - you'd asked if anyone had cumulative pain from Neulasta - I didn't have but 20 minutes (literally) of pain from Neulasta that first time. It was one week exactly from the shot, and nothing at all the second time. I'm not expecting any with the third (shot, 4th tx)...sorry i can't help.
Off to work, girls - Have a good day!
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Hi Everyone,
I'm joining this board pretty late in the game, but I've been following along with all of you through the last couple months. (I'm stage III, 7 of 8 nodes positive, ER+, Her2+, 39 years old). I don't know why I didn't join before. I guess I didn't realize how much support I would need, but it has been so helpful to know that so many of you are going through just what I'm doing, and we are surviving it! I started DD AC on August 10th and just finished my last one a week ago. Yahoo! I too have had the crazy watery, swimmy eyes that won't go away, but let's hope that our eyes return to normal now that the AC crud is done. I start weekly Taxol/Herceptin next Friday but I'm also wondering if I'm supposed to get Nuelasta with that?
Thanks for sharing of yourselves the past few weeks, even though you didn't know you were sharing with me. You've helped me more than you know, and I wish all of you well! Hopefully, I can support you too as we continue down chemo road together.
DeAnn
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Hi, DeAnn! Glad you joined us!
Don't know about Neulasta w/the Taxol, but I would guess you probably will get it. I know the taxanes are hard on the wbc, too. Hopefully a current taxol gal will have some input. I'm on FAC (5-Fu plus the AC).
There's a really good HER2 board in addition to the one at this site--it's www.her2support.org. I always refer the HER2+ ladies to it b/c it's such a wealth of info. My mom is Stage IV triple positive, and I've read the her2support board every day for five years. Amazing amount of info over there.
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Thanks, Nash! I'll try to check out the HER2 board too. I'm sort of an information fiend, so the more info I have the better I feel about everything!
DeAnn
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Hi DeAnn,
I received Neulasta after my 1st taxol. I called Onc office today and asked about shot after every taxol, they said yes. I started getting a head cold yesterday, nurse said to take something over the counter, it would be fine with all the drugs in my system.
Take Care Charlene
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HI Everybody,
I hope everyone is doing well. I'm actually feeling pretty good physically. My kids had the day off from school, and we went to Legoland. My son proceeded to tell the Australian people who were in line with us that I wasn't going on the ride because I'm getting chemotherapy and am bald. He's 8 and just too cute!
The past couple days have been tough emotionally. My best friend of over 30 years passed away from an aggressive brain tumor. I'm still in complete shock and denial. She was supposed to come help me after my bilat. mast. in July but ended up in the hospital because of the tumor. She had brain surgery 8 hours after I had my mast. It was so surreal and still is. I was unable to visit her in Northern Cal because of all my stuff, and it's sad, but I actually felt guilty for only having breast cancer while she had the brain tumor. It's just so incredibly tragic as she leaves behind her husband and 2 kids ages 4 and 6. Life is just so unfair sometimes.
Sorry to be such a downer, but I'm just trying to cope with this, and you all are such good listeners.
Eve
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Precious Eve - Please accept my condolences for your loss. I am so sorry... It is so unbelievably sad what life throws at us sometimes.
It is the reminder I need... Life is short. I'll be praying for you, and her little family.
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Welcome DeAnn, A gigantic welcome hug to ya.
(I'm glad you came out of hiding. I just knew you were there...I could hear you breathing!)
How many Taxol's are you getting? Will you do rads after that, too?
You and June (Yellowtownhouse) are starting your first Taxol's the same day!
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Hi Girls,
DeAnn- so glad you joined in. Even though you've been reading, speaking out will help you feel better. This is a great group and when I just peak in it's not the same as when I'm in the loop. Everyone makes me feel so much better. I just finished a/c on wens. and i will be getting taxol in 2 weeks for 4 txs. I am definitely scheduled to get neulasta shot for al tx, however they are taking away decadron(steroid) and emend and leaving me with kytril. I'm a little nervous about this because I barely ever get nauseau. I'll have to wait and see what happens.
Eve- I am so sincerely sorry for your loss. That is so sad. Sometimes I just don't understand the reason and logic for anything. Also, sometimes people don't understand that losing a dear friend is just as tragic and sad as losing a close family member. My deepest prayers go out to you and your family and her family also.
Harley-that is horrible about your arm. please let us know what happened at the doctor's. unbelievable. is anything ever easy???I guess we all already know the answer to that question.
Kaye- i have 4 taxol treatments to go. my squinty, puffy-used to be big-little eyes-watery and red- are being slightly helped by Visine A/C. it's been helping a lot. they still tear but it does subside for a while after use-however my eyes seem like they're shrinking so I hope my cancer is too!!!LOL.
Girls...I know this is a long note, but on a much lighter note, I wanted to let you all know that I went out to dinner with my husband last nite to celebrate my halfway chemo mark. It was Friday night and 2 days after chemo, but I felt good because of steroid meds. I reluctantly went because I just wasn't in the mood, but he dragged me along. Well-I had a whisky sour on the rocks and I never felt so good in months. I even forgot my whole situation. I ate everything that was put in front of me and really enjoyed my evening. I know I shouldn't say, but I had a glass of wine after that and a cup of cappuccino for dessert!! When I was done, I told my hubby I couldn't wait to tell all of you that maybe a glass of "something" naughty a day could keep the evil reactions away>LOL! Oh, and my eyes teared during dinner, but I could care less!!!!!
Anyway, I need to stop going on, but there is hope for normalcy and I hope you girls have a great weekend.!!!!Hugs, Jackie
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